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1.

Gene Therapy with Etranacogene Dezaparvovec for Hemophilia B.

Pipe, Steven W; Leebeek, Frank W G; Recht, Michael; Key, Nigel S; Castaman, Giancarlo; Miesbach, Wolfgang; Lattimore, Susan; Peerlinck, Kathelijne; Van der Valk, Paul; Coppens, Michiel; Kampmann, Peter; Meijer, Karina; O'Connell, Niamh; Pasi, K John; Hart, Daniel P; Kazmi, Rashid; Astermark, Jan; Hermans, Cedric R J R; Klamroth, Robert; Lemons, Richard; Visweshwar, Nathan; von Drygalski, Annette; Young, Guy; Crary, Shelley E; Escobar, Miguel; Gomez, Esteban; Kruse-Jarres, Rebecca; Quon, Doris V; Symington, Emily; Wang, Michael; Wheeler, Allison P; Gut, Robert; Liu, Ying P; Dolmetsch, Ricardo E; Cooper, David L; Li, Yanyan; Goldstein, Brahm; Monahan, Paul E.

N Engl J Med ; 388(8): 706-718, 2023 02 23.

Artículo en Inglés | MEDLINE | ID: mdl-36812434

2.

How I treat von Willebrand disorders in older adults.

Poston, Jacqueline N; Kruse-Jarres, Rebecca.

Blood ; 143(3): 197-204, 2024 Jan 18.

Artículo en Inglés | MEDLINE | ID: mdl-37672774

3.

Long-term outcomes with emicizumab prophylaxis for hemophilia A with or without FVIII inhibitors from the HAVEN 1-4 studies.

Callaghan, Michael U; Negrier, Claude; Paz-Priel, Ido; Chang, Tiffany; Chebon, Sammy; Lehle, Michaela; Mahlangu, Johnny; Young, Guy; Kruse-Jarres, Rebecca; Mancuso, Maria Elisa; Niggli, Markus; Howard, Monet; Bienz, Nives Selak; Shima, Midori; Jiménez-Yuste, Victor; Schmitt, Christophe; Asikanius, Elina; Levy, Gallia G; Pipe, Steven W; Oldenburg, Johannes.

Blood ; 137(16): 2231-2242, 2021 04 22.

Artículo en Inglés | MEDLINE | ID: mdl-33512413

4.

Consistency of serial ultrasonographic joint tissue measurements by the Joint _tissueActivity and Damage Exam (JADE) protocol in relation to hemophilic joint health parameters.

Barnes, Richard F W; Aguero, Peter; Hanacek, Cris; Flores, Andres; Steiner, Bruno; Bailey, Cindy; Quon, Doris V; Kruse-Jarres, Rebecca; von Drygalski, Annette.

BMC Musculoskelet Disord ; 24(1): 299, 2023 Apr 15.

Artículo en Inglés | MEDLINE | ID: mdl-37061676

5.

Diabetes, hepatitis C and human immunodeficiency virus influence hypertension risk differently in cohorts of haemophilia patients, veterans and the general population.

Barnes, Richard F W; Pandey, Braj; Sun, Haowei Linda; Jackson, Shannon; Kruse-Jarres, Rebecca; Quon, Doris V; von Drygalski, Annette.

Haemophilia ; 28(6): e228-e236, 2022 Nov.

Artículo en Inglés | MEDLINE | ID: mdl-35877992

6.

Blood pressure in persons with haemophilia with a focus on haemophilia-specific risk factors.

Ter-Zakarian, Anna; Barnes, Richard F W; Kruse-Jarres, Rebecca; Quon, Doris V; Jackson, Shannon; Sun, Haowei Linda; von Drygalski, Annette.

Haemophilia ; 28(6): 977-985, 2022 Nov.

Artículo en Inglés | MEDLINE | ID: mdl-35768896

7.

Risk of diabetes in haemophilia patients compared to clinic and non-clinic control cohorts.

Pandey, Braj; Barnes, Richard F W; Sun, Haowei Linda; Jackson, Shannon; Kruse-Jarres, Rebecca; Quon, Doris V; von Drygalski, Annette.

Haemophilia ; 28(3): 445-452, 2022 May.

Artículo en Inglés | MEDLINE | ID: mdl-35238443

8.

Emicizumab Prophylaxis in Patients Who Have Hemophilia A without Inhibitors.

Mahlangu, Johnny; Oldenburg, Johannes; Paz-Priel, Ido; Negrier, Claude; Niggli, Markus; Mancuso, M Elisa; Schmitt, Christophe; Jiménez-Yuste, Victor; Kempton, Christine; Dhalluin, Christophe; Callaghan, Michael U; Bujan, Willem; Shima, Midori; Adamkewicz, Joanne I; Asikanius, Elina; Levy, Gallia G; Kruse-Jarres, Rebecca.

N Engl J Med ; 379(9): 811-822, 2018 08 30.

Artículo en Inglés | MEDLINE | ID: mdl-30157389

9.

A multicenter, open-label phase 3 study of emicizumab prophylaxis in children with hemophilia A with inhibitors.

Young, Guy; Liesner, Ri; Chang, Tiffany; Sidonio, Robert; Oldenburg, Johannes; Jiménez-Yuste, Victor; Mahlangu, Johnny; Kruse-Jarres, Rebecca; Wang, Michael; Uguen, Marianne; Doral, Michelle Y; Wright, Lilyan Y; Schmitt, Christophe; Levy, Gallia G; Shima, Midori; Mancuso, Maria Elisa.

Blood ; 134(24): 2127-2138, 2019 12 12.

Artículo en Inglés | MEDLINE | ID: mdl-31697801

10.

