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1.
Eur J Neurol ; 31(8): e16334, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-38733099

RESUMO

BACKGROUND: Dementia is assumed to alter mental capacity, which may necessitate legal guardianship. However, only limited research exists on how dementia affects mental capacity, and most studies have focused solely on a medical perspective and concentrate on memory functions. The aim of this qualitative study was to investigate physicians' and legal experts' perceptions on a broad range of cognitive and neuropsychiatric domains potentially affecting mental capacity and the need for guardianship in people with dementia. METHODS: Physicians (N = 30) and legal experts (N = 20) participated in semi-structured individual interviews. The data were analyzed by using content analysis and further semi-quantified according to the cognitive and neuropsychiatric domains. RESULTS: Physicians considered neuropsychiatric symptoms and executive dysfunction to be the most important deficits in the legal context, while legal experts highlighted episodic memory impairment and dyscalculia. Perceptions regarding the importance of several cognitive and neuropsychiatric symptoms varied between and within the professional groups. CONCLUSIONS: Physicians and legal experts diverged in their perceptions of cognitive and neuropsychiatric domains affecting mental capacity and the need for guardianship. The evaluation and influence of medical evidence among legal experts heavily rely on subjective opinions. Given the substantial potential impact on patients' equal access to their rights, developing standardized guidelines is essential.


Assuntos
Demência , Tutores Legais , Médicos , Pesquisa Qualitativa , Humanos , Tutores Legais/legislação & jurisprudência , Demência/psicologia , Masculino , Feminino , Pessoa de Meia-Idade , Médicos/psicologia , Competência Mental/legislação & jurisprudência , Adulto , Atitude do Pessoal de Saúde
2.
BMC Psychiatry ; 24(1): 442, 2024 Jun 13.
Artigo em Inglês | MEDLINE | ID: mdl-38872132

RESUMO

BACKGROUND: Involuntary psychiatric hospitalisation occurs under different legal premises. According to German law, detention under the Mental Health Act (MHA) is possible in cases of imminent danger of self-harm or harm to others, while detention according to the legal guardianship legislation (LGL) serves to prevent self-harm if there is considerable but not necessarily imminent danger. This study aims to compare clinical, sociodemographic and environmental socioeconomic differences and similarities between patients hospitalised under either the MHA or LGL. METHODS: We conducted a retrospective health records analysis of all involuntarily hospitalised cases in the four psychiatric hospitals of the city of Cologne, Germany, in 2011. Of the 1,773 cases, 87.3% were detained under the MHA of the federal state of North Rhine-Westphalia and 6.4% were hospitalised according to the federal LGL. Another 6.3% of the cases were originally admitted under the MHA, but the legal basis of detention was converted to LGL during the inpatient psychiatric stay (MHA→LGL cases). We compared sociodemographic, clinical, systemic and environmental socioeconomic (ESED) variables of the three groups by means of descriptive statistics. We also trained and tested a machine learning-based algorithm to predict class membership of the involuntary modes of psychiatric inpatient care. RESULTS: Cases with an admission under the premises of LGL lived less often on their own, and they were more often retired compared to MHA cases. They more often had received previous outpatient or inpatient treatment than MHA cases, they were more often diagnosed with a psychotic disorder and they lived in neighbourhoods that were on average more socially advantaged. MHA→LGL cases were on average older and more often retired than MHA cases. More often, they had a main diagnosis of an organic mental disorder compared to both MHA and LGL cases. Also, they less often received previous psychiatric inpatient treatment compared to LGL cases. The reason for detention (self-harm or harm to others) did not differ between the three groups. The proportion of LGL and MHA cases differed between the four hospitals. Effect sizes were mostly small and the balanced accuracy of the Random Forest was low. CONCLUSION: We found some plausible differences in patient characteristics depending on the legal foundation of the involuntary psychiatric hospitalisation. The differences relate to clinical, sociodemographic and socioeconomical issues. However, the low effect sizes and the limited accuracy of the machine learning models indicate that the investigated variables do not sufficiently explain the respective choice of the legal framework. In addition, we found some indication for possibly different interpretation and handling of the premises of the law in practice. Our findings pose the need for further research in this field.


