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Development of a provisional model to improve transitional care for female adolescents with a rare genital malformation as an example for orphan diseases.
Simoes, Elisabeth; Kronenthaler, Andrea; Emrich, Christine; Rieger, Monika A; Rall, Kristin Katharina; Schäffeler, Norbert; Hiltner, Hanna; Ueding, Esther; Brucker, Sara Y.
Afiliação
  • Simoes E; Centre of Women's Health, University Hospital Tuebingen, 72076 Tuebingen, Germany ; Women's Health Research Institute, 72076 Tuebingen, Germany ; Social Medicine Staff Unit, University Hospital Tuebingen, 72076 Tuebingen, Germany.
  • Kronenthaler A; Institute of General Practice, University of Tuebingen, 72074 Tuebingen, Germany.
  • Emrich C; Institute of Occupational and Social Medicine and Health Services Research, 72074 Tuebingen, Germany.
  • Rieger MA; Institute of Occupational and Social Medicine and Health Services Research, 72074 Tuebingen, Germany.
  • Rall KK; Centre of Women's Health, University Hospital Tuebingen, 72076 Tuebingen, Germany.
  • Schäffeler N; Department of Psychosomatic Medicine and Psychotherapy, University Hospital Tuebingen, 72076 Tuebingen, Germany.
  • Hiltner H; Institute of General Practice, University of Tuebingen, 72074 Tuebingen, Germany.
  • Ueding E; Women's Health Research Institute, 72076 Tuebingen, Germany.
  • Brucker SY; Centre of Women's Health, University Hospital Tuebingen, 72076 Tuebingen, Germany ; Women's Health Research Institute, 72076 Tuebingen, Germany.
Biomed Res Int ; 2014: 913842, 2014.
Article em En | MEDLINE | ID: mdl-25544945
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Anormalidades Congênitas / Doenças Raras / Transtornos 46, XX do Desenvolvimento Sexual / Serviços de Saúde / Ductos Paramesonéfricos Tipo de estudo: Diagnostic_studies / Prognostic_studies / Qualitative_research Limite: Adolescent / Adult / Female / Humans Idioma: En Revista: Biomed Res Int Ano de publicação: 2014 Tipo de documento: Article País de afiliação: Alemanha
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Anormalidades Congênitas / Doenças Raras / Transtornos 46, XX do Desenvolvimento Sexual / Serviços de Saúde / Ductos Paramesonéfricos Tipo de estudo: Diagnostic_studies / Prognostic_studies / Qualitative_research Limite: Adolescent / Adult / Female / Humans Idioma: En Revista: Biomed Res Int Ano de publicação: 2014 Tipo de documento: Article País de afiliação: Alemanha