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OBJECTIVES: The Measure of Socialization of American Indian Children (MOSAIC) was created as part of a larger study developing a family-based and culturally grounded substance use prevention program for young American Indian (AI) adolescents. The MOSAIC was designed to measure ethnic-racial socialization (ERS) for use with AI families to support better understanding of the roots of ethnic-racial identity among AI youth and their relationship to risk for substance use in early adolescence. METHOD: This study was conducted in partnership with a Lakota reservation community. Community partners and advisors provided guidance on the creation of an item pool, which also drew extensively from the existing literature on ERS in other populations. The MOSAIC was pilot tested with a small sample of parents (N = 19) and then tested with a development sample of participants (N = 197) taking part in the larger study. A series of factor analyses were conducted with data from this development sample to explore associations among items and alignment with proposed dimensions. RESULTS: Four dimensions emerged, related to socialization practices to support spirituality, language, pride, and preparation for bias. The original MOSIAC measure was refined based on these analyses and prepared for testing in an independent sample. CONCLUSIONS: Dimensions of ERS common to measures developed for other populations emerged as relevant for AI families, with adaptations to reflect the unique context of this population. Further work is needed to confirm the structure of the MOSAIC in both this AI community and with other diverse indigenous populations. (PsycInfo Database Record (c) 2023 APA, all rights reserved).
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Socialización , Trastornos Relacionados con Sustancias , Adolescente , Humanos , Niño , Indio Americano o Nativo de Alaska , Identificación Social , PadresRESUMEN
Native WYSE CHOICES adapted an Alcohol Exposed Pregnancy (AEP) prevention curriculum for mobile health delivery for young urban American Indian and Alaska Native (AIAN) women. This qualitative study explored the relevance of culture in adapting a health intervention with a national sample of urban AIAN youth. In total, the team conducted 29 interviews across three iterative rounds. Participants expressed interest in receiving culturally informed health interventions, were open to cultural elements from other AIAN tribes, and highlighted the importance of culture in their lives. The study underscores why community voices are central in tailoring health interventions for this population.
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Primary progressive apraxia of speech (PPAOS) is a neurodegenerative disorder in which AOS is the sole presenting complaint. We report clinical and neuroimaging data spanning 10 years from disease onset-to-death in a 49 year-old male PPAOS patient, DY, who died with corticobasal degeneration. He presented with AOS with normal neuroimaging. Abnormalities in the caudate nucleus, supplementary motor area, cingulate, insula, and Broca's area were observed after five years, with involvement of motor cortex and development of agrammatism, Parkinsonism, and dysarthria three years later. Cognitive impairment and temporoparietal atrophy were late features. This data provides important insight into disease progression of corticobasal degeneration when presenting as PPAOS.
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Apraxias/patología , Ganglios Basales/patología , Corteza Cerebral/patología , Enfermedades Neurodegenerativas/patología , Trastornos del Habla/patología , Apraxias/complicaciones , Apraxias/diagnóstico por imagen , Ganglios Basales/diagnóstico por imagen , Enfermedades de los Ganglios Basales/diagnóstico por imagen , Enfermedades de los Ganglios Basales/patología , Corteza Cerebral/diagnóstico por imagen , Progresión de la Enfermedad , Humanos , Masculino , Persona de Mediana Edad , Enfermedades Neurodegenerativas/complicaciones , Enfermedades Neurodegenerativas/diagnóstico por imagen , Neuroimagen , Pruebas Neuropsicológicas , Trastornos del Habla/complicaciones , Trastornos del Habla/diagnóstico por imagenRESUMEN
Introduction: A significant proportion of currently enrolled college students receive support for attention deficit/hyperactivity disorder (ADHD) and these students are often at risk of academic failure. Retrieval practice or self-testing is an effective, accessible, and affordable tool for improving academic performance. Three recent studies found conflicting results with regards to the effectiveness of retrieval practice in this population. Methods: The present study compared 36 individuals with ADHD to 36 controls. Participants studied Swahili-English word pairs that varied in difficulty. Half of the pairs were repeatedly studied, and the other half repeatedly tested. Results: On a final test, all participants showed a benefit of retrieval practice relative to restudy and participant status did not moderate the effect. However, unmedicated individuals with ADHD performed worse overall, both during the encoding phase and on the final test, whereas medicated participants were not significantly different from controls. Discussion: An examination of self-reported encoding strategies found unmedicated participants used fewer deep strategies at encoding, consistent with prior work on ADHD and memory. Although retrieval practice is effective in this group, improved strategy use may be necessary to ensure performance that is fully equivalent to that of students without ADHD.