Assuntos
Internação Compulsória de Doente Mental , Hospitais Psiquiátricos , Tutores Legais , Humanos , Feminino , Masculino , Tutores Legais/legislação & jurisprudência , Estudos Retrospectivos , Internação Compulsória de Doente Mental/legislação & jurisprudência , Internação Compulsória de Doente Mental/estatística & dados numéricos , Adulto , Pessoa de Meia-Idade , Alemanha , Hospitais Psiquiátricos/legislação & jurisprudência , Transtornos Mentais/psicologia , Hospitalização/legislação & jurisprudência , Hospitalização/estatística & dados numéricos , Internação Involuntária/legislação & jurisprudência
3.
Pediatr Crit Care Med ; 25(9): e380-e384, 2024 Sep 01.
Artigo em Inglês | MEDLINE | ID: mdl-38885524

RESUMO

OBJECTIVES: To identify the frequency of which a legal guardian is at the bedside of children admitted to the PICU that are eligible for research studies. DESIGN: A prospective, observational study. SETTING: Three tertiary Canadian PICUs. PATIENTS: Two hundred one patients were admitted to the PICU between September 2021 and March 2023 (site 1), from March 2019 to March 2020 and March 2022 to March 2023 (site 2), and from March 2019 to March 2020 and July 2020 to November 2021 (site 3). INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: At each center, the duration of consent encounters was recorded for patients eligible for research by documenting the length of each attempt (min). The frequency of parental presence at bedside and the ability for a guardian to make a decision were also recorded. Thirty-five percent of patients eligible for research did not have a legal guardian at the bedside on the first attempted consent encounter. Twenty-three percent of approached patients were not enrolled due to an inability for a consent decision to be made by the child's legal guardian or an inability to contact the guardian before discharge. CONCLUSIONS: The absence of legal guardians in the PICU poses a barrier to the enrollment of critically ill children in pertinent research studies and suggests that a model of deferred consent or implied consent would aid in the future of critical care research.


Assuntos
Unidades de Terapia Intensiva Pediátrica , Tutores Legais , Humanos , Unidades de Terapia Intensiva Pediátrica/estatística & dados numéricos , Estudos Prospectivos , Criança , Masculino , Feminino , Pré-Escolar , Tutores Legais/legislação & jurisprudência , Lactente , Canadá , Adolescente , Consentimento Livre e Esclarecido/legislação & jurisprudência , Seleção de Pacientes , Pesquisa Biomédica/legislação & jurisprudência
4.
J Intellect Disabil ; 24(2): 194-211, 2020 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-29929418

RESUMO

BACKGROUND: Psychotropic medication is widely prescribed to treat mental illness. However, it is controversial when used as a chemical restraint (CR) to manage challenging behaviours (CBs) of adults with intellectual disability (ID). CR has potentially negative consequences and affects human rights. METHOD: Qualitative research conducted between 2014 and 2015 explored the views of 'guardian' decision makers appointed under unique Queensland legislation oversighting the use of CR. RESULTS: Findings included (1) negative conceptualization of CR, (2) concerning relationships with prescribers and disability sector staff, (3) challenges to information seeking about people with ID prescribed CR and (4) problematic implementation of positive behaviour support plans. CONCLUSION: According to guardians, CR may be used in lieu of community supports, and prescribers sometimes diagnose mental illness to avoid CR legislative requirements. Guardians, prescribers and professionals would benefit from training that addresses the intersection between physical and mental health, CB and CR.


Assuntos
Deficiência Intelectual/tratamento farmacológico , Tutores Legais/legislação & jurisprudência , Pessoas com Deficiência Mental/legislação & jurisprudência , Comportamento Problema , Psicotrópicos/uso terapêutico , Adulto , Feminino , Humanos , Masculino , Pesquisa Qualitativa , Queensland
5.
Nervenarzt ; 89(3): 311-318, 2018 Mar.
Artigo em Alemão | MEDLINE | ID: mdl-29079867

RESUMO

BACKGROUND: Severe affective and psychotic disorders may be accompanied by legal incapacity. If in this case the patient refuses treatment and in parallel there is a risk of serious damage to health, treatment can be carried out against the patient's non-autonomous will under defined prerequisites. Due to its good and partly superior effectiveness in the treatment of severe and pharmacotherapy-resistant affective and psychotic disorders, electroconvulsive therapy (ECT) is an important treatment option in such constellations. AIM: Description of the general principles and prerequisites of therapeutic measures against the patient's will. METHODS: Based on a case report, the application of ECT as a medical measure against the patient's will is discussed and assessed in an interdisciplinary approach from clinical, legal, and ethical perspectives. RESULTS AND DISCUSSION: The (empirical) evidence on the general effectiveness of ECT, as well as its application against the will of patients with legal incapacity, clearly shows a positive benefit-risk ratio. When performed against the patient's will, ECT as all compulsory medical interventions, represents a severe encroachment on the individual's fundamental rights of both physical integrity and self-determination. Nevertheless, its application may be medically indicated, legally admissible and ethically appropriate in individual cases to prevent the threat of serious damage to the patient's health. Ethical and legal prerequisites of treatment against the patient's will should be evaluated by a multiprofessional team and the patient's legal guardian should be involved from an early stage.


