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1.
Med Care ; 54(7): 672-8, 2016 07.
Artículo en Inglés | MEDLINE | ID: mdl-27111747

RESUMEN

OBJECTIVES: Despite increased hospice use over the last decade, end-of-life care intensity continues to increase. To understand this puzzle, we sought to examine regional variation in intensive end-of-life care and determine its associations with hospice use patterns. METHODS: Using Medicare claims for decedents aged 66 years and above in 2011, we assessed end-of-life care intensity in the last 6 months of life across hospital referral regions (HRRs) as measured by proportion of decedents per HRR experiencing hospitalization, emergency department use, intensive care unit (ICU) admission, and number of days spent in hospital (hospital-days) and ICU (ICU-days). Using hierarchical generalized linear models and adjusting for patient characteristics, we examined whether these measures were associated with overall hospice use, very short (≤7 d), medium (8-179 d), or very long (≥180 d) hospice enrollment, focusing on very short stay. RESULTS: End-of-life care intensity and hospice use patterns varied substantially across HRRs. Regional-level end-of-life care intensity was positively correlated with very short hospice enrollment. Comparing HRRs in the highest versus the lowest quintiles of intensity in end-of-life care, regions with more intensive care had higher rates of very short hospice enrollment, with adjusted odds ratios (AOR) 1.14 [99% confidence interval (CI), 1.04-1.25] for hospitalization; AOR, 1.23 (CI, 1.12-1.36) for emergency department use; AOR, 1.25 (CI, 1.14-1.38) for ICU admission; AOR, 1.10 (CI, 1.00-1.21) for hospital-days; and AOR, 1.20 (CI, 1.08-1.32) for ICU-days. CONCLUSIONS: At the regional level, increased end-of-life care intensity was consistently associated with very short hospice use.


Asunto(s)
Cuidados Paliativos al Final de la Vida/estadística & datos numéricos , Cuidado Terminal/métodos , Anciano , Anciano de 80 o más Años , Femenino , Investigación sobre Servicios de Salud , Humanos , Masculino , Medicare , Pautas de la Práctica en Medicina , Estados Unidos
2.
J Palliat Med ; 10(1): 148-58, 2007 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-17298263

RESUMEN

BACKGROUND: Bereavement services are central to high-quality end-of-life care, however, little is known about how frequently and why such bereavement services are used and not used. We examined family caregiver reports about how often they used bereavement services, predictors of their use, and reported reasons for not using bereavement services. METHODS: Prospective cohort study of family caregivers (n = 161) of patients with cancer enrolled with hospice between October 1999 and September 2001. We conducted bivariate and multivariable analyses to determine predictors of bereavement service use, adjusted for a broad range of factors including caregiving experiences, major depressive disorder (MDD), relationship with the deceased, and demographic factors. We used content analysis to summarize responses to open-ended questions concerning why individuals did not use bereavement services. RESULTS: We found that approximately 30% of family caregivers used bereavement services in the year postloss, and the majority of these caregivers used services in the first 6 months postloss. Even among bereaved caregivers with MDD, less than half (47.6%) used bereavement services. Factors associated with using bereavement services included being a spouse caregiver, younger age, having MDD at study enrollment, witnessing highly distressing events pertaining to the patient's death, having assisted the patient with more Instrumental Activities of Daily Living (IADLs) prior to the patient's death, having greater availability of instrumental support for oneself, and physician communication with the caregiver about the patient's prognosis before the patient's death. The most common given reason for nonuse was the perception that bereavement services were not needed or would not help. CONCLUSION: Addressing caregiver receptivity to bereavement services will be an important aspect of increasing appropriate use of such services. Future studies might examine specific interventions for reducing barriers and increasing receptivity to bereavement service use.


Asunto(s)
Adaptación Psicológica , Actitud Frente a la Muerte , Aflicción , Familia/psicología , Cuidados Paliativos al Final de la Vida/psicología , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Neoplasias , Estudios Prospectivos , Pruebas Psicológicas
3.
Am J Hosp Palliat Care ; 34(8): 748-753, 2017 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-27443281

