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1.
Harm Reduct J ; 21(1): 128, 2024 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-38951880

RESUMO

BACKGROUND: Deaths due to drug overdose are an international issue, causing an estimated 128,000 global deaths in 2019. Scotland has the highest rate of drug-related deaths in Europe, with those in the most deprived areas at greater risk than those in affluent areas. There is a paucity of research on digital solutions, particularly from the perspective of those who use drugs who additionally access harm reduction and homelessness support services. The Digital Lifelines Scotland programme (DLS) provides vulnerable people who use/d drugs with digital devices to connect with services. METHODS: This paper reports on the evaluation of the DLS from the perspective of service users who accessed services for those at risk of drug-related harms. A mixed methods approach was used including an online-survey (n = 19) and semi-structured interviews (n = 21). Survey data were analysed descriptively and interview data through inductive coding, informed by the Technology, People, Organisations and Macroenvironmental factors (TPOM) framework, to investigate the use, access, and availability of devices, and people's experiences and perceptions of them. RESULTS: Most participants lived in social/council housing (63.2%, n = 12), many lived alone (68.4%, n = 13). They were mainly over 40 years old and lived in a city. Participants described a desire for data privacy, knowledge, and education, and placed a nascent social and personal value on digital devices. Participants pointed to the person-centred individuality of the service provision as one of the reasons to routinely engage with services. Service users experienced an increased sense of value and there was a palpable sense of community, connection and belonging developed through the programme, including interaction with services and devices. CONCLUSIONS: This paper presents a unique perspective which documents the experiences of service users on the DLS. Participants illustrated a desire for life improvement and a collective and individual feeling of responsibility towards themselves and digital devices. Digital inclusion has the potential to provide avenues by which service users can safely and constructively access services and society to improve outcomes. This paper provides a foundation to further cultivate the insight of service users on digital solutions in this emerging area.


Assuntos
Tecnologia Digital , Redução do Dano , Humanos , Escócia , Feminino , Masculino , Adulto , Pessoa de Meia-Idade , Overdose de Drogas/prevenção & controle , Usuários de Drogas/psicologia , Adulto Jovem , Pessoas Mal Alojadas , Transtornos Relacionados ao Uso de Substâncias , Inquéritos e Questionários
2.
Comput Electron Agric ; 217: None, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-38343602

RESUMO

Experimental citizen science offers new ways to organize on-farm testing of crop varieties and other agronomic options. Its implementation at scale requires software that streamlines the process of experimental design, data collection and analysis, so that different organizations can support trials. This article considers ClimMob software developed to facilitate implementing experimental citizen science in agriculture. We describe the software design process, including our initial design choices, the architecture and functionality of ClimMob, and the methodology used for incorporating user feedback. Initial design choices were guided by the need to shape a workflow that is feasible for farmers and relevant for farmers, breeders and other decision-makers. Workflow and software concepts were developed concurrently. The resulting approach supported by ClimMob is triadic comparisons of technology options (tricot), which allows farmers to make simple comparisons between crop varieties or other agricultural technologies tested on farms. The software was built using Component-Based Software Engineering (CBSE), to allow for a flexible, modular design of software that is easy to maintain. Source is open-source and built on existing components that generally have a broad user community, to ensure their continuity in the future. Key components include Open Data Kit, ODK Tools, PyUtilib Component Architecture. The design of experiments and data analysis is done through R packages, which are all available on CRAN. Constant user feedback and short communication lines between the development teams and users was crucial in the development process. Development will continue to further improve user experience, expand data collection methods and media channels, ensure integration with other systems, and to further improve the support for data-driven decision-making.

