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1.
BMC Health Serv Res ; 24(1): 18, 2024 Jan 04.
Artigo em Inglês | MEDLINE | ID: mdl-38178097

RESUMO

BACKGROUND: Patients with heart failure (HF) and colorectal cancer (CRC) are prone to comorbidity, a high rate of readmission, and complex healthcare needs. Self-care for people with HF and CRC after hospitalisation can be challenging, and patients may leave the hospital unprepared to self-manage their disease at home. eHealth solutions may be a beneficial tool to engage patients in self-care. METHODS: A randomised controlled trial with an embedded evaluation of intervention engagement and cost-effectiveness will be conducted to investigate the effect of eHealth intervention after hospital discharge on the self-efficacy of self-care. Eligible patients with HF or CRC will be recruited before discharge from two Norwegian university hospitals. The intervention group will use a nurse-assisted intervention-eHealth@Hospital-2-Home-for six weeks. The intervention includes remote monitoring of vital signs; patients' self-reports of symptoms, health and well-being; secure messaging between patients and hospital-based nurse navigators; and access to specific HF and CRC health-related information. The control group will receive routine care. Data collection will take place before the intervention (baseline), at the end of the intervention (Post-1), and at six months (Post-2). The primary outcome will be self-efficacy in self-care. The secondary outcomes will include measures of burden of treatment, health-related quality of life and 30- and 90-day readmissions. Sub-study analyses are planned in the HF patient population with primary outcomes of self-care behaviour and secondary outcomes of medication adherence, and readmission at 30 days, 90 days and 6 months. Patients' and nurse navigators' engagement and experiences with the eHealth intervention and cost-effectiveness will be investigated. Data will be analysed according to intention-to-treat principles. Qualitative data will be analysed using thematic analysis. DISCUSSION: This protocol will examine the effects of the eHealth@ Hospital-2-Home intervention on self-care in two prevalent patient groups, HF and CRC. It will allow the exploration of a generic framework for an eHealth intervention after hospital discharge, which could be adapted to other patient groups, upscaled, and implemented into clinical practice. TRIAL REGISTRATION: Clinical trials.gov (ID 301472).


Assuntos
Neoplasias Colorretais , Insuficiência Cardíaca , Telemedicina , Humanos , Alta do Paciente , Autocuidado/métodos , Qualidade de Vida , Resultado do Tratamento , Insuficiência Cardíaca/terapia , Hospitais , Neoplasias Colorretais/terapia , Ensaios Clínicos Controlados Aleatórios como Assunto
2.
Support Care Cancer ; 32(1): 11, 2023 Dec 06.
Artigo em Inglês | MEDLINE | ID: mdl-38055087

RESUMO

INTRODUCTION: Colorectal cancer (CRC) creates elevated self-management demands and unmet support needs post-discharge. Follow-up care through eHealth post-primary surgery may be an effective means of supporting patients' needs. This integrative review describes the evidence regarding eHealth interventions post-hospital discharge focusing on delivery mode, user-interface and content, patient intervention adherence, impact on patient-reported outcomes and experiences of eHealth. METHODS: A university librarian performed literature searches in 2021 using four databases. After screening 1149 records, the authors read 30 full-text papers and included and extracted data from 26 papers. Two authors analysed the extracted data using the 'framework synthesis approach'. RESULTS: The 26 papers were published between 2012 and 2022. The eHealth interventions were mainly delivered by telephone with the assistance of healthcare professionals, combined with text messages or video conferencing. The user interfaces included websites, applications and physical activity (PA) trackers. The interventions comprised the monitoring of symptoms or health behaviours, patient information, education and counselling. Evidence showed a better psychological state and improved PA. Patients reported high satisfaction with eHealth. However, patient adherence was inadequately reported. CONCLUSIONS: eHealth interventions may positively impact CRC patients' anxiety and PA regardless of the user interface. Patients prefer technology combined with a human element.


Assuntos
Neoplasias Colorretais , Autogestão , Humanos , Assistência ao Convalescente , Alta do Paciente , Ansiedade , Neoplasias Colorretais/cirurgia
3.
J Med Internet Res ; 24(2): e32946, 2022 02 15.
Artigo em Inglês | MEDLINE | ID: mdl-35166680