Quantitative measurements of haemophilic joint tissues by point-of-care musculoskeletal ultrasound: Associations with clinical and functional joint outcome parameters.

Mesleh Shayeb, Akram; Barnes, Richard F W; Hanacek, Cris; Aguero, Peter; Steiner, Bruno; Bailey, Cindy; Quon, Doris; Kruse-Jarres, Rebecca; von Drygalski, Annette.

Haemophilia ; 27(5): 866-875, 2021 Sep.

Artículo en Inglés | MEDLINE | ID: mdl-34171150

11.

Emicizumab Prophylaxis in Hemophilia A with Inhibitors.

Oldenburg, Johannes; Mahlangu, Johnny N; Kim, Benjamin; Schmitt, Christophe; Callaghan, Michael U; Young, Guy; Santagostino, Elena; Kruse-Jarres, Rebecca; Negrier, Claude; Kessler, Craig; Valente, Nancy; Asikanius, Elina; Levy, Gallia G; Windyga, Jerzy; Shima, Midori.

N Engl J Med ; 377(9): 809-818, 2017 08 31.

Artículo en Inglés | MEDLINE | ID: mdl-28691557

12.

Urinary cross-linked carboxyterminal telopeptide, a bone resorption marker, decreases after vaso-occlusive crises in adults with sickle cell disease.

Adesina, Oyebimpe O; Jenkins, Isaac C; Wu, Qian V; Fung, Ellen B; Narla, Radhika R; Lipkin, Edward W; Mahajan, Kanika; Konkle, Barbara A; Kruse-Jarres, Rebecca.

Blood Cells Mol Dis ; 80: 102369, 2020 02.

Artículo en Inglés | MEDLINE | ID: mdl-31677454

13.

How I treat type 2B von Willebrand disease.

Kruse-Jarres, Rebecca; Johnsen, Jill M.

Blood ; 131(12): 1292-1300, 2018 03 22.

Artículo en Inglés | MEDLINE | ID: mdl-29378695

14.

Outcomes in children with hemophilia A with inhibitors: Results from a noninterventional study.

Oldenburg, Johannes; Shima, Midori; Kruse-Jarres, Rebecca; Santagostino, Elena; Mahlangu, Johnny; Lehle, Michaela; Selak Bienz, Nives; Chebon, Sammy; Asikanius, Elina; Trask, Peter; Mancuso, Maria Elisa; Jiménez-Yuste, Victor; von Mackensen, Sylvia; Levy, Gallia G.

Pediatr Blood Cancer ; 67(10): e28474, 2020 10.

Artículo en Inglés | MEDLINE | ID: mdl-32776489

15.

Bleeding and safety outcomes in persons with haemophilia A without inhibitors: Results from a prospective non-interventional study in a real-world setting.

Kruse-Jarres, Rebecca; Oldenburg, Johannes; Santagostino, Elena; Shima, Midori; Kempton, Christine L; Kessler, Craig M; Lehle, Michaela; Chebon, Sammy; Selak Bienz, Nives; Asikanius, Elina; Mahlangu, Johnny.

Haemophilia ; 25(2): 213-220, 2019 Mar.

Artículo en Inglés | MEDLINE | ID: mdl-30724422

16.

Health-related quality of life and health status in persons with haemophilia A with inhibitors: A prospective, multicentre, non-interventional study (NIS).

Mahlangu, Johnny; Oldenburg, Johannes; Callaghan, Michael U; Shima, Midori; Mancuso, Maria Elisa; Trask, Peter; Recht, Michael; Garcia, Claudia; Yang, Renchi; Lehle, Michaela; Macharia, Harrison; Asikanius, Elina; Levy, Gallia G; Kruse-Jarres, Rebecca; von Mackensen, Sylvia.

Haemophilia ; 25(3): 382-391, 2019 May.

Artículo en Inglés | MEDLINE | ID: mdl-31016855

17.

The effect of emicizumab prophylaxis on health-related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study.

Oldenburg, Johannes; Mahlangu, Johnny N; Bujan, Willem; Trask, Peter; Callaghan, Michael U; Young, Guy; Asikanius, Elina; Peyvandi, Flora; Santagostino, Elena; Kruse-Jarres, Rebecca; Negrier, Claude; Kessler, Craig; Xu, Jin; Windyga, Jerzy; Shima, Midori; von Mackensen, Sylvia.

Haemophilia ; 25(1): 33-44, 2019 Jan.

Artículo en Inglés | MEDLINE | ID: mdl-30427582

18.

Development and Reliability of the Joint Tissue Activity and Damage Examination for Quantitation of Structural Abnormalities by Musculoskeletal Ultrasound in Hemophilic Joints.

Volland, Lena M; Zhou, Jenny Y; Barnes, Richard F W; Kruse-Jarres, Rebecca; Steiner, Bruno; Quon, Doris V; Bailey, Cindy; Hughes, Tudor H; Moore, Randy E; Chang, Eric Y; von Drygalski, Annette.

J Ultrasound Med ; 38(6): 1569-1581, 2019 Jun.

Artículo en Inglés | MEDLINE | ID: mdl-30371941

19.

Emicizumab in Hemophilia A.

Kruse-Jarres, Rebecca; Hay, Charles R M.

N Engl J Med ; 382(8): 785, 2020 02 20.

Artículo en Inglés | MEDLINE | ID: mdl-32074440

20.

A new era for hemophilia B treatment.

Taylor, Jason A; Kruse-Jarres, Rebecca.

Blood ; 127(14): 1734-6, 2016 Apr 07.

Artículo en Inglés | MEDLINE | ID: mdl-27056991

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