Financial Stressors for Parents of Children and Emerging Adults With Congenital Heart Disease: A Qualitative Study.
J Pediatr Health Care
; 38(4): 574-585, 2024.
Article
en En
| MEDLINE
| ID: mdl-38661591
ABSTRACT
INTRODUCTION:
Congenital heart disease (CHD) is the most prevalent congenital disability globally. This study aimed to describe parents' perspectives on financial stressors related to having a child with CHD using a descriptive qualitative approach.METHOD:
Qualitative data were obtained from parents of children with CHD in a cross-sectional web-based survey study. Iterative data analysis was used to develop essential themes that enabled a rich description of 147 parents' perspectives.RESULTS:
Parents identified five financial stressors perpetual worries about health insurance, facing the dilemma of "making too much money," struggling to balance work, worrying over having an emerging adult with CHD, and constant constraints because of financial needs.DISCUSSION:
As experts in pediatric care, pediatric advanced practice providers need to work with policymakers to provide further financial assistance and sufficient insurance coverage for families that struggle to balance finances for the whole family and children with CHD.Palabras clave
Texto completo:
1
Colección:
01-internacional
Banco de datos:
MEDLINE
Asunto principal:
Padres
/
Investigación Cualitativa
/
Estrés Financiero
/
Cardiopatías Congénitas
Límite:
Adolescent
/
Adult
/
Child
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Child, preschool
/
Female
/
Humans
/
Male
Idioma:
En
Revista:
J Pediatr Health Care
Asunto de la revista:
ENFERMAGEM
/
PEDIATRIA
/
SERVICOS DE SAUDE
Año:
2024
Tipo del documento:
Article