Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease.

Marinello, Diana; Manzo, Arianna; Palla, Ilaria; Del Bianco, Alessandra; Mosca, Marta; Taruscio, Domenica; Polvani, Stefania; Talarico, Rosaria

Marinello, Diana; Manzo, Arianna; Palla, Ilaria; Del Bianco, Alessandra; Mosca, Marta; Taruscio, Domenica; Polvani, Stefania; Talarico, Rosaria.

Afiliación

Marinello D; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
Manzo A; Psychologist, Psychotherapist, Translational analyst, Rome, Italy.
Palla I; Institute of Management, Scuola Superiore Sant'Anna, Pisa, Italy.
Del Bianco A; Associazione S.I.M.B.A (Associazione Italiana Sindrome e Malattia di Behçet), Pontedera, Italy.
Mosca M; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
Taruscio D; National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy.
Polvani S; President of the Italian Association for Narrative Medicine, SIMEN, Italy.
Talarico R; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy. sara.talarico76@gmail.com.

Clin Exp Rheumatol ; 40(8): 1609, 2022 09.

Article en En | MEDLINE | ID: mdl-36106539

Asunto(s)

Síndrome de Behçet; Medicina Narrativa; Síndrome de Behçet/diagnóstico; Síndrome de Behçet/terapia; Cuidadores; Humanos; Narración; Enfermedades Raras/diagnóstico; Enfermedades Raras/terapia

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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Síndrome de Behçet / Medicina Narrativa Tipo de estudio: Diagnostic_studies / Qualitative_research Límite: Humans Idioma: En Revista: Clin Exp Rheumatol Año: 2022 Tipo del documento: Article País de afiliación: Italia

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