RESUMEN

BACKGROUND: Despite evidence that enrollment with hospice services has the potential to reduce hospital readmission rates, previous research has not examined exactly how hospitals may promote the appropriate use of hospice and palliative care for their discharged patients. Therefore, we sought to explore the strategies used by hospitals to increase the use of hospice and palliative care for patients at risk of readmission. METHODS: We conducted a secondary analysis of qualitative data from a study of hospitals that were participating in the State Action on Avoidable Readmissions (STAAR) initiative, a quality improvement collaborative. We used data attained from 46 in-depth interviews conducted during 10 hospital site visits using a standard discussion guide and protocol. We used a grounded theory approach using the constant comparative method to generate recurrent and unifying themes. RESULTS: We found that a positive effect for hospitals participating in the STAAR initiative was enhanced engagement in efforts to promote greater use of hospice and palliative care as a possible method of reducing unplanned readmissions, the central goal of the STAAR initiative. Hospital staff described strategies to increase the use of hospice and palliative care that included (1) designing and implementing tracking systems to identify patients most at risk of being readmitted, (2) providing education about hospice and palliative care to family, internal and external clinical groups, and (3) establishing closer links to posthospital settings. CONCLUSION: National efforts to reduce rehospitalizations may result in improved integration of hospice and palliative care for patients who are at risk of readmission.


Asunto(s)
Continuidad de la Atención al Paciente/organización & administración , Cuidados Paliativos al Final de la Vida/organización & administración , Cuidados Paliativos/organización & administración , Readmisión del Paciente/estadística & datos numéricos , Teoría Fundamentada , Humanos , Entrevistas como Asunto , Mejoramiento de la Calidad
4.
J Palliat Care ; 22(4): 286-92, 2006.
Artículo en Inglés | MEDLINE | ID: mdl-17263056

RESUMEN

OBJECTIVE: To examine the association between a multi-item measure of religiousness and major depressive disorder (MDD) in bereaved family caregivers of patients with cancer. DESIGN: A prospective longitudinal study of primary caregivers of consecutive patients (n = 175) with cancer enrolled in the largest hospice in Connecticut. RESULTS: Caregivers with a high religiousness summary score were significantly less likely to have MDD at the 13-month follow-up interview (OR = 0.79, 95% CI: 0.68-0.91). This finding remained significant (OR = 0.74, 95% CI: 0.59-0.91) after adjustment for caregiver MDD at baseline, caregiver age, caregiver burden, and number of activities restricted due to caregiving roles. CONCLUSIONS: Family caregivers who reported greater religiousness at baseline had lower rates of depression in the 13-month follow up after their loss. Collaboration with religious support groups or community groups during bereavement could offer an effective mechanism for speeding the process of recovery for some caregivers.


Asunto(s)
Adaptación Psicológica , Aflicción , Cuidadores/psicología , Trastorno Depresivo Mayor/psicología , Familia/psicología , Religión y Psicología , Actividades Cotidianas , Análisis de Varianza , Actitud Frente a la Muerte , Actitud Frente a la Salud , Connecticut , Costo de Enfermedad , Trastorno Depresivo Mayor/diagnóstico , Trastorno Depresivo Mayor/prevención & control , Femenino , Estudios de Seguimiento , Cuidados Paliativos al Final de la Vida/psicología , Humanos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Neoplasias/psicología , Escalas de Valoración Psiquiátrica , Factores de Riesgo , Encuestas y Cuestionarios
5.
J Am Geriatr Soc ; 64(2): 314-22, 2016 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-26889841

RESUMEN

OBJECTIVES: To characterize the number and types of care transitions in the last 6 months of life of individuals who used hospice and to examine factors associated with having multiple transitions in care. DESIGN: Retrospective cohort study. SETTING: One hundred percent fee-for-service Medicare decedent claims data. PARTICIPANTS: Medicare beneficiaries aged 66 and older who died between July 1, 2011, and December 31, 2011, and were enrolled in hospice at some time during the last 6 months of life. MEASUREMENTS: Hierarchical generalized linear modeling was used to identify individual, hospice, and regional factors associated with transitions. The sequence of transitions across healthcare settings was described. Healthcare transitions after hospice enrollment included from and to the hospital, skilled nursing facility, home health agency program, hospice, or home without receiving any service in these four healthcare settings. RESULTS: Of 311,090 hospice decedents, 31,675 (10.2%) had at least one transition after hospice enrollment, and this varied substantially across the United States; 6.6% of all decedents had more than one transition in care after hospice enrollment (range 2-19 transitions). Of hospice users with transitions, 53.4% were admitted to hospitals, 17.7% were admitted to skilled nursing facilities, 9.6% used home health agencies, and 25.8% had transitions to home without receiving the services from the healthcare settings examined. In adjusted analyses, decedents who were younger, nonwhite, enrolled in a for-profit or small hospice program, or had less access to hospital-based palliative care had significantly higher odds of having at least one transition. CONCLUSION: A notable proportion of hospice users experience at least one transition in care in the last 6 months of life, suggesting that further research on the effect of transitions on users and families is warranted.


