From Surviving to Living (on): A Grounded Theory Study on Coping in People with Pancreatic Cancer.
J Patient Exp
; 10: 23743735231215605, 2023.
Article
em En
| MEDLINE
| ID: mdl-38148769
ABSTRACT
Little research has been conducted on the experience of pancreatic cancer from a patient's perspective. Several factors suggest that trajectory models of chronic illness or other cancers cannot be applied to pancreatic cancer. Within this grounded theory study, 26 problem-centred interviews were conducted with people with pancreatic cancer from Germany. A cancer-specific trajectory model was developed, depicting both curative and palliative courses. Two successive phases form the core Immediately after diagnosis, there is an acute phase in which patients focus on mere survival, attempt to overcome the short-term consequences of pancreatic cancer and search for information. This initial phase is followed by a circular phase of living on with pancreatic cancer, characterized by adaptation to the long-term consequences of the disease and a repeated experience of fear of recurrence or progression and threat in the context of follow-up examinations. Understanding disease trajectories from a patient's perspective enables health professionals better to understand patients' needs, concerns, and fears and better support them in coping. Trial registration German Clinical Trials Register, DRKS00020251, 13.01.2020.
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Coleções:
01-internacional
Base de dados:
MEDLINE
Idioma:
En
Revista:
J Patient Exp
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Alemanha