Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study.
Int J Qual Stud Health Well-being
; 18(1): 2238984, 2023 Dec.
Article
em En
| MEDLINE
| ID: mdl-37490576
ABSTRACT
PURPOSE:
Being a family member to someone who has amyotrophic lateral sclerosis (ALS) is demanding and often requires sacrificing a lot. Family members can experience fatigue, anxiety, guilt and need support. The aim was to explore registered nurses' (RNs') experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC).METHODS:
A qualitative explorative design. Interviews were conducted with RNs (n = 11) from five SPHCs in Sweden and analysed using qualitative content analysis.RESULTS:
The results emerged in the following categories"To support in an increasingly difficult everyday life", based on the sub-categories "Creating a trusting relationship", "Balancing between the needs of patients and their families", and "Sharing knowledge about dying to the families";"To support in emotionally challenging situations", based on the sub-categories "Harbouring family members' difficult feelings", "Providing support even though the situation is unpleasant" and "Being able to give support by receiving confirmation and support from others".CONCLUSIONS:
RNs working in SPHC have an important role in providing support in several ways to the families of patients with ALS, through facilitating their everyday life and giving emotional support when needed, based on the needs of both patients and the families.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Serviços de Assistência Domiciliar
/
Esclerose Lateral Amiotrófica
/
Enfermeiras e Enfermeiros
Tipo de estudo:
Qualitative_research
Limite:
Humans
Idioma:
En
Revista:
Int J Qual Stud Health Well-being
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Suécia