Competency profiles for evidence-informed policy-making (EIPM): a rapid review.

BACKGROUND: Evidence-informed policy-making (EIPM) requires a set of individual and organizational capacities, linked with background factors and needs. The identification of essential knowledge, skills and attitudes for EIPM can support the development of competency profiles and their application in different contexts. PURPOSE: To identify elements of competency (knowledge, skills and attitudes) for EIPM, according to different professional profiles (researcher, health professional, decision-maker and citizen). METHODS: Rapid umbrella review. A structured search was conducted and later updated in two comprehensive repositories (BVSalud and PubMed). Review studies with distinctive designs were included, published from 2010 onwards, without language restrictions. Assessment of the methodological quality of the studies was not performed. A meta-aggregative narrative synthesis was used to report the findings. RESULTS: Ten reviews were included. A total of 37 elements of competency were identified, eight were categorized as knowledge, 19 as skills and 10 as attitudes. These elements were aggregated into four competency profiles: researcher, health professional, decision-maker and citizen. The competency profiles included different sets of EIPM-related knowledge, skills and attitudes. STRENGTHS AND LIMITATIONS: This study is innovative because it aggregates different profiles of competency from a practical perspective, favouring the application of its results in different contexts to support EIPM. Methodological limitations are related to the shortcuts adopted in this review: complementary searches of the grey literature were not performed, and the study selection and data extraction were not conducted in duplicate. FINAL CONSIDERATIONS: CONCLUSIONS AND IMPLICATIONS OF THE FINDINGS: EIPM requires the development of individual and organizational capacities. This rapid review contributes to the discussion on the institutionalization of EIPM in health systems. The competency profiles presented here can support discussions about the availability of capacity and the need for its development in different contexts.

Strategies for communicating scientific evidence on healthcare to managers and the population: a scoping review.

BACKGROUND: Health evidence needs to be communicated and disseminated in a manner that is clearly understood by decision-makers. As an inherent component of health knowledge translation, communicating results of scientific studies, effects of interventions and health risk estimates, in addition to understanding key concepts of clinical epidemiology and interpreting evidence, represent a set of essential instruments to reduce the gap between science and practice. The advancement of digital and social media has reshaped the concept of health communication, introducing new, direct and powerful communication platforms and gateways between researchers and the public. The objective of this scoping review was to identify strategies for communicating scientific evidence in healthcare to managers and/or population. METHODS: We searched Cochrane Library, Embase®, MEDLINE® and other six electronic databases, in addition to grey literature, relevant websites from related organizations for studies, documents or reports published from 2000, addressing any strategy for communicating scientific evidence on healthcare to managers and/or population. RESULTS: Our search identified 24 598 unique records, of which 80 met the inclusion criteria and addressed 78 strategies. Most strategies focused on risk and benefit communication in health, were presented by textual format and had been implemented and somehow evaluated. Among the strategies evaluated and appearing to yield some benefit are (i) risk/benefit communication: natural frequencies instead of percentages, absolute risk instead relative risk and number needed to treat, numerical instead nominal communication, mortality instead survival; negative or loss content appear to be more effective than positive or gain content; (ii) evidence synthesis: plain languages summaries to communicate the results of Cochrane reviews to the community were perceived as more reliable, easier to find and understand, and better to support decisions than the original summaries; (iii) teaching/learning: the Informed Health Choices resources seem to be effective for improving critical thinking skills. CONCLUSION: Our findings contribute to both the knowledge translation process by identifying communication strategies with potential for immediate implementation and to future research by recognizing the need to evaluate the clinical and social impact of other strategies to support evidence-informed policies. Trial registration protocol is prospectively available in MedArxiv (doi.org/10.1101/2021.11.04.21265922).

An evidence-informed policymaking (EIPM) competency profile for the Brazilian Health System developed through consensus: process and outcomes.

