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1.
J Soc Work End Life Palliat Care ; 20(2): 201-216, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38557360

RESUMO

Racial disparities in hospice use are a longstanding concern in the U.S. Asian Americans are among the least likely to receive hospice care and to be included in studies on this topic. This study examined the knowledge, attitudes, and preferences related to hospice care among older Chinese immigrants and associated factors. A sample of 262 Chinese immigrants age 60+ was recruited from six older adult centers in NYC. In-person interviews were conducted in Mandarin and Cantonese. Non-English-speaking older Chinese immigrants had very limited knowledge about hospice care. Only 26% of respondents had heard of hospice, and a few could correctly define any components. After receiving a comprehensive definition of hospice care, study participants expressed a positive attitude and a strong willingness to use hospice if near the end of life. Notably, some respondents still held misconceptions about hospice and were less positive in their attitude and preference for hospice care. These findings underscore the necessity for clear and accessible information about hospice among this population throughout the trajectory from good health to end of life. Further research is needed to identify the range of factors that influence the attitudes and preferences of older Chinese immigrants toward hospice care.


Assuntos
Asiático , Emigrantes e Imigrantes , Conhecimentos, Atitudes e Prática em Saúde , Cuidados Paliativos na Terminalidade da Vida , Humanos , Feminino , Masculino , Idoso , Emigrantes e Imigrantes/psicologia , Emigrantes e Imigrantes/estatística & dados numéricos , Cuidados Paliativos na Terminalidade da Vida/psicologia , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Asiático/psicologia , Asiático/estatística & dados numéricos , Pessoa de Meia-Idade , Estados Unidos , Idoso de 80 Anos ou mais , China/etnologia , Preferência do Paciente/etnologia , Fatores Socioeconômicos , Entrevistas como Assunto , Cidade de Nova Iorque , População do Leste Asiático
2.
BMC Cancer ; 21(1): 1018, 2021 Sep 12.
Artigo em Inglês | MEDLINE | ID: mdl-34511112

RESUMO

BACKGROUND: An effective cross-cultural doctor-patient communication is vital for health literacy and patient compliance. Building a good relationship with medical staff is also relevant for the treatment decision-making process for cancer patients. Studies about the role of a specific migrant background regarding patient preferences and expectations are lacking. We therefore conducted a multicentre prospective survey to explore the needs and preferences of patients with a migrant background (PMB) suffering from gynecological malignancies and breast cancer to evaluate the quality of doctor-patient communication and cancer management compared to non-migrants (NM). METHODS: This multicentre survey recruited patients with primary or recurrence of breast, ovarian, peritoneal, or fallopian tube cancer. The patients either filled out a paper form, participated via an online survey, or were interviewed by trained staff. A 58-item questionnaire was primarily developed in German and then translated into three different languages to reach non-German-speaking patients. RESULTS: A total of 606 patients were included in the study: 54.1% (328) were interviewed directly, 9.1% (55) participated via an online survey, and 36.8% (223) used the paper print version. More than one quarter, 27.4% (166) of the participants, had a migrant background. The majority of migrants and NM were highly satisfied with the communication with their doctors. First-generation migrants (FGM) and patients with breast cancer were less often informed about participation in clinical trials (p < 0.05) and 24.5% of them suggested the help of an interpreter to improve the medical consultation. Second and third-generation migrants (SGM and TGM) experienced more fatigue and nausea than expected. CONCLUSIONS: Our results allow the hypothesis that training medical staff in intercultural competence and using disease-related patient information in different languages can improve best supportive care management and quality of life in cancer patients with migrant status.


Assuntos
Neoplasias da Mama/etnologia , Neoplasias dos Genitais Femininos/etnologia , Motivação , Avaliação das Necessidades , Preferência do Paciente/etnologia , Relações Médico-Paciente , Migrantes , Adulto , Idoso , Idoso de 80 Anos ou mais , Neoplasias da Mama/psicologia , Comunicação , Assistência à Saúde Culturalmente Competente/etnologia , Feminino , Neoplasias dos Genitais Femininos/psicologia , Alemanha , Letramento em Saúde , Humanos , Pessoa de Meia-Idade , Recidiva Local de Neoplasia/etnologia , Cooperação do Paciente , Preferência do Paciente/estatística & dados numéricos , Satisfação do Paciente/etnologia , Satisfação do Paciente/estatística & dados numéricos , Estudos Prospectivos , Inquéritos e Questionários , Migrantes/estatística & dados numéricos , Traduções , Adulto Jovem
3.
Ann Behav Med ; 54(3): 193-201, 2020 02 21.
Artigo em Inglês | MEDLINE | ID: mdl-31595299

