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1.
Hospital-to-home transitions for children with medical complexity: part 2-a core outcome set.
Eur J Pediatr;
182(9): 3833-3843, 2023 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-37338690
2.
Hospital-to-home transitions for children with medical complexity: part 1, a systematic review of reported outcomes.
Eur J Pediatr;
182(9): 3805-3831, 2023 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-37318656
3.
Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health.
Am J Med Genet A;
188(7): 2096-2109, 2022 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-35393672
4.
Parenting a child with Marfan syndrome: Distress and everyday problems.
Am J Med Genet A;
185(1): 50-59, 2021 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-33034422
5.
Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs.
Eur J Pediatr;
178(12): 1883-1892, 2019 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-31620888
6.
Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician.
Child Care Health Dev;
45(5): 623-636, 2019 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-31276605
7.
Therapy needs and possibilities in paediatric rehabilitation during the COVID-19 lockdown in the Netherlands.
Child Care Health Dev;
46(6): 749-750, 2020 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-32692426
8.
Designing eHealth interventions for children with complex care needs requires continuous stakeholder collaboration and co-creation.
PEC Innov;
4: 100280, 2024 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-38596601
9.
Clinical-based phenotypes in children with pediatric post-COVID-19 condition.
World J Pediatr;
2024 Apr 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-38664324
10.
How children and their parents value using the Canadian Occupational Performance Measure (COPM) with children themselves.
J Pediatr Rehabil Med;
14(1): 7-17, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-33104046
11.
Heritable Connective Tissue Disorders in Childhood: Increased Fatigue, Pain, Disability and Decreased General Health.
Genes (Basel);
12(6)2021 05 28.
Artículo
en Inglés
| MEDLINE | ID: mdl-34071423
12.
Physical Functioning After Admission to the PICU: A Scoping Review.
Crit Care Explor;
3(6): e0462, 2021 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-34151283
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