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1.
J Cancer Educ ; 31(1): 70-4, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-25572462

RESUMEN

Patients treated for lung cancer are often elderly presenting a unique challenge for developing patient education materials. This study developed and evaluated a patient education pamphlet on lung stereotactic body radiotherapy (SBRT) designed specifically for an elderly population. The SBRT pamphlet was developed using a participatory design involving a convenience sample of patients. This prospective study assessed patient's opinions of pamphlet effectiveness through self-report questionnaires. The pamphlet was deemed "effective" if patients rated 16/18 evaluation statements as "strongly agree" or "agree." Demographic data and health literacy (Rapid Estimate of Adult Literacy in Medicine short-form (REALM-SF)) were also assessed. Patient opinion of pamphlet "effectiveness" was compared between patients with REALM-SF scores of 7 versus <7 using Fisher's exact test. The overall EQ-5D-5L score was compared for patients who did and did not find the pamphlet effective using the Wilcoxon-Mann-Whitney test. Thirty-seven patients participated. The median age was 76 years (range 56-93) and 22 patients (59 %) had ≤high school education. Most patients preferred to have verbal (65 %) or written (78 %) educational materials as opposed to online information or educational classes. Thirty-two patients (86 %) rated the pamphlet as effective. The proportion of patients who found the pamphlet effective was 85.7 versus 86.7 % (p = 1.00) in those with REALM 7 versus <7. The mean EQ-5D score was 67.5 (SD 19.1) versus 71.8 (SD 8.7) (p = 0.84) in those who found the pamphlet effective versus not. Participatory design is an effective method for developing education materials for challenging patient groups such as elderly patients. Despite advanced age and comorbidity, this patient group had adequate health literacy.


Asunto(s)
Carcinoma de Pulmón de Células no Pequeñas/prevención & control , Conocimientos, Actitudes y Práctica en Salud , Alfabetización en Salud , Neoplasias Pulmonares/prevención & control , Educación del Paciente como Asunto , Materiales de Enseñanza , Adenocarcinoma/prevención & control , Anciano , Anciano de 80 o más Años , Carcinoma de Células Grandes/prevención & control , Carcinoma de Células Escamosas/prevención & control , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Folletos , Pronóstico , Desarrollo de Programa , Estudios Prospectivos , Autoinforme
2.
Health Expect ; 18(6): 3088-98, 2015 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-25382413

RESUMEN

OBJECTIVES: In response to the dearth of consumer health information for patients with gastrointestinal cancers, this study examined the informational needs of these patients to build a plan for future resource development. Although studies have examined informational needs of some such cancers, no published literature has investigated the comprehensive informational needs across all sites of gastrointestinal cancer. METHODS: A cross-sectional needs assessment comprising a self-administered questionnaire was conducted at an ambulatory gastrointestinal oncology clinic in Toronto, Canada. Patient informational needs were measured, including importance of information, amount desired and preferred mode of delivery. Informational needs were grouped into six domains: medical, practical, physical, emotional, social and spiritual. RESULTS: Eighty-two surveys were analysed. The majority of the respondents were male (53.8%), over the age of 50 (77.8%), and born outside of Canada (51.9%). While many did not speak English as a child (46.3%), and do not speak English at home (22.2%), nearly all indicated comfort with receiving health information in English (97.5%). The majority of respondents were college educated (79.3%) and married (73%). Multiple cancer types were reported; the most common being colorectal (39%), followed by pancreatic (12%) and cancers of the gallbladder or bile duct (12%). Overall, respondents placed highest importance on medical information (P < 0.001). Preferred education modalities were pamphlets, websites and one-on-one discussions with health-care professionals. CONCLUSIONS: This study highlights the principal informational needs of patients with gastrointestinal malignancies, along with preferred modality for information delivery. This information will guide the development of educational resources for future patients.


Asunto(s)
Información de Salud al Consumidor , Neoplasias Gastrointestinales , Evaluación de Necesidades , Educación del Paciente como Asunto , Adulto , Anciano , Anciano de 80 o más Años , Canadá , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Apoyo Social , Encuestas y Cuestionarios
3.
J Cancer Educ ; 30(4): 685-92, 2015 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-25355524