RESUMO

BACKGROUND: In the UK, cancer-screening invitations are mailed with information styled in a standard, didactic way to allow for informed choice. Information processing theory suggests this "standard style" could be more appealing to people who prefer deliberative thinking. People less likely to engage in deliberative thinking may be disenfranchised by the design of current standard-style information. PURPOSE: To examine the distribution of preference for deliberative thinking across demographic groups (Study 1) and explore associations between preference for deliberative thinking and perceived usefulness of standard- and narrative-style screening information (Study 2). METHODS: In Study 1, adults aged 45-59 (n = 4,241) were mailed a questionnaire via primary care assessing preference for deliberative thinking and demographic characteristics. In Study 2, a separate cohort of adults aged 45-59 (n = 2,058) were mailed standard- and narrative-style leaflets and a questionnaire assessing demographic characteristics, preference for deliberative thinking, and perceived leaflet usefulness. Data were analyzed using multiple regression. RESULTS: In Study 1 (n = 1,783) and Study 2 (n = 650), having lower socioeconomic status, being a women, and being of nonwhite ethnicity was associated with lower preference for deliberative thinking. In Study 2, the standard-style leaflet was perceived as less useful among participants with lower preference for deliberative thinking, while perceived usefulness of the narrative-style leaflet did not differ by preference for deliberative thinking. CONCLUSIONS: Information leaflets using a standard style may disadvantage women and those experiencing greater socioeconomic deprivation. More work is required to identify design styles that have a greater appeal for people with low preference for deliberative thinking.


Assuntos
Neoplasias Colorretais/diagnóstico , Comportamento do Consumidor/estatística & dados numéricos , Detecção Precoce de Câncer , Comunicação em Saúde , Folhetos , Preferência do Paciente/estatística & dados numéricos , Classe Social , Estudos de Coortes , Detecção Precoce de Câncer/normas , Feminino , Comunicação em Saúde/métodos , Comunicação em Saúde/normas , Humanos , Masculino , Pessoa de Meia-Idade , Preferência do Paciente/etnologia , Fatores Sexuais
4.
BMC Pregnancy Childbirth ; 20(1): 100, 2020 Feb 12.
Artigo em Inglês | MEDLINE | ID: mdl-32050919

RESUMO

BACKGROUND: Tanzania's One Plan II health sector program aims to increase facility deliveries from 50 to 80% from 2015 to 2020. Success is uneven among certain Maasai pastoralist women in Northern Tanzania who robustly prefer home births to facility births even after completing 4+ ANC visits. Ebiotishu Oondomonok Ongera (EbOO) is a program in Nainokanoka ward to promote facility births through a care-group model using trained traditional birth attendants (TBAs) as facilitators. Results to date are promising but show a consistent gap between women completing ANC and those going to a facility for delivery. A qualitative study was conducted to understand psychosocial preferences, agency for decision-making, and access barriers that influence where a woman in the ward will deliver. METHODS: In-depth interviews, focus group discussions and key-informant interviews were conducted with 24 pregnant and/or parous women, 24 TBAs, 3 nurse midwives at 3 health facilities, and 24 married men, living in Nainokanoka ward. Interviews and discussions were transcribed, translated, and analyzed thematically using a grounded theory approach. RESULTS: Most women interviewed expressed preference for a home birth with a TBA and even those who expressed agency and preference for a facility birth usually had their last delivery at home attributed to unexpected labor. TBAs are engaged by husbands and play a significant influential role in deciding place of delivery. TBAs report support for facility deliveries but in practice use them as a last resort, and a significant trust gap was documented based on a bad experience at a facility where women in labor were turned away. CONCLUSIONS: EbOO project data and study results show a slow but steady change in norms around delivery preference in Nainokanoka ward. Gaps between expressed intention and practice, especially around 'unexpected labor' present opportunities to accelerate this process by promoting birth plans and perhaps constructing a maternity waiting house in the ward. Rebuilding trust between facility midwives, TBAs, and the community on the availability of health facility services, and increased sensitivity to women's cultural preferences, could also close the gap between the number of women who are currently using facilities for ANC and those returning for delivery.


Assuntos
Instalações de Saúde , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Parto Domiciliar/psicologia , Tocologia , Preferência do Paciente/etnologia , Preferência do Paciente/psicologia , Adolescente , Adulto , Tomada de Decisões , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Gravidez , Cuidado Pré-Natal , Pesquisa Qualitativa , População Rural , Cônjuges/etnologia , Cônjuges/psicologia , Tanzânia/etnologia , Adulto Jovem
5.
Health Care Women Int ; 41(7): 802-816, 2020 07.
Artigo em Inglês | MEDLINE | ID: mdl-31671029

RESUMO

Many community-based studies from India have pointed out a sudden increase in the number of hysterectomy performed in the past few years. Using the data from the fourth round of National Family Health Survey (NFHS-4), we have attempted to examine the changing trends in the preference of health care facilities and reasons for hysterectomy in India. After analyzing the data, we have found that over the years, women are moving toward private health care providers for hysterectomy, and excessive menstrual bleeding is one of the most common reasons among them. A substantially higher proportion of hysterectomy in private health care facilities over the public raises the question of its necessity.


