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Challenges and solutions to cancer-related financial toxicity according to Australian health professionals: qualitative results from a national survey.
McLoone, Jordana; Chan, Raymond J; Varlow, Megan; Whittaker, Kate; Lindsay, Daniel; Thamm, Carla; Leigh, Lillian; Muir, Laura; Mackay, Gillian; Karikios, Deme J; Hunt, Lee; Hobbs, Kim; Goldsbury, David E; Nabukalu, Doreen; Gordon, Louisa G.
Afiliação
  • McLoone J; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital NSW, Sydney, New South Wales, Australia. J.McLoone@unsw.edu.au.
  • Chan RJ; Discipline of Paediatrics & Child Health, UNSW Medicine & Health, Randwick Clinical Campus, University of NSW, Sydney, New South Wales, Australia. J.McLoone@unsw.edu.au.
  • Varlow M; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
  • Whittaker K; Cancer Council Australia, Sydney, New South Wales, Australia.
  • Lindsay D; Cancer Council Australia, Sydney, New South Wales, Australia.
  • Thamm C; Faculty of Medicine, University of Queensland, Brisbane, Herston, Australia.
  • Leigh L; QIMR Berghofer Medical Research Institute, Population Health Department, Brisbane, Herston, Australia.
  • Muir L; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
  • Mackay G; Rare Cancers Australia, Bowral, New South Wales, Australia.
  • Karikios DJ; Cancer Council NSW, Sydney, New South Wales, Australia.
  • Hunt L; Clinical Oncology Society of Australia, Sydney, New South Wales, Australia.
  • Hobbs K; Department of Medical Oncology, Nepean Hospital, Kingswood, New South Wales, Australia.
  • Goldsbury DE; Sydney Medical School, University of Sydney, Sydney, New South Wales, Australia.
  • Nabukalu D; Cancer Voices NSW, Sydney NSW, Australia.
  • Gordon LG; Oncology Social Work Australia & New Zealand/Westmead Hospital NSW, Westmead, New South Wales, Australia.
Support Care Cancer ; 31(7): 441, 2023 Jul 04.
Article em En | MEDLINE | ID: mdl-37402039
ABSTRACT

PURPOSE:

To qualitatively explore Australian healthcare professionals' perspectives on how to improve the care and management of cancer-related financial toxicity, including relevant practices, services, and unmet needs.

METHODS:

We invited healthcare professionals (HCP) who currently provide care to people with cancer within their role to complete an online survey, which was distributed via the networks of Australian clinical oncology professional associations/organisations. The survey was developed by the Clinical Oncology Society of Australia's Financial Toxicity Working Group and contained 12 open-ended items which we analysed using descriptive content analysis and NVivo software.

RESULTS:

HCPs (n = 277) believed that identifying and addressing financial concerns within routine cancer care was important and most believed this to be the responsibility of all HCP involved in the patient's care. However, financial toxicity was viewed as a "blind spot" within a medical model of healthcare, with a lack of services, resources, and training identified as barriers to care. Social workers reported assessment and advocacy were part of their role, but many reported lacking formal training and understanding of financial complexities/laws. HCPs reported positive attitudes towards transparent discussions of costs and actioning cost-reduction strategies within their control, but feelings of helplessness when they perceived no solution was available.

CONCLUSION:

Identifying financial needs and providing transparent information about cancer-related costs was viewed as a cross-disciplinary responsibility, however, a lack of training and services limited the provision of support. Increased cancer-specific financial counselling and advocacy, via dedicated roles or developing HCPs' skills, is urgently needed within the healthcare system.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Estresse Financeiro / Neoplasias Tipo de estudo: Health_economic_evaluation / Qualitative_research Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: Support Care Cancer Assunto da revista: NEOPLASIAS / SERVICOS DE SAUDE Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Austrália

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Estresse Financeiro / Neoplasias Tipo de estudo: Health_economic_evaluation / Qualitative_research Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: Support Care Cancer Assunto da revista: NEOPLASIAS / SERVICOS DE SAUDE Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Austrália