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Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results.
Saraceno, Davide; Chronaki, Catherine; Cangioli, Giorgio; Filbert, Anna-Liesa; Muraca, Monica; Berti, Alessandra; Rielli, Rita; Thomopulos, Nikos; Knoerr, Lisa; Walz, Diana; Neumann, Anke; Beccaria, Andrea; Aulicino, Anna; Nicolas, Brigitte; Cavalca, Giacomo; Uyttebroeck, Anne; van Helvoirt, Maria; Brié, Tom; Vanden Meersch, Erik; Ladenstein, Ruth; Bardi, Edit; Schreier, Günter; Beyer, Stefan; Müllner-Rieder, Markus; Tormo Alcañiz, María Teresa; Cervero Beltran, Lucas; Rascon, Jelena; Kapitancuke, Monika; Trinkunas, Justas; Stukaite-Ruibiene, Egle; Ragauskas, Paulius; Ciesiuniene, Audrone; Haupt, Riccardo; Grabow, Desiree.
Afiliação
  • Saraceno D; Cineca Interuniversity Consortium, Bologna, Italy.
  • Chronaki C; HL7 Europe, Brussels, Belgium.
  • Cangioli G; HL7 Europe, Brussels, Belgium.
  • Filbert AL; German Childhood Cancer Registry, IMBEI, University Medical Center Mainz, Mainz, Germany.
  • Muraca M; IT Center for Clinical Research, University of Luebeck, Luebeck, Germany.
  • Berti A; Cineca Interuniversity Consortium, Bologna, Italy.
  • Rielli R; Cineca Interuniversity Consortium, Bologna, Italy.
  • Thomopulos N; Cineca Interuniversity Consortium, Bologna, Italy.
  • Knoerr L; German Childhood Cancer Registry, IMBEI, University Medical Center Mainz, Mainz, Germany.
  • Walz D; German Childhood Cancer Registry, IMBEI, University Medical Center Mainz, Mainz, Germany.
  • Neumann A; IRCCS Istituto Giannina Gaslini, Genova, Italy.
  • Beccaria A; IT Center for Clinical Research, University of Luebeck, Luebeck, Germany.
  • Aulicino A; IT Center for Clinical Research, University of Luebeck, Luebeck, Germany.
  • Nicolas B; IT Center for Clinical Research, University of Luebeck, Luebeck, Germany.
  • Cavalca G; IT Center for Clinical Research, University of Luebeck, Luebeck, Germany.
  • Uyttebroeck A; University Hospitals Leuven KU, Louvain, Belgium.
  • van Helvoirt M; University Hospitals Leuven KU, Louvain, Belgium.
  • Brié T; University Hospitals Leuven KU, Louvain, Belgium.
  • Vanden Meersch E; University Hospitals Leuven KU, Louvain, Belgium.
  • Ladenstein R; CCRI, Vienna, Austria.
  • Bardi E; St.Anna Children's Hospital, Vienna, Austria.
  • Schreier G; Kepler University Clinic, Linz, Austria.
  • Beyer S; AIT Austrian Institute of Technology, Graz, Austria.
  • Müllner-Rieder M; AIT Austrian Institute of Technology, Graz, Austria.
  • Tormo Alcañiz MT; AIT Austrian Institute of Technology, Graz, Austria.
  • Cervero Beltran L; Instituto de Investigación Sanitaria La Fe, Valencia, Spain.
  • Rascon J; Instituto de Investigación Sanitaria La Fe, Valencia, Spain.
  • Kapitancuke M; Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
  • Trinkunas J; Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
  • Stukaite-Ruibiene E; Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
  • Ragauskas P; Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
  • Ciesiuniene A; Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
  • Haupt R; Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
  • Grabow D; IT Center for Clinical Research, University of Luebeck, Luebeck, Germany.
Stud Health Technol Inform ; 316: 1280-1284, 2024 Aug 22.
Article em En | MEDLINE | ID: mdl-39176615
ABSTRACT
The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Registros Eletrônicos de Saúde / Sobreviventes de Câncer Limite: Child / Humans País/Região como assunto: Europa Idioma: En Revista: Stud Health Technol Inform Assunto da revista: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Itália
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Registros Eletrônicos de Saúde / Sobreviventes de Câncer Limite: Child / Humans País/Região como assunto: Europa Idioma: En Revista: Stud Health Technol Inform Assunto da revista: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Itália