Assuntos
Hospitais Privados/estatística & dados numéricos , Histerectomia/estatística & dados numéricos , Preferência do Paciente/etnologia , Adolescente , Adulto , Estudos Transversais , Atenção à Saúde , Feminino , Inquéritos Epidemiológicos , Humanos , Índia/epidemiologia , Pessoa de Meia-Idade , Preferência do Paciente/estatística & dados numéricos , Prevalência , Fatores Socioeconômicos , Doenças Uterinas/epidemiologia , Doenças Uterinas/cirurgia
6.
Geriatr Nurs ; 41(2): 89-97, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31320127

RESUMO

Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from the general population and ethnically diverse populations. We hypothesized that culture-specific factors may be fundamental. To describe similarities and differences, we conducted a comprehensive literature search using keywords and subject headings. Findings from 14 studies were critically examined, grouped, and compared across studies and populations. While studies on general populations showed the significance of health and sociodemographic factors, studies on underrepresented groups frequently cited the importance of spirituality, belief systems, acculturation, healthcare system distrust, and social networks.


Assuntos
Etnicidade/psicologia , Preferência do Paciente/etnologia , Assistência Terminal , Idoso , Tomada de Decisões , Humanos
7.
Med Care ; 57(7): 521-527, 2019 07.
Artigo em Inglês | MEDLINE | ID: mdl-31192891

RESUMO

BACKGROUND/OBJECTIVES: Ideally, doctors ask each patient's current views about involvement in decision-making, but inquiries prove inconclusive with some inpatients. Doctors may then need indirect indicators of those views. We, therefore, explored ethnic group and sex as cultural indicators of patients' current preferences and perceptions about such involvement. METHODS: In open-response interviews, we asked those preferences and perceptions of 26 Mexican American (MA), 18 Euro-American (EA), and 14 African American (AA) adult inpatients. We content-analyzed responses blindly to identify themes and linked those themes to ethnic group and sex. RESULTS: Only sex indicated patients' current preferences. Regardless of ethnic group, most men preferred decision-making by the doctor (with or without the patient); most women, decision-making by the patient (with or without the doctor). But both ethnic group and sex together indicated patients' current perceptions. Specifically, each ethnic group as a whole most often perceived decision-making by the doctor alone and the patient alone on separate occasions, but the sexes within ethnic groups differed. For MAs roughly equal numbers of men and women perceived such decision making, for EAs more men than women did so, and for AAs more women than men did so. In addition, no EA men but some EA women perceived decision-making by the doctor alone, and some MA men and women-but no EAs or AAs-perceived decision-making by the patient alone. Primarily ethnic group indicated matches between current preferences and perceptions: Most EAs had matches; most MAs and AAs did not. CONCLUSIONS: Whenever direct inquiries fail, ethnic group and sex may indicate adult inpatients' current preferences and perceptions about involvement in decision-making. Yet matching those preferences and perceptions, especially for minority patients, remains difficult.


Assuntos
Negro ou Afro-Americano/psicologia , Tomada de Decisões , Americanos Mexicanos/psicologia , Participação do Paciente , Preferência do Paciente/etnologia , Assistência Centrada no Paciente , População Branca/psicologia , Idoso , Feminino , Humanos , Masculino , Americanos Mexicanos/estatística & dados numéricos , Pessoa de Meia-Idade , Relações Médico-Paciente , Fatores Sexuais , População Branca/estatística & dados numéricos
8.
Curr Diab Rep ; 19(3): 10, 2019 02 11.
Artigo em Inglês | MEDLINE | ID: mdl-30741346

RESUMO

PURPOSE OF REVIEW: This article discusses the state of type 2 diabetes (T2D) self-management research on non-Hispanic Black men with a focus on their knowledge of diabetes, factors that impact T2D self-management and intervention research that specifically targets non-Hispanic Black men with T2D. RECENT FINDINGS: Studies on T2D knowledge and barriers and facilitators to T2D self-management in non-Hispanic Black men are limited to small qualitative focus group and in-depth interviews. To date, few T2D interventions for non-Hispanic Black men have been developed and tested. Research shows that non-Hispanic Black men's knowledge of T2D may be less than optimal compared to non-Hispanic white men. Factors that influence T2D self-management in non-Hispanic Black men include gender-related values and beliefs, and a range of other psychosocial (e.g., social support) and structural (e.g., access to health care) factors. Interventions with gender-specific programming may show promise. More studies with larger sample sizes and longitudinal designs are needed to develop programming to effectively target this at-risk population.