3.
J Intellect Disabil ; : 17446295241252214, 2024 May 08.
Artigo em Inglês | MEDLINE | ID: mdl-38718412

RESUMO

This scoping review examines cyberbullying victimisation in people with mild to moderate intellectual disabilities, focusing on specific types of cyberbullying behaviours, such as flaming, harassment, and stalking. A five-stage review of empirical research was conducted using 15 electronic databases, covering publications from October 1969 to January 2024. Twelve studies were selected, reporting cyberbullying victimisation rates ranging from 5% to 64%. Harassment was the most common behaviour experienced. However, flaming, cyber-stalking, griefing, and shaming have not been thoroughly investigated. The impact and coping strategies, including support mechanisms, also lack research. Further investigation is needed to understand the various types of cyberbullying experienced by people with intellectual disabilities and to develop coping and resilience strategies. Recommendations for future research and practice are provided.

4.
BMC Public Health ; 23(1): 181, 2023 01 27.
Artigo em Inglês | MEDLINE | ID: mdl-36707791

RESUMO

BACKGROUND: Sustainable and effective eHealth requires accessibility for everyone. Little is known about how accessibility of eHealth is perceived among people with various impairments. The aim of this study was to compare use and perceived difficulty in the use of eHealth among people with and without impairment, and how different types of impairment were associated with perceived difficulty in the use of eHealth. METHODS: This study used data collected in a nationwide survey in Sweden. Snowball sampling was used to recruit participants with self-reported impairment, from June to October 2019. In February 2020, the survey was posted to people in the general population who were matched to the participants with impairment by age, gender and county of residence. Multiple logistic regression was used to analyse the use of four eHealth services, and perceived difficulty in the use of six eHealth services. RESULTS: In total, 1631 participants with, and 1084 participants without impairment responded to the survey. Participants with impairment reported less use and more difficulty in the use of all eHealth services as compared to participants without impairment. When comparing types of impairment, booking healthcare appointments online was least used and most avoided by participants with communication, language and calculation impairments (adjusted odds ratio (aOR) use 0.64, 95% confidence interval (95%CI) 0.49-0.83; aOR avoid 1.64, 95%CI 1.19-2.27), and intellectual impairments (aOR use 0.28, 95%CI 0.20-0.39; aOR avoid 2.88, 95%CI 1.86-4.45). The Swedish national web-portal for health information and services, 1177.se, was reported difficult to use the most among participants with communication, language and calculation impairments (aOR 2.24, 95%CI 1.50-3.36), deaf-blindness (aOR 11.24, 95%CI 3.49-36.23) and hearing impairment (aOR 2.50, 95%CI 1.17-5.35). CONCLUSIONS: The results confirm the existence of an eHealth disability digital divide. People with impairment were not one homogeneous group, but differed in perceived difficulties in regard to eHealth. Based on a purposeful subgrouping of impairments, we showed that people with communication, language and calculation impairments, and intellectual impairments, reported least use and most difficulty in using eHealth. The findings can guide further research in creating eHealth that is accessible for all, including those with the most significant difficulties.


Assuntos
Exclusão Digital , Pessoas com Deficiência , Telemedicina , Humanos , Inquéritos e Questionários , Autorrelato
5.
J Med Internet Res ; 25: e45118, 2023 08 17.
Artigo em Inglês | MEDLINE | ID: mdl-37590050

