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An exemplary model of genetic counselling for highly specialised services.
Harris, Juliette; Bartlett, Marion; Baker, Duncan; Berlin, Cheryl; Bowen, Jessica; Cummings, Carole; Fallows, Christina; Green, Claire; Griffin, Jared; Julier, Kay; Kammin, Tammy; Sehra, Ravinder; Stacey, Clare; Cobben, Jan; Ghali, Neeti; Johnson, Diana; Sobey, Glenda; van Dijk, Fleur S.
Afiliação
  • Harris J; National Ehlers-Danlos Syndrome Service, London North West University Healthcare NHS Trust, Harrow, London, HA1 3UJ, UK. juliette.harris1@nhs.net.
  • Bartlett M; North West Thames Regional Genetics Service, Northwick Park Hospital, London, UK.
  • Baker D; Connective Tissue Disorders Service, Sheffield Diagnostic Genetics Service, Sheffield Children's Hospital, Sheffield, UK.
  • Berlin C; North West Thames Regional Genetics Service, Northwick Park Hospital, London, UK.
  • Bowen J; National Ehlers-Danlos Syndrome Service, Northern General Hospital, Sheffield, UK.
  • Cummings C; National Ehlers-Danlos Syndrome Service, London North West University Healthcare NHS Trust, Harrow, London, HA1 3UJ, UK.
  • Fallows C; Annabelle's Challenge Vascular EDS Charity, Bury, UK.
  • Green C; National Ehlers-Danlos Syndrome Service, Northern General Hospital, Sheffield, UK.
  • Griffin J; Annabelle's Challenge Vascular EDS Charity, Bury, UK.
  • Julier K; The Ehlers-Danlos Support UK, Borehamwood, UK.
  • Kammin T; National Ehlers-Danlos Syndrome Service, Northern General Hospital, Sheffield, UK.
  • Sehra R; National Ehlers-Danlos Syndrome Service, London North West University Healthcare NHS Trust, Harrow, London, HA1 3UJ, UK.
  • Stacey C; Annabelle's Challenge Vascular EDS Charity, Bury, UK.
  • Cobben J; North West Thames Regional Genetics Service, Northwick Park Hospital, London, UK.
  • Ghali N; National Ehlers-Danlos Syndrome Service, London North West University Healthcare NHS Trust, Harrow, London, HA1 3UJ, UK.
  • Johnson D; National Ehlers-Danlos Syndrome Service, Northern General Hospital, Sheffield, UK.
  • Sobey G; National Ehlers-Danlos Syndrome Service, Northern General Hospital, Sheffield, UK.
  • van Dijk FS; National Ehlers-Danlos Syndrome Service, London North West University Healthcare NHS Trust, Harrow, London, HA1 3UJ, UK.
J Community Genet ; 14(2): 115-119, 2023 Apr.
Article em En | MEDLINE | ID: mdl-36892793
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Idioma: En Revista: J Community Genet Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Reino Unido
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Idioma: En Revista: J Community Genet Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Reino Unido