Assuntos
Negro ou Afro-Americano/psicologia , Diabetes Mellitus Tipo 2/psicologia , Diabetes Mellitus Tipo 2/terapia , Autogestão/psicologia , Adulto , Diabetes Mellitus Tipo 2/etnologia , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Acessibilidade aos Serviços de Saúde , Humanos , Masculino , Preferência do Paciente/etnologia , Preferência do Paciente/psicologia , Fatores de Risco , Apoio Social
9.
AIDS Behav ; 23(10): 2674-2686, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-30734882

RESUMO

We used a discrete choice experiment to assess the acceptability and potential uptake of HIV pre-exposure prophylaxis (PrEP) among 713 HIV-negative members of fishing communities in Uganda. Participants were asked to choose between oral pill, injection, implant, condoms, vaginal ring (women), and men circumcision. Product attributes were HIV prevention effectiveness, sexually transmitted infection (STI) prevention, contraception, waiting time, and secrecy of use. Data were analysed using mixed multinomial logit and latent class models. HIV prevention effectiveness was viewed as the most important attribute. Both genders preferred oral PrEP. Women least preferred the vaginal ring and men the implant. Condom use was predicted to decrease by one third among men, and not to change amongst women. Oral PrEP and other new prevention technologies are acceptable among fishing communities and may have substantial demand. Future work should explore utility of multiple product technologies that combine contraception with HIV and other STI prevention.


Assuntos
Fármacos Anti-HIV/administração & dosagem , Antirretrovirais/administração & dosagem , Comportamento de Escolha , Infecções por HIV/prevenção & controle , Preferência do Paciente/psicologia , Profilaxia Pré-Exposição/estatística & dados numéricos , Adulto , Preservativos/estatística & dados numéricos , Estudos Transversais , Feminino , Pesqueiros , Infecções por HIV/tratamento farmacológico , Infecções por HIV/epidemiologia , Humanos , Masculino , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Preferência do Paciente/etnologia , Profilaxia Pré-Exposição/métodos , Infecções Sexualmente Transmissíveis/prevenção & controle , Inquéritos e Questionários , Uganda/epidemiologia
10.
Ethn Health ; 24(6): 607-622, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-28669226

RESUMO

Objectives: The aims of the study were, first, to describe and analyze healthcare services utilization patterns of older immigrants in Finland, and particularly to compare the availability and accessibility of health services between older Somalis and Finns. The second aim was to examine the preferences for mental healthcare within the group of Somalis. The third aim was to test the existence of a service usage gap expected to be characteristic of the Somali group, in which high levels of mental health problems occur alongside simultaneous low levels of mental health service usage. Design: The participants were 256 men and women between the ages of 50-85; half were Somali migrants and the other half Finnish matched pairs. The participants were surveyed regarding their usage of somatic, mental, and preventive health services, as well as symptoms of depression, general distress, and somatization. The Somali participants were also surveyed regarding their usage of traditional healing methods and preferences for mental healthcare. Results: The Somali group had significantly lower access to personal/family doctors at healthcare centers as well as a lower availability of private doctors and occupational health services than the Finns. Instead, they used more nursing services than Finnish patients. The Somali participants attended fewer age-salient preventive check-ups than the Finns. The majority of the Somalis preferred traditional care, most commonly religious healing, for mental health problems. The hypothesized service gap was not substantiated, as a high level of depressive symptoms was not associated with a low usage of health services among the Somalis, but it was found unexpectedly among the Finns. Conclusion: Our findings call for culturally appropriate general and mental health services for older immigrants, which requires awareness of clients' preferences, needs, and alternative healing practices. Somali participants encountered institutional barriers in accessing healthcare, and they preferred informal mental healthcare, especially religious healing instead of Western practices.


Assuntos
Emigrantes e Imigrantes/estatística & dados numéricos , Acessibilidade aos Serviços de Saúde/estatística & dados numéricos , Serviços de Saúde Mental/estatística & dados numéricos , Preferência do Paciente/estatística & dados numéricos , Serviços Preventivos de Saúde/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Centros Comunitários de Saúde/estatística & dados numéricos , Depressão/etnologia , Depressão/terapia , Emigrantes e Imigrantes/psicologia , Medicina de Família e Comunidade/estatística & dados numéricos , Feminino , Finlândia , Humanos , Masculino , Medicinas Tradicionais Africanas/estatística & dados numéricos , Pessoa de Meia-Idade , Serviços de Enfermagem/estatística & dados numéricos , Serviços de Saúde do Trabalhador/estatística & dados numéricos , Preferência do Paciente/etnologia , Angústia Psicológica , Somália/etnologia , Transtornos Somatoformes/etnologia , Transtornos Somatoformes/terapia , Inquéritos e Questionários
11.
BMC Cardiovasc Disord ; 18(1): 97, 2018 05 18.
Artigo em Inglês | MEDLINE | ID: mdl-29776337

