Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire: a 46-item measure of treatment burden for parent/carers of children with CF.

Glasscoe, Claire; Hope, Holly F; Lancaster, Gillian A; McCray, Gareth; West, Kiri; Patel, Latifa; Patel, Tulsi; Hill, Jonathan; Quittner, Alexandra L; Southern, Kevin W

Glasscoe, Claire; Hope, Holly F; Lancaster, Gillian A; McCray, Gareth; West, Kiri; Patel, Latifa; Patel, Tulsi; Hill, Jonathan; Quittner, Alexandra L; Southern, Kevin W.

Afiliación

Glasscoe C; Institute of Translational Medicine, Department of Women's & Children's Health, University of Liverpool, Liverpool, UK.
Hope HF; Division of Psychology & Mental Health, University of Manchester, Manchester, UK.
Lancaster GA; School of Medicine, Keele University, Keele, UK.
McCray G; School of Medicine, Keele University, Keele, UK.
West K; DMOPS (Movement Disorders), Liverpool University Hospitals NHS Foundation Trust (Aintree site), Liverpool, UK.
Patel L; Respiratory Unit, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
Patel T; Evelina London Children's Hospital, London, UK.
Hill J; School of Psychology & Clinical Language Sciences, University of Reading, Reading, UK.
Quittner AL; Children's Research Institute, Miami Children's Hospital, Miami, Florida, USA.
Southern KW; Institute of Translational Medicine, Department of Women's & Children's Health, University of Liverpool, Liverpool, UK.

Psychol Health ; 38(10): 1309-1344, 2023.

Article en En | MEDLINE | ID: mdl-35259034

Palabras clave

2226; caregivers; children; cystic fibrosis; measure development; treatment burden; treatments

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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Tipo de estudio: Qualitative_research Idioma: En Revista: Psychol Health Asunto de la revista: PSICOLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Reino Unido

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