RESUMO

BACKGROUND: Accessibility is acknowledged as a key to inclusion in the Convention of Rights for People with Disabilities. An inaccessible design can result in exclusion from eHealth and cause disability among people who have impairments. OBJECTIVE: This scoping literature review aimed to investigate how eHealth services have been developed and evaluated regarding accessibility for people with impairments. METHODS: In line with Arksey and O'Malley's framework for scoping studies and using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR), we conducted a search in 4 databases (PubMed, Scopus, IEEE, and Web of Science) in October 2020 and an update of the search in June 2022. The search strategy was structured according to the PICO model as follows: Population/Problem, digital accessibility for users with impairment; Intervention, health care delivered by any digital solution; Comparison, not applicable; Outcome, use of and adherence to (1) Web Content Accessibility Guidelines (WCAG), (2) other accessibility guidelines, and (3) other means, for designing or evaluating accessibility in eHealth services. A Boolean search was conducted by combining terms related to accessibility and eHealth. All authors participated in screening abstracts according to the eligibility criteria. Each publication, containing a potentially relevant abstract, was read (full text) and assessed for eligibility by 2 authors independently and pairwise. Publications deemed eligible were read by all authors and discussed for consensus. RESULTS: A total of 8643 publications were identified. After abstract screening, 131 publications remained for full-text reading. Of those, 116 publications were excluded as they did not meet the eligibility criteria. Fifteen publications involving studies of 12 eHealth services were included in the study. Of the 15 publications, 2 provided a definition of accessibility, 5 provided an explanation of accessibility, and 8 did not provide any explanation. Five publications used the WCAG to evaluate accessibility when developing eHealth services. One publication used International Organization for Standardization (ISO) 29138, ISO 2941, and ISO/International Electrotechnical Commission (IEC) 30071-1 standards together with the Spanish Association for Standardization (UNE) 139803 standard. Eleven publications used other means to address accessibility, including text-level grading; literature review about accessibility; user tests, focus groups, interviews, and design workshops with target groups of patients, relatives, and health care professionals; and comparative analysis of existing technical solutions to provide information about useful requirements. CONCLUSIONS: Although a clear definition of accessibility can enhance operationalization and thus measurability when evaluating accessibility in eHealth services, accessibility was insufficiently defined in most of the included studies. Further, accessibility guidelines and standards were used to a very limited extent in the development and evaluation of eHealth services. Guidelines for developing complex interventions that include guidance for accessibility are motivated to ensure that accessibility will be considered systematically in eHealth services.


Assuntos
Telemedicina , Humanos , Consenso , Bases de Dados Factuais , Grupos Focais , Pessoal de Saúde
6.
Health Promot Int ; 38(4)2023 Aug 01.
Artigo em Inglês | MEDLINE | ID: mdl-34967901

RESUMO

This article starts from the premise that projects informed by data science can address social concerns, beyond prioritizing the design of efficient products or services. How can we bring the stakeholders and their situated realities back into the picture? It is argued that data-based, participatory interventions can improve health equity and digital inclusion while avoiding the pitfalls of top-down, technocratic methods. A participatory framework puts users, patients and citizens as stakeholders at the centre of the process, and can offer complex, sustainable benefits, which go beyond simply the experience of participation or the development of an innovative design solution. A significant benefit for example is the development of skills, which should not be seen as a by-product of the participatory processes, but a central element of empowering marginalized or excluded communities to participate in public life. By drawing from different examples in various domains, the article discusses what can be learnt from implementations of schemes using data science for social good, human-centric design, arts and wellbeing, to argue for a data-centric, creative and participatory approach to address health equity and digital inclusion in tandem.


Assuntos
Pesquisa Participativa Baseada na Comunidade , Equidade em Saúde , Humanos
7.
J Med Internet Res ; 24(5): e36799, 2022 05 31.
Artigo em Inglês | MEDLINE | ID: mdl-35639446

RESUMO

BACKGROUND: The digitization of health care and social welfare services creates many opportunities for the rehabilitation of incarcerated people and their preparation for release from prison. A range of digital platforms and technology solutions have been developed that offer multiple opportunities to handle private matters either by video conference, email, or some other digital format during imprisonment. However, incarcerated people have limited access to digital health care and social welfare services, and face challenges related to shortcomings in their digital skills and self-efficacy. OBJECTIVE: This article assessed the significance of incarcerated people's self-efficacy in terms of their sense of control over the use of digital health care and social welfare services. METHODS: A cross-sectional study was conducted using a questionnaire. Research data were collected from 11 prisons in different parts of Finland, and a total of 225 incarcerated people responded to the survey. Statistical analyses were conducted using the Pearson product-moment correlation coefficient, 2-tailed t test, linear regression analysis, and Hayes bootstrapping method. RESULTS: The results showed the significance of both general and internet-specific self-efficacy, which appear to be more important for the use of digital health care and social welfare services than factors related to a person's socioeconomic background or sentence. Age was negatively correlated with perceived control over the use of digital health care and social welfare services. Furthermore, the study emphasized the importance of support from family and friends, as well as prison employees. CONCLUSIONS: The digitalization of prisons offers many opportunities, but special consideration should be given to how the digitization of health care and social welfare services responds to the needs of incarcerated people in terms of their integration into society and the prevention of recidivism. During imprisonment, attention should be paid to strengthening the digital skills of incarcerated people, with support provided by prison employees. In addition to providing guidance on the use of individual digital services, the study recommends strengthening the general digital skills of incarcerated people, as well as developing their life management skills.