RESUMO

BACKGROUND: Patient preferences are key parameters to evaluate benefit-harm balance of statins for primary prevention but they are not readily available to guideline developers and decision makers. Our study aimed to elicit patient preferences for benefit and harm outcomes related to use of statins for primary cardiovascular disease prevention and to examine how the preferences differ across economically and socio-culturally different environments. METHODS: We conducted preference-eliciting surveys using best-worst scaling designed with a balanced incomplete-block design (BIBD) on 13 statins-related outcomes on 220 people in Ethiopia and Switzerland. The participants made tradeoff decisions and selected the most and least worrisome outcomes concurrently from each scenario generated using the BIBD. The design yielded 34,320 implied paired-comparisons and 2860 paired-responses as unit of analysis for eliciting the preferences that were analyzed using a conditional-logit model on a relative scale and surface under the cumulative ranking curve from multivariate random-effects meta-analysis model on a scale of 0 to 1. RESULTS: There was high internal consistency of responses and minimal amount of measurement error in both surveys. Severe stroke was the most worrisome outcome with a ceiling preference of 1 (on 0 to 1 scale) followed by severe myocardial infarction, 0.913 (95% CI, 0.889-0.943), and cancer, 0.846 (0.829-0.855); while treatment discontinuation, 0.090 (0.023-0.123), and nausea/headache, 0.060 (0.034-0.094) were the least worrisome outcomes. Preferences were similar between Ethiopia and Switzerland with overlapping uncertainty intervals and concordance correlation of 0.97 (0.90-0.99). CONCLUSIONS: Our study provides much needed empirical evidence on preferences that help clinical guidelines consider for weighing the benefit and harm outcomes when recommending for or against statins for primary prevention of cardiovascular disease. The preferences are consistent across the disparate settings; however, we recommend inclusion of more countries in future studies to ensure the generalizability of the preferences to all environments.


Assuntos
População Negra/psicologia , Doenças Cardiovasculares/prevenção & controle , Dislipidemias/tratamento farmacológico , Conhecimentos, Atitudes e Prática em Saúde , Inibidores de Hidroximetilglutaril-CoA Redutases/uso terapêutico , Preferência do Paciente/psicologia , Guias de Prática Clínica como Assunto , Prevenção Primária/métodos , População Branca/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Doenças Cardiovasculares/diagnóstico , Doenças Cardiovasculares/etnologia , Doenças Cardiovasculares/psicologia , Dislipidemias/diagnóstico , Dislipidemias/etnologia , Dislipidemias/psicologia , Etiópia/epidemiologia , Feminino , Pesquisas sobre Atenção à Saúde , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Humanos , Inibidores de Hidroximetilglutaril-CoA Redutases/efeitos adversos , Masculino , Pessoa de Meia-Idade , Preferência do Paciente/etnologia , Fatores de Risco , Suíça/epidemiologia , Resultado do Tratamento
12.
Alcohol Alcohol ; 53(6): 728-734, 2018 Nov 01.
Artigo em Inglês | MEDLINE | ID: mdl-30169575

RESUMO

AIMS: Determine if the language in which brief intervention (BI) is delivered influences drinking outcomes among Mexican-origin young adults in the emergency department when controlling for ethnic matching. SHORT SUMMARY: Aim of study was to determine if a patient's preferred language of intervention influences drinking outcomes among Mexican-origin young adults in the emergency department. Results indicate no significant differences in drinking outcomes among those who received BI in Spanish and BI in English. METHODS: This is a secondary data analysis on data from 310 patients randomized to receive a BI completed in Spanish (BI-S) or English (BI-E), with 3- and 12-month follow-up. Outcome measures of interest were drinking days per week, drinks per drinking day, maximum drinks in a day and negative consequences of drinking. RESULTS: There were no significant differences in drinking outcomes among those who received BI in Spanish and BI in English. CONCLUSIONS: Reduced drinking outcomes following BI among Mexican-origin young adults in the emergency department may not have been due to the language used to deliver intervention. Thus, our results provide evidence that language of intervention is not a crucial factor to achieve cultural congruence. In addition, our findings suggest that receiving the intervention is beneficial regardless of language, thus, facilitating real-world implementation.


Assuntos
Consumo de Bebidas Alcoólicas/etnologia , Serviço Hospitalar de Emergência/tendências , Emigração e Imigração/tendências , Americanos Mexicanos/psicologia , Multilinguismo , Preferência do Paciente/etnologia , Adolescente , Adulto , Consumo de Bebidas Alcoólicas/psicologia , Consumo de Bebidas Alcoólicas/terapia , Intervenção Médica Precoce/tendências , Feminino , Humanos , Masculino , México/etnologia , Preferência do Paciente/psicologia , Valor Preditivo dos Testes , Resultado do Tratamento , Estados Unidos/etnologia , Adulto Jovem
13.
J Obstet Gynaecol Can ; 40(6): 677-683, 2018 06.
Artigo em Inglês | MEDLINE | ID: mdl-29274934

