[Register and cohort studies : Overview of the most important data sources at the German Rheumatism Research Center]. / Register- und Kohortenstudien : Eine Übersicht über die wichtigsten Datenquellen am Deutschen Rheuma-Forschungszentrum.
Z Rheumatol
; 79(10): 983-995, 2020 Dec.
Article
en De
| MEDLINE
| ID: mdl-33258976
ABSTRACT
Over the past 28 years the German Rheumatism Research Center in Berlin has initiated various epidemiological studies in which data on patients with inflammatory rheumatic diseases are collected nationwide and multicentric. The spectrum ranges from rheumatoid arthritis and spondylarthritis to connective tissue diseases and rheumatic diseases in childhood. Based on the respective scientific question, studies of different types were established. The German National Databases for adults and children annually collect cross-sectional data to map the care of patients. In two inception cohorts, adults with early arthritis and patients with juvenile idiopathic arthritis are investigated from disease onset. The long-term observational cohorts/registries RABBIT, RABBIT-SpA and JuMBO focus on the long-term efficacy and safety of biologic drugs and other targeted treatments. Rhekiss investigates women with inflammatory rheumatic diseases when trying to become pregnant, during pregnancy and postpartum. This article highlights each of these observational studies with its characteristics as well as national and international collaborations.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Banco de datos:
MEDLINE
Asunto principal:
Artritis Juvenil
/
Artritis Reumatoide
/
Enfermedades Reumáticas
Tipo de estudio:
Clinical_trials
/
Diagnostic_studies
/
Etiology_studies
/
Incidence_studies
/
Observational_studies
/
Prevalence_studies
/
Risk_factors_studies
Límite:
Adult
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Child
/
Female
/
Humans
/
Pregnancy
País/Región como asunto:
Europa
Idioma:
De
Revista:
Z Rheumatol
Año:
2020
Tipo del documento:
Article