RESUMEN
These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016, and a consensus on the discussions. These guidelines summarize evidence and expert-based recommendations and intend to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part two, covering the management of complications and the particularities of some forms of congenital ichthyosis.
Asunto(s)
Consenso , Dermatología/normas , Eritrodermia Ictiosiforme Congénita/terapia , Ictiosis/terapia , Enfermedades del Prematuro/terapia , Dermatología/métodos , Europa (Continente) , Humanos , Eritrodermia Ictiosiforme Congénita/complicaciones , Ictiosis/complicacionesRESUMEN
These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016 and a consensus on the discussions. They summarize evidence and expert-based recommendations and are intended to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part one, covering topical therapies, systemic therapies, psychosocial management, communicating the diagnosis and genetic counselling.
Asunto(s)
Terapia Conductista/normas , Consenso , Fármacos Dermatológicos/uso terapéutico , Dermatología/normas , Eritrodermia Ictiosiforme Congénita/terapia , Administración Oral , Administración Tópica , Terapia Conductista/métodos , Dermatología/métodos , Europa (Continente) , Asesoramiento Genético/normas , Humanos , Eritrodermia Ictiosiforme Congénita/diagnóstico , Eritrodermia Ictiosiforme Congénita/psicología , Calidad de Vida , Apoyo Social , Revisiones Sistemáticas como AsuntoRESUMEN
Distress is defined in the NCCN Guidelines for Distress Management as a multifactorial, unpleasant experience of a psychologic (ie, cognitive, behavioral, emotional), social, spiritual, and/or physical nature that may interfere with the ability to cope effectively with cancer, its physical symptoms, and its treatment. Early evaluation and screening for distress leads to early and timely management of psychologic distress, which in turn improves medical management. The panel for the Distress Management Guidelines recently added a new principles section including guidance on implementation of standards of psychosocial care for patients with cancer.
Asunto(s)
Distrés Psicológico , Femenino , Humanos , Masculino , Oncología MédicaRESUMEN
The integration of psychosocial care into the routine care of all patients with cancer is increasingly being recognized as the new standard of care. These NCCN Clinical Practice Guidelines in Oncology for Distress Management discuss the identification and treatment of psychosocial problems in patients with cancer. They are intended to assist oncology teams identify patients who require referral to psychosocial resources and to give oncology teams guidance on interventions for patients with mild distress to ensure that all patients with distress are recognized and treated.