Asunto(s)
Continuidad de la Atención al Paciente , Cuidados Paliativos al Final de la Vida/estadística & datos numéricos , Hospitalización/estadística & datos numéricos , Cuidado Terminal/estadística & datos numéricos , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Medicare , Transferencia de Pacientes , Estudios Retrospectivos , Estados Unidos
6.
J Palliat Med ; 8(6): 1176-85, 2005 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-16351531

RESUMEN

BACKGROUND: Few studies have examined physician-family caregiver communication at the end of life, despite the important role families have in end-of-life care decisions. We examined family caregiver reports of physician communication about incurable illness, life expectancy, and hospice; the timing of these discussions; and subsequent family understanding of these issues. DESIGN: Mixed methods study using a closed-ended survey of 206 family caregivers and open-ended, in-depth interviews with 12 additional family caregivers. SETTING/SUBJECTS: Two hundred eighteen primary family caregivers of patients with cancer enrolled with hospice between October 1999 and June 2002. MEASUREMENTS: Family caregiver reports provided at the time of hospice enrollment of physician discussions of incurable illness, life expectancy, and hospice. RESULTS: Many family caregivers reported that a physician never told them the patient's illness could not be cured (20.8%), never provided life expectancy (40% of those reportedly told illness was incurable), and never discussed using hospice (32.2%). Caregivers reported the first discussion of the illness being incurable and of hospice as a possibility occurred within 1 month of the patient's death in many cases (23.5% and 41.1%, respectively). In open-ended interviews, however, family caregivers expressed ambivalence about what they wanted to know, and their difficulty comprehending and accepting "bad news" was apparent in both qualitative and quantitative data. CONCLUSION: Our findings suggest that ineffective communication about end-of-life issues likely results from both physician's lack of discussion and family caregiver's difficulty hearing the news. Future studies should examine strategies for optimal physician-family caregiver communication about incurable illness, so that families and patients can begin the physical, emotional, and spiritual work that can lead to acceptance of the irreversible condition.


Asunto(s)
Cuidadores , Comunicación , Médicos , Cuidado Terminal , Enfermo Terminal , Connecticut , Recolección de Datos , Femenino , Humanos , Relaciones Interpersonales , Persona de Mediana Edad , Cuidados Paliativos
7.
J Pain Symptom Manage ; 49(6): 1035-41, 2015 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-25555445

RESUMEN

CONTEXT: Complementary and alternative medicine (CAM) provides clinical benefits to hospice patients, including decreased pain and improved quality of life. Yet little is known about the extent to which U.S. hospices employ CAM therapists. OBJECTIVES: To report the most recent national data regarding the inclusion of art, massage, and music therapists on hospice interdisciplinary teams and how CAM therapist staffing varies by hospice characteristics. METHODS: A national cross-sectional survey of a random sample of hospices (n = 591; 84% response rate) from September 2008 to November 2009. RESULTS: Twenty-nine percent of hospices (169 of 591) reported employing an art, massage, or music therapist. Of those hospices, 74% employed a massage therapist, 53% a music therapist, and 22% an art therapist, and 42% expected the therapist to attend interdisciplinary staff meetings, indicating a significant role for these therapists on the patient's care team. In adjusted analyses, larger hospices compared with smaller hospices had significantly higher odds of employing a CAM therapist (adjusted odds ratio 6.38; 95% CI 3.40, 11.99) and for-profit hospices had lower odds of employing a CAM therapist compared with nonprofit hospices (adjusted odds ratio 0.52; 95% CI 0.32, 0.85). Forty-four percent of hospices in the Mountain/Pacific region reported employing a CAM therapist vs. 17% in the South Central region. CONCLUSION: Less than one-third of U.S. hospices employ art, massage, or music therapists despite the benefits these services may provide to patients and families. A higher proportion of large hospices, nonprofit hospices, and hospices in the Mountain/Pacific region employ CAM therapists, indicating differential access to these important services.