Assuntos
Transtorno Bipolar/terapia , Transtorno Depressivo Resistente a Tratamento/terapia , Eletroconvulsoterapia/legislação & jurisprudência , Consentimento Livre e Esclarecido/legislação & jurisprudência , Autonomia Pessoal , Transtornos Psicóticos/terapia , Recusa do Paciente ao Tratamento/legislação & jurisprudência , Transtorno Bipolar/psicologia , Transtorno Depressivo Resistente a Tratamento/psicologia , Eletroconvulsoterapia/ética , Eletroconvulsoterapia/psicologia , Ética Médica , Alemanha , Humanos , Consentimento Livre e Esclarecido/psicologia , Comunicação Interdisciplinar , Colaboração Intersetorial , Tutores Legais/legislação & jurisprudência , Masculino , Competência Mental/legislação & jurisprudência , Pessoa de Meia-Idade , Transtornos Psicóticos/psicologia , Tentativa de Suicídio/legislação & jurisprudência , Tentativa de Suicídio/psicologia , Consentimento do Representante Legal/legislação & jurisprudência , Recusa do Paciente ao Tratamento/psicologia
6.
Australas Psychiatry ; 26(5): 469-473, 2018 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-29480017

RESUMO

OBJECTIVE: The study aimed to survey hospital staff knowledge of the application of the Mental Health Act 2007 (NSW) (MHA) and the Guardianship Act 1987 (NSW) (GA) in the care and treatment of older persons in a teaching hospital in Sydney. Method Over a two-month period in 2017, a survey questionnaire was distributed to staff involved in older persons' care across the hospital. RESULTS: The majority of the hospital staff demonstrated basic theoretical knowledge of both the GA (76%) and of the MHA (84.5%). Fewer (64.5%) appeared to understand the practical application of the MHA in the hypothetical clinical situations. An even lower proportion of staff appeared to understand the application of the GA either to obtain consent for medical treatment or to appoint a guardian through the Guardianship Division of the NSW Civil and Administrative Tribunal (NCAT). CONCLUSION: Although clinical staff of the hospital displayed fair knowledge and awareness about the application of the MHA and the GA to inpatient care of older adults, further education is necessary, particularly about the application of the GA. The authors suggest similar findings may occur at other New South Wales hospitals, which may raise concern and need for education.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Pacientes Internados , Tutores Legais , Legislação Médica , Saúde Mental/legislação & jurisprudência , Recursos Humanos em Hospital , Idoso , Hospitais de Ensino/estatística & dados numéricos , Humanos , Pacientes Internados/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , New South Wales , Recursos Humanos em Hospital/estatística & dados numéricos
7.
BMC Geriatr ; 17(1): 217, 2017 09 15.
Artigo em Inglês | MEDLINE | ID: mdl-28915861

RESUMO

BACKGROUND: In Germany, the guardianship system provides adults who are no longer able to handle their own affairs a court-appointed legal representative, for support without restriction of legal capacity. Although these representatives only rarely are qualified in healthcare, they nevertheless play decisive roles in the decision-making processes for people with dementia. Previously, we developed an education program (PRODECIDE) to address this shortcoming and tested it for feasibility. Typical, autonomy-restricting decisions in the care of people with dementia-namely, using percutaneous endoscopic gastrostomy (PEG) or physical restrains (PR), or the prescription of antipsychotic drugs (AP)-were the subject areas trained. The training course aims to enhance the competency of legal representatives in informed decision-making. In this study, we will evaluate the efficacy of the PRODECIDE education program. METHODS: A randomized controlled trial with a six-month follow-up will be conducted to compare the PRODECIDE education program with standard care, enrolling legal representatives (N = 216). The education program lasts 10 h and comprises four modules: A, decision-making processes and methods; and B, C and D, evidence-based knowledge about PEG, PR and AP, respectively. The primary outcome measure is knowledge, which is operationalized as the understanding of decision-making processes in healthcare affairs and in setting realistic expectations about benefits and harms of PEG, PR and AP in people with dementia. Secondary outcomes are sufficient and sustainable knowledge and percentage of persons concerned affected by PEG, FEM or AP. A qualitative process evaluation will be performed. Additionally, to support implementation, a concept for translating the educational contents into e-learning modules will be developed. DISCUSSION: The study results will show whether the efficacy of the education program could justify its implementation into the regular training curricula for legal representatives. Additionally, it will determine whether an e-learning course provides a valuable backup or even alternative learning strategy. TRIAL REGISTRATION: TRN: ISRCTN17960111 , Date: 01/06/2017.


