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1.
Child Dev ; 91(3): e528-e544, 2020 05.
Artículo en Inglés | MEDLINE | ID: mdl-31099030

RESUMEN

Increased attention is being placed on the importance of ethnic-racial socialization in children of color's academic outcomes. Synthesizing research on the effects of parental ethnic-racial socialization, this meta-analysis of 37 studies reveals that overall the relation between ethnic-racial socialization and academic outcomes was positive, though the strength varied by the specific academic outcome under consideration, dimension of ethnic-racial socialization utilized, developmental age of the child receiving the socialization, and racial/ethnic group implementing the socialization. Ethnic-racial socialization was positively related to academic performance, motivation, and engagement, with motivation being the strongest outcome. Most dimensions of ethnic-racial socialization were positively related to academic outcomes, except for promotion of mistrust. In addition, the link between ethnic-racial socialization and academic outcomes was strongest for middle school and college students, and when looking across ethnic-racial groups, this link was strongest for African American youth. The results suggest that different dimensions of ethnic-racial socialization have distinct relationships with diverse academic outcomes and that the effects of ethnic-racial socialization vary by both youth developmental levels and racial/ethnic groups.


Asunto(s)
Éxito Académico , Etnicidad , Responsabilidad Parental/etnología , Grupos Raciales , Socialización , Adolescente , Niño , Femenino , Humanos , Masculino , Padres , Identificación Social , Adulto Joven
2.
J Couns Psychol ; 64(2): 141-154, 2017 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-28277731

RESUMEN

This study investigated whether impostor feelings would both moderate and mediate the relationship between perceived discrimination and mental health in a sample of diverse ethnic minority college students (106 African Americans, 102 Asian Americans, 108 Latino/a Americans) at an urban public university. African American students reported higher perceived discrimination than Asian American and Latino/a American students, while no racial/ethnic group differences were reported for impostor feelings. Analyses revealed that among African American students, high levels of impostor feelings moderated the perceived discrimination and depression relationship and mediated the perceived discrimination and anxiety relationship. Among Asian American students, impostor feelings mediated the relationship between perceived discrimination and both depression and anxiety. Among Latino/a American students low levels of impostor feelings moderated the relationship between perceived discrimination and both depression and anxiety, and partially mediated the relationship between perceived discrimination and anxiety. Multigroup path analyses revealed a significantly stronger impact of impostor feelings on depression among African American students and a stronger impact of perceived discrimination on impostor feelings among African American and Latino/a American students. Clinical implications and future research directions are discussed. (PsycINFO Database Record


Asunto(s)
Logro , Cultura , Control Interno-Externo , Trastornos Mentales/etnología , Trastornos Mentales/psicología , Grupos Minoritarios/psicología , Racismo/etnología , Racismo/psicología , Autoimagen , Estudiantes/psicología , Adolescente , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Percepción Social , Sudoeste de Estados Unidos , Adulto Joven
3.
Remedial Spec Educ ; 35(2): 114-122, 2014 Mar 01.
Artículo en Inglés | MEDLINE | ID: mdl-26146453

RESUMEN

The transition of a student out of high school and into the adult world can be a stressful time for many families of high school students. This major life transition can be particularly challenging for students with ASD and their families. In this paper we first discuss the roles of families in the transition process for their son or daughter with ASD. Next, we present literature on the unique needs of families of adolescents with ASD during the transition to adulthood. Finally, we highlight current research on best practices for supporting transition-aged students and their families as well as discuss future directions for research and practice.

4.
Am J Med Genet B Neuropsychiatr Genet ; 165B(8): 705-11, 2014 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-25346430

RESUMEN

In a sample of post-menopausal premutation carrier mothers of children with the full mutation of fragile X syndrome (n = 88), this study examined the co-occurrence of the reproductive and psychiatric phenotypes associated with FMR1 premutations. Mean age at menopause was 43.1 years, and 35.2% of premutation carriers reported cessation of menses prior to age 40 (premature ovarian failure), but only 18% of carriers had been medically diagnosed by a physician as having Fragile X-associated Primary Ovarian Insufficiency. There was a significant curvilinear association between CGG repeat length and age at menopause, with women who had mid-range repeats having the earliest menopause, similar to the pattern that has been found for the psychiatric phenotype of the FMR1 premutation.