Asunto(s)
Arteterapia/estadística & datos numéricos , Cuidados Paliativos al Final de la Vida/estadística & datos numéricos , Hospitales para Enfermos Terminales/estadística & datos numéricos , Masaje/estadística & datos numéricos , Musicoterapia/estadística & datos numéricos , Estudios Transversales , Personal de Salud/estadística & datos numéricos , Cuidados Paliativos al Final de la Vida/métodos , Hospitales para Enfermos Terminales/métodos , Humanos , Estados Unidos
8.
J Am Geriatr Soc ; 63(10): 2173-80, 2015 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-26456597

RESUMEN

OBJECTIVES: To describe the prevalence of screening for complicated grief (CG) and depression in hospice and access to bereavement therapy and to examine whether screening and access to therapy varied according to hospice organizational characteristics or staff training and involvement. DESIGN: Cross-sectional national survey conducted from 2008 to 2009. SETTING: United States. PARTICIPANTS: Hospices (N = 591). MEASUREMENTS: Whether hospices screened for depression or CG at the time of death or provided access to bereavement therapy (individual or group). Organizational characteristics included region, chain status, ownership, and patient volume. Staffing-related variables included training length and meeting attendance requirements. RESULTS: Fifty-five percent of hospices provided screening for CG and depression and access to bereavement therapy, 13% provided screening but not access to bereavement therapy, 24% provided access to bereavement therapy but not screening, and 8% neither screened nor provided access to bereavement therapy. Hospices with 100 patients per day or more were significantly more likely to provide screening and access to bereavement therapy. CONCLUSION: Hospices appear to have high capacity to provide screening for CG and depression and to deliver group and individual therapy, but data are needed on whether screeners are evidence based and whether therapy addresses CG or depression specifically. Future work could build upon existing infrastructure to ensure use of well-validated screeners and evidence-based therapies.


Asunto(s)
Depresión , Pesar , Servicios de Salud para Ancianos , Cuidados Paliativos al Final de la Vida , Hospitales para Enfermos Terminales , Tamizaje Masivo , Anciano , Estudios Transversales , Depresión/epidemiología , Depresión/etiología , Depresión/terapia , Femenino , Accesibilidad a los Servicios de Salud/organización & administración , Accesibilidad a los Servicios de Salud/normas , Necesidades y Demandas de Servicios de Salud , Servicios de Salud para Ancianos/organización & administración , Servicios de Salud para Ancianos/normas , Cuidados Paliativos al Final de la Vida/métodos , Cuidados Paliativos al Final de la Vida/normas , Hospitales para Enfermos Terminales/métodos , Hospitales para Enfermos Terminales/organización & administración , Humanos , Masculino , Tamizaje Masivo/métodos , Tamizaje Masivo/normas , Prevalencia , Desarrollo de Personal/organización & administración , Estados Unidos/epidemiología
9.
J Palliat Med ; 18(9): 771-80, 2015 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-26172615

RESUMEN

BACKGROUND: Little is known about state-level variation in patterns of hospice use, an important indicator of quality of care at the end of life. Findings may identify states where targeted efforts for improving end-of-life care may be warranted. OBJECTIVE: Our aim was to characterize the state-level variation in patterns of hospice use among decedents and to examine state, county, and individual factors associated with these patterns. METHODS: We conducted a retrospective analysis of Medicare fee-for-service decedents. The primary outcome measures were state-level hospice use during the last 6 months of life and the state's proportion of hospice users with very short hospice enrollment (≤7 days), very long hospice enrollment (≥180 days), and hospice disenrollment prior to death. RESULTS: In 2011, the percentage of decedents who used hospice in the last 6 months of life nationally was 47.1%, and varied across states from 20.3% in Alaska to 60.8% in Utah. Hospice utilization patterns also varied by state, with the percentage of hospice users with very short hospice enrollment ranging from 23.0% in the District of Columbia to 39.9% in Connecticut. The percentage of very long hospice use varied from 5.7% in Connecticut to 15.9% in Delaware. The percentage of hospice disenrollment ranged from 6.2% in Hawaii to 19.0% in the District of Columbia. Nationally, state-level hospice use among decedents was positively correlated with the percentage of potentially concerning patterns (including very short hospice enrollment, very long hospice enrollment, and hospice disenrollment) among hospice users (the Pearson correlation coefficient=0.52, p value<0.001). Oregon was the only state in the highest quartile of hospice use and the lowest quartiles of both very short and very long hospice enrollment. CONCLUSIONS: The percentage of decedents who use hospice may mask important state-level variation in these patterns, including the timing of hospice enrollment, a potentially important component of the quality of end-of-life care.