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Digital technology is now pervasive, however, not all groups have uniformly benefitted from technological changes and some groups have been left behind or digitally excluded. Comprehensive data from the 2017 Current Population Survey shows that older people and persons with disabilities still lag behind in computer and internet access. Furthermore unique ethical, privacy and safety implications exist for the use of technology for older persons and people with disabilities and careful reflection is required to incorporate these aspects, which are not always part of a traditional software lifecycle. In this paper we present the Inclusion4EU project that aims to co-design a new framework, guidelines and checklists for inclusive software design and development with end-users from excluded categories, academics with expertise in human-computer interaction and industry practitioners from software engineering.
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Lista de Verificación , Programas Informáticos , Humanos , Anciano , Anciano de 80 o más Años , Diseño de Software , Industrias , Acceso a InternetRESUMEN
As public health mourns the inequitable loss of lives to coronavirus disease 2019 (COVID-19) and confronts other major social crises, practitioners must explicitly address systems of oppression in their everyday praxis. We describe how the principles of public health critical race praxis (PHCRP) and design justice (DJ) can advance equity in public health. We begin with an overview of PHCRP and DJ, and develop an integrated approach to facilitate community-led change. We apply this approach to the example of COVID-19 vaccine distribution and conclude with a call to action, arguing for PHCRP and DJ to become integral part of public health practice.
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Social and health inequities among communities of color are deeply embedded in the United States and were exacerbated by the COVID-19 pandemic. Community-based participatory research (CBPR) is a powerful approach to advance health equity. However, emergencies both as global as a pandemic or as local as a forest fire have the power to interrupt research programs and weaken community relationships. Drawing from Public Health Critical Race Praxis (PHCRP), as well as our research experience during the pandemic, this article proposes an expansion of prior CBPR principles with an emphasis on advocacy and storytelling, community investment, and flexibility. The article summarizes key principles of CBPR and PHCRP, contextualizes their relevance in COVID-19, and outlines a practical vision for crisis-resilient research through deeper engagement with antiracism scholarship. Structural barriers remain an issue, so policy changes to funding and research institutions are recommended, as well, to truly advance health equity.
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COVID-19 , Equidad en Salud , Investigación Participativa Basada en la Comunidad , Humanos , Pandemias , SARS-CoV-2 , Estados Unidos/epidemiologíaRESUMEN
The present investigation examined social identification management among individuals affected by chronic illness. Because diabetes is a chronic medical condition that consists of a broad superordinate group with two nested subgroups of differing relative status (type 1 versus type 2), it is well-suited to an examination of positive identity management strategies used by individuals with chronic illness. A cross-sectional survey was conducted on individuals with diabetes (N = 399) to assess diabetes-related identity. Results indicated that individuals with type 1 diabetes reported greater identity centrality and greater preference for subgroup self-categorization ("individual affected by type 1 diabetes") over superordinate group categorization ("individual affected by diabetes") than did individuals with type 2 diabetes. The relationship between diabetes type and preferred categorization level was moderated by perceived intractability of their condition and perceived stigmatization of the lower status subgroup (i.e., type 2), suggesting that categorization level functions to maintain a positive self-concept. Further, categorization level moderated the negative relationship between identity centrality and feelings of depression and anger, suggesting that self-categorization might function to protect against self-concept threat. The present findings highlight the roles of group status, group boundary permeability, and perceived stigma on identity management strategies used by individuals with a chronic illness.
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BACKGROUND: Social media content is well-remembered, possibly because of its personal relevance and gossipy nature. It is unclear whether the mnemonic advantage of social media extends to a population less familiar with these platforms and whether knowing the content is from social media sources influences memory. This study examined how the presentation of news-like content in social media affected both item and source memory across two age groups. Younger adults (n = 42) and older adults (n = 32) studied tweets and news headlines that appeared in the format of Twitter posts or CNN headlines - these items were designed to be either congruent (e.g., tweets formatted as Twitter posts) or incongruent (e.g., tweets formatted as CNN headlines). RESULTS: For item memory, both age groups correctly recognized tweets more than headlines. Source identification was more accurate when format and content were congruent than incongruent. Signal detection analyses indicated that the source advantage for congruent items was largely driven by a bias to select the format that matched the content's original source and that this tendency was stronger in older adults. CONCLUSIONS: These results replicate previous literature on the mnemonic advantage of social media content. Although both younger and older adults remembered the content of social media better than the content of news sources, older adults were more sensitive than younger adults to congruency effects in source memory. These findings suggest that older adults rely more on their prior knowledge of conventional language and style in traditional and social media.
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Memoria Episódica , Reconocimiento Visual de Modelos/fisiología , Lectura , Reconocimiento en Psicología/fisiología , Medios de Comunicación Sociales , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Adulto JovenRESUMEN
Aim: This report explores the process of weight-related genomic information provision considering patient race as an important potential moderator of patient response. Methods: Health beliefs and perceived stigma were assessed following provision of genomic (versus behavioral) information by a virtual reality-based physician using either a supportive or directive communication style. Participants included 168 women with overweight. Results: Genomic explanations, combined with supportive communication, resulted in some improved health behavior-related and interpersonal outcomes for white patients, but not black participants. Black participants, on average, did not have diminished outcomes when provided with genomic information. Conclusion: Genomic communications may elicit more positive interpersonal responses than behavioral explanations among both majority and minority populations, but these effects may be moderated by patient race.