Assuntos
Tomada de Decisões , Atenção à Saúde/normas , Demência , Defesa do Paciente/educação , Defesa do Paciente/legislação & jurisprudência , Procurador/legislação & jurisprudência , Técnicas de Apoio para a Decisão , Estudos de Viabilidade , Alemanha , Humanos , Conhecimento , Tutores Legais/educação , Tutores Legais/legislação & jurisprudência , Participação do Paciente
8.
Schmerz ; 31(1): 54-61, 2017 Feb.
Artigo em Alemão | MEDLINE | ID: mdl-27271155

RESUMO

BACKGROUND: In September 2009 a new legislation for advance care planning was introduced in Germany with the important characteristics of bindingness and unlimited validity for individual directives. Knowledge regarding this act and the attitude towards its characteristics among patients is unclear. AIM OF THIS STUDY: Analysis of knowledge, attitude and opinion of patients in a general internal medical department regarding advance care planning in general and the recent German legislation. METHODS: A total of 200 consecutive patients in an internal medicine ward were interviewed with the help of a questionnaire regarding their attitude to and knowledge on advance care planning in general and the current legislation. RESULTS: Approximately 40 % of the patients had issued some form of directive (either advance care directive or health care proxy) and only 7.5 % were advised by their physicians to make an advance directive. Patients with no directive were not willing to deal with dying and death, were not well-informed about directives or assumed that relatives or physicians would make an appropriate decision. Characteristics of the new legislation were controversially assessed; only 21 % of the patients wished to have a literal implementation of their directive. Regarding the content of an advance directive, more than 80 % of the patients voted for pain control in the palliative setting. CONCLUSION: The proportion of patients with a directive regarding advance care planning is only slowly increasing. Many patients are not well-informed, do not want to deal with dying or would like to delegate decisions to relatives and physicians. The present characteristics of the German legislation are controversially assessed and often do not represent the wishes of the patients.


Assuntos
Diretivas Antecipadas/legislação & jurisprudência , Atitude do Pessoal de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Departamentos Hospitalares/legislação & jurisprudência , Medicina Interna/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Programas Nacionais de Saúde/legislação & jurisprudência , Idoso , Idoso de 80 Anos ou mais , Feminino , Alemanha , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/legislação & jurisprudência
9.
Z Rheumatol ; 76(5): 425-433, 2017 Jun.
Artigo em Alemão | MEDLINE | ID: mdl-28477205

RESUMO

In clinical practice, situations continuously occur in which medical professionals and family members are confronted with decisions on whether to extend or limit treatment for severely ill patients in end of life treatment decisions. In these situations, advance directives are helpful tools in decision making according to the wishes of the patient; however, not every patient has made an advance directive and in our experience medical staff as well as patients are often not familiar with these documents. The purpose of this article is therefore to explain the currently available documents (e.g. living will, healthcare power of attorney and care directive) and the possible (legal) applications and limitations in the routine clinical practice.


Assuntos
Diretivas Antecipadas/legislação & jurisprudência , Termos de Consentimento/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Testamentos Quanto à Vida/legislação & jurisprudência , Direitos do Paciente/legislação & jurisprudência , Padrões de Prática Médica/legislação & jurisprudência , Alemanha , Regulamentação Governamental
10.
Unfallchirurg ; 120(2): 153-161, 2017 Feb.
Artigo em Alemão | MEDLINE | ID: mdl-28120031

RESUMO

In clinical practice, situations continuously occur in which medical professionals and family members are confronted with decisions on whether to extend or limit treatment for severely ill patients in end of life treatment decisions. In these situations, advance directives are helpful tools in decision making according to the wishes of the patient; however, not every patient has made an advance directive and in our experience medical staff as well as patients are often not familiar with these documents. The purpose of this article is therefore to explain the currently available documents (e.g. living will, healthcare power of attorney and care directive) and the possible (legal) applications and limitations in the routine clinical practice.