Asunto(s)
Cuidados Paliativos al Final de la Vida/estadística & datos numéricos , Cuidado Terminal/estadística & datos numéricos , Anciano , Anciano de 80 o más Años , Planes de Aranceles por Servicios , Humanos , Medicare , Estudios Retrospectivos , Estados Unidos , Revisión de Utilización de Recursos
10.
Acad Med ; 77(4): 305-11, 2002 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-11953295

RESUMEN

PURPOSE: Health care institutions are examining ways to improve physicians' skills in the delivery of end-of-life (EOL) care. Experts have suggested that influencing physicians' knowledge and attitudes concerning EOL care can influence subsequent EOL practices, including hospice use for appropriate patients; yet few studies have examined empirically the influence of physicians' knowledge and attitudes on such practices. The authors assessed the influences of self-rated knowledge and attitudes on physicians' discussions and referrals for hospice care. METHOD: In 1998 and 1999 the authors conducted a cross-sectional study of physicians affiliated with six randomly selected community hospitals in Connecticut with more than 200 licensed medical and surgical beds. Physicians completed a self-administered questionnaire (response rate 52.4%) that assessed self-rated knowledge of terminal care and hospice, a set of attitudinal items, and practices related to hospice discussion and referrals, as well as standard sociodemographic data. Bivariate and multivariate analyses were conducted. RESULTS: Self-rated knowledge was significantly associated with referral practices in unadjusted analyses (unadjusted odds ratio [OR]: 0.70; 95% confidence interval [CI]: 0.52, 0.95), although this association was attenuated in adjusted analyses by specialty and other physicians' characteristics (adjusted OR: 0.80; 95% CI: 0.55, 1.18). Attitudes representing support for hospice practices and philosophy were associated with referral practices in adjusted and unadjusted analyses (adjusted OR:0.52; 95% CI: 0.35, 0.77). CONCLUSIONS: This study demonstrated that self-rated knowledge and attitudes may influence hospice referral. The results support current efforts to develop medical school curricula and continuing education programs that better cover the many aspects of caring for the dying, including hospice use.


Asunto(s)
Conocimientos, Actitudes y Práctica en Salud , Médicos , Cuidado Terminal , Adulto , Comunicación , Estudios Transversales , Femenino , Hospitales para Enfermos Terminales , Humanos , Masculino , Relaciones Médico-Paciente , Derivación y Consulta
11.
J Palliat Care ; 20(1): 38-43, 2004.
Artículo en Inglés | MEDLINE | ID: mdl-15132075

RESUMEN

OBJECTIVE: To identify factors associated with caregiver burden among those caring for terminally ill patients with cancer. DESIGN: Cross-sectional study of interviews with primary caregivers (n = 206) of consecutive patients with cancer enrolled in the largest hospice in Connecticut. METHODS: Data were collected on the caregivers' sociodemographic characteristics, social network index, and number of restrictions in their own activities due to their caregiving role. The outcome was a nine-item questionnaire adapted from the Zarit Burden Inventory. RESULTS: The highest burden was reported among caregivers with more limited social networks (OR 1.38, Cl 1.02-1.87), more restrictions in their daily activities (OR 1.35, Cl 1.13-1.61), and who were younger (OR 1.46, Cl 1.10-1.93). CONCLUSIONS: Variations exist in the intensity of caregiver burden based on subjective experiences and social support, rather than on the amount of assistance provided. Clinicians should consider factors such as these when targeting caregivers for interventions to alleviate burden.


Asunto(s)
Actitud Frente a la Salud , Cuidadores/psicología , Costo de Enfermedad , Familia/psicología , Neoplasias , Actividades Cotidianas , Adaptación Psicológica , Adulto , Anciano , Anciano de 80 o más Años , Análisis de Varianza , Connecticut , Estudios Transversales , Femenino , Cuidados Paliativos al Final de la Vida/métodos , Cuidados Paliativos al Final de la Vida/psicología , Humanos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Evaluación de Necesidades , Neoplasias/prevención & control , Neoplasias/psicología , Calidad de Vida , Apoyo Social , Factores Socioeconómicos , Estrés Psicológico/etiología , Estrés Psicológico/psicología , Encuestas y Cuestionarios
12.
JAMA Intern Med ; 174(4): 500-6, 2014 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-24567076