Assuntos
Prisioneiros , Autoeficácia , Estudos Transversais , Atenção à Saúde , Humanos , Seguridade Social , Inquéritos e Questionários
8.
Aging Ment Health ; 26(10): 1979-1987, 2022 10.
Artigo em Inglês | MEDLINE | ID: mdl-34405737

RESUMO

OBJECTIVES: To analyze the effect of a comprehensive program of cognitive stimulation with digital inclusion, physical activity and social interaction, called "Oficina da Lembrança" (OL), on the cognitive status and concentration of biomarkers of neuroplasticity, neurodegeneration in adults aged 50 years and over attending a Memory Clinic. METHODS: In this pilot randomized controlled study, 64 patients without dementia aged 45 to 79 years, seen at a University Memory Clinic in Southern Brazil, were randomly allocated to the intervention and control groups. The intervention consisted of participation in OL for 12 weeks. Serum biomarkers (brain-derived neurotrophic factor [BDNF], S100ß, and neuron-specific enolase [NSE]) and cognitive status were analyzed as primary and secondary outcomes. The Wilcoxon test and Generalized Estimating Equations (GEE) were applied. RESULTS: Of the 64 patients invited to participate in the study, 33 (intervention: 17, control: 16) completed the study with all data. Improvement of cognitive status was significant in the intervention group (22.6 to 24.5) but not in the control group (20.1 to 21.1). There was a significant reduction of BDNF in OL participants, but no significant change was observed in the neurodegenerative biomarkers S100ß or NSE. The concentration of BDNF decreased significantly post-OL in the intervention group (-288.1, 95%CI -362.1 to -94.1), even after adjusting for sex, age, and educational level. Cognitive status was significantly improved in OL participants. CONCLUSION: The OL program improved cognitive status, reduced serum BDNF levels, and empowered digitally excluded older adults. There was no effect of this intervention on S100ß or NSE. CLINICAL TRIAL REGISTRATION: This study has a Universal Trial Number (UTN) U1111-1195-2642 and was registered in the Brazilian Clinical Trials Registry (ReBEC), number RBR-38X665.


Assuntos
Fator Neurotrófico Derivado do Encéfalo , Interação Social , Idoso , Biomarcadores , Cognição , Exercício Físico , Humanos , Pessoa de Meia-Idade , Projetos Piloto , Resultado do Tratamento
9.
Sensors (Basel) ; 22(20)2022 Oct 11.
Artigo em Inglês | MEDLINE | ID: mdl-36298070

RESUMO

Mobile applications on smartphones and tablets have become part of our everyday lives. The number of augmented reality (AR) technology applications is also increasing. Augmented reality has proven to be effective in various areas of human life, from education, marketing, and training to navigation. All people have the right to access information and use available technologies, but not everyone has the same opportunities. To contribute to the digital inclusion of people who are often disadvantaged in this regard, we should think about the accessibility of digital technologies, including mobile augmented reality (MAR). The specificity of MAR is a new way of human-computer interaction compared to traditional mobile solutions. The objective of this review paper is to analyze the handheld AR solutions developed for people with different disabilities to identify accessibility challenges related to interaction when performing different tasks in AR. It also explores and presents accessibility features and other accessibility best practices, as well as potential future research directions related to the personalization and customization of such solutions for individuals. The results of this literature review can contribute to the creation of accessibility guidelines in the field of handheld AR and encourage the development of accessible AR solutions that can benefit not only people with disabilities but also people without disabilities.