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Sobrepeso/genética , Sobrepeso/psicología , Educación del Paciente como Asunto/métodos , Adulto , Peso Corporal/genética , Comunicación , Femenino , Genómica/métodos , Conductas Relacionadas con la Salud/fisiología , Conocimientos, Actitudes y Práctica en Salud , Humanos , Persona de Mediana Edad , Grupos Minoritarios , Médicos , Estados Unidos , Realidad VirtualRESUMEN
Objective: The present study aims to describe and compare causal attributions for type 1 diabetes (T1D) and type 2 diabetes (T2D) among affected and unaffected individuals and to investigate the relationships among attributions, attitudes, and beliefs. Research design and methods: Adults with no diabetes (N=458), T1D (N=192), or T2D (N=207) completed an online survey. Measures assessed diabetes conceptual knowledge, causal attributions for T1D and T2D, perceived control over diabetes onset, and favorability judgements of individuals affected by each type. Results: Results indicate general agreement on causal attributions for T1D and T2D among all respondent groups, with some divergences by disease status. All respondents attributed both T1D and T2D to genetics, and genetic attributions were positively associated with favorability judgements of individuals with T2D, but not those with T1D. Conclusions: This report sets the stage for investigations into how and why attributions for T1D and T2D differ and the implications of these differences including stigmatization of individuals with diabetes and diabetes-related self-concept. Additionally, this work can inform efforts towards clinical and public health education to prevent and optimize treatment of T1D and T2D.
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Diabetes Mellitus Tipo 1/etiología , Diabetes Mellitus Tipo 2/etiología , Conductas Relacionadas con la Salud , Conocimientos, Actitudes y Práctica en Salud , Actividades Cotidianas , Adulto , Estudios de Casos y Controles , Diabetes Mellitus Tipo 1/psicología , Diabetes Mellitus Tipo 2/psicología , Femenino , Estudios de Seguimiento , Estado de Salud , Humanos , Control Interno-Externo , Masculino , Persona de Mediana Edad , Encuestas y CuestionariosRESUMEN
Previous studies using diffusion tensor imaging (DTI) to investigate white matter (WM) structural connectivity have suggested widespread, although inconsistent WM alterations in autism spectrum disorder (ASD), such as greater reductions in fractional anisotropy (FA). However, findings may lack generalizability because: (a) most have focused solely on the ASD male brain phenotype, and not sex-differences in WM integrity; (b) many lack stringent and transparent data quality control such as controlling for head motion in analysis. This study addressed both issues by using Tract-Based Spatial Statistics (TBSS) to separately compare WM differences in 81 ASD (56 male, 25 female; 4-21 years old) and 39 typically developing (TD; 23 males, 16 females; 5-18 years old) children and young people, carefully group-matched on sex, age, cognitive abilities, and head motion. ASD males and females were also matched on autism symptom severity. Two independent-raters completed a multistep scan quality assurance to remove images that were significantly distorted by motion artifacts before analysis. ASD females exhibited significant widespread reductions in FA compared to TD females, suggesting altered WM integrity. In contrast, no significant localized or widespread WM differences were found between ASD and TD males. This study highlights the importance of data quality control in DTI, and outlines important sex-differences in WM alterations in ASD females. Future studies can explore the extent to which neural structural differences might underlie sex-differences in ASD behavioral phenotype, and guide clinical interventions to be tailored toward the unique needs of ASD females and males. Autism Res 2019, 12: 1472-1483. © 2019 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals, Inc. LAY SUMMARY: Previous Diffusion Tensor Imaging (DTI) studies have found atypical brain structural connectivity in males with autism, although findings are inconclusive in females with autism. To investigate potential sex-differences, we studied males and females with and without autism who showed a similar level of head movement during their brain scan. We found that females with autism had widespread atypical neural connectivity than females without autism, although not in males, highlighting sex-differences.