RESUMEN

IMPORTANCE The impact of the substantial growth in for-profit hospices in the United States on quality and hospice access has been intensely debated, yet little is known about how for-profit and nonprofit hospices differ in activities beyond service delivery. OBJECTIVE To determine the association between hospice ownership and (1) provision of community benefits, (2) setting and timing of the hospice population served, and (3) community outreach. DESIGN, SETTING, AND PARTICIPANTS Cross-sectional survey (the National Hospice Survey), conducted from September 2008 through November 2009, of a national random sample of 591 Medicare-certified hospices operating throughout the United States. EXPOSURES For-profit or nonprofit hospice ownership. MAIN OUTCOMES AND MEASURES Provision of community benefits; setting and timing of the hospice population served; and community outreach. RESULTS A total of 591 hospices completed our survey (84% response rate). For-profit hospices were less likely than nonprofit hospices to provide community benefits including serving as training sites (55% vs 82%; adjusted relative risk [ARR], 0.67 [95% CI, 0.59-0.76]), conducting research (18% vs 23%; ARR, 0.67 [95% CI, 0.46-0.99]), and providing charity care (80% vs 82%; ARR, 0.88 [95% CI, 0.80-0.96]). For-profit compared with nonprofit hospices cared for a larger proportion of patients with longer expected hospice stays including those in nursing homes (30% vs 25%; P = .009). For-profit hospices were more likely to exceed Medicare's aggregate annual cap (22% vs 4%; ARR, 3.66 [95% CI, 2.02-6.63]) and had a higher patient disenrollment rate (10% vs 6%; P < .001). For-profit were more likely than nonprofit hospices to engage in outreach to low-income communities (61% vs 46%; ARR, 1.23 [95% CI, 1.05-1.44]) and minority communities (59% vs 48%; ARR, 1.18 [95% CI, 1.02-1.38]) and less likely to partner with oncology centers (25% vs 33%; ARR, 0.59 [95% CI, 0.44-0.80]). CONCLUSIONS AND RELEVANCE Ownership-related differences are apparent among hospices in community benefits, population served, and community outreach. Although Medicare's aggregate annual cap may curb the incentive to focus on long-stay hospice patients, additional regulatory measures such as public reporting of hospice disenrollment rates should be considered as the share of for-profit hospices in the United States continues to increase.


Asunto(s)
Hospitales para Enfermos Terminales/organización & administración , Propiedad , Relaciones Comunidad-Institución , Estudios Transversales , Hospitales para Enfermos Terminales/economía , Hospitales para Enfermos Terminales/estadística & datos numéricos , Humanos , Medicare , Encuestas y Cuestionarios , Estados Unidos
13.
J Palliat Med ; 13(4): 389-94, 2010 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-20136523

RESUMEN

BACKGROUND: Interdisciplinary care is fundamental to the hospice philosophy and is a key component of high-quality hospice care. However, little is known about how hospices differ in their interdisciplinary staffing patterns, particularly across nonprofit and for-profit hospices. The purpose of this study was to examine potential differences in the staffing patterns of for-profit and nonprofit hospices. SUBJECTS AND DESIGN: Using the 2006 Medicare Provider of Services (POS) survey, we conducted a cross-sectional analysis of staffing patterns within Medicare-certified hospices operating in the United States in 2006. In bivariate and multivariable analyses, we examined differences in staffing patterns measured by the existence of a full range of interdisciplinary staff (defined as having at least 1 full-time equivalent (FTE) staff in each of 4 disciplines ascertained by the survey: physician, nursing, psychosocial, and home health aide) and by the professional mix of staff within each discipline. RESULTS: For-profit hospices had a winder range of paid staff but there were no differences by ownerships when volunteer staff were included. For-profit hospices had significantly fewer registered nurse FTEs as a proportion of nursing staff, fewer medical social worker FTEs as a proportion of psychosocial staff, and fewer clinician FTEs as a proportion of total staff (p values <0.05). Compared to nonprofit hospices, for-profit and government-owned hospices also used proportionally fewer volunteer FTEs. CONCLUSIONS: Hospice staffing patterns differed significantly by ownership type. Future research should evaluate the impact of these differences on quality of care and satisfaction among patients and families using hospice.


Asunto(s)
Cuidados Paliativos al Final de la Vida/economía , Organizaciones sin Fines de Lucro/organización & administración , Grupo de Atención al Paciente/organización & administración , Estudios Transversales , Humanos , Modelos Lineales , Análisis Multivariante , Organizaciones sin Fines de Lucro/economía , Grupo de Atención al Paciente/economía , Estados Unidos
15.
J Hosp Med ; 2(6): 357-65, 2007 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-18080336

