Educational needs of patients, families, and healthcare professionals to support the patient journey in haemophilia gene therapy in the UK.

Boyce, Sara; Fletcher, Simon; Jones, April; Kohli, Ruchika; Mangles, Sarah; Ong, Min; Pollard, Debra; Sivasubramaniyam, Sujan; Stephensen, David; Stoner, Nicola; Kazmi, Rashid

Boyce, Sara; Fletcher, Simon; Jones, April; Kohli, Ruchika; Mangles, Sarah; Ong, Min; Pollard, Debra; Sivasubramaniyam, Sujan; Stephensen, David; Stoner, Nicola; Kazmi, Rashid.

Afiliación

Boyce S; University Hospital Southampton, Southampton, UK. sara.boyce@uhs.nhs.uk.
Fletcher S; Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
Jones A; The Royal Victoria Infirmary, Newcastle upon Tyne, UK.
Kohli R; CSL Behring, West Sussex, UK.
Mangles S; Haemophilia, Haemostasis and Thrombosis Centre, Hampshire Hospitals NHS Foundation Trust, Basingstoke, UK.
Ong M; Sheffield Children's NHS Foundation Trust, Sheffield, UK.
Pollard D; Haemophilia and Thrombosis Centre, Royal Free Hospital, London, UK.
Sivasubramaniyam S; CSL Behring, West Sussex, UK.
Stephensen D; East Kent Hospitals University NHS Foundation Trust, Kent, UK.
Stoner N; Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
Kazmi R; University Hospital Southampton, Southampton, UK.

Orphanet J Rare Dis ; 18(1): 366, 2023 Nov 25.

Article en En | MEDLINE | ID: mdl-38007560

Asunto(s)

Hemofilia A; Humanos; Hemofilia A/terapia; Atención a la Salud; Personal de Salud; Reino Unido

Palabras clave

Gene therapy; Haemophilia A; Haemophilia B; Health services needs and demand; Patient navigation

Texto completo

Imprimir

XML

PubMed Links

Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Hemofilia A Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2023 Tipo del documento: Article País de afiliación: Reino Unido

Texto completo

Imprimir

XML

PubMed Links

Buscar en Google