RESUMEN

Lung cancer survivors are likely to have low health literacy which is an independent risk factor for poorer health outcomes. The eHealth literacy in lung cancer survivors has not been reported. The purposes of this study were to determine self-perceived eHealth literacy levels in lung cancer survivors and to explore predictors of higher eHealth literacy. A cross-sectional study was conducted at the Princess Margaret Cancer Centre in Toronto, Canada. Survivors completed a survey that collected demographic, self-perceived eHealth literacy (using the eHealth Literacy Scale), and quality of life information. Tumor and treatment details were extracted from medical records. Demographic data was summarized using descriptive statistics and compared against those with high and low eHealth literacy using Fisher's exact test. Eighty-three survivors were enrolled over 7 months. Median age was 71 years (range 44-89); 41 survivors (49%) were male. Forty-six (55%) survivors had some college education or higher. Most had access to eResources (78%) via computer, Internet, or smartphone. Fifty-seven (69%) scored 5 or greater (7=excellent) on the overall health scale. Twenty-eight (33.7%) perceived themselves to have high eHealth literacy. There was no statistically significant correlation between eHealth literacy groups and age (p=1.00), gender (p=0.82), living situation (p=1.00), overall health (p=1.00), overall quality of life (QoL) (p=1.00), or histology (p=0.74). High eHealth literacy correlated with the level of education received (p=0.003) and access to eResources (p=0.004). The self-perceived eHealth literacy of lung cancer survivors is generally low.


Asunto(s)
Educación en Salud/métodos , Conocimientos, Actitudes y Práctica en Salud , Alfabetización en Salud , Neoplasias/prevención & control , Sobrevivientes , Telemedicina , Adulto , Anciano , Anciano de 80 o más Años , Estudios Transversales , Femenino , Estudios de Seguimiento , Humanos , Difusión de la Información , Internet , Masculino , Persona de Mediana Edad , Calidad de Vida
4.
J Int Neuropsychol Soc ; 20(4): 380-90, 2014 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-24621519

RESUMEN

Studies assessing cognitive functioning in women treated for breast cancer have used primarily standardized neuropsychological tests and examined accuracy and/or reaction time as outcome measures: they have been inconsistent in identifying the cognitive domains affected and the severity of deficits. In other contexts of neural development and disorders, measures of Intra-individual variability (IIV) have proven useful in identifying subtleties in performance deficits that are not captured by measures of central tendency. This article presents proof of concept that assessing IIV may also increase understanding of the cognitive effects of cancer treatment. We analyzed mean accuracy and reaction time, as well as IIV from 65 women with breast cancer and 28 age and education matched controls who performed the Conner's Continuous Performance Test, a "Go-NoGo" task. Although there were no significant differences between groups using measures of central tendency, there was a group × inter-stimulus interval (ISI) interaction for IIV Dispersion (p < .001). Patient Dispersion was more variable at shorter ISI than controls and less variable at long ISI, suggesting greater sensitivity to presentation speed. Interpretation of IIV differences requires further investigation. Our results suggest that future studies would benefit from designs that allow analysis of IIV measures in studies assessing cognition in cancer survivors.


Asunto(s)
Neoplasias de la Mama/complicaciones , Neoplasias de la Mama/psicología , Trastornos del Conocimiento/etiología , Trastorno Depresivo/etiología , Individualidad , Adulto , Estudios de Casos y Controles , Femenino , Humanos , Inhibición Psicológica , Escala del Estado Mental , Persona de Mediana Edad , Pruebas Neuropsicológicas , Tiempo de Reacción
5.
Support Care Cancer ; 22(9): 2409-15, 2014 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-24696083

RESUMEN

PURPOSE: Men receiving androgen deprivation therapy for prostate cancer have low knowledge of osteoporosis (OP) and engage in few healthy bone behaviors (HBBs). A multicomponent intervention was piloted in this population. Changes in OP knowledge, self-efficacy, health beliefs, and engagement in HBBs were evaluated. METHODS: A pre-post pilot study was performed in a convenience sample of men recruited from the Princess Margaret Cancer Centre. Men were sent personalized letters explaining their dual x-ray absorptiometry (DXA) results and fracture risk assessment with an OP-related education booklet. Participants completed questionnaires assessing OP knowledge, self-efficacy, health beliefs, and current engagement in HBBs at baseline (T1) and 3 months post-intervention (T2). Paired t tests and McNemar's test were used to assess changes in outcomes. RESULTS: A total of 148 men completed the study. There was an increase in OP knowledge (9.7 ± 4.3 to 11.4 ± 3.3, p < 0.0001) and feelings of susceptibility (16.5 ± 4.3 to 17.4 ± 4.7, p = 0.015), but a decrease in total self-efficacy (86.3 ± 22.9 to 81.0 ± 27.6, p = 0.007) from baseline to post-intervention. Men made appropriate changes in their overall daily calcium intake (p ≤ 0.001), and there was uptake of vitamin D supplementation from 44 % (n = 65) to 68 % (n = 99) (p < 0.0001). Men with bone loss (osteopenia or OP) had a greater change in susceptibility (1.9 ± 4.3 vs. -0.22 ± 4.2, p = 0.005) compared to men with normal bone density. CONCLUSIONS: Our results provide preliminary evidence that a multicomponent intervention such as the one described can lead to increased knowledge and feelings of susceptibility regarding OP and can enhance uptake of some HBBs.


