Using a community engaged research approach to develop the social skills training program for adults with Williams syndrome.
J Intellect Disabil
; : 17446295241245783, 2024 Apr 05.
Article
em En
| MEDLINE
| ID: mdl-38578112
ABSTRACT
This article describes the development of a distance-delivered social skills training program for adults with Williams syndrome (SSTP-WS) through a community engaged approach. Throughout six phases of development, the research team received input from adults with Williams syndrome, caregivers, service providers, educators, and researchers on (a) the need for a training program and topics to be addressed (Phase 1), (b) an initial draft of the SSTP-WS (Phase 3), (c) the intervention pilot study (Phase 5), and (d) feedback to provide context for the results of the study (Phase 6). The development of the SSTP-WS resulted in an intervention aligned with the Williams syndrome community's values and needs that supports the unique cognitive and behavioral phenotypes and social characteristics of this low incidence disability population.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Idioma:
En
Revista:
J Intellect Disabil
Assunto da revista:
TRANSTORNOS MENTAIS
Ano de publicação:
2024
Tipo de documento:
Article
País de afiliação:
Estados Unidos