Assuntos
Diretivas Antecipadas/legislação & jurisprudência , Tomada de Decisão Clínica , Tutores Legais/legislação & jurisprudência , Direito a Morrer/legislação & jurisprudência , Assistência Terminal/legislação & jurisprudência , Suspensão de Tratamento/legislação & jurisprudência , Regulamentação Governamental , Humanos
11.
Nervenarzt ; 88(1): 46-52, 2017 Jan.
Artigo em Alemão | MEDLINE | ID: mdl-26781243

RESUMO

BACKGROUND: Electroconvulsive therapy (ECT) is a potent and successful method for the treatment of severe psychiatric disorders. Severe depressive and psychotic disorders may lead to legal incapacity and inability to consent. In Germany, administration of ECT against the patient's will is feasible under certain constellations and is regulated under the terms of the guardianship law. OBJECTIVE: This article outlines the prevalence, effectiveness and tolerability of ECT when applied in nonconsenting patients. MATERIAL AND METHODS: Case report and literature review. RESULTS: The literature on ECT as a treatment in nonconsenting patients is relatively sparse. In 2008 the prevalence in Germany was less than 0.5 % of all patients receiving ECT. Case reports and case series suggest a good and equal level of effectiveness when compared to consenting patients. In the course of treatment the majority of patients consented to receive further ECT and retrospectively judged ECT as helpful. CONCLUSION: The use of ECT is a highly effective treatment in severe psychiatric disorders even when administered as treatment in nonconsenting patients. It can be lifesaving and lead to a rapid improvement of symptoms and relief from severe suffering also from the patients' perspective. Thus, it seems unethical not to consider ECT as a treatment against the nonautonomous will of legally incompetent patients in individual cases. Nevertheless, physicians should always seek to obtain the patients' consent as soon as possible for both legal and ethical reasons.


Assuntos
Eletroconvulsoterapia/legislação & jurisprudência , Eletroconvulsoterapia/métodos , Consentimento Livre e Esclarecido/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Transtornos Psicóticos/terapia , Consentimento do Representante Legal/legislação & jurisprudência , Adulto , Eletroconvulsoterapia/ética , Medicina Baseada em Evidências , Feminino , Alemanha , Humanos , Consentimento Livre e Esclarecido/ética , Competência Mental , Transtornos Psicóticos/diagnóstico , Fatores de Risco , Consentimento do Representante Legal/ética , Resultado do Tratamento
12.
Internist (Berl) ; 58(12): 1281-1289, 2017 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-29071388

RESUMO

In clinical practice, situations continuously occur in which medical professionals and family members are confronted with decisions on whether to extend or limit treatment for severely ill patients in end of life treatment decisions. In these situations, advance directives are helpful tools in decision making according to the wishes of the patient; however, not every patient has made an advance directive and in our experience medical staff as well as patients are often not familiar with these documents. The purpose of this article is therefore to explain the currently available documents (e.g. living will, healthcare power of attorney and care directive) and the possible (legal) applications and limitations in the routine clinical practice.


Assuntos
Diretivas Antecipadas/legislação & jurisprudência , Medicina Interna/legislação & jurisprudência , Alemanha , Humanos , Tutores Legais/legislação & jurisprudência , Testamentos Quanto à Vida/legislação & jurisprudência , Autonomia Pessoal , Relações Médico-Paciente , Assistência Terminal/legislação & jurisprudência
13.
Clin Gerontol ; 40(1): 35-42, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28452626

RESUMO

OBJECTIVE: This article evaluates the role healthcare providers play in balancing safety versus autonomy among elders when performing capacity evaluations. METHODS: Presentation of a case study consisting of an 85-year-old, Caucasian, widowed, male, post-stroke veteran, residing in long-term care. He was assigned a permanent court-appointed joint guardian and conservator, but wanted to remove both of these as he felt he had the ability to manage his own affairs. This case study specifically addresses the issue of financial capacity. RESULTS: After completion of the evaluation, a case was made for the least restrictive means balancing patient autonomy and protection, opting for a limited conservatorship. The court, using the evaluation as evidence, completely removed the guardianship and conservatorship. CONCLUSIONS: This article outlines how providers can navigate multiple roles, team dynamics, and advocate for enhancing the capacity of an older adult.