BACKGROUND: Evidence-informed policymaking (EIPM) requires a set of individual and organizational knowledge, skills and attitudes that should be articulated with background factors and needs. In this regard, the development of an EIPM competency profile is important to support the diagnosis, planning and implementation of EIPM. PURPOSE: To present the process and outcomes of the development of an EIPM competency profile by an expert committee, to be applied in different contexts of the Brazilian Health System. METHODS: A committee of experts in EIPM shared different views, experiences and opinions to develop an EIPM competency profile for Brazil. In six consensus workshops mediated by facilitators, the committee defined from macro problems to key actions and performances essential for the competency profile. The development steps consisted of: (1) Constitution of the committee, including researchers, professionals with practical experience, managers, and educators; (2) Development of a rapid review on EIPM competency profiles; (3) Agreement on commitments and responsibilities in the processes; (4) Identification and definition of macro problems relating to the scope of the competency profile; and (5) Outlining of general and specific capacities, to be incorporated into the competency profile, categorized by key actions. RESULTS: The development of the EIPM competency profile was guided by the following macro problems: (1) lack of systematic and transparent decision-making processes in health policy management; (2) underdeveloped institutional capacity for knowledge management and translation; and (3) incipient use of scientific evidence in the formulation and implementation of health policies. A general framework of key actions and performances of the EIPM Competency Profile for Brazil was developed, including 42 specific and general key actions distributed by area of activity (Health Management, Scientific Research, Civil Society, Knowledge Translation, and Cross-sectional areas). CONCLUSIONS: The competency profile presented in this article can be used in different contexts as a key tool for the institutionalization of EIPM.

Competency-based training in nursing: limits and possibilities.

Objective To analyze the possibilities and limits of competency-based training in nursing. Method An integrative review of the literature on the subject was carried out, and an analysis was made of the results of a survey evaluating a nursing course based on areas of competency. A dialog was then established between the review and the results of the research. Results On the question of which theoretical type of competency the articles from the literature relate to, there is a predominance of the constructivist perspective, followed by the functionalist approach and the dialog-based approach. In the dialog between the literature and the research, limits and possibilities were observed in the development of a training by areas of competency. Conclusion The dialog-based approach to competency is the proposition that most approximates to the profile defined by the National Curriculum Guidelines for training in nursing, and this was also identified in the evaluation survey that was studied. However, it is found that there are aspects on better work is needed, such as: partnership between school and the workplace, the role of the teacher, the role of the student, and the process of evaluation.

Breast cancer cultural representations: a scoping review. / Representações culturais do câncer de mama: uma revisão de escopo.

This article aims to map the global scientific production on social or cultural representations and breast cancer in Public Health and discuss how it is presented in the literature. We conducted a scoping review guided by the question: "How are cultural or social representations in the context of breast cancer described in the global scientific Public Health production?". We searched for works in five scientific literature sources and included 45 studies. The analytical process followed the content analysis technique in the thematic modality. The analyzed collection can be thematized into the following categories: (1) Compromised body image and interactions, (2) Spirituality, (3) Loss of control over life, (4) Going on with life, and (5) Association with ethnic-racial issues. Despite advances in biomedicine, we observed that representations of breast cancer still have metaphors associated with cancer in the last century. We conclude that, among other aspects, care for women with breast cancer cannot be guided only by biomedical and epidemiological approaches since this disease is traversed by knowledge that competes with these approaches.

O objetivo deste artigo é mapear a produção científica global sobre representações sociais ou culturais e câncer de mama no campo da saúde coletiva e discutir como esse fenômeno se apresenta na literatura. Foi realizada uma revisão de escopo, tendo como norte a seguinte pergunta: "Como representações culturais ou sociais no contexto do câncer de mama são descritas na produção científica global no âmbito da saúde coletiva?". As buscas foram realizadas em cinco fontes de literatura científica, sendo incluídos 45 estudos. O tratamento analítico seguiu a técnica de análise de conteúdo na modalidade temática. O acervo analisado pode ser tematizado nas seguintes categorias: (1) Comprometimento na imagem corporal e nas interações; (2) Espiritualidade; (3) Perda do controle da vida; (4) Seguir com a vida e (5) Associação a questões étnico-raciais. Apesar dos avanços da biomedicina, observa-se que nas representações do câncer de mama ainda permanecem metáforas associadas ao câncer no século passado. Conclui-se que, dentre outros aspectos, a atenção a mulheres com câncer de mama não pode ser pautada apenas pelas abordagens biomédica e epidemiológica, uma vez que essa doença é atravessada por saberes que competem com essas abordagens.