Asunto(s)
Proteína de la Discapacidad Intelectual del Síndrome del Cromosoma X Frágil/genética , Síndrome del Cromosoma X Frágil/genética , Menopausia/genética , Mutación/genética , Insuficiencia Ovárica Primaria/genética , Adulto , Factores de Edad , Anciano , Femenino , Humanos , Persona de Mediana Edad , Fenotipo
5.
Behav Sci (Basel) ; 14(5)2024 May 06.
Artículo en Inglés | MEDLINE | ID: mdl-38785881

RESUMEN

Limited research on working memory has centered on ethnically/racially minoritized children, thereby limiting researchers' abilities to draw conclusions about working memory or to provide additional supports in cultivating working memory for these children. Using the Integrative Theory as a lens, the current study explored the predictive benefit of parent academic socialization strategies on the working memory and subsequent mathematics skills of a nationally representative sample of ethnically/racially minoritized children. Using structural equation modeling techniques, a path model including social position; family structure; leisure activities; parent academic socialization strategies; and their association with kindergarten Asian/Asian-American (N = 1211), Black (N = 1927), and Latine (N = 3671) children's working memory and first-grade mathematics skills were examined. Furthermore, multigroup moderation was used to test for differences between ethnic/racial groups. Connections to social capital theory, community cultural wealth, and culturally relevant interpretations of the study findings are discussed.

6.
Curr Psychiatry Rep ; 14(6): 732-8, 2012 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-23015048

RESUMEN

Although an increasing number of individuals with autism spectrum disorders are entering adulthood, currently there are few evidence-based programs for individuals later in the life course. In this paper we present an overview of recent research on outcomes for adolescents and adults with ASD and highlight the role of the family for individuals with ASD during the transition to adulthood. We also discuss multi-family group psychoeducation as a promising model for use with individuals with ASD who are transitioning to adulthood.


Asunto(s)
Trastornos Generalizados del Desarrollo Infantil/terapia , Familia/psicología , Padres/educación , Adolescente , Adulto , Niño , Curriculum , Educación en Salud/métodos , Necesidades y Demandas de Servicios de Salud , Humanos , Modelos Psicológicos , Padres/psicología , Proyectos Piloto
7.
Am J Speech Lang Pathol ; 31(2): 689-704, 2022 03 10.
Artículo en Inglés | MEDLINE | ID: mdl-35201847

RESUMEN

PURPOSE: The videofluoroscopic swallow study (VFSS) is the most commonly used instrumental procedure for evaluating swallowing in pediatric populations suspected of having dysphagia. Assessment and interpretation of a VFSS in pediatric populations is frequently challenged by testing-specific factors that can raise concerns regarding the representativeness of swallow events observed during testing compared to daily feeding/swallowing physiology. When VFSS findings do not represent typical swallowing patterns, treatment recommendations can result in suboptimal outcomes. To address this current challenge to pediatric VFSS interpretation and associated treatment recommendations, the pediatric VFSS Value Scale (pVFSS Value Scale) was developed within a tertiary regional pediatric medical center. This clinical focus article summarizes the initial scale development phases and resulting conceptual framework for rating clinical testing factors that influence a clinician's level of confidence regarding pediatric VFSS findings. Future goals for scientific evaluation and clinical utilization of this new rating scale are also reported. CONCLUSIONS: The pVFSS Value Scale was developed to assist clinicians with interpretation of pediatric VFSS assessment outcomes and to efficiently communicate factors influencing impressions and treatment recommendations with team members and caregivers. This clinical concept article summarizes potential uses of this tool to inform treatment planning as well as future clinical research to evaluate its psychometrics and clinical utility.


Asunto(s)
Trastornos de Deglución , Deglución , Niño , Deglución/fisiología , Trastornos de Deglución/diagnóstico por imagen , Fluoroscopía/métodos , Humanos , Grabación en Video
8.
Brachytherapy ; 20(3): 631-637, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-33642174

