Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey.

Weitzman, Elissa R; Minegishi, Machiko; Cox, Rachele; Wisk, Lauren E

Weitzman, Elissa R; Minegishi, Machiko; Cox, Rachele; Wisk, Lauren E.

Afiliação

Weitzman ER; Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.
Minegishi M; Department of Pediatrics, Harvard Medical School, Boston, MA, United States.
Cox R; Division of Addiction Medicine, Boston Children's Hospital, Boston, MA, United States.
Wisk LE; Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.

JMIR Pediatr Parent ; 6: e46555, 2023 Dec 06.

Article em En | MEDLINE | ID: mdl-38059571

Palavras-chave

PROM; adolescent; adolescents; chronic illness; confidential; confidentiality; outcome measure; outcome measures; patient data; patient reported; patient-reported outcomes; personal; personally generated data; privacy; quality of life; research involvement; rheumatic; rheumatic disease; rheumatoid; sharing; social media; youth

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: JMIR Pediatr Parent Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

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