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1.

Ethical, legal, and social issues in the Earth BioGenome Project.

Sherkow, