Content validity of SarQoL, a quality of life questionnaire specific to sarcopenia.

BACKGROUND: The Sarcopenia & Quality of Life (SarQoL) questionnaire is a patient-reported outcome measure designed for assessing health-related quality of life in individuals with sarcopenia. Despite its wide acceptance in the scientific literature, its content validity has only been partially demonstrated so far. AIMS: To enhance the evidence supporting the content validity of the SarQoL questionnaire. METHODS: Following COSMIN methodology, semi-structured interviews were conducted with 17 Belgian older adults who met the EWGSOP2 criteria for the diagnosis of sarcopenia and 11 experts in sarcopenia, with clinical or research background. Comprehensiveness, relevance and comprehensibility of SarQoL content were assessed through individual transcripts and were qualitatively analyzed thematically according to the seven dimensions of SarQoL. RESULTS: The majority of the concepts elicited during the semi-structured interviews fitted within existing SarQoL dimensions. Importantly, the different domains of SarQoL were consensually considered as relevant by patients and experts. Some new emergent concepts were identified by the participants. While many of them could be considered as enrichments of existing dimensions or sub-concepts, other new concepts (i.e. self-fulfilment, acceptance of the reduced condition, adaptation/use of strategies, depression) may highlight two potential dimensions not covered by SarQoL, i.e. patient empowerment and depression. Cognitive interviews also highlighted that SarQoL items and instructions were clear and comprehensible. CONCLUSIONS: SarQoL, in its current form, demonstrates good evidence of content validity for assessing health-related quality of life in patients with sarcopenia. We do not recommend adding new items or dimensions to SarQoL. Instead, for researchers or clinicians who aim to specifically address self-empowerment or depression of sarcopenic populations, we suggest completing the assessment of quality of life by concurrently using additional validated scales of patient empowerment or depression.

[Quality of life in the medical field : a brief overview of its origin, semantics, measuring instruments and clinical use]. / La qualité de vie dans le champ médical. Bref aperçu de son origine, de sa sémantique, de ses instruments de mesure et de leur utilisation en clinique.

Since the early 1970s, the concept of quality of life has been the subject of increasing interest in the medical field, although no scientific consensus has emerged on how to define and measure it. The aim of this narrative review of the literature is to decrypt the notion of quality of life in the medical field, in order to enable clinicians-researchers and clinicians who use quality of life measurement instruments in clinical practice to form an informed and nuanced opinion on the issue. To do so, the paper is divided into three parts. Firstly, a brief overview of the origin of the concept in the medical field is given by exposing the main factors explaining its emergence and its rise in importance. Next, the plurality of definitions of quality of life and its derivatives (e.g. health-related quality of life), as well as its measurement instruments in the medical field, are explored. Finally, some benchmarks for the use of health-related quality of life instruments in clinical practice are presented.

Depuis le début des années 70, la notion de qualité de vie fait l'objet d'un intérêt croissant dans le champ médical, sans pour autant que n'émerge un consensus scientifique sur une manière de la définir et de la mesurer. L'objectif de cette revue narrative de la littérature consiste à décrypter la notion de qualité de vie dans le champ médical afin de permettre aux cliniciens-chercheurs et aux cliniciens, qui utilisent des instruments de mesure de la qualité de vie en pratique clinique, de se forger un avis éclairé et nuancé sur la question. Pour ce faire, le papier se décline en trois parties. Tout d'abord, il fait état d'un bref aperçu de l'origine de la notion dans le champ médical en exposant, notamment, les principaux facteurs expliquant son émergence et son importance grandissante. Ensuite, il explore la pluralité de définitions de la qualité de vie et de ses dérivés (e.g. qualité de vie liée à la santé), ainsi que ses instruments de mesure dans le champ médical. Enfin, il présente quelques repères pour l'utilisation d'instruments de mesure de la qualité de vie liée à la santé en pratique clinique.

[Patient partner approach into question]. / L'Approche Patient Partenaire de Soins en question.

Patient engagement in health care system can be regarded as a lever for the general improvement of people's health, the quality and safety of care. Among the many approaches that co-exist, the model of Patient Partner is relatively recent and declares itself as the most successful to promote this engagement. The authors of this article propose to present briefly the above model and to raise the remaining questions on its operational application. We will then present the research program «Patient Partner Approach to Care¼ (INTERREG Va) that questions the Patient Partner model in an interregional context (Wallonia - Grand Duchy of Luxembourg - Lorraine - Rhineland-Palatinate and Saarland).

L'engagement des patients dans le système de santé peut être considéré comme un levier pour l'amélioration générale de la santé des populations ainsi que la qualité et la sécurité des soins. Parmi les nombreuses approches qui co-existent, le modèle du « Patient Partenaire ¼ est relativement récent et se déclare le plus abouti pour favoriser cet engagement. Les auteurs de cet article proposent de présenter, brièvement, le modèle susmentionné et de soulever les questions qui demeurent sur son application opérationnelle. Nous présenterons ensuite le programme de recherche «Approche Patient Partenaire de Soins¼ (INTERREG Va) qui questionne ce modèle de Patient Partenaire dans un contexte interrégional (Wallonie - Grand-Duché du Luxembourg - Lorraine - Rhénanie- Palatinat et Sarre).

"Patient participation" and related concepts: A scoping review on their dimensional composition.

OBJECTIVES: Several concepts on collaboration between patients and healthcare systems have emerged in the literature but there is little consensus on their meanings and differences. In this study, "patient participation" and related concepts were studied by focusing on the dimensions that compose them. This review follows two objectives: (1) to produce a detailed and comprehensive overview of the "patient participation" dimensions; (2) to identify differences and similarities between the related concepts. METHODS: A scoping review was performed to synthesize knowledge into a conceptual framework. An electronic protocol driven search was conducted in two bibliographic databases and a thematic analysis was used to analyse the data. RESULTS: The search process returned 39 articles after exclusion for full data extraction and analysis. Through the thematic analysis, the dimensions, influencing factors and expected outcomes of "patient participation" were determined. Finally, differences between the included concepts were identified. CONCLUSION: This global vision of "patient participation" allows us to go beyond the distinctions between the existing concepts and reveals their common goal to include the patient in the healthcare system. PRACTICE IMPLICATIONS: This scoping review provides useful information to propose a conceptual model of "patient participation", which could impact clinical practice and medical training programs.