Change-inducing interventions in health education settings. / Intervenções estimuladoras de mudança em cenários de educação na saúde.

The article aims to analyze the participants' perception of the effect of interventions developed within a project nested in the Support Program for Institutional Development of the Unified Health System (PROADI-SUS). We adopted normative assessment from the perspective of a qualitative research approach. Twenty-one health professionals from five intervention projects representing the five Brazilian regions were involved in the research. The changes perceived and made tangible were identified as a result of the interventions. Among the conclusions, we underscore a convergence between perceptions and intentions of the evaluated project.

O artigo objetiva analisar a percepção de participantes sobre o efeito de intervenções desenvolvidas no âmbito de um projeto que integra o Programa de Apoio ao Desenvolvimento Institucional do Sistema Único de Saúde (PROADI-SUS). Adotou-se o desenho metodológico de avaliação normativa, na perspectiva da abordagem de pesquisa qualitativa. Na pesquisa, foram envolvidos 21 profissionais de saúde de cinco projetos de intervenção, representando as cinco regiões brasileiras. As mudanças percebidas e tangibilizadas foram constatadas como resultado das intervenções. Dentre as conclusões, destaca-se que houve convergência entre percepções e intencionalidades do projeto avaliado.

Discussing the relationships between homoparenthood and health. / Problematizando as relações entre homoparentalidade e saúde.

The present article aims to bridge the gaps or deepen the debate to discuss the relationship between homoparenthood and health. This essay is anchored in specific literature. We seek to work on the following questions throughout the text: (i) How is the central theme of this discussion historically outlined? (ii) How does homoparenthood appear in scientific health production in general? (iii) What sociopolitical dimensions emerge around homoparenthood-health relationships? and (iv) What are the limitations and possibilities for exercising reproductive rights between same-sex couples? Among the conclusions, we underscore the challenge of facing the strangeness of homoparenthood against the idea of the so-called called "normal" family based on heteronormative logic. Even in countries with some legal apparatus assuring the rights to homoparental families, their members suffer prejudice, discrimination, and violence.

Buscando preencher lacunas e/ou aprofundar o debate, o artigo objetiva problematizar aspectos que envolvem as relações entre homoparentalidade e saúde. O desenho metodológico é o de ensaio, ancorado em literatura específica. Ao longo do texto procura-se trabalhar as seguintes questões: (i) Como se esboça historicamente a temática central desta discussão? (ii) Como se afigura a homoparentalidade no campo da produção científica da saúde em geral? (iii) Quais dimensões sociopolíticas emergem em torno das relações homoparentalidade-saúde? e (iv) Quais são os limites e as possibilidades para o exercício dos direitos reprodutivos entre casais homoafetivos? Dentre as conclusões, destaca-se o desafio de se enfrentar o estranhamento da temática homoparentalidade para a ideia da família denominada de "normal", configurada a partir da lógica heteronormativa. Mesmo nos países em que há algum aparato jurídico que garanta direitos às famílias homoparentais, seus integrantes são alvo de preconceitos, discriminações e violências.

Reproduction in cisgender same-sex couples: a scoping review. / Reprodução em casais homoafetivos cisgêneros: uma revisão de escopo.

The aim of this article is to present the state of the art, in the field of public health, on cis homoparental reproduction, from 28 studies addressing barriers to reproduction by homoparental couples for legal, ethical, technical or economic reasons, in addition to prejudice and discrimination. Six studies addressed facilitators, such as receptiveness in services, availability of conception and contraceptive methods and training of health professionals. The results show that the discussion has focused more on the barriers than on the facilitating factors. This may indicate a continuing need to problematise the hegemonic model of a heterosexual, nuclear family.

O objetivo deste artigo é apresentar o estado da arte sobre a reprodução homoparental cis no campo da saúde coletiva. Vinte e oito estudos abordam barreiras para a reprodução de casais homoparentais relacionadas a questões legais, éticas, técnicas e econômicas, além de preconceito e discriminação. Seis abordam facilitadores, tais como acolhimento nos serviços, disponibilidade de métodos conceptivos e contraceptivos e a capacitação de profissionais. Os achados evidenciam que a discussão se volta mais para as barreiras do que para os facilitadores. Isso pode indicar que ainda se faz necessário promover a problematização do modelo hegemônico de família nuclear e heterossexual.