Assuntos
Realidade Aumentada , Pessoas com Deficiência , Aplicativos Móveis , Humanos , Smartphone , Publicações
10.
Geriatr Nurs ; 48: 118-126, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-36155310

RESUMO

OBJECTIVE: This study explores the willingness of older adults to use smartphones and improve their digital skills and encourages nursing to actively participate in bridging the digital divide. METHODS: Subject analysis was used to conduct qualitative research, and 23 older adults were interviewed. RESULTS: We identified four themes: (1) the current situation of smartphone use; (2) the digital dilemma of smartphone use; (3) social support for digital skills; and (4) the willingness to learn digital skills. Older adults in China are willing to accept and use smartphones for simple operations, and peer learning may be an effective way to improve their digital skills. CONCLUSION: Community support is necessary to develop the digital skills of older adults with smartphones and reduce the digital divide to the greatest extent possible. Nursing may play a role in promoting digital inclusion for older adults.


Assuntos
População do Leste Asiático , Smartphone , Humanos , Idoso , Aprendizagem , Apoio Social , Pesquisa Qualitativa
11.
Gerontol Geriatr Educ ; 43(1): 132-147, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-32967582

RESUMO

The goal of the study was to diagnose the needs of instructors working in the area of the digital inclusion of persons who are excluded, at risk of exclusion, marginalized, and discriminated against in terms of using new technologies. The research focused on the phenomenon of the digital divide as seen from the perspective of digital literacy educators of older adults. The study was conducted in 2019 in Poland, using a qualitative research methodology (a structured in-depth interview) and interpretative paradigm. The respondents were 8 specialists, educators of older adults, representing different types of institutions dealing with the digital divide: a activity center, a public library, a nursing home, an NGO, and a University of the Third Age. Triangulation of the results led to several important conclusions regarding to the expectations, experiences, challenges and postulated supporting actions related to digital inclusion. Based on the results gathered, we have noticed that educators readily share their didactic and organizational experience. The respondents were open to the development of their own teaching competences, and recognized the role of lifelong learning. They often highlighted that the digital education of older adults is only one of many additional activities. The activities to improve the digital literacy of older adults are implemented as part of their non-formal education (i.e. it is carried out by educators holding no formal qualifications). For this reason, the teachers expect content-related and methodological support most of all, as well as the promotion of the idea of lifelong education (including digital literacy development) in society.


Assuntos
Geriatria , Motivação , Idoso , Geriatria/educação , Humanos
12.
J Aging Soc Policy ; : 1-22, 2022 Mar 15.
Artigo em Inglês | MEDLINE | ID: mdl-35290172

RESUMO

This study used grounded theory to investigate older Uruguayans' use of tablets delivered through a public program called Plan Ibirapitá. This program was developed in 2015, by the leftist government that was in power at that time, to promote the digital inclusion of individuals considered to be excluded from the benefits of the information society, such as older adults. Through Plan Ibirapitá, older adults who receive a pension below approximately 900 USD, receive a tablet for free, training for its use, and 1 GB of monthly internet. According to the program's Fifth-Use Survey from 2019, almost 60% of those who received Plan Ibirapitá's tablet do not use it. To examine the relationship between older adults and the tablets, twenty-six participants were interviewed about their experiences with this device. Results suggest that the relationship they established with the tablets is ambivalent. On the one hand, the participants see information and communication technology (ICT) as modern tools that are useful for communicating with loved ones. On the other hand, they understood their lives as busy for which tablets were mostly unnecessary. These findings indicate that including older people into the digital world is more complex than distributing devices top-down.


Key Points: Digital inclusion is complex and should not be based on technological determinism.Top-down technological programs need to consider older people's social contexts.Policymakers should avoid technological-solutionist approaches to problems of aging.Older people are not necessarily nor automatically benefited by digital technology.Provides a background for technological-intervention programs in other countries.