RESUMEN

PURPOSE: The noninvasive image-guided breast brachytherapy (NIBB) technique is a novel noninvasive yet targeted method for accelerated partial breast irradiation. We established a multi-institutional registry to evaluate the toxicity and efficacy of this technique across various practice settings. METHODS AND MATERIALS: Institutions using the NIBB technique were invited to participate. Data for acute/late toxicity, cosmetic outcome, and tumor recurrence were collected. Toxicity and cosmetic outcome were graded based on the Common Terminology Criteria for Adverse Events version 3.0 and NRG/Radiation Therapy Oncology Group scale, respectively. Treatment variables were analyzed for association with outcomes. RESULTS: A total of 252 patients from eight institutions were analyzed. The median age was 69 years. The mean tumor size was 1.1 cm (0.1-4.0 cm). Treatment was delivered 10 fractions (34-36 Gy) in 75% and five fractions (28.5 Gy) in 22%. B.i.d. fractionation was used in 9%. Acute radiation dermatitis was Grade 0-1, 2, and 3 in 77%, 19%, and 4%, respectively. One hundred ninety-one patients with a median followup of 18 months (4-72 months) were evaluable for late outcomes. Late toxicity Grades 2 and 3 were observed in 8.8% and 1%, respectively. Cosmetic outcome was excellent, good, and fair/poor in 62%, 36%, and 2%, respectively. B.i.d. fractionation was associated with higher acute and late toxicity. Second-generation applicators were associated with lower late toxicity and better cosmetic outcome. Actuarial freedom from ipsilateral breast tumor recurrence and true recurrence were 98.3% and 98.3% at 2 years and 90.9% and 95.4% at 5 years, respectively. CONCLUSIONS: Accelerated partial breast irradiation using NIBB was well tolerated with a low rate of acute and late toxicity across various practice settings. Ipsilateral breast tumor recurrence and cosmetic outcomes were favorable. b.i.d. fractionation was associated with higher toxicity. Longer followup is needed to confirm late endpoints.


Asunto(s)
Braquiterapia , Neoplasias de la Mama , Anciano , Braquiterapia/métodos , Neoplasias de la Mama/radioterapia , Neoplasias de la Mama/cirugía , Estudios de Factibilidad , Femenino , Humanos , Mastectomía Segmentaria , Recurrencia Local de Neoplasia/radioterapia , Dosificación Radioterapéutica , Sistema de Registros , Resultado del Tratamiento
9.
Infant Ment Health J ; 31(4): 455-466, 2010 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-28543082

RESUMEN

The present study examined the detection of early developmental delays of high-risk infants by first-time mothers in a community sample of families (N = 451). About half of the mothers were adolescents at time of childbirth, and two thirds reported household incomes below $20,000 annually. Children were assessed at 12 and 24 months of age on standardized measures of cognitive, language, adaptive, and socioemotional development. According to the Individuals with Disabilities Education Act (PL101-476) guidelines, about 1 in 4 children was eligible for intervention services at 12 months, and about 1 in 3 children was eligible at 24 months. Despite receiving regular medical services, mothers reported that very few eligible children (2% at 12 months and 9% at 24 months) were identified by medical professionals as having any problems that could interfere with development. Much like medical professionals, few mothers were appropriately worried about development, and the likelihood of expressing concerns was related to mothers' knowledge about infant development. These findings highlight the need for medical providers to frequently screen high-risk children and for parents to become more knowledgeable about infant development.

10.
J Sch Psychol ; 83: 50-65, 2020 12.
Artículo en Inglés | MEDLINE | ID: mdl-33276855

RESUMEN

Researchers have become interested in the school climate experiences of Black youth given findings of less positive evaluations of school climate in comparison to their other-race peers. School support for cultural pluralism, also referred to as school support for cultural diversity, has been regarded as one aspect of school climate, but is sometimes distinct from Black youth's ratings of general perceptions of school climate. This project sought to understand the relationship between Black students' perceptions of school support for cultural pluralism and perceptions of school climate. Structural equation modeling techniques were used to determine whether previous perceptions of school support for cultural pluralism predicted later perceptions of school climate in a sample of 336 Black adolescents (Mage = 13.74 years). Furthermore, racial identity was explored as the mechanism through which school support for cultural pluralism impacted school climate appraisals, and differences between Black boys (N = 151) and Black girls (N = 185) were tested. Results confirmed that Black youth who rated their school as being supportive of culturally pluralism had more positive ratings of school climate during the following school year after controlling for the previous year's school climate ratings. However, the mediating role of racial identity differed for Black boys and Black girls, underscoring the need for intersectional research for Black youth and the importance of racial identity. We conclude with a discussion regarding the importance of racial/ethnic identity and pluralism within the school context, as well as, the unique role of school psychologists as preventionists and advocates of change within schools.


