Parental Decision-Making in Cancer Therapy: A Long-Term Observational Study.
Clin Pediatr (Phila)
; 62(9): 1059-1066, 2023 10.
Article
em En
| MEDLINE
| ID: mdl-36680345
ABSTRACT
Parental participation in shared decision-making in children's cancer therapy is essential because parents advocate for and support their children's wishes. However, little research has focused on this issue. We conducted a longitudinal observational study of 7 parents whose child had received their first cancer treatment. We recorded parents' behaviors, interactions, and narratives in 1 pediatric ward and 2 outpatient clinics. The recordings were systematically conducted and thematically analyzed using variable-oriented and process-oriented modes to assess the causal relationships among phenomena. We found 4 themes describing the processes by which parents developed and participated in shared decision-making. The first 2 themes reflected the development of reciprocal parental relationships and parent-other child relationships. These 2 types of relationship generated mutual trust and a sense of solidarity among parents (the third theme). This, in turn, became the foundation for parents to share decision-making with health care professionals (the fourth theme).
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Tomada de Decisões
/
Neoplasias
Tipo de estudo:
Observational_studies
/
Prognostic_studies
/
Qualitative_research
Limite:
Child
/
Humans
Idioma:
En
Revista:
Clin Pediatr (Phila)
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Japão