Asunto(s)
Antagonistas de Andrógenos/efectos adversos , Densidad Ósea , Fracturas Óseas/diagnóstico por imagen , Osteoporosis/inducido químicamente , Osteoporosis/diagnóstico por imagen , Educación del Paciente como Asunto , Neoplasias de la Próstata/tratamiento farmacológico , Absorciometría de Fotón , Anciano , Anciano de 80 o más Años , Antagonistas de Andrógenos/uso terapéutico , Fracturas Óseas/etiología , Humanos , Conocimiento , Masculino , Persona de Mediana Edad , Osteoporosis/complicaciones , Proyectos Piloto , Autoeficacia
6.
J Med Libr Assoc ; 102(2): 78-84, 2014 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-24860261

RESUMEN

OBJECTIVES: The criteria for determining whether resources are included in consumer health library collections are summarized in institutional collection development policies (CDPs). Evidence suggests that CDPs do not adequately capture all of these criteria. The aim of this study was to describe the resource review experience of librarians and compare it to what is described in CDPs. METHODS: A phenomenological approach was used to explore and describe the process. Four consumer health librarians independently evaluated cancer-related consumer health resources and described their review process during a semi-structured telephone interview. Afterward, these librarians completed online questionnaires about their approaches to collection development. CDPs from participating libraries, interview transcripts, and questionnaire data were analyzed. Researchers summarized the findings, and participating librarians reviewed results for validation. RESULTS: Librarians all utilized similar criteria, as documented in their CDPs; however, of thirteen criteria described in the study, only four were documented in CDPs. CONCLUSIONS: CDPs for consumer health libraries may be missing important criteria that are considered integral parts of the collection development process. IMPLICATIONS: A better understanding of the criteria and contextual factors involved in the collection development process can assist with establishing high-quality consumer health library collections.


Asunto(s)
Información de Salud al Consumidor , Bibliotecólogos , Desarrollo de la Colección de Bibliotecas , Canadá , Humanos , Italia , Bibliotecas Médicas , Evaluación de Necesidades , Política Organizacional , Encuestas y Cuestionarios
7.
J Cancer Educ ; 29(2): 289-95, 2014 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-24390589

RESUMEN

Recent media attention about radiation has led to heightened public awareness and concern about radiation therapy (RT). An understanding of concerns and their potential role in patient decision-making can inform education efforts. A multiphase needs assessment survey was designed to ascertain broad public perceptions of radiation (phase I) and the more in-depth cancer patient perceptions of RT (phase II). One hundred forty-six phase I and 111 phase II surveys were completed. Data suggested a prevalence of negative connotations of the word "radiation," often associated with information from the media or secondhand experience. Side effects during and after RT were reported as concerns, including misperceptions about becoming radioactive and impact on fertility. Rankings of quality and safety perceptions suggested confidence in staff training and equipment, though concerns regarding overdoses and protection of healthy tissue were higher amongst those who refused RT. In deciding whether or not to undergo RT, high value was placed on the reputation of the cancer centre and the expected effectiveness of RT. The importance of understanding RT was more highly regarded by those who underwent RT than those who refused it. Perceptions of RT should thus be addressed amongst those in a position to consider RT, to maximize RT utilization where appropriate.


Asunto(s)
Actitud Frente a la Salud , Toma de Decisiones , Conocimientos, Actitudes y Práctica en Salud , Neoplasias/psicología , Neoplasias/radioterapia , Educación del Paciente como Asunto/métodos , Percepción , Ansiedad , Miedo , Humanos
8.
J Cancer Educ ; 29(2): 304-10, 2014 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-24420003

RESUMEN

There is growing recognition of the importance of patient education given the prevalence and consequences of low health literacy in Canada and the USA. Research has shown that in addition to plain language, the use of theories of learning can contribute to the effectiveness of patient education resources, and as such, various guidelines and toolkits have been put together to help healthcare providers utilize these theories. Despite these efforts, this knowledge is not consistently applied in practice. To address this gap, we describe a new theory-based protocol, the "3Ws and an H," that is designed to guide healthcare providers in the production of effective patient education resources. Adult learning theory underpins each step of the process, and by using the "3Ws and an H," relevant theories are applied as the steps of the protocol are followed. To facilitate the adoption of this process, we describe it using a resource development project for survivors of endometrial cancer as an example.