RESUMO

OBJECTIVE: This study sought to gain an understanding of the importance and effect of provider gender for immigrant women accessing obstetrical care. METHODS: A focused ethnography was conducted using purposive sampling of 38 immigrant women from one hospital in Edmonton, Alberta. Data collection consisted of semistructured interviews conducted antenatally (n = 38); an attempt was made to conduct interviews postpartum (n = 21), and intrapartum observations were made (n = 17). Interviews were audio-recorded and transcribed verbatim. Data were managed using qualitative data analysis software and analyzed through thematic analysis. RESULTS: Study participants came from varied educational and ethnic backgrounds (predominately North/East African, Middle Eastern, and South Asian), but most were Muslim (n = 30) and married (n = 36), with a mean age of 27.7. All of the women stated that they preferred a female provider, which they explained in terms of the high value they placed on modesty, often as part of the Muslim faith. The women deemed provider competency and having safe childbirth more important, however, and said that they would accept intrapartum care from a male provider. A small minority of the women reported experiencing psychological stress as a consequence of having received care from a male provider. CONCLUSION: As a whole, our study population accepted care from male providers, yet for some women this compromise came at a price, and a small minority of women perceived it as profoundly detrimental. There is a need to identify those women for whom gender of provider is a substantial barrier, so that optimal support can be provided.


Assuntos
Emigrantes e Imigrantes/psicologia , Etnicidade , Pessoal de Saúde , Preferência do Paciente/etnologia , Preferência do Paciente/psicologia , Adulto , Alberta , Feminino , Humanos , Islamismo , Masculino , Obstetrícia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Gravidez , Comportamento Social
14.
J Natl Med Assoc ; 110(3): 206-211, 2018 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-29778121

RESUMO

This study's objective was to examine the extent to which individuals exhibit a preference for physicians based upon the race/ethnicity and gender of a physician's name. We conducted an online survey of 915 adults, who viewed a comparative display of four physicians' quality performance. We randomized the name of one physician, whose quality performance was equal to that of one physician and better than two other physicians, to be either typically African American male, African American female, white male, white female, or Middle Eastern (gender ambiguous). In regression models, participants more frequently selected the physician with the randomized name when displayed with a white male name, compared to when presented with an African American male, African American female, or Middle Eastern name (ORs ranging from .59 to .64). White and male study participants exhibited this pattern, while racial/ethnic minority participants did not. If the hypothetical choice bias observed here translates to people's actual selection of physicians, it could be a contributing factor for why women and racial/ethnic minority physicians have lower incomes than white male physicians.


Assuntos
Preferência do Paciente , Médicos/estatística & dados numéricos , Preconceito , Racismo/prevenção & controle , Adulto , Comportamento de Escolha , Tomada de Decisões , Etnicidade , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Preferência do Paciente/etnologia , Preferência do Paciente/estatística & dados numéricos , Relações Médico-Paciente , Preconceito/etnologia , Preconceito/prevenção & controle , Preconceito/estatística & dados numéricos , Fatores Raciais , Fatores Sexuais , Inquéritos e Questionários , Estados Unidos/epidemiologia
15.
J Soc Work End Life Palliat Care ; 14(4): 291-314, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-30457447

RESUMO

For over 40 years, the Hmong have sought refuge in the United States; however, many Hmong elders continue to honor healthcare and end-of-life beliefs and rituals that they practiced in their home country. With little knowledge by the general public and healthcare systems about these beliefs and rituals, healthcare professionals may struggle to provide the Hmong community with culturally-sensitive care. This study sought to address this gap by conducting in-depth face-to-face interviews with 12 Animist and 8Christian Hmong elders born in Southeast Asia, who now reside in the United States. Results provided insights regarding the heterogeneity among these Hmong elders concerning their end-of-life beliefs and rituals. Both Animist and Christian respondents believed family should provide care at end of life. Animist Hmong elders reported the importance of Shamanistic rituals such as soul calling or spiritual offering while Christian Hmong elders believed in the power of prayers. Healthcare providers need to assess Hmong elders' preferences for care at end of life, be open to the inclusion of traditional healers in their care and/or decision-making, and understand preferences of family and community members' involvement in care at the end of life.