RESUMO

BACKGROUND: Heart failure (HF) is a clinical syndrome with high incidence rates, a substantial symptom and treatment burden, and a significant risk of readmission within 30 days after hospitalization. The COVID-19 pandemic has revealed the significance of using eHealth interventions to follow up on the care needs of patients with HF to support self-care, increase quality of life (QoL), and reduce readmission rates during the transition between hospital and home. OBJECTIVE: The aims of this review are to summarize research on the content and delivery modes of HF posthospitalization eHealth interventions, explore patient adherence to the interventions, and examine the effects on the patient outcomes of self-care, QoL, and readmissions. METHODS: A restricted systematic review study design was used. Literature searches and reviews followed the (PRISMA-S) Preferred Reporting Items for Systematic Reviews and Meta-Analyses literature search extension checklist, and the CINAHL, MEDLINE, Embase, and Cochrane Library databases were searched for studies published between 2015 and 2020. The review process involved 3 groups of researchers working in pairs. The Mixed Methods Appraisal Tool was used to assess the included studies' methodological quality. A thematic analysis method was used to analyze data extracted from the studies. RESULTS: A total of 18 studies were examined in this review. The studies were published between 2015 and 2019, with 56% (10/18) of them published in the United States. Of the 18 studies, 16 (89%) were randomized controlled trials, and 14 (78%) recruited patients upon hospital discharge to eHealth interventions lasting from 14 days to 12 months. The studies involved structured telephone calls, interactive voice response, and telemonitoring and included elements of patient education, counseling, social and emotional support, and self-monitoring of symptoms and vital signs. Of the 18 studies, 11 (61%) provided information on patient adherence, and the adherence levels were 72%-99%. When used for posthospitalization follow-up of patients with HF, eHealth interventions can positively affect QoL, whereas its impact is less evident for self-care and readmissions. CONCLUSIONS: This review suggests that patients with HF should receive prompt follow-up after hospitalization and eHealth interventions have the potential to improve these patients' QoL. Patient adherence in eHealth follow-up trials shows promise for successful future interventions and adherence research. Further studies are warranted to examine the effects of eHealth interventions on self-care and readmissions among patients with HF.


Assuntos
COVID-19 , Insuficiência Cardíaca , Telemedicina , Seguimentos , Insuficiência Cardíaca/terapia , Humanos , Pandemias , Qualidade de Vida , Ensaios Clínicos Controlados Aleatórios como Assunto , SARS-CoV-2 , Telemedicina/métodos
4.
Nurs Inq ; 28(1): e12374, 2021 01.
Artigo em Inglês | MEDLINE | ID: mdl-32691928

RESUMO

Abduction, deduction and induction are different forms of inference in science. However, only a few attempts have been made to introduce the idea of abductive reasoning as an extended way of thinking about clinical practice in nursing research. The aim of this paper was to encourage critical reflections about abductive reasoning based on three empirical examples from nursing research and includes three research questions on what abductive reasoning is, how the process has taken place, and how knowledge about abductive reasoning based on the examples can inform nursing research and clinical practice. The study has a descriptive and explorative approach using a convenience sample of three empirical studies from nursing research. The three studies illustrate different ways to enter the abductive reasoning process in steps. They represent new caring models, which offer visual and cognitive maps for expanding nursing research, education and thus informing care. Therefore, we suggest that abductive reasoning may be beneficial for different ways of knowing and demonstrates scientific innovation to shed new light on health phenomena, which can help researchers and practitioners to gain a broader and deeper understanding of nursing care inquiry. However, more studies are needed to broaden this scope.


Assuntos
Raciocínio Clínico , Enfermagem/métodos , Resolução de Problemas , Hermenêutica , Humanos
5.
BMC Health Serv Res ; 20(1): 661, 2020 Jul 17.
Artigo em Inglês | MEDLINE | ID: mdl-32680491

RESUMO

BACKGROUND: Support is pivotal for patients in managing colorectal cancer treatment, as they might be overwhelmed by the burden of treatment. There is scarce knowledge regarding health professionals' perceptions of colorectal cancer patients' burdens and supportive needs. The study aims to describe health professionals' perspectives on treatment burden among patients receiving curative surgical treatment for colorectal cancer during the hospital stay and how they support patients to ameliorate the burden. METHODS: This study has a descriptive and explorative qualitative design, using semi-structured interviews with nine health professionals recruited from a gastrointestinal-surgery ward at a university hospital in Norway. Data were analysed by using systematic text condensation. RESULTS: Data analysis identified the themes "capturing patients' burdens of colorectal cancer treatment" and "health professionals' support to ameliorate the burden". Patients with colorectal cancer had to face burdens related to a challenging emotional situation, treatment complications and side effects, and an extensive need for information. A trusting patient-carer relationship was therefore perceived as the essence of health professionals' support. Health professionals focused their support on safeguarding patients, motivating patients to self-manage, and involving family and peers as supporters. Patients' journey characteristics and illness severity challenged health professionals' supportive work. CONCLUSION: Support from health professionals includes providing patients emotional support and relevant treatment-related information and motivating patients for early post-surgical mobilisation. Health professionals should be aware of identifying colorectal cancer patients' information needs according to the specific treatment stages, which may ameliorate the burden of colorectal cancer treatment and enable patients to self-manage.


