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Helping Families Thrive: Co-Designing a Program to Support Parents of Children with Medical Complexity.
Krantz, Chantal; Hynes, Michele; DesLauriers, Amélie; Kitcher, Lillian L; MacMillan, Teresa; Paradis, Diane; Curry, Susan.
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  • Krantz C; The manager of Development and Rehabilitation, CHEO in Ottawa, ON. Chantal has over 20 years of management experience and a keen interest in system integration and care coordination to improve health outcomes for children, youth and their families. Skilled in stakeholder engagement and project manag
  • Hynes M; The director of Children and Family Services, Pinecrest-Queensway Community Health Centre in Ottawa, ON. A progressive and resourceful program director with 28 years of management experience in the community health sector, Michele coordinates closely with multidisciplinary teams and leverages commun
  • DesLauriers A; A registered social worker/system navigator in the Navigator Program at CHEO in Ottawa, ON. Amélie has 15 years of experience in social work supporting families, children and youth and developing/implementing new initiatives to better respond to their needs.
  • Kitcher LL; A parent navigator in the Navigator Program at Pinecrest-Queensway Community Health Centre in Ottawa, ON. She is a mother to a 12-year-old with medical complexity.
  • MacMillan T; A parent navigator in the Navigator Program at the Pinecrest-Queensway Community Health Centre in Ottawa, ON. One part of her role is to offer peer-to-peer support. She has lived experience with her own child who is medically complex.
  • Paradis D; A registered social worker/system navigator in the Complex Care Program at CHEO in Ottawa, ON. Diane has been a social worker for close to 20 years and has worked with families at CHEO since 2013.
  • Curry S; A research coordinator in Development and Rehabilitation at CHEO in Ottawa, ON. She is the research coordinator/program evaluator for the Navigator Program at CHEO. She has over 25 years of experience in health research.
Healthc Q ; 24(2): 40-46, 2021 Jul.
Article en En | MEDLINE | ID: mdl-34297663
ABSTRACT
Families of children with medical complexity (CMC) face significant challenges beyond those related to caring for their child's medical condition. Parents of CMC report a variety of concerns impacting their social, emotional and financial well-being. This paper details how CHEO, community organizations and parents co-designed and evaluated the Navigator Program. Through system navigation, peer support and knowledge navigation, the program offers emotional, social and economic support for parents struggling to keep up with the demands of having CMC. A best practices toolkit also provides resources to help others better support these unique families locally, provincially and nationally.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Padres Tipo de estudio: Guideline Límite: Child / Humans Idioma: En Revista: Healthc Q Asunto de la revista: HOSPITAIS / SERVICOS DE SAUDE Año: 2021 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Padres Tipo de estudio: Guideline Límite: Child / Humans Idioma: En Revista: Healthc Q Asunto de la revista: HOSPITAIS / SERVICOS DE SAUDE Año: 2021 Tipo del documento: Article