Asunto(s)
Personal de Salud , Recursos en Salud/estadística & datos numéricos , Folletos , Educación del Paciente como Asunto/métodos , Técnicas Psicológicas , Adulto , Humanos , Difusión de la Información
9.
BJU Int ; 111(8): 1301-9, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23351062

RESUMEN

OBJECTIVES: To describe in patients with prostate cancer, receiving androgen-deprivation therapy (ADT): (i) knowledge, self-efficacy (SE), and health beliefs about osteoporosis (OP); (ii) current engagement in healthy bone behaviours (HBBs). To explore the relationships between knowledge, SE, and health beliefs, and engagement in HBBs. PATIENTS AND METHODS: 175 patients receiving ADT by injection completed questionnaires assessing current HBBs, OP knowledge, SE, and health beliefs (motivation, perceived susceptibility, and seriousness). Descriptive statistics and independent samples t-tests were used to assess relationships between knowledge, SE, health beliefs, and engagement in HBBs. RESULTS: Only 38% of patients had undergone a dual X-ray absorptiometry scan in the past 2 years. OP knowledge was low (mean [sd, range] 9.6 [4.4, 0-19]) and perceived SE moderate (84.7 [24.5, 0-120]). Health motivation was fairly high (23.6 [3.1, 6-30]), but perceived susceptibility (16.8 [4.3]) and seriousness (16.8 [4.2]) of OP were low. Few patients met the recommendations for vitamin D intake (42%) and exercise (31%), and 15% were at risk of over-supplementation of calcium. Patients taking calcium supplements (P = 0.04), and meeting guidelines for vitamin D (P = 0.008) and for exercise (P = 0.002) had significantly greater knowledge than those who did not. Patients who were engaging in less than four of five HBBs had lower knowledge (P < 0.001) and health motivation (P = 0.01) than those who were engaging in four or all five HBBs. CONCLUSIONS: Most patients who are receiving ADT are not receiving appropriate screening, lack basic information about bone health, and are not engaging in the appropriate HBBs. These findings support the application of the Health Belief Model in this population: interventions that teach patients about the implications of bone loss, encourage proper uptake of HBBs, and promote feelings of SE could increase engagement in HBBs to prevent and manage bone loss.


Asunto(s)
Antagonistas de Andrógenos/efectos adversos , Conductas Relacionadas con la Salud , Conocimientos, Actitudes y Práctica en Salud , Osteoporosis/inducido químicamente , Educación del Paciente como Asunto , Neoplasias de la Próstata/tratamiento farmacológico , Absorciometría de Fotón , Anciano , Anciano de 80 o más Años , Antagonistas de Andrógenos/uso terapéutico , Densidad Ósea , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Osteoporosis/prevención & control , Osteoporosis/psicología , Neoplasias de la Próstata/complicaciones , Estudios Retrospectivos
10.
Psychooncology ; 22(1): 117-24, 2013 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-21905162

RESUMEN

OBJECTIVE: Patients with breast cancer experience unmet informational and psychosocial needs at the end of treatment. A brief psychoeducational intervention delivered at this transition may help to address some of the challenges these women face. The purpose of this study was to test the effectiveness of a single-session group psychoeducational intervention (GBOT group) compared with standard print material (usual care). METHODS: In this randomized controlled trial, 442 patients with breast cancer who were completing their adjuvant radiotherapy were recruited and randomized to receive either usual care, which includes standard print material (CRL group n = 226) or usual care and the GBOT group intervention (INT group n = 216). Participants completed measures at baseline and again at 3 and 6 months post-intervention. RESULTS: The INT group showed significant improvement in their knowledge regarding the re-entry transition period (d = 0.31) and in their feelings of preparedness for re-entry (d = 0.37). There were no differences between the groups over time on health-related distress or mood. CONCLUSIONS: Results support the effectiveness of providing a single-session group psychoeducational intervention as a first-step approach to supportive care for women at the end of breast cancer treatment.