Assuntos
Atitude do Pessoal de Saúde , Neoplasias Colorretais/psicologia , Efeitos Psicossociais da Doença , Pessoal de Saúde , Pacientes/psicologia , Relações Profissional-Paciente , Adulto , Neoplasias Colorretais/terapia , Emoções , Feminino , Hospitais Universitários , Humanos , Masculino , Pessoa de Meia-Idade , Noruega , Pesquisa Qualitativa , Autogestão
6.
Scand J Caring Sci ; 33(3): 741-749, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-30866066

RESUMO

BACKGROUND: A constructive patient-nurse relationship is beneficial in self-management support approaches. Research indicates eHealth interventions hold a potential for self-management support for adults with type 2 diabetes. However, eHealth may change the patient-nurse relationship. No studies to date have addressed how eHealth self-management support interventions with written asynchronous communication can influence the relationship between patients and nurses. AIM: The aim of this study was to explore how an eHealth intervention based on the Guided Self-Determination program (eGSD) influences the patient-nurse relationship from the perspective of patients participating and the nurses conducting the intervention. METHODS: A qualitative approach with individual semi-structured interviews was used. Ten patients with type 2 diabetes who completed the eGSD and four nurses who delivered the intervention participated. The data were transcribed verbatim, and qualitative content analysis was used to analyse the text. RESULTS: The findings revealed two themes: 'eGSD facilitates a reciprocal understanding and a flexibility in the relationship' and 'eGSD creates a more fragile relationship', reflecting ambiguous experiences with the eGSD. CONCLUSION AND RELEVANCE TO CLINICAL PRACTICE: The findings indicate that eGSD influences the patient-nurse relationship by facilitating reciprocal understanding and flexibility. Both patients and RNs acknowledged these outcomes as beneficial. Nevertheless, familiar in-person consultations were expressed as integral for the patient-nurse relationship. As written communication in eHealth is a novelty, it demands new knowledge and expertise that RNs must master. Findings from this study may therefore be acknowledged when developing and implementing eHealth interventions. Education programs in written eHealth communication, as well as guidelines and frameworks on how to professionally and effectively conduct eHealth services while maintaining supportive patient-nurse relationships, should be a priority for institutions that educate healthcare personnel, health institutions and other stakeholders.


Assuntos
Diabetes Mellitus Tipo 2/enfermagem , Diabetes Mellitus Tipo 2/psicologia , Relações Enfermeiro-Paciente , Recursos Humanos de Enfermagem/psicologia , Autocuidado/psicologia , Telemedicina/métodos , Telenfermagem/métodos , Adulto , Idoso , Idoso de 80 Anos ou mais , Comunicação , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
7.
J Med Internet Res ; 19(5): e187, 2017 05 30.
Artigo em Inglês | MEDLINE | ID: mdl-28559223

RESUMO

BACKGROUND: Adequate self-management is the cornerstone of type 2 diabetes treatment, as people make the majority of daily treatment measures and health decisions. The increasing prevalence of type 2 diabetes mellitus (T2DM) and the complexity of diabetes self-management demonstrate the need for innovative and effective ways to deliver self-management support. eHealth interventions are promoted worldwide and hold a great potential in future health care for people with chronic diseases such as T2DM. However, many eHealth interventions face high dropout rates. This led to our interest in the experiences of participants who dropped out of an eHealth intervention for adults with T2DM, based on the Guided Self-Determination (GSD) counseling method. OBJECTIVE: In this study, we aimed to explore experiences with an eHealth intervention based on GSD in general practice from the perspective of those who dropped out and to understand their reasons for dropping out. To the best of our knowledge, no previous qualitative study has focused on participants who withdrew from an eHealth self-management support intervention for adults with T2DM. METHODS: A qualitative design based on telephone interviews was used to collect data. The sample comprised 12 adults with type 2 diabetes who dropped out of an eHealth intervention. Data were collected in 2016 and subjected to qualitative content analysis. RESULTS: We identified one overall theme: "Losing motivation for intervention participation." This theme was illustrated by four categories related to the participants' experiences of the eHealth intervention: (1) frustrating technology, (2) perceiving the content as irrelevant and incomprehensible, (3) choosing other activities and perspectives, and (4) lacking face-to-face encounters. CONCLUSIONS: Our findings indicate that the eHealth intervention based on GSD without face-to-face encounters with nurses reduced participants' motivation for engagement in the intervention. To maintain motivation, our study points to the importance of combining eHealth with regular face-to-face consultations. Our study also shows that the perceived benefit of the GSD eHealth intervention intertwined with choosing to focus on other matters in complex daily lives are critical aspects in motivation for such interventions. This indicates the importance of giving potential participants tailored information about the aim, the content, and the effort needed to remain engaged in complex interventions so that eligible participants are recruited. Finally, motivation for engagement in the eHealth intervention was influenced by the technology used in this study. It seems important to facilitate more user-friendly but high-security eHealth technology. Our findings have implications for improving the eHealth intervention and to inform researchers and health care providers who are organizing eHealth interventions focusing on self-management support in order to reduce dropout rates.