13.
Univers Access Inf Soc ; : 1-11, 2022 Apr 15.
Artigo em Inglês | MEDLINE | ID: mdl-35440934

RESUMO

Digital resources-which include devices, internet connection and digital literacy-have become basic needs. Thus with the global COVID-19 pandemic having accelerated digitalization, the urgency for universal digital inclusion has hastened. Otherwise, digital inequality will lead to social inequality and impede social mobility. Using Singapore as a case study, this article applies the insights learned from a participatory action research to recommend a policy framework for universal digital access, with practical humanistic steps towards full digital inclusion. Singapore is a digitally advanced nation with almost universal digital availability, yet when COVID-19 forced rapid digital adoption, gaps in access by vulnerable groups such as low-income households, elderly and migrant workers were found. From the learning points on gaps and measures taken by community groups, volunteers and policy-makers in our research, we recommend making access to all three digital resources automatic and affordable, with an undergirding principle to implement technology among the most digitally excluded first before national roll out. A public-community-corporate funding and partnership model is also proposed to sustain universal provision.

14.
Univers Access Inf Soc ; : 1-14, 2022 Feb 02.
Artigo em Inglês | MEDLINE | ID: mdl-35125988

RESUMO

The COVID-19 pandemic has not only caused a worldwide health crisis, but it has also deepened existing inequalities, and "has exacerbated the vulnerability of the least protected in society" (United Nations, 2020). Nowadays, there are many population groups that would be regarded as vulnerable. In daily life, citizens deal with a wide range of issues-social injustices, social marginalization and lack of impartiality-due to many reasons: culture, class, ethnicity, race, ideology, religion, gender, etc. To respond effectively to this problem-as the United Nations proposes in the goal 10 of the Sustainable Development Goals (SDGs)-we first need to understand and clearly define the phenomenon of vulnerable people, and how digital inclusion could represent an asset to help vulnerable people to bridge inequalities. There is no commonly agreed typology framework, and specific categorization criteria as a basis to assist the further investigation of the area. Our work is focused on filling this gap. In doing so, our contribution is twofold. First, we conduct a systematic review of the literature (N = 331 studies) providing an overview of the overall definitions, trends, patterns, and developments that characterize the research on vulnerable people and digital inclusion. Second, we propose a taxonomy to frame the phenomenon of vulnerable people and digital inclusion. The categorization criteria can promote and support further multidisciplinary research to study and explore the relation existing between vulnerable people and digital inclusion.

15.
Univers Access Inf Soc ; : 1-20, 2022 Aug 10.
Artigo em Inglês | MEDLINE | ID: mdl-35966189

RESUMO

This work empirically validates 23 audio-only instructional guidelines regrouped under the Organisation Content Retention Auditory and Technology (OCRAT) framework. A total of 10 audio courses consisting of 40 audio lessons/chapters equivalent to around 3 h on various topics in agriculture and fisheries were devised based on the OCRAT guidelines. A group of 225 and 180 literate and semi-literate populations both in Mauritius and India were identified. Through a range of ten (10) courses regrouping the respective audio lessons, the framework was tested over an ACALEs platform. A survey was conducted on learners who participated and completed the course. From the collected data, empirical testing using inferences on population proportions based on the binomial distribution was conducted to validate the proposed set of guidelines. The results proved to be very conclusive. Moreover, this work elaborates even further on the validated guidelines and substantiates them with additional literature. Henceforth, it can confidently be used by instructional designers for the development of interactive audio-only courses not only on ACALEs platforms but even with conventional audio-based learning like radio programs.