Assuntos
Envelhecimento/psicologia , Avaliação Geriátrica , Tutores Legais/legislação & jurisprudência , Competência Mental , Idoso de 80 Anos ou mais , Doença de Alzheimer/diagnóstico , Economia , Abuso de Idosos , Humanos , Assistência de Longa Duração , Masculino , Autonomia Pessoal
14.
Wiad Lek ; 70(6 pt 1): 1122-1132, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-29478990

RESUMO

OBJECTIVE: Introduction: Among all categories of patients children (minors) must be protected first. It is caused so by the specificity of the treatment, their vulnerability, the need of further protection and supervision. Providing of medical care services for children are often connected with the risks of the process of treatment, and of the drug usage. The aim: To identify the problems associated with the protection of the rights of minors and, on the basis of this, the basic guarantees of their rights, as well as mark the trends in the practice of ECHR. PATIENTS AND METHODS: Materials and Methods: The study is based on its own theoretical and empirical basis. The theoretical basis include scientific articles, expert reviews of legislation and communications of non-governmental organisations, and empirical - decisions of the ECHR, international legal acts and directives of the EU. RESULTS: Results: The main violations of the rights of minor children include the following: - legal representatives of children do not take to the account their interests (refusal of medical intervention or the choice of certain method of interference); - medical intervention under the influence of coercion; - providing of unwarranted medical care without the corresponding testimony; - providing of inadequate medical care: when the patient was only examined and ineffective treatment was prescribed, and others. As for mentally ill children, the following rights are usually violated: for life, for a fair trial. It has been proved that defects in the provision of health care are often predetermined by the poor state logistics of hospitals, lack of financing and appropriate pediatric medicines, outdated methods of treatment, and incompetence of some doctors. CONCLUSION: Conclusions: From the point of view of protecting the rights of minors, the rights of children in medicine can be classified into universal and special. The rights correspond not only to the corresponding duties of medical staff, but also of their parents (legal representatives). Violations of their rights are usually related to improper representation of the interests of children and disadvantages of providing medical services (defects in their provision), in particular, regarding the treatment of mentally ill, as well as in clinical trials. It has been proven that the practice of the ECHR on the protection of the rights of the child in the field of health is of particular importance.


Assuntos
Defesa da Criança e do Adolescente/legislação & jurisprudência , Saúde da Criança/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Equipe de Assistência ao Paciente/legislação & jurisprudência , Criança , Serviços de Saúde da Criança/legislação & jurisprudência , União Europeia , Humanos , Transtornos Mentais/terapia , Serviços de Saúde Mental/legislação & jurisprudência , Polônia
15.
Artigo em Alemão | MEDLINE | ID: mdl-27503499

RESUMO

Legal problems related to the capacity to consent and decision-making have recently become increasingly important. This concerns the prerequisites and limitations of legal participation as a basis of social participation. Among the relevant social spheres and fields of action, this particulary concerns medicine and health care as well as disability and care. At the normative level, with a view to those concerned, this leads to fundamental questions resulting from the tension between self-determination and care as basic legal and ethical standards. At the empirical level, there are debates between the law and the sciences with regard to the relevant knowledge base for the assessment of (in)capacity to consent. The traditional controversies about the relevant legal criteria determining the existence or absence of capacity to consent are intensified by some recent legal developments, two of which must be highlighted. One of these is the postulate, increasingly emphasized by courts and legislator, of an at least communicative involvement of persons incapable to give consent in the decision-making process. The other is the fundamental discussion of medical ethics on concepts of assisted self-determination and supported decision-making, the consequences of which will also be of relevance at the legal level. Insofar, the development of guardianship law and the legal requirements of the UN Disability Rights Convention are of particular importance.