Assuntos
Diabetes Mellitus Tipo 2/terapia , Pacientes Desistentes do Tratamento/estatística & dados numéricos , Telemedicina/estatística & dados numéricos , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
8.
BMC Med Educ ; 17(1): 119, 2017 Jul 14.
Artigo em Inglês | MEDLINE | ID: mdl-28705158

RESUMO

BACKGROUND: Postpartum hemorrhage (PPH) is a major cause of maternal morbidity and mortality. In Tanzania, PPH causes 25% of maternal deaths. Skilled attendance is crucial to saving the lives of mothers and their newborns during childbirth. This study is a follow-up after multi-professional simulation training on PPH in northern Tanzania. The purpose was to enhance understanding and gain knowledge of important learning features and outcomes related to multi-professional simulation training on PPH. METHODS: The study had a descriptive and exploratory design. After the second annual simulation training at two hospitals in northern Tanzania, ten focus group discussions comprising 42 nurse midwives, doctors, and medical attendants, were carried out. A semi-structured interview guide was used during the discussions, which were audio-taped for qualitative content analysis of manifest content. RESULTS: The most important findings from the focus group discussions were the importance of team training as learning feature, and the perception of improved ability to use a teamwork approach to PPH. Regardless of profession and job tasks, the informants expressed enhanced self-efficacy and reduced perception of stress. The informants perceived that improved competence enabled them to provide efficient PPH management for improved maternal health. They recommended simulation training to be continued and disseminated. CONCLUSION: Learning features, such as training in teams, skills training, and realistic repeated scenarios with consecutive debriefing for reflective learning, including a systems approach to human error, were crucial for enhanced teamwork. Informants' confidence levels increased, their stress levels decreased, and they were confident that they offered better maternal services after training.


Assuntos
Competência Clínica/normas , Educação Médica Continuada/normas , Tocologia/educação , Obstetrícia/educação , Hemorragia Pós-Parto/prevenção & controle , Treinamento por Simulação , Adulto , Atitude do Pessoal de Saúde , Parto Obstétrico , Feminino , Seguimentos , Humanos , Recém-Nascido , Tocologia/normas , Obstetrícia/normas , Equipe de Assistência ao Paciente/normas , Hemorragia Pós-Parto/terapia , Gravidez , Avaliação de Programas e Projetos de Saúde , Pesquisa Qualitativa , Melhoria de Qualidade/normas , Tanzânia
9.
J Clin Nurs ; 25(11-12): 1654-62, 2016 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-26923420

RESUMO

AIMS AND OBJECTIVES: To describe how Norwegian expatriate nurses engaged in humanitarian assignments overseas experience working with the local nurses promoting nursing care in the hospital ward. BACKGROUND: Western countries have a long tradition of providing nurses with expert knowledge in nursing care for humanitarian projects and international work overseas. Studies from humanitarian mission revealed that health workers rarely acknowledge or use the local knowledge. However, there is a lack of studies highlighting expatriate nurses' experiences working with local nurses to promote nursing care in the hospital ward. DESIGN: This study applies a descriptive explorative qualitative design. METHODS: The data were collected in 2013 by means of seven semi-structured interviews and analysed using qualitative content analysis. FINDINGS: The data analyses revealed three themes related to the expatriate nurses' experiences of working with the local nurses to promote nursing care in the hospital ward: (1) Breaking the code, (2) Colliding worlds and (3) Challenges in sharing knowledge. The findings reflect different challenges when working with the local nurses. CONCLUSION: Findings indicate valuable knowledge gained about local nursing care and the local health and educational system. They also demonstrate challenges for the expatriate nurses related to the local nursing standard in the wards and using the local nurses' experiences and knowledge when working together. RELEVANCE TO CLINICAL PRACTICE: The findings can inform nurses, humanitarian organisations and institutions working overseas regarding the recruitment and the preparation of nurses who want to work cross- culturally or in humanitarian missions overseas.


Assuntos
Diversidade Cultural , Capacitação em Serviço , Enfermeiros Internacionais , Autonomia Profissional , Socorro em Desastres , Competência Clínica , Comunicação , Feminino , Humanos , Masculino , Papel do Profissional de Enfermagem
10.
J Clin Nurs ; 24(3-4): 500-10, 2015 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-24890796

RESUMO

AIMS AND OBJECTIVES: To explore factors influencing exercise adherence among women with breast cancer while following an exercise programme. BACKGROUND: Earlier research shows that women with breast cancer decrease physical activity following the cancer diagnosis and that adhering to exercise interventions can be a challenge. Research is needed to identify motivational factors and barriers for exercise adherence among women during treatment for breast cancer. DESIGN: This was a qualitative study to explore patient's perceptions of the challenges to exercise adherence during a randomised, controlled trial. METHODS: Twenty-seven women with early-stage breast cancer were purposively sampled for focus group interviews during 2011-2012 from their participation in the exercise intervention group during 2010-2012. Five focus groups were performed, and data analysis was completed using the systematic text condensation method. RESULTS: During the focus group study, five main themes were identified, which described factors participants perceived to influence their adherence to exercise during chemotherapy: 'side effects of breast cancer treatment as a barrier to exercise', 'restoring and maintaining normality in daily life motivates exercise', 'other valued activities compete with exercise', 'constructive support enhances exercise' and 'positive beliefs about efficacy and outcomes motivate exercise'. CONCLUSION: Adherence to exercise in women with breast cancer is challenged by internal and external conditions and may be improved by attention to the impact of treatment side effects and by supporting patient self-efficacy towards changing health behaviour. RELEVANCE TO CLINICAL PRACTICE: Nurses should be aware that exercise adherence could be a challenge among women with breast cancer. They should help identify obstacles to exercise for women and ways to overcome them, as well as support them in their beliefs that they are capable of changing their health behaviour.