RESUMEN

BACKGROUND: Shortcomings in the quality of care of hospitalized patients at the end of life are well documented. Although hospitalists and residents are often involved in the care of hospitalized patients with terminal illness, little is known about their knowledge and beliefs concerning terminal illness, despite the importance of such physicians to the quality of care at the end of life. DESIGN: In 2006 we conducted an exploratory study at a large academic medical center to examine the knowledge, attitudes, and practices of hospitalists and residents (n = 52, response rate = 85.2%) about the care of terminally ill patients. Data were collected using a 22-item survey instrument adapted from previously published instruments. RESULTS: Several common myths about treating terminally ill patients were identified. These myths pertained to essential aspects of end-of-life care including pain and symptom control, indications for various medications, and eligibility for hospice. Physicians reported positive attitudes about hospice care as well as the belief that many patients who would benefit from hospice do not receive hospice at all or only late in the course of their illness. CONCLUSIONS: Our findings identified misunderstandings that hospitalists and residents commonly have, including about facts essential to know in order to provide appropriate pain and symptom management. Future interventions to improve knowledge need to focus on specific clinical knowledge about opioid therapy, as well as information about eligibility rules for hospice.


Asunto(s)
Actitud del Personal de Salud , Cuidados Paliativos/tendencias , Enfermo Terminal , Centros Médicos Académicos/métodos , Centros Médicos Académicos/tendencias , Recolección de Datos/métodos , Femenino , Médicos Hospitalarios/métodos , Médicos Hospitalarios/tendencias , Humanos , Internado y Residencia/métodos , Internado y Residencia/tendencias , Masculino , Cuidados Paliativos/métodos , Relaciones Médico-Paciente
16.
Am J Geriatr Psychiatry ; 14(3): 264-9, 2006 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-16505131

RESUMEN

OBJECTIVE: Although more people are using hospice than ever before, the average length of hospice enrollment is decreasing. Little is known about the effect of hospice length of enrollment on surviving family caregivers. The authors examine the association between patient length of hospice enrollment and major depressive disorder (MDD) among the surviving primary family caregivers 13 months after the patient's death. METHODS: The authors conducted a three-year longitudinal study of 175 primary family caregivers of patients with terminal cancer who consecutively enrolled in the participating hospice from October 1999 through September 2001. Interviews were conducted with the primary family caregiver when the patient first enrolled with hospice and again 13 months after the patient's death. The authors used multivariate logistic regression models to estimate caregivers' adjusted risk at 13 months postloss for MDD, assessed using the Structured Clinical Interview for the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (SCID). RESULTS: The effect of very short hospice length of enrollment (three days or less) compared with longer lengths of enrollment on caregiver MDD 13 months after their loss was nonsignificant in unadjusted analyses. The adjusted risk of MDD was significantly elevated for caregivers of patients who had very short hospice enrollments (adjusted odds ratio: 8.76, 95%confidence interval: 1.09-70.19) only after adjusting for baseline MDD, caregiver gender, caregiver age, kinship relationship to patient, caregiver education, caregiver chronic conditions, and caregiver burden. The adjustment for caregiver burden resulted in the greatest increase in odds ratio for very short hospice length of enrollment on risk of caregiver MDD 13 months after the loss. CONCLUSIONS: This study identifies a potential target group of family caregivers, characterized by hospice length of enrollment and several caregiver features, who might be most in need of mental health interventions.


Asunto(s)
Cuidadores/psicología , Cuidadores/estadística & datos numéricos , Costo de Enfermedad , Trastorno Depresivo Mayor/epidemiología , Cuidados Paliativos al Final de la Vida/estadística & datos numéricos , Tiempo de Internación/estadística & datos numéricos , Neoplasias/psicología , Admisión del Paciente/estadística & datos numéricos , Anciano , Aflicción , Connecticut , Estudios Transversales , Trastorno Depresivo Mayor/psicología , Femenino , Estudios de Seguimiento , Humanos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Estudios Prospectivos , Riesgo , Estadística como Asunto
17.
Am J Geriatr Psychiatry ; 11(3): 309-19, 2003.
Artículo en Inglés | MEDLINE | ID: mdl-12724110

RESUMEN

OBJECTIVE: The authors evaluated the performance of the Stressful Caregiving Adult Reactions to Experiences of Dying (SCARED) scale, a new tool to assess caregiver exposure to patient distress, and the fear and helplessness evoked by these experiences. METHODS: The SCARED was administered to 76 hospice-patient caregivers (e.g., family members). Major depressive disorder (MDD) was diagnosed with the Structured Clinical Interview for the DSM-IV; complicated grief (CG) "caseness" was diagnosed with the Inventory of Complicated Grief-Caregiver items, and quality-of-life domains were assessed with the Medical Outcomes Survey Short Form-36. RESULTS: Respondents endorsed frequent exposure to each SCARED experience-from 30.3% who mistakenly thought the patient had died, to 80.3% who witnessed the patient in severe pain. Adjusted analyses revealed that the odds of MDD increased by 3.08 for each standard-deviation increase in the SCARED event frequency score and that higher SCARED scores were positively associated (p <0.05) with social and role impairment, less energy, and more negative health perceptions. CONCLUSION: The SCARED may be a clinically useful tool for identifying caregivers at risk for MDD and quality-of-life impairments, as well as potential aspects of caregiving to target for treatment.