Assuntos
Pessoas com Deficiência/legislação & jurisprudência , Consentimento Livre e Esclarecido/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Competência Mental/legislação & jurisprudência , Participação do Paciente/legislação & jurisprudência , Participação Social/psicologia , Avaliação da Deficiência , Alemanha , Regulamentação Governamental , Humanos , Consentimento Livre e Esclarecido/ética
16.
J Pediatr Gastroenterol Nutr ; 60(6): 769-75, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25996794

RESUMO

OBJECTIVES: Informed consent (IC) is an essential communication between patient/representative and physician that acknowledges patient autonomy; assent is the equivalent process performed between youth and physician. For clinical procedures involving youth, only the IC process between guardian/parent and physician is required to be performed. Nevertheless, experts recommend that youth undergo assent whenever possible. In the present study, we explored both parental and youth understanding of required IC elements in IC discussions before pediatric endoscopy. METHODS: Following signing of IC documents on the day of endoscopy at a tertiary care academic medical center, youth and their parents underwent structured interviews to assess comprehension of key elements of the IC process. RESULTS: A total of 88 children and adolescents and their parents were evaluated. Two youth and 12 parents demonstrated comprehensive understanding of key IC elements for pediatric endoscopy. Suboptimal youth understanding was demonstrated for nature of the procedure (25% with adequate understanding) and related risks (17%), and alternatives (14%) to the procedure. Suboptimal parental understanding was demonstrated for procedure alternatives (24%). Youth overall understanding of IC varied by age, whereas parental global understanding of IC varied by physician. CONCLUSIONS: Understanding of IC performed for pediatric endoscopy could be improved in both parents and youth. Our findings suggest that interventions targeting parents, youth, and physicians may be helpful. Further study is needed to determine whether our findings are representative of IC understanding at other pediatric endoscopy centers.


Assuntos
Compreensão , Endoscopia/legislação & jurisprudência , Consentimento Livre e Esclarecido/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Pacientes/legislação & jurisprudência , Pediatria/legislação & jurisprudência , Adolescente , Adulto , Criança , Pré-Escolar , Comunicação , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Pais , Relações Profissional-Família , Inquéritos e Questionários
17.
Int Psychogeriatr ; 27(6): 1029-37, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25573420

RESUMO

BACKGROUND: The International Psychogeriatric Association (IPA) capacity taskforce was established to promote the autonomy, proper access to care, and dignity of persons with decision-making disabilities (DMDs) across nations. The Asia Consortium of the taskforce was established to pursue these goals in the Asia-Pacific region. This paper is part of the Asia Consortium's initiative to promote understanding and advocacy in regard to surrogate decision-making across the region. METHOD: The current guardianship laws are compared, and jurisdictional variations in the processes for proxy decision-making to support persons with DMDs and other health and social needs in China, Japan, Thailand, and Australia are explored. RESULTS: The different Asia-Pacific countries have various proxy decision-making mechanisms in place for persons with DMDs, which are both formalized according to common law, civil law, and other legislation, and shaped by cultural practices. Various processes for guardianship and mechanisms for medical decision-making and asset management exist across the region. Processes that are still evolving across the region include those that facilitate advanced planning as a result of the paucity of legal structures for enduring powers of attorney (EPA) and guardianship in some regions, and the struggle to achieve consensual positions in regard to end-of-life decision-making. Formal processes for supporting decision-making are yet to be developed. CONCLUSIONS: The diverse legal approaches to guardianship and administration must be understood to meet the challenges of the rapidly ageing population in the Asia-Pacific region. Commonalities in the solutions and difficulties faced in encountering these challenges have global significance.


Assuntos
Tutores Legais/legislação & jurisprudência , Competência Mental/legislação & jurisprudência , Diretivas Antecipadas/legislação & jurisprudência , Idoso , Austrália , China , Tomada de Decisões , Financiamento Pessoal/legislação & jurisprudência , Serviços de Saúde para Idosos/legislação & jurisprudência , Humanos , Japão , Direitos do Paciente/legislação & jurisprudência , Assistência Terminal/legislação & jurisprudência , Tailândia
18.
Aging Ment Health ; 19(9): 790-8, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25269384

RESUMO

OBJECTIVES: The aim of this study was to examine the extent to which an Elder Abuse Forensic Center protects financial exploitation (FE) victims through referral to the Office of the Public Guardian (PG) for investigation and possible conservatorship (called 'guardianship' in many states). METHOD: Los Angeles County Elder Abuse Forensic Center cases involving adults aged 65 and older (April 2007-December 2009) were matched using one-to-one propensity-score matching to 33,650 usual care Adult Protective Services (APS) cases. The final analysis sample consisted of 472 FE cases. RESULTS: Compared to usual care, Forensic Center cases were more likely to be referred to the PG for investigation (30.6%, n = 72 vs. 5.9%, n = 14, p < .001). The strongest predictors of PG referral were suspected cognitive impairment, as identified by APS (odds ratio [OR] = 11.69, confidence intervals [CI]: 3.50-39.03), and Forensic Center review (OR = 7.85, CI: 3.86-15.95). Among referred cases, the court approved conservatorship at higher rates - though not statistically significant - for Forensic Center cases than usual care (52.9%, n = 36/68 vs. 41.7%, n = 5/12). CONCLUSION: Conservatorship may be a necessary last resort to improve safety for some FE victims, and the Forensic Center appears to provide a pathway to this service. These findings suggest modification to the Elder Abuse Forensic Center conceptual model and contribute to an emerging body of evidence on the role of the Forensic Center in addressing elder abuse.