Assuntos
Neoplasias da Mama/psicologia , Neoplasias da Mama/terapia , Exercício Físico/psicologia , Cooperação do Paciente/psicologia , Adulto , Quimioterapia Adjuvante , Feminino , Grupos Focais , Comportamentos Relacionados com a Saúde , Humanos , Pessoa de Meia-Idade , Motivação , Pesquisa Qualitativa , Autoimagem
11.
J Adv Nurs ; 70(9): 2061-2071, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24506575

RESUMO

AIMS: To investigate the extent to which perceived support from healthcare professionals and shock anxiety is related to device acceptance among implantable cardioverter defibrillator recipients. BACKGROUND: Device acceptance can be influenced by several factors, one of which is shock anxiety associated with poor device acceptance. Reduced shock anxiety, as well as increased device acceptance, has been reported after psycho-educational programmes. As healthcare professionals appear to play a significant role in providing support and education during regular follow-up visits, they may constitute an important social support system that could be another factor influencing device acceptance. However, little is known about the relationship between perceived support from healthcare professionals and device acceptance among recipients. DESIGN: A cross-sectional survey design. METHODS: A sample comprising implantable cardioverter defibrillator recipients completed questionnaires assessing perceived support from healthcare professionals, shock anxiety and device acceptance. Demographic and clinical data were collected by self-report and from medical records in September-October 2010. RESULTS: The descriptive results indicated that approximately 85% of the recipients experienced high device acceptance. Regression analysis demonstrated that constructive support from healthcare professionals was positively associated with device acceptance and moderated the negative relationship between shock anxiety and device acceptance. Non-constructive support and shock anxiety had a negative statistical association with device acceptance. CONCLUSIONS: Healthcare professionals may represent a valuable constructive support system that can enhance device acceptance among implantable cardioverter defibrillator recipients, partly by preventing shock anxiety from leading to poor device acceptance. Non-constructive communication on the part of healthcare professionals could hinder device acceptance.


Assuntos
Ansiedade , Desfibriladores Implantáveis , Pessoal de Saúde/psicologia , Relações Profissional-Paciente , Idoso , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
12.
J Clin Nurs ; 23(3-4): 450-60, 2014 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-24102743

RESUMO

AIMS AND OBJECTIVES: To investigate (1) the extent to which shock anxiety and perceived support from healthcare professionals are related to post-traumatic stress disease (PTSD) symptoms and (2) the extent to which perceived support from healthcare professionals moderates the relationship between shock anxiety and PTSD symptoms in implantable cardioverter defibrillator recipients. An additional aim was to describe the level of PTSD symptoms and perceptions of support from healthcare professionals. BACKGROUND: Studies examining PTSD symptoms among implantable cardioverter defibrillator recipients are still sparse. In addition, little is known about how perceived support from healthcare professionals is related to PTSD symptoms. DESIGN: Cross-sectional survey design. METHODS: Recipients (n = 167) with implantable cardioverter defibrillator attending an outpatient device clinic completed questionnaires assessing shock anxiety, PTSD symptoms and perceived support from healthcare professionals. RESULTS: The results indicated that between ten and 15% of the recipients experienced moderate to severe symptoms of PTSD. Although a majority perceived constructive support from healthcare professionals, 12% perceived nonconstructive support. Regression analysis demonstrated that shock anxiety and perceived nonconstructive support from healthcare professionals had a statistically significant (p < 0·01) association with PTSD symptoms. Moreover, the results suggest that associations between shock anxiety and PTSD symptoms were significantly (p < 0·01) moderated by perceived nonconstructive support from healthcare professionals. Young age, short time since implantation and secondary prevention indication were also significantly associated with PTSD symptoms. CONCLUSIONS: The results indicate that nonconstructive support from healthcare professionals can increase the tendency to develop PTSD symptoms, particularly in those who experience shock anxiety. RELEVANCE TO CLINICAL PRACTICE: Healthcare professionals should pay more attention to the way in which they communicate information to the recipients during follow-up visits. Clinically based strategies and interventions targeting shock anxiety and PTSD symptoms should be carried out.