Asunto(s)
Actitud Frente a la Muerte , Cuidadores/psicología , Estrés Psicológico/psicología , Encuestas y Cuestionarios , Cuidado Terminal , Adulto , Anciano , Estudios Transversales , Trastorno Depresivo Mayor/epidemiología , Trastorno Depresivo Mayor/etiología , Femenino , Humanos , Masculino , Estrés Psicológico/epidemiología , Estrés Psicológico/etiología
18.
J Nurs Scholarsh ; 35(3): 249-55, 2003.
Artículo en Inglés | MEDLINE | ID: mdl-14562493

RESUMEN

PURPOSE: To describe characteristics, attitudes, and communications of nurses regarding hospice and caring for terminally ill patients. DESIGN: A cross-sectional study of randomly selected nurses (n = 180) from six randomly selected Connecticut community hospitals was conducted in 1998 and 1999. METHODS: Hospice-related training, knowledge and attitudes, demographic and practice characteristics, and personal experience with hospice were assessed with a self-administered questionnaire (response rate = 82%). Logistic regression was used to model the effects of hospice-related training, knowledge, and attitudes on these outcomes, adjusting for personal experience and other characteristics of nurses. FINDINGS: Characteristics associated with discussion of hospice with both patients and families included greater religiousness, having a close family member or friend who had used hospice, and reporting satisfaction with hospice caregivers. Greater self-rated knowledge was significantly associated with discussion of hospice with patients. Attitudinal scores indicating greater comfort with initiating discussion and greater perceived added benefit of hospice were significantly associated with discussion with patients' families. CONCLUSIONS: Nurses' discussion of hospice with terminally ill patients and their families are related to the potentially modifiable factors of self-rated knowledge and attitudes revealing comfort with discussion and perceived benefit of hospice care.


Asunto(s)
Actitud del Personal de Salud , Conocimientos, Actitudes y Práctica en Salud , Cuidados Paliativos al Final de la Vida/psicología , Personal de Enfermería en Hospital/psicología , Actitud Frente a la Muerte , Competencia Clínica/normas , Comunicación , Connecticut , Estudios Transversales , Escolaridad , Femenino , Hospitales Comunitarios , Humanos , Modelos Logísticos , Masculino , Rol de la Enfermera , Relaciones Enfermero-Paciente , Investigación Metodológica en Enfermería , Personal de Enfermería en Hospital/educación , Relaciones Profesional-Familia , Religión y Psicología , Autoeficacia , Encuestas y Cuestionarios
19.
Home Health Care Serv Q ; 21(2): 73-83, 2002.
Artículo en Inglés | MEDLINE | ID: mdl-12363002

RESUMEN

The objective of this study was to determine whether having a hospice unit within the hospital increases the proportion of terminally ill patients who use hospice services (including home, nursing home, or inpatient hospice) post-admission. Using medical record data abstracted for 232 randomly selected patients with terminal cancer admitted to six community hospitals in Connecticut, we found that patients admitted to a hospital with a hospice unit were more likely to use hospice services (i.e., home hospice, nursing home hospice, or inpatient hospice) post-admission than patients admitted to a hospital without a hospice unit (unadjusted OR 5.7, 95% CI 3.1, 10.6). This effect persisted after adjusting for patient age, gender, marital status, documented discussions of prognosis, prior hospice use, and type of cancer.


Asunto(s)
Cuidados Posteriores/estadística & datos numéricos , Cuidados Paliativos al Final de la Vida/estadística & datos numéricos , Unidades Hospitalarias/estadística & datos numéricos , Hospitales Comunitarios/organización & administración , Admisión del Paciente/estadística & datos numéricos , Enfermo Terminal/estadística & datos numéricos , Cuidados Posteriores/organización & administración , Anciano , Anciano de 80 o más Años , Connecticut , Estudios Transversales , Femenino , Investigación sobre Servicios de Salud , Cuidados Paliativos al Final de la Vida/organización & administración , Unidades Hospitalarias/organización & administración , Humanos , Masculino , Cuidados Paliativos/organización & administración , Cuidados Paliativos/estadística & datos numéricos
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