The sickle cell illness experience under the qualitative lens. / A experiência de adoecimento falciforme pelas lentes qualitativas.

This article aims to analyze the content of the qualitative production (2000-2023) on sickle cell disease to support the analytical category - the sickle cell disease experience. Methodologically, we conducted a qualitative, bibliographical study with a thematic content analysis anchored in the dialogue between the revised collection and the adopted theoretical-conceptual references. The thematic content analysis triggered eight interpretative dimensions: daily life and itineraries, care, reproductive decisions, stigma and its expressions, gender, participation, ethnicity, and religiosity. The sickle cell experience emerges and is related to exclusion, devaluation, ignorance, and invisibility, strongly allied to race components in nuances that distance it from the generic illness experience.

O objetivo deste artigo é analisar o conteúdo da produção qualitativa produzida (2000-2023) sobre a doença falciforme, a fim de fundamentar a categoria analítica - experiência de adoecimento falciforme. Metodologicamente, realizamos um estudo bibliográfico de abordagem qualitativa, com uma análise de conteúdo temática, ancorada no diálogo entre o acervo revisado e os referenciais teórico-conceituais adotados. A análise de conteúdo temática nos levou a oito dimensões interpretativas: cotidianos e itinerários, cuidado, decisões reprodutivas, estigma e suas expressões, gênero, participação, raça e religiosidade. A experiência falciforme emerge relacionada a processos de exclusão, desvalorização, desconhecimento e invisibilização, aliadas fortemente aos componentes de raça em nuances que a distanciam da experiência de adoecimento genérica.

Homoparenting as a public health issue: a scoping review.

OBJECTIVE: To map global scientific production on homoparenting in the field of collective health or public health. METHODS: In terms of methodological procedures, a scoping review was carried out, guided by the following question: What are the aspects addressed in global scientific production regarding homoparental families in the field of collective or public health? The searches were carried out in seven sources of scientific literature, including 58 studies, involving scientific articles and dissertations. The analytical treatment given to the studies, most of which were qualitative, followed the content analysis technique in the thematic modality. RESULTS: The results indicate that the perceptions of homosexuals and professionals about the care provided and health services in general was the topic addressed by the largest number of studies (n = 31), followed by heteronormative context of health services (n = 26); disclosure of sexual orientation (n = 20); fertilization (n = 14); educational information and actions (n = 5). CONCLUSION: Although the issue of same-sex parenthood has been discussed in some health sectors, there is awareness that it is necessary to rely on a consolidated basis through numerous studies when discussing this issue. It is concluded that, among other aspects, the scope of this review is not sufficiently problematized within the scope of health professionals' training and performance.

Methodological issues in qualitative research on HIV prevention: an integrative review.

In view of the growing concern about the use of qualitative approach in health research, this article aims to analyze how the qualitative theoretical-methodological framework of HIV prevention is presented in empirical research. We conducted an integrative literature review with the following guiding questions: "How is the qualitative theoretical-methodological framework expressed in empirical research on HIV prevention?"; "What are the limits and potentials of the qualitative methodological designs employed?". In the qualitative methodological discussion, five dimensions guided the methodological course and the presentation of findings, from the analysis of the characterization of qualitative studies to the contextualization of the studies and the methodological approaches used, highlighting the use of semi-structured interviews with thematic content analysis. We also examined social categories and analytical references, drawing attention to the plurality of these theoretical-conceptual references and to the authors' polyphony, and identified the limits and potentials of qualitative research. This study focuses on a scientific topic that is related to a wide variety of social groups and analyzes how they are affected by it, examining issues related to social inequality and other analytical possibilities surrounding HIV prevention, and providing resources for a comprehensive methodological discussion. Hence, avoiding the risk of conducting qualitative research based on checklists that limit inventiveness and openness to different designs and forms of execution and analysis is as pivotal as ensuring that the research is consistent and detailed in publications.

Gay and lesbian health agendas. / Agendas de saúde voltadas para gays e lésbicas.

The aim of this study was to validate gay and lesbian health agendas pushed by organizations representing these groups. To this end, we created a health agenda matrix based on 25 narratives of representatives from 16 different gay and lesbian groups in ten state capitals in Brazil collected in another study. Each agenda was considered to have reached consensus when the mean score was equal to or greater than seven and SD was equal to or less than two. The validated agendas addressed the following themes: physical and psychological violence; the care needs of lesbians related to uterine and breast cancer; mental health; training of health care professionals; AIDS prevention and care; assisted reproduction for lesbians; the urological and proctological care needs of gays; development of informative material on general health; and information and treatment of sexually transmitted diseases. It is concluded that gay and lesbian movements are potentially important actors in the public health arena, not only proposing important issues that need to be considered in public policies and actions to improve health care for LGBT people, but also mediating between health professionals and homosexuals seeking health services.

O estudo objetivou validar agendas reivindicadas por representantes de grupos homossexuais voltadas para a atenção integral à saúde de gays e lésbicas. Para isso, foi elaborada uma matriz de agendas de saúde baseada na consulta a acervo de outro estudo, composto por 25 narrativas de representantes de 16 grupos de dez capitais brasileiras. As agendas foram consideradas validadas a partir da média de pontuações igual ou superior a sete e desvio padrão igual ou inferior a dois. As agendas validadas se relacionaram às seguintes temáticas: violência física ou psicológica; atenção às lésbicas relacionada aos cânceres de útero e mama; saúde mental; capacitação de profissionais de saúde; prevenção e atenção voltadas para a Aids; reprodução assistida para lésbicas; atenção a gays relacionada ao atendimento urológico e proctológico; desenvolvimento de materiais informativos sobre a saúde em geral; e informação e tratamento das infecções sexualmente transmissíveis. Conclui-se que os movimentos de gays e lésbicas podem ser atores importantes no âmbito da saúde coletiva, não só indicando pautas a serem consideradas nas políticas e nos planejamentos voltados para a saúde de seus integrantes, podem também ser mediadores entre os profissionais de saúde e os homossexuais que buscam os cuidados desses profissionais.

Narratives of the Brazilian homosexual movement on the health of gays and lesbians. / Narrativas do movimento homossexual brasileiro sobre a saúde de gays e lésbicas.

This study analyzes narratives of health produced by representatives of gay and lesbian groups. The analysis seeks to contribute to a shift from the pathologization of non-heteronormative sexuality towards ensuring comprehensive gay and lesbian health care that takes into account the specific needs of these groups beyond HIV/AIDS. We conducted a qualitative study using narrative inquiry and drawing on previous narrative studies analyzing social movements. The results highlight collective homosexual identities and the plurality of gay and lesbian health. It is concluded that the narratives shift between the association between AIDS and homosexuality and the demarcation of differences between gay and lesbian health, leading to new demands that make these groups protagonists or supporting actors in health promotion.

Objetivou-se analisar narrativas de representantes de grupos gays e de lésbicas sobre a saúde. Com tal análise, pretende-se contribuir para o deslocamento da associação doença/gays e lésbicas para a dimensão da atenção integral à saúde, equilibrando o tema HIV/AIDS e a emergência de necessidades de saúde desses atores. A abordagem deste estudo é caracterizada como de natureza qualitativa, utilizando o método de narrativas, com perspectiva hermenêutica e referenciais de estudos que utilizam narrativas na análise de movimentos sociais. Entre os resultados, destacam-se identidades coletivas e emergem a pluralidade de ações e necessidades de saúde voltadas para gays e lésbicas. Concluiu-se que as narrativas se deslocam da associação AIDS/homossexualidade, passando pela demarcação das diferenças de necessidades de saúde entre gays e lésbicas, chegando a demandas que colocam os grupos como protagonistas ou coadjuvantes nas ações de saúde.

[The integrality of care and communicative actions in the cross-discipline practice in intensive care]. / A integralidade do cuidado e ação comunicativa na prática interprofissional da terapia intensiva.

Cross-disciplinary work in health is an important element to deliver comprehensive health care actions. The present study analyzed cross-disciplinary actions in intensive care according to Habermas. This case study was performed using a qualitative approach. The empiric material capture was collected by observing the setting and using semi-structured interviews with health workers. The information was analyzed using the meaning interpretation technique. The analysis revealed two thematic lines: individual instrumental care in view of the clinical inconstancy, and the collective care fragmented by functions. This result weakens the worker/worker and the worker/patient interactions and compromises the association between health actions. As it does not favor communicative actions, it becomes fragile and the strategic/instrumental action is evinced.

