A Mixed-Method Study Exploring Patient-Experienced and Caregiver-Reported Benefits and Side Effects of Corticosteroid Use in Duchenne Muscular Dystrophy.

Fischer, Ryan; Porter, Katherine; Donovan, Joanne M; Scavina, Mena T; Armstrong, Niki; Denger, Brian; Hasham, Shabir; Peay, Holly

Fischer, Ryan; Porter, Katherine; Donovan, Joanne M; Scavina, Mena T; Armstrong, Niki; Denger, Brian; Hasham, Shabir; Peay, Holly.

Afiliação

Fischer R; Parent Project Muscular Dystrophy, Washington DC, United States.
Porter K; RTI International, Research Triangle Park, NC, United States.
Donovan JM; Catabasis Pharmaceuticals, Boston, MA, United States.
Scavina MT; Nemours Children's Health, AI duPont Division of Neurology, Wilmington, DE, United States.
Armstrong N; Parent Project Muscular Dystrophy, Washington DC, United States.
Denger B; Parent Project Muscular Dystrophy, Washington DC, United States.
Hasham S; Santhera Pharmaceuticals, Liestal, Switzerland.
Peay H; RTI International, Research Triangle Park, NC, United States.

J Neuromuscul Dis ; 10(4): 593-613, 2023.

Article em En | MEDLINE | ID: mdl-37182893

Assuntos

Cuidadores; Distrofia Muscular de Duchenne; Adulto; Humanos; Prednisona/efeitos adversos; Distrofia Muscular de Duchenne/tratamento farmacológico; Corticosteroides/efeitos adversos; Glucocorticoides/efeitos adversos

Palavras-chave

Duchenne; Steroids; corticosteroids; satisfaction; side effects; standard of care

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidadores / Distrofia Muscular de Duchenne Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Adult / Humans Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

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