16.
J Med Internet Res ; 23(9): e28066, 2021 09 21.
Artigo em Inglês | MEDLINE | ID: mdl-34546184

RESUMO

BACKGROUND: The significance of web-based health and social care services has been highlighted in recent years. There is a risk that the digitalization of public services will reinforce the digital and social exclusion of vulnerable groups, such as individuals with mental health problems. OBJECTIVE: This study aims to examine the associations between mental health problems and attitudes toward web-based health and social care services in the general population. The attitudes measured include lack of interest, perceived need for face-to-face encounters, and concern for safety. The study also evaluates whether sociodemographic characteristics (age, gender, education level, and poverty) modify these associations. METHODS: Cross-sectional population-based data were collected from 4495 Finnish adults in 2017. Linear regression was used to examine the main effects and interactions of poor mental health and sociodemographic characteristics on attitudes toward web-based health and social care services. RESULTS: The results show that mental health was associated with attitudes toward web-based health and social care services. Individuals with mental health problems were especially concerned about the safety of web-based services. Poor mental health was independently associated with negative attitudes toward web-based services over the effects of sociodemographic factors. Some of the associations between poor mental health and negative attitudes toward web-based services were stronger among older people and men. With regard to sociodemographic characteristics, particularly higher age, low education, and poverty were associated with negative attitudes toward web-based health and social care services. CONCLUSIONS: Poor mental health is associated with negative attitudes toward web-based health and social care services and thus indirectly with exclusion. It seems that being older and being male both reinforce the link between poor mental health and exclusion. In supporting the digital inclusion of people with mental health problems, attention should be paid to guidance and counseling, reliability, and the user-friendliness of web-based services as well as to the prevention of poverty. In addition, it is essential to see web-based services as complementary to, and not a substitute for, face-to-face services.


Assuntos
Atitude , Saúde Mental , Adulto , Idoso , Estudos Transversais , Finlândia/epidemiologia , Humanos , Internet , Masculino , Reprodutibilidade dos Testes , Apoio Social
17.
J Intellect Disabil Res ; 65(10): 879-889, 2021 10.
Artigo em Inglês | MEDLINE | ID: mdl-34165228

RESUMO

BACKGROUND: Social restrictions and service closures from COVID-19 have negatively impacted social inclusion and well-being for some people with intellectual disabilities (IDs). METHODS: The fourth wave of a national longitudinal study on ageing in people with ID in Ireland was interrupted during the COVID-19 outbreak. Social inclusion data for pre-existing participants interviewed before COVID-19 (n = 444) were compared with data for pre-existing participants interviewed during/after lockdown (n = 62). RESULTS: More people interviewed after lockdown reported frequent family contact. Significantly greater numbers in the post-lockdown group reported access to and use of technology than the pre-lockdown group. Technology use was higher among those living in grouped residences supported by services compared with individuals living independently or with family. CONCLUSIONS: During the early stages of the COVID-19 pandemic in Ireland, many older adults with ID stayed connected with family and reported rates of contact higher than were reported by others before COVID-19. This connection may have been supported by a significant increase in technology use during the pandemic. However, uneven use of technology may disadvantage some including individuals living with family or independently. Given that COVID-19 restrictions are likely to continue to restrict social opportunities, increased digital support may assist more people with ID to use technology to maintain their social connections.


Assuntos
COVID-19/prevenção & controle , COVID-19/psicologia , Deficiência Intelectual/psicologia , Inclusão Social , Idoso , Feminino , Avaliação Geriátrica/métodos , Humanos , Irlanda , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Pandemias , SARS-CoV-2
18.
J Intellect Disabil Res ; 65(2): 149-161, 2021 02.
Artigo em Inglês | MEDLINE | ID: mdl-33225540

