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1.
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey.
J Med Internet Res;
26: e49910, 2024 05 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-38696248
2.
De novo truncating NOVA2 variants affect alternative splicing and lead to heterogeneous neurodevelopmental phenotypes.
Hum Mutat;
43(9): 1299-1313, 2022 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-35607920
3.
Parents' Perspectives on Diagnosis and Decision-Making regarding Ventilator Support in Children with SMA Type 1.
Neuropediatrics;
53(2): 122-128, 2022 04.
Artículo
en Inglés
| MEDLINE | ID: mdl-35196711
4.
Overcoming language barriers, enhancing collaboration with interpreters - an interprofessional learning intervention (Interpret2Improve).
BMC Med Educ;
22(1): 170, 2022 Mar 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-35279163
5.
[Long-term survival in cancer: definitions, concepts, and design principles of survivorship programs]. / Langzeitüberleben bei Krebs: Definitionen, Konzepte und Gestaltungsprinzipien von Survivorship-Programmen.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz;
65(4): 406-411, 2022 Apr.
Artículo
en Alemán
| MEDLINE | ID: mdl-35301545
6.
Fertility preservation for female patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group.
Lancet Oncol;
22(2): e45-e56, 2021 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-33539753
7.
Spasmodic Abdominal Pain and Other Gastrointestinal Symptoms in Pontocerebellar Hypoplasia Type 2.
Neuropediatrics;
52(6): 495-498, 2021 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-34255333
8.
Post-dural puncture headache-a single-centre analysis in paediatric patients with and without SMA.
Acta Paediatr;
110(6): 1895-1901, 2021 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-33548068
9.
Genetic variation of cisplatin-induced ototoxicity in non-cranial-irradiated pediatric patients using a candidate gene approach: The International PanCareLIFE Study.
Pharmacogenomics J;
20(2): 294-305, 2020 04.
Artículo
en Inglés
| MEDLINE | ID: mdl-31666714
10.
Guidance regarding COVID-19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group.
Pediatr Blood Cancer;
67(12): e28702, 2020 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-32969160
11.
Determinants of utilization of cryopreservation of germ cells in adolescent cancer patients in four European countries.
Eur J Pediatr;
179(1): 51-60, 2020 Jan.
Artículo
en Inglés
| MEDLINE | ID: mdl-31493021
12.
Fertility education for adolescent cancer patients: Gaps in current clinical practice in Europe.
Eur J Cancer Care (Engl);
29(5): e13279, 2020 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-32567091
13.
Recommendations for ototoxicity surveillance for childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group in collaboration with the PanCare Consortium.
Lancet Oncol;
20(1): e29-e41, 2019 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-30614474
14.
Fertility knowledge and associated empowerment following an educational intervention for adolescent cancer patients.
Psychooncology;
28(11): 2218-2225, 2019 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-31442341
15.
Decision-Making Regarding Ventilator Support in Children with SMA Type 1-A Cross-Sectional Survey among Physicians.
Neuropediatrics;
50(6): 359-366, 2019 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-31408889
16.
A proof-of-concept trial of HELIOX with different fractions of helium in a human study modeling upper airway obstruction.
Eur J Appl Physiol;
119(5): 1253-1260, 2019 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-30850876
17.
Recurrence of Ewing sarcoma: Is detection by imaging follow-up protocol associated with survival advantage?
Pediatr Blood Cancer;
65(7): e27011, 2018 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-29480574
18.
[Long-Term Follow-Up in Childhood Cancer Survivors - Position paper 2018 of the working group "long-term follow-up" of the Society of Pediatric Oncology and Hematology (GPOH) on long-term surveillance, long-term follow-up and late effect evaluation in pediatric oncology patients]. / Langzeitbeobachtung ehemaliger krebskranker Kinder und Jugendlicher.
Klin Padiatr;
230(6): 291-298, 2018 Oct.
Artículo
en Alemán
| MEDLINE | ID: mdl-30399641
19.
2017 GPOH Guidelines for Diagnosis and Treatment of Patients with Neuroblastic Tumors.
Klin Padiatr;
229(3): 147-167, 2017 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-28561228
20.
Mitochondrial dysfunction in liver failure requiring transplantation.
J Inherit Metab Dis;
39(3): 427-436, 2016 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-27053192