Motor development in premature infants: Study protocol for an interdisciplinary hospital-home intervention.

BACKGROUND: Deviations occur in the neuropsychomotor development of premature infants; early interventions minimize delay motor. This study aimed to determine the effect of an interdisciplinary hospital-home intervention addressing motor development adaptation in premature infants in Colombia in comparison with traditional interventions. METHODS: This study was based on a parallel design, with two groups, namely, experimental and control. The experimental group, hospital-home intervention (HHI) performed in two settings (i.e., hospital neonatal care units and homes), and the control group, traditional intervention, (TI) performed in institutions for premature infants. The sample will be composed of 130 randomly-allocated infants, 65 in the experimental group (HHI) and 65 in the control group (TI) of moderate to late preterm infants (gestational age between 34 and 37 weeks), weighing more than or equal to 1.800 g, who are hemodynamically stable and reside in the cities of Tunja and Bogotá-Colombia recruited between 2021 and 2022. For the pre- and post-intervention assessments, the TIMPSI and the CapDMP are the instruments used to assess motor development and the degree of parents' or caregivers' knowledge about motor development. The HHI is composed of 10 intervention strategies based on stimulation of motor development, performed twice a day for 10 min for two months, in combination with calls to a mobile device, using software (Baby Motor Skills) and an instant messaging system (WhatsApp). RESULTS: This hospital-home intervention program proposes an approach focused on the motor development of premature infants, based on sensory and motor stimulation strategies, in addition to follow-up performed at home with the use of a mobile application that improves the motor development of premature infants. Register Clinical Trial: NCT04563364. CONCLUSION: The HHI provides the opportunity to determine whether the individualized four-week from admission to follow up at home with parent training will improve the motor skills of premature infants.

Looking for Control at the End of Life Through the Bond: A Grounded Theory on the Hospital Discharge Process in Palliative Care.

The hospital-to-home transition in palliative care is a vital process that requires continuity of care through the discharge process. However, little is known about the perceptions of patients with cancer and their family caregivers during this important palliative care transition in the Colombian health care context. The purpose of this study was to explore the experiences of the patient-family caregiver dyad in palliative care during the transition process between hospital and home in a health care institution in Bogota, Colombia. Using a grounded constructivist theory design, 30 patients with cancer receiving palliative care and 30 family caregivers participated in this study. The data were collected through 36 dyad interviews conducted in either the hospital or home of the participants. For the analysis, the constructivist analytical method was used. Findings revealed that "Looking for control at the end of life through the bond" was the main category of the study. This category could be further elaborated into 4 categories: (1) yearning for home; (2) recognizing burden; (3) experiencing uncertainty, a lack of control; and (4) achieving control. By understanding the patient and family caregiver perspective of care during the hospital-to-home transition, health care systems have the possibility to implement care programs in palliative care with an innovative educational component for health care professionals.

Estrategias para el Aprendizaje Significativo del Cuidado Humano en Enfermería / Strategies for meaningful learning in nursing care

Con el propósito de describir y analizar las pedagógías usadas para el aprendizaje significativo en la enseñanza de la epistemología del Cuidado de Enfermería, se presenta el desarrollo de la aplicación de la estrategia de Smith y Liehr que sustenta el uso de abordajes metodológicos innovadores para la enseñanza de aspectos humanísticos y filosóficos del cuidado humano en la disciplina de enfermería. La estrategia que permite la enseñanza de la epistemología de enfermería con un enfoque reflexivo y de aprendizaje significativo fue estructurada para su aplicación con estudiantes de posgrado en asignaturas del componente de fundamentación disciplinar. Esta herramienta se considera de utilidad para la enseñanza de la enfermería, porque facilita la construcción del conocimiento en los participantes con el uso de experiencias significativas, la indagación constante y el análisis reflexivo de la fundamentación en enfermería y su reflejo en la práctica con el compañamiento de un docente experto,que direcciona el proceso..(AU)

In order to describe and analyze the pedagogical strategies used for meaningful learning in Nursing Care epistemology teaching, the development of the application of the Smith and Liehr strategy that supports the use of innovative methodological approaches to nursing teaching humanistic and philosophical aspects of human care in the discipline of nursing. The strategy that allows the teaching of nursing epistemology with a reflexive and meaningful learning approach was structured for its application with postgraduate students in subjects of the disciplinary foundation component. This tool is considered useful for teaching nursing, because it facilitates the construction of knowledge in the participants with the use of meaningful experiences, constant inquiry and reflective analysis of the foundation in nursing and its reflection in practice with the accompaniment of an expert teacher, who directs the process..(AU)

Diseño, validez facial y de contenido del instrumento carga de la enfermedad crónica para el paciente - GPCP-UN / Design, facial and content validation of the instrument “ Burden of chronic illness for the patient - gcpc-UN