RESUMO

BACKGROUND: Access to information and communication technologies (ICTs) is often thought to enhance the lives of people with intellectual disabilities (ID) and is considered an important aspect of digital inclusion. However, inclusion practices often fail to address societal inequalities that lead to and sustain exclusion. The aim of this research was to enhance understandings of the relationships people with ID form with technology by critically analysing the underlying assumptions of inclusion practices. METHOD: We employed a post-qualitative approach to reanalyse previously collected data from face-to-face interviews with 10 Australian adults with ID who attended a community literacy programme about their technology use in their daily lives. Two of social theorist Sara Ahmed's key concepts were used to analyse these data: (1) 'stickiness' of emotions, where certain (socially dominant) emotions are considered to attach to objects over time (e.g. mobile phone use is normal/good) and (2) 'fit' between people and objects, where there is a sense of comfort when objects are designed for people like you - those outside the 'norm' experience discomfort and a sense of being 'othered' in their interactions with such objects which do not fit them. RESULTS: Our analysis identified how people with ID often attributed positive feelings to technology even when they had seemingly negative interactions with their devices (e.g. they could not use certain features, caregivers acted as gatekeepers to access). The positive associations were likely the outcome of implicitly held understandings that society highly values technology (Ahmed's stickiness of emotions). Although some participants accessed technology without difficulty, others experienced discomfort due to difficulties using devices that were not designed for them (Ahmed's fit between people and objects). Importantly, some participants had access to technology and the technical skill to use ICTs, but other factors, such as not having many friends, impacted their ability to use their devices in meaningful ways. CONCLUSION: Our analysis suggests that digital inclusion practices focused on providing access to technology may unintentionally harm in ways that are not immediately apparent when working with people with ID. Harms might include further marginalisation or 'othering' of people with ID. It is important to recognise that well-meaning attempts to encourage use of ICTs may be counterproductive if they lead to experiences of marginalisation. To avoid this, inclusion practices could focus beyond access to devices, and the ability to use them, to include considerations of the multiple socio-emotional effects. What is a good fit is not entirely predeterminable, exploration of the possibilities for what will work well for any individual requires experimentation and creativity, and a careful attention to unintended effects. Beyond this, the development of new technology should consider how to diversify devices that often fail to fit people with disabilities.


Assuntos
Pessoas com Deficiência , Deficiência Intelectual , Adulto , Austrália , Emoções , Humanos , Tecnologia
19.
J Appl Res Intellect Disabil ; 34(3): 724-732, 2021 May.
Artigo em Inglês | MEDLINE | ID: mdl-33247538

RESUMO

BACKGROUND: It is evident that people with disabilities worldwide face digital divide; although this divide has been mitigated owing to greater access to technologies, a gap remains in terms of Internet use. Given that South Korea has one of the highest Internet access rates, it is necessary to examine how adults with intellectual and developmental disabilities (IDD) access the Internet, and what correlates with Internet usage. METHOD: A total of 298 adults with IDD in South Korea participated in the survey. RESULTS: The participants reported benefits from the Internet including increased opportunities for leisure and entertainment, updated news and networking with friends. Internet access was found to be pervasive among people of younger ages and less severe disabilities. Further, Internet usage corresponded to material access, digital literacy and a positive attitude towards digital applications. CONCLUSIONS: Targeted digital literacy programmes can be developed for adults with IDD.


Assuntos
Pessoas com Deficiência , Deficiência Intelectual , Adulto , Criança , Deficiências do Desenvolvimento/epidemiologia , Humanos , Internet , Uso da Internet , República da Coreia
20.
J Intellect Disabil ; 24(4): 503-521, 2020 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-30819039

RESUMO

This study aimed to investigate the experiences of people with intellectual disability (ID) using information and communication technologies (ICTs) and the ways these technologies foster social connectedness. In partnership with a community mental health organization, this qualitative descriptive study explored the experiences of 10 people with ID using ICTs. Participants described how ICTs Opened the Door to Possibilities in their life - ICTs provided an avenue for connecting with other people, a means to pursue personal interests and a tool for organizing everyday life. Opening the door to possibilities was further understood as movement towards digital inclusion for people with ID, conceptualized as the fit between social opportunity and personal skills. We have identified the prominent role social supports play in creating (and constraining) opportunities for digital inclusion, and that digital inclusion has the potential to enable social connectedness and the development of agency. Consideration of the complex interaction between social opportunity and personal skills, and the mediating influence of supports, will enhance the inclusion of people with ID.


Assuntos
Pesquisa Participativa Baseada na Comunidade , Deficiência Intelectual/psicologia , Redes Sociais Online , Pessoas com Deficiência Mental/psicologia , Inclusão Social , Mídias Sociais , Apoio Social , Humanos , Pesquisa Qualitativa
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