Assuntos
Asiático/psicologia , Etnicidade/psicologia , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Religião , Assistência Terminal/organização & administração , Idoso , Idoso de 80 Anos ou mais , Sudeste Asiático/etnologia , Estudos Transversais , Competência Cultural , Relações Familiares/etnologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Preferência do Paciente/etnologia , Estados Unidos/epidemiologia
16.
Dermatol Surg ; 43(3): 437-442, 2017 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-28099200

RESUMO

BACKGROUND: Medical photography is increasingly used by physicians, but studies assessing the perception and acceptability of medical photography by Chinese dermatologic patients are scarce. OBJECTIVE: To assess the perception and acceptability of medical photography in Chinese dermatologic patients. MATERIALS AND METHODS: From July to December 2014, adult patients visiting the Dermatology Clinic of The First Affiliated Hospital of Third Military Medical University were included in this study. They were required to fill an anonymous questionnaire regarding perception and acceptability of medical photography. RESULTS: A total of 509 consecutive patients completed the questionnaire, with 35 and 474 declining and undergoing medical photography, respectively. Meanwhile, 81.0% of the patients preferred to be photographed by attending physicians; 63.3% favored clinic-owned cameras, and 81.0% would rather have their photographs stored in the department's database. Besides, most patients allowed their photographs to be used in case studies (92.8%) or medical record keeping (90.3%). CONCLUSION: Most Chinese dermatologic patients accept medical photography. However, the principles of privacy protection and informed consent should be strictly enforced in clinical practice, and appropriate photographic devices and storage methods should be used, for better acceptance.


Assuntos
Povo Asiático , Dermatologia , Consentimento Livre e Esclarecido , Preferência do Paciente/etnologia , Fotografação , Dermatopatias/etnologia , Percepção Social , Inquéritos e Questionários , Adolescente , Adulto , Idoso , Povo Asiático/estatística & dados numéricos , Atitude , China/epidemiologia , Confidencialidade , Dermatologia/instrumentação , Feminino , Hospitais Militares , Humanos , Consentimento Livre e Esclarecido/estatística & dados numéricos , Masculino , Prontuários Médicos , Pessoa de Meia-Idade , Propriedade/estatística & dados numéricos , Fotografação/instrumentação , Fotografação/métodos , Fotografação/estatística & dados numéricos , Privacidade/psicologia , Estudos Retrospectivos , Dermatopatias/psicologia , Estigma Social
17.
BMC Nephrol ; 18(1): 319, 2017 Oct 23.
Artigo em Inglês | MEDLINE | ID: mdl-29061178

RESUMO

BACKGROUND: Latinos in the U.S. are almost twice as likely to progress to End Stage Renal disease (ESRD) compared to non-Latino whites. Patients with ESRD on dialysis experience high morbidity, pre-mature mortality and receive intensive procedures at the end of life (EOL). This study explores intensive procedure preferences at the EOL in older Latino adults. METHODS: Seventy-three community-dwelling Spanish- and English-Speaking Latinos over the age of 60 with and without ESRD participated in this study. Those without ESRD (n = 47) participated in one of five focus group sessions, and those with ESRD on dialysis (n = 26) participated in one-on-one semi-structured interviews. Focus group and individual participants answered questions regarding intensive procedures at the EOL. Recurring themes were identified using standard qualitative content-analysis methods. Participants also completed a brief survey that included demographics, language preference, health insurance coverage, co-morbidities, Emergency Department visits and functional limitations. RESULTS: The majority of participants were of Mexican origin with mean age of 70, and there were more female participants in the non-ESRD group, compared to the ESRD dialysis dependent group. The dialysis group reported a higher number of co-morbidities and functional limitations. Nearly 69% of those in the dialysis group reported one or more emergency department visits in the past year, compared to 38% in the non-ESRD group. Primary themes centered on 1) The acceptability of a "natural" versus "invasive" procedure 2) Cultural traditions and family involvement 3) Level of trust in physicians and autonomy in decision-making. CONCLUSION: Our results highlight the need for improved patient- and family-centered approaches to better understand intensive procedure preferences at the EOL in this underserved population of older adults.


Assuntos
Hispânico ou Latino , Falência Renal Crônica/terapia , Preferência do Paciente/etnologia , Assistência Terminal , Planejamento Antecipado de Cuidados , Idoso , Reanimação Cardiopulmonar , Estudos de Casos e Controles , Tomada de Decisões , Relações Familiares , Feminino , Grupos Focais , Gastrostomia , Humanos , Entrevistas como Assunto , Intubação Gastrointestinal , Masculino , Pessoa de Meia-Idade , Autonomia Pessoal , Pesquisa Qualitativa , Diálise Renal , Respiração Artificial , Traqueostomia , Confiança
18.
J Health Commun ; 22(3): 183-189, 2017 03.
Artigo em Inglês | MEDLINE | ID: mdl-28248625

RESUMO

This study explored the knowledge, attitudes, and perceived facilitators and barriers to adoption of HIV pre-exposure prophylaxis (PrEP) among black women and Latinas in the Bronx, NY. Data were collected in focus group discussions (FGDs) held separately with staff (n = 21) and black and Latina female clients aged 18 to 50 (n = 23) of four organizations providing health and social services. Participants were also asked to give feedback about four action messages regarding PrEP for a social marketing campaign. Transcripts were analyzed by two researchers using grounded theory. We found that the majority of clients (74%) and staff (57%) had not heard about PrEP before participating in the FGDs. Following brief educational messaging about PrEP, participants identified potential facilitators and barriers to PrEP uptake among women, and expressed enthusiasm for more widespread efforts to raise awareness about PrEP as an HIV prevention option. Participants preferred an action message that was brief, referred to PrEP as a pill, and did not mention condoms or STD testing. These findings demonstrate the need to raise awareness about PrEP among women and build the capacity of women-serving organizations to educate, screen, and refer or provide PrEP services.


