RESUMO
In the context of the announcement of a diagnosis, a key element of the 2003-2007 cancer plan, nurses spend time with patients to support them and identify their needs. A nurse working in clinical haematology, discusses the specific ethical challenges facing nurses, during these diagnosis consultations and as part of a multidisciplinary team, supporting patients along their care pathway.
Assuntos
Neoplasias Hematológicas/diagnóstico , Neoplasias Hematológicas/enfermagem , Relações Enfermeiro-Paciente , Humanos , Acontecimentos que Mudam a Vida , Revelação da Verdade/éticaRESUMO
A person's sexual and emotional life is greatly impacted after allogeneic hematopoietic stem cell transplantation (allo-HSCT). This topic is not addressed very much by patients and caregivers. Physical, endocrine and genital chronic graft versus host disease (cGVHD)-related disorders are multiple and intertwined with psychological disorders. The Francophone Society of Bone Marrow Transplantation and Cellular Therapy (SFGM-TC) has issued recommendations for a better gynecological monitoring of female recipients after allo-HCT. A patient booklet was also offered to patients in the form of questions and answers to facilitate discussions between patients and caregivers and to improve the management of sexual and emotional life after transplant.
RESUMO
Patients undergoing an allogeneic hematopoietic cell transplant (allo-HCT) need to understand and adhere to the transplant process as well as post-transplant follow-up requirements. A working group has met during the eleventh edition of the Francophone Society of Bone Marrow Transplantation and Cellular Therapy (SFGM-TC) Practice Harmonization Workshops. The analysis of a survey that was sent to several transplant centers belonging to the SFGM-TC has been used as a milestone to this article. While, post-transplant medical follow-up was comparable from one center to another, nursing care was found to lack harmonization between centers, although, all patients would receive therapeutic education at one time or another regarding potential transplant-related complications. A few centers in France has established a therapeutic education program that was approved by French health authorities. The aim of this work was to set up guidelines to help centers establishing such a program in well-harmonized way.
Assuntos
Assistência ao Convalescente , Transplante de Células-Tronco Hematopoéticas/normas , Cooperação do Paciente , Educação de Pacientes como Assunto/normas , Assistência ao Convalescente/organização & administração , Assistência ao Convalescente/normas , França , Pesquisas sobre Atenção à Saúde , Transplante de Células-Tronco Hematopoéticas/efeitos adversos , Humanos , Cuidados de Enfermagem/organização & administração , Cuidados de Enfermagem/normas , Complicações Pós-Operatórias , Sociedades Médicas , Transplante HomólogoRESUMO
The Francophone Society of Bone Marrow Transplantation and Cellular Therapy (SFGM-TC) organises annual workshops in an attempt to harmonise clinical practices among different francophone transplantation centres. The SFGM-TC harmonisation workshops aim at establishing practical guidelines, on the one hand, from data from the literature and international recommendations and, on the other hand, by consensus in the absence of formally proven data. The sexual and emotional life of allogeneic hematopoietic stem cells transplanted (HSCT) patients is often very impacted and remains a subject relatively little addressed by patients and caregivers. This article is an update from a previous workshop and is accompanied by a patient booklet, which will be included in the post allograft follow-up workbook published by the SFGM-TC. The purpose of these two documents is to facilitate discussions between patients and caregivers on the subject and to present proposals for follow-up and tools to better manage the sexual and emotional life of allotransplanted patients.