Asunto(s)
Neoplasias de la Mama/psicología , Neoplasias de la Mama/rehabilitación , Educación del Paciente como Asunto/métodos , Psicoterapia Breve , Psicoterapia de Grupo , Adulto , Anciano , Anciano de 80 o más Años , Neoplasias de la Mama/patología , Canadá , Emociones , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Modelos Logísticos , Persona de Mediana Edad , Evaluación de Programas y Proyectos de Salud , Estudios Prospectivos , Calidad de Vida/psicología , Factores Socioeconómicos , Estrés Psicológico , Resultado del Tratamiento
11.
Psychooncology ; 22(9): 2102-9, 2013 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-23505095

RESUMEN

BACKGROUND: Distress in husbands of women with early-stage breast cancer may be equivalent to or even higher than their wives. Husbands often struggle to help and support their wives cope with the illness and its treatment. In response, we developed a five-session group educational counselling intervention (Helping Her Heal-Group (HHH-G)) for husbands of women with early-stage breast cancer. The primary aim of the current pilot study was to determine the acceptability and feasibility of HHH-G and to obtain a preliminary estimate of its impact on participating men's skills, self-confidence and self care. Secondary aims were to assess the impact of the intervention on both the participating spouses' and wives' ratings of marital quality and depressed mood. METHODS: The study employed a one-arm, pre-post-intervention design whereby participating men (n=54) and their wives (n=54) independently completed measures at baseline (T0), immediately following the last session (T1) and 3 months after the last session (T2). RESULTS: Overall, there was very high study retention (87%). On the basis of the questionnaire data, we found significant improvements in spouses' self-efficacy (p<0.001) and self-reported skills including wife support (p=0.003) and self-care (p<0.001). In addition, there was a significant improvement in wives' mood scores (p=0.003). Post-intervention interviews support acceptability and impact of the HHH-G intervention, and provide support for the group format of the program. CONCLUSIONS: The feasibility and acceptability of HHH-G was supported, and treatment outcomes suggest the potential benefits of the intervention. Phase III evaluation of HHH-G program is warranted.


Asunto(s)
Neoplasias de la Mama/psicología , Consejo/métodos , Educación/métodos , Esposos/psicología , Adulto , Estudios de Factibilidad , Femenino , Conducta de Ayuda , Humanos , Masculino , Persona de Mediana Edad , Aceptación de la Atención de Salud , Proyectos Piloto , Autocuidado , Autoeficacia , Apoyo Social , Esposos/educación , Encuestas y Cuestionarios , Resultado del Tratamiento
12.
Support Care Cancer ; 21(8): 2117-24, 2013 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-23455454

RESUMEN

PURPOSE: Advances in breast cancer treatment have increased survival and contributed to longer periods of survivorship as reported by the Committee CCSsS (Canadian Cancer Statistics) (2011) and Hewitt et al. (2005), increasing the relevance of survivorship care. Survivorship care includes encouraging survivors to acquire the knowledge, skills and confidence to manage their life, as well as engaging survivors through post-diagnosis disease self-management and self-care strategies. The Survivorship Consult (SC) was designed to help survivors reflect on their needs, establish goals and create an action plan. METHODS: Twenty-six breast cancer survivors who participated in the SC at Princess Margaret Cancer Centre took part in semi-structured interviews to assess the survivor experience and effectiveness of the SC. Data from these interviews were coded, and themes were identified using a modified grounded theory approach. RESULTS: Themes that emerged regarding the experience and effectiveness of the SC included (1) the supportive experience of collaborative dialogue with supportive care clinicians (i.e. nurses, social workers, occupational therapists, etc.), (2) the development of personalized goals that motivated individuals to implement recommendations, (3) an enhanced understanding of their health condition, team and options, (4) an improved ability to identify needs and (5) an increased sense of confidence to manage issues related to care. CONCLUSIONS: The assessment of the SC improved the experience of breast cancer patients by providing a supportive environment where they could feel cared about, by increasing understanding of their condition and its treatment, by improving communication with the care team and by motivating patients to manage care issues. Further research is needed on survivors who conduct the SC before the treatment phase of their cancer trajectory.


Asunto(s)
Neoplasias de la Mama/terapia , Necesidades y Demandas de Servicios de Salud , Autocuidado , Sobrevivientes , Adulto , Anciano , Neoplasias de la Mama/enfermería , Canadá , Comunicación , Femenino , Humanos , Persona de Mediana Edad , Enfermeras y Enfermeros , Grupo de Atención al Paciente , Relaciones Profesional-Paciente , Autoimagen
13.
Gynecol Oncol ; 124(3): 452-7, 2012 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-22047740