Objetivo: Diseñar y realizar validación facial y de contenido del instrumento Carga de la Enfermedad Crónica para el Paciente . Método: Estudio descriptivo desarrollado entre los años 2012 - 2015, en las siguientes fases: 1) Revisión de la literatura. 2) Recuento y evaluación y de síntomas, quejas y preocupaciones expresadas por 1850 pacientes con seguimiento de un año. 3) Construcción del instrumento 4) Prueba de comprensibilidad y ajuste semántico 5) Pruebas de validez facial y de contenido con expertos. Resultados. El instrumento Carga de la Enfermedad Crónica para el Paciente - GCPC-UN consta de 49 ítems. Cada situación que se asocia con la enfermedad es medida en términos de la frecuencia, la intensidad y el nivel en que es considerada amenazante o peligrosa. Conclusiones. El Instrumento permite valorar integralmente el impacto que la situación de enfermedad crónica genera a la persona con la enfermedad. Los resultados de sus pruebas de comprensibilidad, validez facial y contenido, avalan su aplicación en el contexto colombiano y son base para nuevas investigaciones en el campo

Objective: To design and perform facial and content validation of the instrument Burden of Chronic Illness for the Patient - GCPC UN. Method: Descriptive study developed between the years 2012 - 2015, in the following phases: 1) Review of the literature. 2) Count and evaluation of symptoms, complaints and concerns expressed by 1850 patients with a follow up of one year. 3) Construction of the instrument 4) Proof of comprehensibility and semantic adjustment 5) facial and content validation with experts. Results: The instrument “Burden of Chronic Illness for the Patient - GCPC- UN” consists of 49 items divided into three dimensions: the psychological and spiritual suffering, with 15 items; the discomfort and physical distress, with 19 items; and the altered cultural and family patterns with 15 items; 1 final question that gives options for other problems was included. Each situation associated with the disease is measured in terms of frequency, intensity and the level in which it is considered threatening or dangerous. Conclusions: The Instrument “Burden of Chronic Illness for the Patient - GCPC UN” can fully assess the impact of chronic Illness for the person with a chronic disease. The results of the tests of comprehensibility, as well as the facial and content validity tests support the instrument “Burden of Chronic Illness for the Patient - GCPC UN” for its application in the Colombian context and are the basis for further research in the field

Encuesta de satisfacción con el cuidado de la salud en las personas con enfermedad crónica / Survey of satisfaction with health care in people with chronic disease

Objetivo Desarrollar y validar la Encuesta de satisfacción con el cuidado de la salud para personas con enfermedad crónica no trasmisible (ECNT), para ser utilizada en el contexto Latinoamericano. Método: Estudio metodológico desarrollado entre 2012 y 2014. Para ello se cumplieron tres fases: 1) Revisión de la literatura relacionada con la satisfacción con el cuidado en situaciones de ECNT. 2) Estructuración de la propuesta preliminar de la «Encuesta de satisfacción con el cuidado de personas con enfermedad crónica», conocida como GCPC-UN-ESU. 3) validez fácil y de contenido con expertos 4) Prueba de campo en la aplicación a 111 personas con ECNT. Resultados: La encuesta GCPC-UN-ESU contiene 19 ítems y 4 dimensiones: satisfacción con los cuidados, con la educación en salud, con la calidad en el servicio prestado y el nivel de fidelización con el servicio. La encuesta en conjunto valora de manera integral la percepción de satisfacción con el cuidado de la salud por parte de las personas con ECNT, puede ser autodiligenciada. Conclusiones. La encuesta CPC-UN ESU fue validada y mostró contar con las variables necesarias para determinar el nivel de satisfacción de las personas con ECNT en el contexto de América Latina. Esta herramienta constituye una respuesta a las demandas de acreditación de los servicios en esta región (AU)

Objective: To develop and validate the survey of satisfaction with health care in people with non-communicable chronic diseases(NCDs), for use in the Latin American context. Method: This is a methodological study developed between 2012 and 2014, as part of the Latin American Network for Chronic Patient Care, under the Program for the Reduction of the burden of chronic disease in Colombia. Three stages were met: 1) Review of the literature on satisfaction with care in chronic diseases situations. 2) Structuring the preliminary proposal of the «Survey of satisfaction with health care in people with chronic disease» known as GCPC-UN-ESU and 3) facial validity and experts review 4) Test application to 111 people with NCDs. Results: The GCPC-UN-ESU, survey contains 19 items and 4 dimensions: satisfaction with care, with health education and with the quality of the service provided and the level of loyalty to the service. The survey holistically perceived satisfaction with health care by people with NCDs and it can be personally developed. Conclusions: The CPC-A ESU survey was validated and it had the necessary variables in order to determine the level of satisfaction of people with NCDs in the Latin American context. This tool is a response to the demands of accreditation services in this región (AU)