Participation of social movements in gay and lesbian health. / Participação dos movimentos sociais na saúde de gays e lésbicas.

Since the beginning of the 20th century, social movements have developed isolated or aligned actions to promote the right of gays and lesbians to health. This article explores the participation of social movements in gay and lesbian health from the framing perspective on social movements. A literature search was performed and a frame analysis was conducted of the discussions found in the selected articles. This article therefore constitutes a bibliographic essay. With respect to outcomes, the literature reveals alignment between social rights and Aids activism, resonating in improved access to healthcare for gays and lesbians. We conclude that, although the participation of social movements in the struggle for the right of gays and lesbians to health started at the beginning of the last century, it cannot be said, now at the end of the second decade of the 21st century, that the outcomes were entirely solid. In short, we highlight that: (1) in some societies, the claims of social movements have been transformed into political agendas, while in others precarious concessions have been made in relation to gay and lesbian rights; and (2) non-acceptance of the right of gays and lesbians to sexuality still exists.

Desde o início do século XX, os movimentos sociais desenvolvem ações isoladas ou alinhadas para promover o direito de gays e lésbicas à saúde. Este artigo explora a participação de movimentos sociais na saúde de gays e lésbicas a partir da perspectiva de enquadramento dos movimentos sociais. Foi realizada uma pesquisa bibliográfica, bem como uma análise de quadros das discussões encontradas nos artigos selecionados, logo constitui um ensaio bibliográfico. Com relação aos resultados, a literatura revela alinhamento entre direitos sociais e ativismo contra a Aids, com ressonâncias na melhoria do acesso à saúde de gays e lésbicas. Conclui-se que, embora a participação dos movimentos sociais na luta pelo direito de gays e lésbicas à saúde tenha começado no início do século passado, não se pode dizer, agora no final da segunda década do século XXI, que os resultados foram inteiramente sólidos. Em síntese, destaca-se que: (1) em algumas sociedades, as reivindicações dos movimentos sociais foram transformadas em agendas políticas, enquanto em outras foram feitas concessões precárias em relação aos direitos de gays e lésbicas; e (2) ainda não existe a aceitação do direito de gays e lésbicas à sexualidade.

Access to health services for lesbian women: a literature review. / Acesso de mulheres lésbicas aos serviços de saúde à luz da literatura.

This study explores access to health services for lesbians in the light of current literature. A literature search was conducted using various databases and an interpretive synthesis of the findings of the selected articles was produced anchored in the concepts of habitus and symbolic violence developed by Pierre Bourdieu. Two main themes and their respective units of meaning were identified: (a) barriers and difficulties experienced by lesbians in accessing healthcare (issues related to coming out as a lesbian and difficulties experienced by health services and professionals in dealing with lesbian women); and (b) lesbian women's experiences in health services (unequal care, invisibility, and feeling uncomfortable). We conclude that, despite advances in policy and care protocols, sexual and gender diversity needs to be widely discussed in social, educational, and health settings.

O trabalho tem como objetivo explorar como se afiguram as especificidades do acesso de lésbicas aos serviços de saúde à luz da literatura. Como metodologia, realizou-se uma pesquisa bibliográfica e, em seguida, com base nos achados do acervo analisado, produziu-se uma síntese interpretativa ancorada em aspectos teóricos de Pierre Bourdieu. Em relação aos resultados, destacam-se duas temáticas com seus respectivos núcleos de sentidos: (a) barreiras e dificuldades do acesso de lésbicas à atenção à saúde (questões relacionadas à revelação de ser lésbica e dificuldades de os serviços e profissionais de saúde lidarem com essas mulheres) e (b) experiências das lésbicas nos serviços de saúde (atendimento desigual, invisibilidade e constrangimento). No que se refere a conclusões, dentre outros aspectos, observa-se que, apesar dos avanços em relação a políticas e protocolos de atendimento a população em questão, as diversidades sexual e de gênero devem ser amplamente debatidas nos espaços sociais, de formação e de atenção à saúde.

