Unpacking how trust, communication and flow interact to sustain quality relationships between disabled people, family and support workers: a realist qualitative study.

ABSTRACT

PURPOSE: Many disabled people require support workers to complete personal care, daily tasks and participate in life roles. Due to the intimate nature of community disability support in domestic environments, understanding what facilitates positive relationships is paramount. We examined the intricate interplay of context and mechanisms that drive positive relationship outcomes for disabled people, their family members and support workers. METHODS: A realist-informed, participatory methodology involving three participant groups disabled people, family members, and disability support workers. RESULTS: Sixteen participants participated in two workshops per group (5 disabled people, 5 family members, and 6 disability support workers). All three participant groups prioritised three key generative mechanism processes involved in positive relationship outcomes: (1) having clear communication, (2) building trust, and (3) developing a sense of flow. We describe how each mechanism manifested in a unique way for each group, and also how the activation of each mechanism was influenced by a dynamic resources/tensions balance specific to each group. CONCLUSION: We describe the interaction between three mechanism processes involved in triadic relationships between disabled people, family members, and support workers. Attention is now required to explore strategies to negotiate the resource/tension balance particular to each group.

Clear communication, building trust, and developing flow are crucial mechanisms necessary for positive and sustainable relationships between disabled people, family members, and support workers.However, we need to consider the intricate interplay of these mechanisms within triadic relationships between disabled people, family members, and support workers when enacting strategies to support sustainable relationships.By understanding the specific ways these mechanisms are activated differently for disabled people, family, and support workers, rehabilitation professionals can better tailor community care processes.This will promote greater efficacy of disability support systems and inform more effective, strategic distribution of resources.