Assuntos
Abuso de Idosos/prevenção & controle , Órgãos Governamentais/estatística & dados numéricos , Tutores Legais/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Abuso de Idosos/legislação & jurisprudência , Abuso de Idosos/estatística & dados numéricos , Feminino , Humanos , Tutores Legais/legislação & jurisprudência , Governo Local , Los Angeles , Masculino , Encaminhamento e Consulta
19.
J Clin Ethics ; 26(2): 180-8, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-26132070

RESUMO

This issue's "Legal Briefing" column covers recent legal developments involving medical decision making for incapacitated patients who have no available legally authorized surrogate decision maker. These individuals are frequently referred to either as "adult orphans" or as "unbefriended," "isolated," or "unrepresented" patients. The challenges involved in obtaining consent for medical treatment on behalf of these individuals have been the subject of major policy reports. Indeed, caring for the unbefriended has even been described as the "single greatest category of problems" encountered in bioethics consultation. In 2012, JCE published a comprehensive review of the available mechanisms by which to make medical decisions for the unbefriended. The purpose of this "Legal Briefing" is to update the 2012 study. Accordingly, this "Legal Briefing" collects and describes significant legal developments from only the past three years. My basic assessment has not changed. "Existing mechanisms to address the issue of decision making for the unbefriended are scant and not uniform." Most facilities are "muddling through on an ad hoc basis." But the situation is not wholly negative. There have been a number of promising new initiatives. I group these developments into the following seven categories: 1. Increased Attention and Discussion 2. Prevention through Better Advance Care Planning 3. Prevention through Expanded Default Surrogate Lists 4. Statutorily Authorized Intramural Mechanisms 5. California Litigation Challenging the Team Approach 6. Public Guardianship 7. Improving Existing Guardianship Processes.


Assuntos
Planejamento Antecipado de Cuidados , Tomada de Decisões/ética , Tratamento de Emergência , Tutores Legais/legislação & jurisprudência , Administração dos Cuidados ao Paciente , Papel do Médico , Consentimento do Representante Legal , Adulto , Planejamento Antecipado de Cuidados/ética , Planejamento Antecipado de Cuidados/legislação & jurisprudência , Comportamento de Escolha/ética , Dissidências e Disputas , Tratamento de Emergência/ética , Ética Médica , Família , Humanos , Administração dos Cuidados ao Paciente/ética , Administração dos Cuidados ao Paciente/legislação & jurisprudência , Procurador/legislação & jurisprudência , Setor Público , Encaminhamento e Consulta , Consentimento do Representante Legal/ética , Consentimento do Representante Legal/legislação & jurisprudência , Estados Unidos , Voluntários
20.
Zentralbl Chir ; 140(4): 376-81, 2015 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-23696206

RESUMO

Since September 1st, 2009, the most recent version of the German "Betreuungsrechtsänderungsgesetz" has been validated by the legislators. It precisely sets out how physicians and nursing staff have to deal with a written declaration of a patient's will. This new law focuses in a special way on advance directives, describes the precise rules for the authors of an advance directive and shows both its sphere of action and its limitations. This article aims to give an overview on the legal scope of advance directives, and to illustrate potential limitations and conflicts. Furthermore, it shows the commitments and rights of the medical team against the background of an existing advance directive.


Assuntos
Diretivas Antecipadas/legislação & jurisprudência , Atitude do Pessoal de Saúde , Cirurgia Geral/legislação & jurisprudência , Programas Nacionais de Saúde/legislação & jurisprudência , Adesão a Diretivas Antecipadas/legislação & jurisprudência , Alemanha , Humanos , Tutores Legais/legislação & jurisprudência , Consentimento do Representante Legal/legislação & jurisprudência
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