[Men, gender and health]. / Hombres, género y salud.

Men have always been present on the public health agenda, primarily from a clinical and epidemiological standpoint. In order to expand on these approaches, it is necessary to integrate a perspective that takes into account the relationship between gender and health. Furthermore, these discussions must include reflections on the intersectionality of gender (masculinities) with other categories of social differentiation such as race, ethnicity, social class, age, and sexuality. The articles selected from the call for papers on men, gender, and health at Salud Colectiva offer theoretical and empirical contributions that will undoubtedly enrich this debate. Although the articles presented here do not explore every possible aspect of this complex problem, they provide a starting point for a productive debate on the tensions and gaps that still remain in discussions of these issues.

Los hombres siempre han estado presentes en las agendas de salud, basadas principalmente en enfoques clínicos y epidemiológicos. Para ampliar estos enfoques, es necesario abordar el tema desde una perspectiva que tenga en cuenta la relación entre género y salud. Además, la discusión debe tener en cuenta la interseccionalidad de género (masculinidades) con otras categorías de diferenciación social, como raza, etnicidad, clase social, generación, sexualidad. Los artículos aprobados en la convocatoria "Hombres, género y salud" de la revista Salud Colectiva ofrecen producciones teóricas y empíricas que sin duda contribuirán al debate, y aunque este conjunto de textos no agota la complejidad del problema, abre un rico debate sobre las tensiones y las brechas que aún persisten en las discusiones sobre el tema.

The participation of cohabitants with sickle cell disease in health care: a bibliographic study. / A participação dos conviventes com a doença falciforme na atenção à saúde: um estudo bibliográfico.

This paper aims to analyze the published scientific production about the participation of the sickle cell disease (SCD) subjects and their relatives, and the autonomy and social aspects of these individuals. A qualitative bibliographic search with the Portuguese-equivalent keywords "sickle cell disease" and "participation" was used. As a result, the following themes appeared: (1) Experience of illness, highlighting coexistence and ethnic-racial issues; (2) Participation in research and the perspective of health professionals on SCD; and (3) Autonomy of cohabitants and decision-making. We can conclude that the promotion of the participation of these patients in the studies, either instrumentally, or to contextualize the results better, or - still - to enrich the authors' conclusions, can intentionally or unintentionally contribute to the greater visibility of the problem that involves being a SCD cohabitant for the subjects and their relatives. The duty to analyze intersectionally the entire context of the patient and his family context is also highlighted.

O artigo tem por objetivo analisar a produção científica publicada acerca da participação dos sujeitos da doença falciforme (DF) e seus familiares, bem como sobre a autonomia e os aspectos sociais relacionados a esses sujeitos. Metodologicamente, utilizou-se pesquisa bibliográfica de cunho qualitativo com os descritores "doença falciforme" e "participação". Como resultados, afiguraram-se os seguintes temas: (1) Experiência do adoecimento, destacando a convivência e as questões étnico-raciais; (2) Participação em pesquisas e o olhar dos profissionais de saúde sobre a DF; e (3) Autonomia dos conviventes e tomada de decisão. Conclui-se que a promoção da participação desses portadores nos estudos, seja de uma forma instrumental, seja para melhor contextualizar os resultados, seja ­ ainda ­ para enriquecer as conclusões dos autores, pode ­ intencionalmente ou não ­ contribuir para a maior visibilidade do problema que envolve ser portador da DF para os sujeitos e seus familiares. Destaca-se também o dever de se analisar interseccionalmente todo o contexto do paciente e seu contexto familiar.

[Narrative as a strategy for understanding the experience of chronic illness: a literature review]. / A narrativa como estratégia na compreensão da experiência do adoecimento crônico: uma revisão de literatura.