RESUMEN

OBJECTIVES: In preparation for the launch of a gynecologic oncology survivorship program, this study looked at the informational needs of women with gynecologic cancers. Although studies have touched on some of these needs, no published literature has investigated the comprehensive informational needs of gynecologic oncology patients within all sites of gynecologic cancers. METHODS: A needs assessment, consisting of a self-administered questionnaire, was conducted at an ambulatory gynecologic oncology clinic from August 2010 to March 2011. This study investigated the informational needs of patients, including the importance of information, the amount desired, and the preferred mode of delivery. Informational needs were grouped into six domains: medical, practical, physical, emotional, social, and spiritual. RESULTS: 185 surveys were analyzed and the majority of the respondents were Caucasian (77%) and over the age of 50 (66%). Forty-nine percent of respondents were diagnosed with ovarian cancer, and there was an even distribution between newly diagnosed patients (38%), those in long-term follow-up (27%), and those with recurrent disease (37%). Overall, respondents placed more importance on receiving medical information (P<0.01). The three preferred education modalities were; pamphlets, one-on-one discussions with health care professionals and websites. Age, education, and disease site were associated with differing informational needs. CONCLUSIONS: This study has highlighted the most important informational needs of patients with gynecologic malignancies in our patient population. This information may guide the development of clinical survivorship programs and educational resources for patients in the future.


Asunto(s)
Información de Salud al Consumidor , Neoplasias de los Genitales Femeninos/psicología , Educación del Paciente como Asunto , Sobrevivientes/psicología , Femenino , Necesidades y Demandas de Servicios de Salud , Humanos , Persona de Mediana Edad , Encuestas y Cuestionarios
14.
BMC Med Inform Decis Mak ; 10: 46, 2010 Sep 01.
Artículo en Inglés | MEDLINE | ID: mdl-20809950

RESUMEN

BACKGROUND: Personal health records (PHRs) provide patients with access to personal health information (PHI) and targeted education. The use of PHRs has the potential to improve a wide range of outcomes, including empowering patients to be more active participants in their care. There are a number of widespread barriers to adoption, including privacy and security considerations. In addition, there are clinical concerns that patients could become anxious or distressed when accessing complex medical information. This study assesses the implementation of a PHR, and its impact on anxiety levels and perceptions of self-efficacy in a sample of breast cancer patients. METHODS: A quasi-experimental pre-test/post-test design was used to collect data from participants to evaluate the use of the PHR. Study participants completed background and pre-assessment questionnaires and were then registered into the portal. By entering an activation key, participants were then able to review their lab results and diagnostic imaging reports. After six weeks, participants completed post-assessment questionnaires and usability heuristics. All data were collected using an online survey tool. Data were cleaned and analyzed using SAS v9.1. RESULTS: A total of 311 breast cancer patients completed demographic and pre-assessment questionnaires, 250 registered to use the online intervention, and 125 participants completed all required study elements. Matching the pre- and post-anxiety scores demonstrated a decrease in mean anxiety scores (-2.2, p = 0.03); the chemotherapy sub-group had a statistically insignificant mean increase (1.8, p = .14). There was no mean change in self-efficacy scores. CONCLUSIONS: Participants generally found the portal easy to use; however, the perceived value of improved participation was not detected in the self-efficacy scores. Having access to personal health information did not increase anxiety levels. While these results suggest that the use of this PHR may be of benefit for informing patients, further research is required to investigate the impact on the patients experiences, their participation in their care, their relationships with the health care team, and their health outcomes.


Asunto(s)
Ansiedad/diagnóstico , Neoplasias de la Mama/psicología , Registros de Salud Personal/psicología , Acceso de los Pacientes a los Registros/psicología , Canadá , Escolaridad , Femenino , Humanos , Persona de Mediana Edad , Análisis Multivariante , Sistemas en Línea , Participación del Paciente , Psicometría , Investigación Cualitativa , Autoeficacia , Encuestas y Cuestionarios
15.
J Psychosoc Oncol ; 28(3): 269-90, 2010.
Artículo en Inglés | MEDLINE | ID: mdl-20432117

RESUMEN

The present analyses were conducted to examine demographic and clinical variables associated with mood and health-related distress in a sample of 440 women completing primary treatment for early-stage breast cancer. The authors' aim was to test the hypothesis that higher levels of self-efficacy and perceived preparedness for the end of treatment--the reentry phase--are associated with better mood and lower health-related distress in this sample. Women who had received chemotherapy and who were younger (<50 years) had significantly higher mood disturbance and health-related distress scores. Younger age, preparedness, and self-efficacy predicted 36% of the variance in mood disturbance scores. Self-efficacy and age predicted 26% of the variance in health-related distress. Although further research is needed, our findings suggest that self-efficacy and perceived preparedness represent important constructs to target in the development of interventions for women at the reentry transition.