Assuntos
Ansiedade/terapia , Desfibriladores Implantáveis , Pessoal de Saúde , Transtornos de Estresse Pós-Traumáticos/terapia , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Apoio Social
13.
BMJ Open ; 13(8): e069599, 2023 08 03.
Artigo em Inglês | MEDLINE | ID: mdl-37536967

RESUMO

INTRODUCTION: A growing number of patients with non-communicable diseases (NCDs), such as heart failure (HF) and colorectal cancer (CRC), are prone to comorbidity, a high rate of readmissions and complex healthcare needs. An eHealth intervention, however, could potentially ameliorate the increasing burdens associated with NCDs by helping to smoothen patient transition from hospital to home and by reducing the number of readmissions. This feasibility study therefore aims to assess the feasibility of a nurse-assisted eHealth intervention posthospital discharge among patients with HF and CRC, while also examining the preliminary clinical and behavioural outcomes of the intervention before initiating a full-scale randomised controlled trial. The recruitment ended in January 2023. METHODS AND ANALYSIS: Twenty adult patients with HF and 10 adult patients with CRC will be recruited from two university hospitals in Norway. Six hospital-based nurse navigators (NNs) will offer support during the transition phase from hospital to home by using a solution for digital remote care, Dignio Connected Care. The patients will use the MyDignio application uploaded to an iPad for 30 days postdischarge. The interactions between patients and NNs will then be assessed through direct observation and qualitative interviews in line with a think-aloud protocol. Following the intervention, semistructured interviews will be used to explore patients' experiences of eHealth support and NNs' experiences of eHealth delivery. The feasibility testing will also comprise a post-test of the Post-System Usability Questionnaire and pretesting of patient-reported outcomes questionnaires, as well as an inspection of user data collected from the software. ETHICS AND DISSEMINATION: The study has been approved by the Norwegian Centre for Research Data (ID.NO: 523386). All participation is based on informed, written consent. The results of the study will be published in open-access, peer-reviewed journals and presented at international and national scientific conferences and meetings.


Assuntos
Doenças não Transmissíveis , Telemedicina , Humanos , Adulto , Estudos de Viabilidade , Alta do Paciente , Assistência ao Convalescente , Doenças não Transmissíveis/terapia , Ensaios Clínicos Controlados Aleatórios como Assunto
14.
Pacing Clin Electrophysiol ; 35(11): 1369-76, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22946670

RESUMO

BACKGROUND: Shock anxiety has been documented irrespective of shock exposure in implantable cardioverter defibrillator (ICD) recipients. The presence of tachyarrhythmia may lead to an anticipation of receiving a shock and thereby give rise to shock anxiety. The aims were to assess: (1) the level of shock anxiety in a sample of ICD recipients, (2) the relationship between such anxiety and shock exposure, and (3) the relationship between recent tachyarrhythmia and shock anxiety. METHODS: ICD recipients (n = 167) completed the Florida Shock Anxiety Scale measure of shock anxiety. The recipients were divided into three groups: (1) Recipients with no documented tachyarrhythmia over the previous 12 months (n = 56), (2) recipients with documented tachyarrhythmia over the previous twelve months (n = 54), and (3) recipients with any history of shocks (n = 57). RESULTS: Of the recipients, 44% experienced some form of shock anxiety, whereas 15% reported general shock anxiety. Analyses of covariance revealed that recipients with recent tachyarrhythmia (F = 7.675 df = 9/100, P = 0.007) as well as recipients with a shock history (F = 9.976, df = 9/103, P = 0.002) reported higher levels of shock anxiety than recipients with no recent tachyarrhythmia. CONCLUSION: This study indicates that although a substantial proportion of the ICD recipients experienced some form of shock anxiety, only a relatively small proportion reported general shock anxiety. ICD recipients with recent tachyarrhythmia, in addition to recipients with shock history, appear to be at greater risk for development of shock anxiety. This implies that these recipients may profit from clinical-based strategies and interventions targeting shock anxiety.


Assuntos
Ansiedade/epidemiologia , Arritmias Cardíacas/epidemiologia , Arritmias Cardíacas/prevenção & controle , Desfibriladores Implantáveis/estatística & dados numéricos , Traumatismos por Eletricidade/epidemiologia , Comorbidade , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Noruega/epidemiologia , Prevalência , Estudos Retrospectivos , Fatores de Risco
15.
J Adv Nurs ; 68(2): 391-401, 2012 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-21707728

RESUMO

AIM: This article is a report of a cross-sectional study examining the degree to which clinical indicators, coping styles and perceived support from healthcare professionals and family are related to diabetes-related distress. BACKGROUND: Many people with type 2 diabetes experience high levels of distress stemming from concerns and worries associated with their disease. Diabetes-related distress has predominantly been studied in relation to diabetes management and metabolic control, and to some extent in relation to coping styles and perceived social support. To date, little is known about the relative contribution of clinical indicators, coping styles and perceptions of social support to perceived distress among people with type 2 diabetes. METHODS: A sample comprising 425 Norwegian adults, aged 30-70, with type 2 diabetes, completed questionnaires assessing coping styles, perceived social support from health professionals and family and diabetes-related distress assessed by the Problem Areas in Diabetes Scale. Demographical and clinical data were collected by self-report. Data were collected in October 2008. FINDINGS: Results from the regression analyses showed a greater variance in emotional distress accounted for by coping styles (21·3%) and perceived support (19·7%) than by clinical indicators (5·8%). CONCLUSION: FINDINGS may indicate that healthcare providers should pay more attention to non-clinical factors such as coping styles and social support, when addressing diabetes-related distress. They should also be aware that interventions based on psychosocial approaches may primarily influence distress, and not necessarily metabolic control.