Asunto(s)
Negro o Afroamericano/psicología , Etnicidad/psicología , Instituciones Académicas , Identificación Social , Estudiantes/psicología , Adolescente , Niño , Diversidad Cultural , Femenino , Humanos , Masculino , Grupo Paritario , Percepción , Población Blanca/psicología
11.
Am Psychol ; 75(1): 1-22, 2020 01.
Artículo en Inglés | MEDLINE | ID: mdl-31058521

RESUMEN

Despite increasing empirical research documenting the association between parental ethnic-racial socialization and youth of color's psychosocial well-being, evidence on the extent to which ethnic-racial socialization practices are linked to youth outcomes and potential variation in these relations remains equivocal. In the current study, a meta-analysis of 102 studies with 803 effect sizes and 27,221 participants reveals that overall ethnic-racial socialization was positively, albeit modestly, associated with self-perceptions, interpersonal relationship quality, and internalizing behavior. Ethnic-racial socialization's overall association with externalizing behavior was nonsignificant. Moreover, ethnic-racial socialization's connection to psychosocial outcomes varied by the subtype that parents used, the developmental stage and race/ethnicity of the target child, and the reporter of ethnic-racial socialization. In particular, cultural socialization was positively associated with self-perceptions and interpersonal relationship quality and negatively associated with externalizing behaviors. In addition, ethnic-racial socialization's positive association with self-perceptions was strongest in early adolescence and among African American youth. These findings underscore the complexity of parental ethnic-racial socialization practices and the need for a nuanced perspective on it. Implications for parenting practices and future research are discussed. (PsycINFO Database Record (c) 2020 APA, all rights reserved).


Asunto(s)
Etnicidad/psicología , Relaciones Interpersonales , Responsabilidad Parental/psicología , Autoimagen , Identificación Social , Socialización , Niño , Humanos , Relaciones Padres-Hijo , Racismo/psicología
12.
J Autism Dev Disord ; 38(5): 876-89, 2008 May.
Artículo en Inglés | MEDLINE | ID: mdl-17924181

RESUMEN

The present study examined the impact of autism symptoms and coping strategies on the well-being of mothers of children with autism spectrum disorder (ASD). The sample consisted of 153 mothers of toddlers and 201 mothers of adolescents drawn from two ongoing, longitudinal studies of families of individuals with ASD. For mothers of toddlers, lower levels of emotion-focused coping and higher levels of problem-focused coping were generally associated with better maternal well-being, regardless of the level of child symptomatology. For mothers of adolescents, coping often acted as a buffer when autism symptoms were high. Although there was evidence of maternal distress in both groups, the presence of significant buffering effects reflects adaptation in the face of stress, particularly for mothers of adolescents.


Asunto(s)
Adaptación Psicológica , Conducta Materna/psicología , Madres/psicología , Calidad de Vida/psicología , Adolescente , Adulto , Trastorno Autístico/psicología , Femenino , Humanos , Masculino , Relaciones Madre-Hijo , Encuestas y Cuestionarios
13.
Am J Ment Retard ; 113(5): 387-402, 2008 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-18702558

RESUMEN

Using a cross-lagged panel design, we investigated the impact of positive family processes on change in autism symptoms and behaviors. A sample of 149 co-residing mothers and their adolescent or adult child with autism was drawn from a large, longitudinal study. Maternal warmth and praise were measured using coded speech samples in which mothers talked about their son or daughter. A high level of relationship quality was associated with subsequent reductions in internalizing and externalizing problems as well as reductions in impairments in social reciprocity and repetitive behaviors. Maternal warmth and praise were also related to symptom abatement in the repetitive behaviors domain.


Asunto(s)
Afecto , Trastorno Autístico/epidemiología , Trastorno Autístico/psicología , Trastornos de la Conducta Infantil/epidemiología , Trastornos de la Conducta Infantil/psicología , Relaciones Madre-Hijo , Refuerzo en Psicología , Trastorno de Movimiento Estereotipado/epidemiología , Adolescente , Adulto , Trastornos de la Conducta Infantil/diagnóstico , Femenino , Estudios de Seguimiento , Humanos , Masculino , Trastorno de Movimiento Estereotipado/diagnóstico
14.
J Fam Psychol ; 22(5): 763-73, 2008 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-18855512

RESUMEN

The present study examined trajectories of paternal support and maternal depressive symptoms over the first two years after the birth of a child. First-time mothers (N = 582) were assessed 6 times during the first 24 months of their child's life. At each assessment they reported on a number of ways in which their child's father provided support, and at three of the assessments, their own depressive symptomatology was assessed. Latent growth curve models revealed that while higher support was related to lower depressive symptomatology, both paternal support and maternal depression tended to decrease over time. The relationships between paternal support and maternal depression are complex and suggest the importance of considering the multiple ways that parents influence one another over time.