Asunto(s)
Actitud Frente a la Salud , Neoplasias de la Mama/psicología , Neoplasias de la Mama/terapia , Trastorno Depresivo Mayor/etiología , Autoeficacia , Adolescente , Adulto , Trastorno Depresivo Mayor/diagnóstico , Femenino , Humanos , Persona de Mediana Edad , Índice de Severidad de la Enfermedad , Adulto Joven
16.
J Cancer Educ ; 25(3): 457-63, 2010 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-20383675

RESUMEN

Breast cancer survivors experience a wide range of survivorship issues that are not always adequately addressed. This study is an assessment of the Survivorship Consult (SC), a one-to-one clinician-led reflective interview used to capture a comprehensive summary of the survivor experience, to determine its impact on self-efficacy and the perceived likelihood that it initiates behavior change. Using a pre-test/post-test design, data were collected from participants (N = 40) using validated instruments and opened-ended questions to evaluate the SC. Participants found the SC to be a useful tool for planning and goal setting and improved self-efficacy as measured by the Cancer Behavior Inventory with an increase of 2.0 (p = 0.03). The SC demonstrates promise in improving the ability and confidence of breast cancer survivors to manage their care, but further research is required to understand the optimal implementation of this intervention and its impact on the delivery of survivorship services.


Asunto(s)
Neoplasias de la Mama/psicología , Rol del Médico , Autoeficacia , Sobrevivientes/psicología , Adulto , Anciano , Actitud Frente a la Salud , Femenino , Humanos , Entrevistas como Asunto , Persona de Mediana Edad , Evaluación de Resultado en la Atención de Salud , Relaciones Médico-Paciente , Proyectos Piloto , Pautas de la Práctica en Medicina/normas , Pautas de la Práctica en Medicina/tendencias , Autoimagen
17.
J Interprof Care ; 24(6): 710-21, 2010 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-20377401

RESUMEN

The introduction of a transformative technology into practice settings can affect the functioning of interprofessional teams, placing stress on interprofessional relationships, thus slowing adoption and change. This study explored the potential of an interprofessional education (IPE) approach to mediate this stress and facilitate the adoption of a transformative technology- Image Guided Radiation Therapy (IGRT). Oncologists, physicists, and therapists in radiation medicine who attended an interprofessional IGRT Education Course were interviewed about perceived benefits and stressors to IPE and to interprofessional practice (IPP) in the IGRT context. A modified grounded theory approach was used to conduct 14 interviews, with 200 minutes of interview time recorded. In introducing IGRT, participants noted interprofessional stress in understanding and adopting new technology. IPE offered common terminology, appreciation for others' knowledge, and a holistic framework for practice. Outcomes were thought to foster collaboration, efficiency, and improved professional role definition. Time constraints and power relations were noted to be residual stressors exacerbated by IPE, but were thought to be transient. IPE can thus be of benefit in the implementation of transformative technologies such as IGRT, through mediation of interprofessional stress inherent in change. Interprofessional knowledge, collaboration, and efficiency in practice facilitate the development and adoption of a new practice model.


Asunto(s)
Adaptación Psicológica , Técnicos Medios en Salud/educación , Difusión de Innovaciones , Comunicación Interdisciplinaria , Tecnología Radiológica , Humanos , Internacionalidad , Entrevistas como Asunto , Administración de la Práctica Médica , Estrés Psicológico
18.
J Healthc Inf Manag ; 24(1): 57-63, 2010.
Artículo en Inglés | MEDLINE | ID: mdl-20077927

RESUMEN

Personal health records (PHR) offer great promise in transforming the patient experience, but a number of support issues must be addressed to ensure that patients have appropriate access to their health information. Two hundred and fifty breast cancer patients registered to use a portal providing access to personal health information over a six-week period. All support calls were directed to a research triage centre and redirected either to technical, clinical or psychosocial support. Log files were coded and analyzed. Two hundred and thirty-nine support contacts were logged by 122 participants. The majority was referred to technical support; the remaining contacts were directed to clinical support. Seven categories of technical support were identified: registration problems, site access, login issues, password reset, activation key issues, result access and other difficulties. In accessing their test results, patients required support in a number of technical domains, but educational and psychosocial support were not heavily utilized.