Assuntos
Adaptação Psicológica , Diabetes Mellitus Tipo 2/psicologia , Autocuidado/psicologia , Apoio Social , Estresse Psicológico/etiologia , Adulto , Idoso , Índice de Massa Corporal , Estudos Transversais , Diabetes Mellitus Tipo 2/epidemiologia , Diabetes Mellitus Tipo 2/enfermagem , Diabetes Mellitus Tipo 2/terapia , Emoções , Família , Feminino , Hemoglobinas Glicadas/análise , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Noruega , Relações Profissional-Paciente , Análise de Regressão , Inquéritos e Questionários , Fatores de Tempo
16.
J Adv Nurs ; 67(10): 2151-60, 2011 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-21545634

RESUMO

AIM: This paper is a report on a study undertaken to interpret employed first-time mothers' experiences of returning to work after maternity leave, in a Norwegian context. BACKGROUND: Despite the increasing rate of employed fertile women and increasing welfare benefits to support the work-life balance, the first years after giving birth are described as being the most demanding on mothers' health. However, little is known about mothers' experiences of returning to work after maternity leave. METHODS: The study included nine Norwegian employees who were individually interviewed during the first months after their return to work following maternity leave. The interviews were conducted during 2009 and interpreted using a method grounded in hermeneutics. FINDINGS: Overall, the meaning of returning to work was interpreted as 'Readjusting one's life in the tension inherent in work and motherhood'. This comprehensive theme was based on three sub-themes: (a) Striving to manage the workload and taking responsibility for the best interests of the child, (b) Struggling with feelings of not being a good enough mother, and (c) Maintaining a balance between sensitivity and self-confidence. CONCLUSION: Returning to work after maternity leave appears to be a transitional phase that can be critical to the well-being of first-time mothers. To support women during this phase, employers and public health nurses should monitor the work in relation to the women's capacity and value their competence both as employees and mothers.


Assuntos
Adaptação Psicológica , Emprego/organização & administração , Mães/psicologia , Estresse Psicológico/epidemiologia , Mulheres Trabalhadoras/psicologia , Adolescente , Adulto , Cuidado da Criança/psicologia , Pré-Escolar , Emprego/psicologia , União Europeia/estatística & dados numéricos , Feminino , Culpa , Humanos , Lactente , Acontecimentos que Mudam a Vida , Estudos Longitudinais , Masculino , Bem-Estar Materno , Pessoa de Meia-Idade , Noruega/epidemiologia , Cultura Organizacional , Licença Parental/estatística & dados numéricos , Gravidez , Pesquisa Qualitativa , Papel (figurativo) , Autoimagem , Mulheres Trabalhadoras/estatística & dados numéricos , Carga de Trabalho/psicologia , Adulto Jovem
17.
Scand J Caring Sci ; 25(4): 735-44, 2011 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-21443543

RESUMO

AIM: The aim of this study was to investigate diet and exercise management and how indicators of intrinsic motivation such as ability expectations and values are associated with diet and exercise management among adults with type 2 diabetes. BACKGROUND: Motivational problems are probably one of the main reasons for poor diabetes management. However, the mechanisms involved in the motivation for adequate self-management are still unclear. DESIGN AND METHODS: A cross-sectional design including a postal questionnaire that investigated diet and exercise management as well as intrinsic motivational factors such as ability expectations and values related to these behaviours was used to collect the data. A sample comprising 425 adults with type 2 diabetes aged between 30 and 70 completed the questionnaire. RESULTS: Reported diet management was more in accordance with recommendations than reported exercise management. Yet results indicated equally high ability expectations and positive values for exercise and diet management. Moreover, results demonstrated that ability expectations and values explained more variance in exercise (21.6%) than in diet management (7.6%). CONCLUSIONS: The modest association between intrinsic motivational factors and diet management may imply that there are important extrinsic factors that play a significant role in determining dietary behaviour. The combination of lower exercise activity than recommended and high ability expectations and values for such activity may reflect that subjective exercise norms are formed individually in accordance with what most people recognise as the appropriate level of physical activity. Finally, results may indicate that there is potential for improving exercise management by stimulating intrinsic motivation as well as by more clearly communicating recommendations for such management.