Asunto(s)
Depresión Posparto/psicología , Padre/psicología , Apoyo Social , Adolescente , Adulto , Depresión Posparto/diagnóstico , Femenino , Humanos , Estudios Longitudinales , Masculino , Matrimonio/psicología , Conducta Paterna , Adulto Joven
15.
J Lat Psychol ; 6(1): 1-15, 2018 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-38404509

RESUMEN

The current study examined the links between perceived discrimination, marianismo gender role beliefs, racial-ethnic socialization (preparation for bias), coping strategies (engagement vs. disengagement), and mental health outcomes among 211 Latina college students. First, the authors investigated predictions about mediation effects of ethnic socialization and marianismo in the association between perceived discrimination and coping strategies. Second, they tested predictions about mediation effects of coping strategies in the link between perceived discrimination and mental health outcomes. Results of path analyses showed that perceived discrimination was positively related to familismo and spiritual marianismo pillars, preparation for bias, and engagement coping strategies. Furthermore, the link between perceived discrimination and engagement coping strategies was partially mediated via preparation for bias. Finally, perceived discrimination, disengagement coping strategies and self-silencing marianismo attitudes were negatively linked to mental health. Overall, these findings highlight the complex ways in which coping strategies are linked with one's ethnic and gender socialization and related to perceived discrimination and mental health outcomes. El presente estudio examinó las relaciones entre la discriminación percibida, la socialización étnicaracial (preparación de discriminación), roles de marianismo creencias, estrategias (de compromiso frente a la desconexión) y los resultados de salud mental entre los 211 estudiantes universitarias Latinas. Primero, se investigó predicciones sobre los efectos de mediación de socialización étnica y el marianismo en la asociación entre las estrategias de afrontamiento y la discriminación percibida. También, investigamos las predicciones acerca de los efectos de mediación de las estrategias de supervivencia en la relación entre la discriminación percibida y el salud mental. Los resultados de los análisis mostraron que discriminación percibida fue relacionado positivamente con la preparación para la discriminación, el familismo y pilares Marianismo espirituales, así como las estrategias de participación de afrontamiento. Además, la relación entre las estrategias de afrontamiento de compromiso y la discriminación percibida fue parcialmente mediada a través de la preparación de discriminación. Finalmente, la discriminación percibida, las estrategias de afrontamiento y "selfsilencing" Marianismo actitudes estaban relacionado negativamente a la salud mental. En general, estos resultados ponen de relieve las complejas formas en que las estrategias de afrontamiento están vinculados con la propia socialización étnica y de género y relacionadas con la discriminación percibida y los resultados de salud mental.

16.
Autism ; 22(1): 40-50, 2018 01.
Artículo en Inglés | MEDLINE | ID: mdl-29020804

RESUMEN

Adolescents with autism spectrum disorder have limited participation in the transition planning process, despite the link between active participation and an improvement in postsecondary education and employment outcomes. The Secondary School Success Checklist was designed to support transition planning for adolescents with autism spectrum disorder by incorporating their own assessments of strengths, skill deficits, and prioritization for instruction along with those of their parents and teachers across multiple skill domains. Findings from more than 500 adolescents with autism spectrum disorder across the United States indicate discrepancies between adolescent, teacher, and parent ratings of skills highlighting the importance of the inclusion of multiple perspectives in transition planning. Although ratings varied, agreement between adolescents with autism spectrum disorder, parents, and teachers across the highest and lowest rated skills suggests the need to broaden the focus on critical transition skills to include problem-solving, planning for life after high school, and self-advocacy.


Asunto(s)
Trastorno del Espectro Autista/psicología , Habilidades Sociales , Adolescente , Lista de Verificación , Educación , Familia/psicología , Humanos , Masculino , Transición a la Atención de Adultos , Adulto Joven
17.
Autism ; 22(7): 794-803, 2018 10.
Artículo en Inglés | MEDLINE | ID: mdl-28691500

RESUMEN

Sustaining community employment is a challenge for adults with autism spectrum disorders, especially for those who have co-occurring intellectual disability, but factors contributing to this employment outcome have not been fully evaluated. This study utilized longitudinal data to explore the impact of contextual influences, family factors, and individual characteristics on sustained employment over approximately 18 months ( N = 105). Very few adults with autism spectrum disorder and intellectual disability achieved sustained employment (14.3%). The results indicated that more independent daily living skills, a higher family income, a larger maternal social network, an inclusive school environment in early childhood, and currently living in an area with a larger population size were associated with significantly greater odds of sustaining employment. Follow-up analyses suggested that managing personal care is particularly important for employment.