Assuntos
Negro ou Afro-Americano/psicologia , Infecções por HIV/prevenção & controle , Conhecimentos, Atitudes e Prática em Saúde , Promoção da Saúde , Hispânico ou Latino/psicologia , Profilaxia Pré-Exposição , Adolescente , Adulto , Negro ou Afro-Americano/estatística & dados numéricos , Feminino , Grupos Focais , Infecções por HIV/epidemiologia , Comunicação em Saúde/métodos , Pessoal de Saúde/psicologia , Acessibilidade aos Serviços de Saúde , Hispânico ou Latino/estatística & dados numéricos , Humanos , Pessoa de Meia-Idade , Cidade de Nova Iorque/epidemiologia , Preferência do Paciente/etnologia , Profilaxia Pré-Exposição/estatística & dados numéricos , Pesquisa Qualitativa , População Urbana/estatística & dados numéricos , Adulto Jovem
19.
BMC Palliat Care ; 16(1): 76, 2017 Dec 19.
Artigo em Inglês | MEDLINE | ID: mdl-29258480

RESUMO

BACKGROUND: Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenous older people, including New Zealand Maori. METHODS: Data on end of life preferences were gathered from 147 Maori (aged >80 years) and 291 non- Maori aged (>85 years), during three waves of Te Puawaitangi O Nga Tapuwae Kia Ora Tonu, Life and Living in Advanced Age (LiLACs NZ). An interviewer-led questionnaire using standardised tools and including Maori specific subsections was used. RESULTS: The top priority for both Maori and non-Maori participants at end of life was 'not being a burden to my family'. Interestingly, a home death was not a high priority for either group. End of life preferences differed by gender, however these differences were culturally contingent. More female Maori participants wanted spiritual practices at end of life than male Maori participants. More male non-Maori participants wanted to be resuscitated than female non- Maori participants. CONCLUSIONS: That a home death was not in the top three end of life priorities for our participants is not consistent with palliative care policy in most developed countries where place of death, and particularly home death, is a central concern. Conversely our participants' top concern - namely not being a burden - has received little research or policy attention. Our results also indicate a need to pay attention to diversity in end of life preferences amongst people of advanced age, as well as the socio-cultural context within which preferences are formulated.


Assuntos
Envelhecimento/psicologia , Preferência do Paciente/psicologia , Grupos Populacionais/psicologia , Assistência Terminal/métodos , Idoso de 80 Anos ou mais , Envelhecimento/etnologia , Distribuição de Qui-Quadrado , Estudos de Coortes , Feminino , Humanos , Masculino , Nova Zelândia/etnologia , Preferência do Paciente/etnologia , Grupos Populacionais/etnologia , Inquéritos e Questionários , Assistência Terminal/psicologia
20.
Eur Arch Otorhinolaryngol ; 274(5): 2339-2341, 2017 May.
Artigo em Inglês | MEDLINE | ID: mdl-28243784

RESUMO

To define the preferred nasolabial angle measurement in Middle Eastern population. An observational study was conducted from January 2012 to January 2016 at the Department of Otolaryngology, Head and Neck Surgery, King Abdulaziz University Hospital, King Saud University, Riyadh, Kingdom of Saudi Arabia. A total of 1027 raters, 506 males, and 521 females were asked to choose the most ideal nasolabial angle for 5 males and 5 females lateral photographs whose nasolabial angle were modified with Photoshop into the following angles (85°, 90°, 95°, 100°, 105°, and 110°). Male raters preferred the angle of 89.5° ± 3.5° (mean ± SD) for males and 90.8° ± 5.6° for females. While female raters preferred the angle of 89.3° ± 3.8° for males and 90.5° ± 4.8° for females. ANOVA test compare means among groups: p: 0.342, and there is no statistically significant difference between groups. The results of our study showed an even more acute angles than degrees found in the literature. It shows that what young generation in our region prefers and clearly reflects that what could be explained as under rotation of the nasal tip in other cultures is just the ideal for some Middle Eastern population.


Assuntos
Pesos e Medidas Corporais , Nariz , Preferência do Paciente , Rinoplastia/métodos , Adulto , Antropologia Cultural , Pesos e Medidas Corporais/métodos , Pesos e Medidas Corporais/estatística & dados numéricos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Nariz/anatomia & histologia , Nariz/cirurgia , Preferência do Paciente/etnologia , Preferência do Paciente/psicologia , Arábia Saudita/etnologia
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