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Trastorno del Espectro Autista/fisiopatología , Encéfalo/diagnóstico por imagen , Encéfalo/fisiopatología , Imagen de Difusión Tensora/métodos , Adolescente , Adulto , Mapeo Encefálico/métodos , Niño , Preescolar , Femenino , Humanos , Masculino , Vías Nerviosas/fisiología , Neuroimagen/métodos , Factores Sexuales , Adulto JovenRESUMEN
The authors examined whether individual differences in fluid intelligence (gF) modulate the testing effect. Participants studied Swahili-English word pairs and repeatedly studied half the pairs or attempted retrieval, with feedback, for the remaining half. Word pairs were easy or difficult to learn. Overall, participants showed a benefit of testing over restudy. However, almost 1/3 of the sample had a negative testing effect and benefitted more from restudy than testing, as well as performing better overall. These individuals self-reported less use of shallower encoding strategies than positive testing effect participants but did not differ in other dimensions. For individuals with a positive testing effect, difficulty had differential effects on participants who scored high or low on a measure of gF, with high gF participants showing larger testing effects for difficult over easy items, whereas low gF participants showed the opposite. Working memory performance was not related to the magnitude of the testing effect; however, vocabulary knowledge revealed a similar pattern as gF, with higher vocabulary associated with a testing effect for difficult but not easy items. This suggests that the benefit of retrieval practice varies with item difficulty and participant abilities. Thus, recommendations to engage in retrieval practice should take into consideration the interactive effects of to-be-learned materials and individual differences in the learners. (PsycINFO Database Record
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Inteligencia , Recuerdo Mental , Práctica Psicológica , Retroalimentación Psicológica , Femenino , Humanos , Masculino , Memoria a Corto Plazo , Reconocimiento Visual de Modelos , Solución de Problemas , Vocabulario , Adulto JovenRESUMEN
Purpose: This case series details the clinical progression of patients with primary progressive apraxia of speech (PPAOS) to illustrate, using several methods and supplemental material examples, the changes that occur in speech and language functioning in this patient population. Method: Four patients who presented with PPAOS were followed between 5 and 6 years. Two patients had predominant articulatory abnormalities (termed phonetic PPAOS), 1 had predominant prosodic abnormalities (prosodic PPAOS), and 1 had relatively equal articulatory and prosodic abnormalities (mixed PPAOS). Detailed speech (including acoustics), language, neurologic, and neuropsychological data were collected. Results: At initial exam, the patients ranged from 60 to 77 years old, with presenting disease duration of 1.5-10 years. Although all patients presented with an isolated apraxia of speech, all developed varying degrees of aphasia and dysarthria. Patients with phonetic PPAOS developed relatively more severe aphasia than the other 2 patients. All patients eventually had severe functional communication limitations and required alternative or augmentative means of communication, although at varying times postonset of their initial speech problem. Two patients developed dysphagia, 3 showed mild-moderate Parkinsonism, and 2 developed depression. For all patients, simple temporal acoustic measurements documented slowed speech rate over time. Conclusions: This case series demonstrates that patients who initially present with PPAOS may develop aphasia and dysarthria, cognitive and behavioral changes, and other neurologic signs. Whether these changes can be predicted by the perceptual characteristics of the apraxia of speech is yet to be determined. The detailed longitudinal profiles provide valuable clinical insight into the progression of disease in people with PPAOS. Supplemental Material: https://doi.org/10.23641/asha.7051616.
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Afasia Progresiva Primaria/fisiopatología , Encéfalo/fisiopatología , Habla , Anciano , Afasia Progresiva Primaria/diagnóstico , Afasia Progresiva Primaria/psicología , Afasia Progresiva Primaria/terapia , Cognición , Progresión de la Enfermedad , Femenino , Humanos , Pruebas del Lenguaje , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Pruebas Neuropsicológicas , Medición de la Producción del Habla , Factores de TiempoRESUMEN
BACKGROUND: Neuropsychological assessment can add essential information to the characterization of individuals presenting with the logopenic variant of primary progressive aphasia (lvPPA). OBJECTIVE: This study examined the neuropsychological characteristics of lvPPA patients. We also examined differences in regional and whole brain atrophy based on neuropsychological profiles. METHODS: We conducted a hierarchical cluster analysis on memory, executive functioning, and visuospatial neuropsychological test data for 56 individuals with lvPPA. We then compared resultant clusters to left middle temporal, inferior parietal, and superior parietal regions-of-interest using multivariate analysis of covariance. We also performed voxel-level analyses. RESULTS: We identified three clusters characterized as lvPPA with no neurocognitive impairment (nâ=â5), lvPPA with mild neurocognitive deficits (nâ=â23), and lvPPA with marked cognitive deficits (nâ=â28). WAB-AQ was associated with left middle temporal volume. Superior parietal volumes were smaller for the lvPPA group with marked cognitive symptoms compared to the less severe groups. Voxel-level analyses showed greater atrophy in temporal, parietal, lateral occipital, and frontal regions, left worse than right. Age, disease duration, gender, WAB-AQ, and PiB-PET did not account for differences between groups. CONCLUSIONS: LvPPA patients without cognitive deficits in other domains were relatively uncommon while 50% of our sample exhibited pronounced neurocognitive deficits outside the language domain. Pronounced cognitive deficits in lvPPA are associated with widespread atrophy, left worse than right. Our study underscores the importance of examining neuropsychological function in addition to language in patients with lvPPA.