Asunto(s)
Trastorno Autístico/complicaciones , Empleo/estadística & datos numéricos , Discapacidad Intelectual/complicaciones , Actividades Cotidianas , Adulto , Trastorno Autístico/epidemiología , Femenino , Humanos , Discapacidad Intelectual/epidemiología , Estudios Longitudinales , Masculino , Massachusetts , Características de la Residencia/estadística & datos numéricos , Wisconsin
18.
Autism Res ; 10(10): 1663-1671, 2017 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-28639377

RESUMEN

The Social Responsiveness Scale [SRS; Constantino & Gruber, 2005] is a widely-used measure of autism symptoms, but its application for the study of adults with autism spectrum disorders has not been fully evaluated. Using a factor structure consistent with The Diagnostic and Statistical Manual of Mental Disorders (5th ed., DSM-V) criteria for autism spectrum disorder [Frazier et al., 2014], the primary purpose of the current study was to establish the validity of the SRS with a sample of adults with autism spectrum disorder (N = 237). Correlational analyses indicated that SRS factors were highly associated with autism symptoms and behavioral measures, indicating concurrent and predictive validity. Multiple regression results demonstrated that SRS factors were differentially related to measures specific to social or behavioral domains, indicating convergent and discriminant validity. Implications for future research are discussed. Autism Res 2017, 10: 1663-1671. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.


Asunto(s)
Trastorno del Espectro Autista/psicología , Conducta Social , Adolescente , Adulto , Niño , Femenino , Humanos , Masculino , Persona de Mediana Edad , Psicometría , Reproducibilidad de los Resultados , Adulto Joven
19.
Am J Intellect Dev Disabil ; 122(1): 11-24, 2017 01.
Artículo en Inglés | MEDLINE | ID: mdl-28095060

RESUMEN

The present investigation explored long-term relationships of behavioral symptoms of adolescents and adults with developmental disabilities with the mental health of their mothers. Fragile X premutation carrier mothers of an adolescent or adult child with fragile X syndrome (n = 95), and mothers of a grown child with autism (n = 213) were included. Behavioral symptoms at Time 1 were hypothesized to predict maternal depressive symptoms at Time 3 via maternal executive dysfunction at Time 2. Results provided support for the mediating pathway of executive dysfunction. Additionally, the association of behavioral symptoms with executive dysfunction differed across the two groups, suggesting that premutation carriers may be more susceptible to caregiving stress due to their genotype.


Asunto(s)
Trastorno del Espectro Autista/fisiopatología , Síntomas Conductuales/fisiopatología , Depresión/psicología , Función Ejecutiva/fisiología , Síndrome del Cromosoma X Frágil/fisiopatología , Madres/psicología , Adolescente , Adulto , Anciano , Niño , Femenino , Heterocigoto , Humanos , Masculino , Persona de Mediana Edad , Adulto Joven
20.
Autism Res ; 10(1): 15-24, 2017 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-27753278

RESUMEN

Research related to supports for adults with autism spectrum disorder (ASD) is under-developed. As an example, system and service development to support successful transition to adulthood and meaningful vocation for adults has received relatively little research scrutiny until recently, with practitioners and program developers lacking evidenceinformed approaches guiding service delivery. A Special Interest Group (SIG) was convened at the International Meeting for Autism Research in May 2014 and May 2015, with a focus on transitional and vocational issues in ASD. The SIG consisted of 120 international delegates, including self-advocates, family members, researchers, program and policy developers, practitioners, and interdisciplinary ASD trainees. Following a summary of the literature, subgroups of attendees were convened in smaller groups to identify research needs and priorities. International researchers facilitated these discussions with notes taken in each subgroup. Using a qualitative analytic approach, key themes across groups were identified. These key themes, outlined in this paper, address the identified need to (a) advance research capacity; (b) build employer capacity relative to employing persons with ASD; and (c) enhance support resources for adults with ASD and their families. Heightened research activity guiding practice and policy, community/employer engagement, and person and family-centered services were recommended. Implications for advancement and implementation are offered. Autism Res 2017, 10: 15-24. © 2016 International Society for Autism Research, Wiley Periodicals, Inc.


Asunto(s)
Trastorno Autístico/rehabilitación , Empleo , Internacionalidad , Investigación , Adulto , Humanos
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