Development and Validation of a Descriptive Cognitive Model for Predicting Usability Issues in a Low-Code Development Platform.

OBJECTIVE: The aim of the study was the development and evaluation of a Descriptive Cognitive Model (DCM) for the identification of three types of usability issues in a low-code development platform (LCDP). BACKGROUND: LCDPs raise the level of abstraction of software development by freeing end-users from implementation details. An effective LCDP requires an understanding of how its users conceptualize programming. It is necessary to identify the gap between the LCDP end-users' conceptualization of programming and the actions required by the platform. It is also relevant to evaluate how the conceptualization of the programming tasks varies according to the end-users' skills. METHOD: DCMs are widely used in the description and analysis of the interaction between users and systems. We propose a DCM which we called PRECOG that combines task decomposition methods with knowledge-based descriptions and criticality analysis. This DCM was validated using empirical techniques to provide the best insight regarding the users' interaction performance. Twenty programmers (10 experts, 10 novices) were observed using an LCDP and their interactions were analyzed according to our DCM. RESULTS: The DCM correctly identified several problems felt by first-time platform users. The patterns of issues observed were qualitatively different between groups. Experts mainly faced interaction-related problems, while novices faced problems attributable to a lack of programming skills. CONCLUSION: By applying the proposed DCM we were able to predict three types of interaction problems felt by first-time users of the LCDP. APPLICATION: The method is applicable when it is relevant to identify possible interaction problems, resulting from the users' background knowledge being insufficient to guarantee a successful completion of the task at hand.

People with Early Onset Parkinson's Disease: Empowered to Improve Care.

Patient organizations play an ever-growing role in modern societies by providing organized resources for patients and care partners. Importantly, patient organizations enable patients to define and share their needs and views. In Parkinson's disease (PD), patient organizations play significant roles in different countries. However, there is limited support and resources tailored for people with early onset Parkinson's disease (EOPD). These individuals face unique social, professional, and personal challenges that are often not accounted for by general PD organizations, which play very important roles for a significant proportion of individuals with PD. In Portugal, this was the situation until 2022, when Young Parkies Portugal (YPP) was founded to allow people with EOPD and various stakeholders to join forces to cover their specific needs. In this manuscript, we aim to share our experience in building an association for people with EOPD, reflecting on the reasons for this need, the activities developed thus far, challenges in implementation, and future directions. In summary, we believe that nonprofit organizations like YPP play an essential role in shaping the care and support of people with PD care and should be considered key partners of care alongside the larger multidisciplinary team. We are confident that sharing our experience can inspire and guide the implementation of similar initiatives in other countries.