Asunto(s)
Acceso a la Información , Pruebas Diagnósticas de Rutina , Registros de Salud Personal , Conducta de Ayuda , Pacientes , Humanos , Estados Unidos
19.
Ann Acad Med Singap ; 36(9): 725-34, 2007 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-17925980

RESUMEN

INTRODUCTION: Academic difficulty can often be a significant problem for students in health professional programmes. Students in difficulty are often identified late in their training and run the risk of dismissal if remediation is not successful. Since the inception of the Medical Radiation Sciences Program (MRSP) at the University of Toronto, Faculty of Medicine, and the Michener Institute (MI) in 1999, a number of students have required remediation due to problems in the didactic or clinical component of their training. Not all remediation was successful, and a number of students have been dismissed. There is relatively sparse evidence in the educational literature regarding the nature of academic difficulties that health professional students encounter, and what constitutes appropriate remedial education. The purpose of this research was to evaluate the incidence and prevalence of remediation in the MRSP and the nature of the academic problems. In addition, this study looked at the type of remedial instruction that the Radiation Sciences Board of Examiners (BOE) recommended for these students as well as the effectiveness of these recommendations. MATERIALS AND METHODS: This study consisted of a review of the academic records of students who failed one or more courses and underwent pre-clinical or clinical remediation, and who were presented at the Medical Radiation Sciences Board of Examiners at the University of Toronto between September 1999 and December 2004. Data extraction forms were developed to obtain demographic information, the nature of the academic problems, the remedial recommendation, and their outcomes. RESULTS: This study identified 69 students who were presented to the BOE 95 times. Forty-four students (44/69, 64%) were from the Radiation Therapy stream, 16 students (16/69, 23%) were from the Nuclear Medicine stream and 9 students (9/69, 13%) were from the Radiographic Technology stream. Most of the remediation occurred due to pre-clinical 50 (50/69, 72%), clinical 15 (15/69, 22%) and both preclinical and clinical problems 4 students (4/69, 6%). Out of 54 students who required pre-clinical remediation, 40 (74%) were promoted. Out of 19 students who required clinical remediation, 10 (10/19, 53%) passed their remediation. Six students (6/69, 9%) were dismissed from the programme due to unsuccessful remediation; 2 due to pre-clinical and 4 due to clinical problems. Based on these results, the remediation process at the MRSP was successful; however, 6 students (6/69, 9%) were dismissed from the programme during the last 4 years despite lengthy unsuccessful remediation. CONCLUSION: Our study provided an important perspective about the remediation process at the MRSP at the Michener Institute for Applied Health Sciences. Despite its retrospective methodology, it attempted to identify the magnitude of learning problems that lead to remediation, and identified the efficacy of the remedial programmes.


Asunto(s)
Educación Médica/normas , Oncología por Radiación/educación , Educación Compensatoria/métodos , Estudiantes de Medicina/psicología , Evaluación Educacional , Femenino , Humanos , Masculino , Ontario , Estudios Retrospectivos , Universidades
20.
Pract Radiat Oncol ; 7(6): e431-e438, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-28377137

RESUMEN

PURPOSE: Interprofessional, educational live simulations were compared with group discussion-based exercises in terms of their ability to improve radiation medicine trainees' ability to detect hazards and incidents and understand behaviors that may prevent them. METHODS AND MATERIALS: Trainees and recent graduates of radiation therapy, medical physics, and radiation oncology programs were recruited and randomized to either a simulation-based or group discussion-based training intervention. Participants engaged in hazard and incident detection, analysis, and a discussion of potential preventive measures and the concept of the "highly reliable team." A video examination tool modeled on actual incidents, using 5-minute videos created by faculty, students, and volunteers, was created to test hazard and incident recognition ability before and after training. Hazard and incident detection sensitivity and specificity analyses were conducted, and a survey of the participants' and facilitators' perceptions was conducted. RESULTS: Twenty-seven participants were assigned to the simulation (n = 15) or discussion group (n = 12). Hazard and incident-detection sensitivity ranged from 0.04 to 0.56 before and 0.04 to 0.35 after training for the discussion and simulation groups, respectively. The pre- and posttraining difference in sensitivity between groups was 0.03 (P = .75) for the minimum and 0.33 (P = .034) for the maximum reaction time. Participant perceptions of the training's educational value in a variety of domains ranged from a mean score of 6.58 to 8.17 and 7 to 8.07 for the discussion and simulation groups, respectively. Differences were not statistically significant. Twenty-six of the 27 participants indicated that they would recommend this event to a colleague. CONCLUSIONS: Participants' ability to detect hazards and incidents as portrayed in 5-minute videos in this study was low both before and after training, and simulation-based training was not superior to discussion-based training. However, levels of satisfaction and perceptions of the training's educational value were high, especially with simulation-based training.


Asunto(s)
Oncología por Radiación/educación , Liberación de Radiactividad Peligrosa , Entrenamiento Simulado/métodos , Femenino , Humanos , Masculino
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