Name Info Provider Link
Hemangioblastoma free resource Genetic Alliance https://www.diseaseinfosearch.org/result/3268
Von Hippel-Lindau Disease free resource MedlinePlus Health Information https://medlineplus.gov/vonhippellindaudisease.html
subscription/membership/fee required Springer https://dx.doi.org/10.1007/s00701-012-1514-y