Assuntos
Diabetes Mellitus Tipo 2/fisiopatologia , Dieta , Exercício Físico , Motivação , Adulto , Idoso , Estudos Transversais , Humanos , Pessoa de Meia-Idade , Inquéritos e Questionários
18.
Nurs Health Sci ; 13(3): 316-22, 2011 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-21733053

RESUMO

The World Health Organization calls on health professionals to support women in combining maternity and work. The aim of this study was to explore midwives' and public health nurses' perceptions of supporting employed women to balance work and family life during pregnancy and early motherhood. An exploratory design, including multistage focus group interviews, was used. The focus group consisted of five midwives and one public health nurse who was working in maternity care. The data were analyzed by using qualitative content analysis. The comprehensive theme, "empowering the women when they are in 'another' state of normality", was based on two themes, "being in dialogue with the women" and "supporting the women to manage daily activities". The first theme was based on the subthemes, "perceiving the women to be in 'another' state of normality" and "providing an open atmosphere for dialogue", while the second subtheme was based on "confirming self-esteem" and "suggesting adjustments at work". The midwives and public health nurse empowered the women by enhancing their ability to carry out the self-care that was necessary in order to manage both their work and family life. Collaboration between maternity healthcare providers and employers should be developed in order to support employed women.


Assuntos
Atitude do Pessoal de Saúde , Tocologia , Relações Enfermeiro-Paciente , Enfermagem em Saúde Pública , Apoio Social , Mulheres Trabalhadoras/psicologia , Relações Familiares , Feminino , Grupos Focais , Humanos , Acontecimentos que Mudam a Vida , Noruega , Pesquisa Metodológica em Enfermagem , Poder Psicológico , Gravidez , Pesquisa Qualitativa , Carga de Trabalho
19.
J Adv Nurs ; 66(7): 1500-9, 2010 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-20497269

RESUMO

AIM: This paper is a report of a study of how adults with type 2 diabetes perceive different attributes of support provided by healthcare practitioners and how various attributes of support can influence people's motivation to self-manage their disease. BACKGROUND: Motivational problems seem to be a major reason for poor diabetes management. According to well-known theories of motivation, expectations of being able to perform certain behaviours are a key element. Different attributes of support from healthcare practitioners are likely to influence such expectations. To date, no researchers have specifically examined how people with type 2 diabetes perceive different attributes of support from healthcare practitioners and how these may influence their motivation to manage their disease themselves. METHODS: A descriptive/explorative qualitative design and focus groups were used to collect data. The sample consisted of 19 adults with type 2 diabetes, and the data were collected in 2007 and analysed using qualitative content analysis. FINDINGS: Five themes were identified, reflecting perceived attributes of support from healthcare practitioners: (1) an empathetic approach, (2) practical advice and information, (3) involvement in decision-making, (4) accurate and individualized information and (5) ongoing group-based support. CONCLUSION: Healthcare practitioners may strengthen the self-management motivation among adults with type 2 diabetes by enhancing expectations of being able to perform the necessary diabetes care, and through the provision of empathetic, individualized, practical and ongoing group-based support.


Assuntos
Atenção à Saúde/normas , Diabetes Mellitus Tipo 2/psicologia , Diabetes Mellitus Tipo 2/terapia , Autocuidado/psicologia , Apoio Social , Adulto , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Motivação , Noruega , Satisfação do Paciente , Relações Médico-Paciente , Atenção Primária à Saúde , Pesquisa Qualitativa
20.
J Clin Nurs ; 19(3-4): 537-46, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19886873

RESUMO

BACKGROUND: The experience of living with an implantable cardioverter defibrillator over time is still poorly understood. Few qualitative studies have investigated this phenomenon. AIMS: To explore implantable cardioverter defibrillator recipients' experiences of living with an implantable cardioverter defibrillator over time. DESIGN: Qualitative. METHODS: Semi-structured interviews were performed with 16 persons living with an implantable cardioverter defibrillator. The constant comparative method of grounded theory was used for data collection and analysis. RESULTS: The core category was defined as 'Reconstructing the unpredictability of living with an ICD' and illustrated by four categories: 'losing control'; 'regaining control'; 'lacking support'; and 'seeking support'. The category 'losing control' encompassed experiences of unpredictability leading to uncertainty as a result of the triggering of the device. Reduced activity to avoid shocks played a major role. In the category 'regaining control', wellbeing increased as time elapsed after the shock and the implantable cardioverter defibrillator recipients reconstructed the unpredictability by adapting to life changes, trusting the implantable cardioverter defibrillator as a life saver and accepting uncertainty. The category labelled 'lacking support' highlighted the implantable cardioverter defibrillator recipients' experiences of lack of appropriate support and advice from health care professionals. The final category 'seeking support' illustrates the implantable cardioverter defibrillator recipients' attempts to obtain guidance and support from family members and health care professionals and the importance of these aspects for the recovery process. CONCLUSION: Living with an implantable cardioverter defibrillator over time was characterised by unpredictability and uncertainty associated with the triggering of the device. Despite coping with uncertainty by means of several strategies, a new onset of arrhythmia could reinforce the feeling of losing control. An important finding was the reduced activity level. RELEVANCE FOR CLINICAL PRACTICE: The results provide knowledge that can aid the design of an intervention programme aimed at reducing patient insecurity and enhancing physical activity. Nurses are in a key position to implement such strategies.


Assuntos
Desfibriladores Implantáveis/psicologia , Emoções , Feminino , Humanos , Controle Interno-Externo , Masculino , Incerteza
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