This article aims to explore, in available literature, the use of narrative in studies of chronic illness. It is hoped that this study in addition to knowing how to have been the use of narrative in studies, contribute to the care of people with chronic illness. Methodologically, the study consists of a literature review of qualitative nature, focusing on articles with the Virtual Health Library descriptors (VHL). In terms of results, three stand out meanings attributed to the use of narrative by the authors: technique to get testimonies, research method and specific type of testimony; and in terms of the main results attributed by the authors with the use of narrative, are evident two themes: the experience of chronic illness in the subject ill perspective, highlighting the search for meaning, reframing the chronicity and coping strategies; and the possibility of understanding chronic illness, by professionals from the experience of the subject ill. It is verified, in the analyzed studies, that the use of the narrative itself or the narration process can make possible the resignification of the process of illness by the subjects and point out strategies for care management in chronic illness.

O artigo objetiva explorar, na literatura disponível, o uso da narrativa em estudos sobre o adoecimento crônico. Espera-se com esse estudo além de conhecer como têm sido o uso da narrativa nos estudos, contribuir na atenção a pessoas com adoecimento crônico.Metodologicamente, o estudo consiste numa revisão bibliográfica de cunho qualitativo, focalizando artigos com descritores da Biblioteca Virtual em Saúde (BVS). Em termos de resultados, destacam-se três sentidos atribuídos ao uso da narrativa pelos autores: técnica para obter depoimentos, método de pesquisa e tipo específico de depoimento; e em termos de principais resultados atribuídos pelos autores com o uso da narrativa, evidenciam-se dois temas: a experiência do adoecimento crônico na perspectiva do sujeito adoecido, com destaque a busca de sentido, ressignificação da cronicidade e estratégias de enfrentamento; e a possibilidade de compreensão do adoecimento crônico, por parte dos profissionais, a partir da experiência do sujeito adoecido. Verifica-se, nos estudos analisados, que o uso da narrativa em si ou o processo de narrar pode possibilitar a ressignificação do processo de adoecimento pelos sujeitos e apontar estratégias para a gestão do cuidado no adoecimento crônico.

Qualitative approaches in the Journal Ciência & Saúde Coletiva (1996-2020). / As abordagens qualitativas na Revista Ciência & Saúde Coletiva (1996-2020).

This study aims to analyze the qualitative papers published in the 25-year existence of the Journal Ciência & Saúde Coletiva (from 1996 to March 2020), taking into account themes, theoretical-conceptual anchors, methods, and techniques. This is a bibliographic study based on the principles of categorical analysis, dialoguing with the aspects of Social Sciences. We highlight the following outcomes. The collection spans over a variety of themes, and violence is the most recurrent topic. However, themes such as race/ethnicity are absent from the collection; 53% of the publications used Social Sciences references, and Bourdieu was the most cited author. Most papers (77%) show methodological information, under a predominantly Bardin's perspective. The collection with qualitative approaches is modest, with less than 10% of publications. We conclude, however, that the collection makes a significant contribution to Public Health because: (a) it establishes connections with different clinical areas; (b) it recognizes the voice of the actors, turning them into leading figures; (c) it collaborates with the epidemiological dimension to understand health contexts; (d) it subsidizes decision-making in health policies, planning and management; and (e) it unveils the symbolic dimensions of health-disease-care processes.

Objetiva-se analisar os artigos qualitativos, publicados no período de existência da revista "Ciência & Saúde Coletiva" (1996 até março de 2020), levando em conta temas, ancoragens teórico-conceituais, métodos e técnicas. Trata-se de um estudo bibliográfico, baseado nos princípios da análise categorial, dialogando com aspectos das Ciências Sociais. Como resultados, destaca-se que: o acervo abrange uma variedade de temas, sendo as violências a mais recorrente e, enquanto que, entretanto, temas como raça/etnia estão ausentes do acervo; 53% das publicações utilizaram referências das Ciências Sociais, sendo Bourdieu o autor mais citado; a maioria dos artigos (77%) apresenta informações metodológicas, predominando a perspectiva de Bardin. O acervo com abordagens qualitativas é modesto, com menos de 10% das publicações. Conclui-se, todavia, que o acervo traz significativa contribuição para a Saúde Coletiva porque: (a) estabelece conexões com diferentes áreas da clínica; (b) reconhece a voz dos atores, transformando-os em protagonistas; (c) colabora com a dimensão epidemiológica para compreender contextos de saúde; (d) subsidia a tomada de decisão nos âmbitos das políticas, do planejamento e da gestão da saúde; e (e) desvenda as dimensões simbólicas dos processos de saúde-doença-cuidado.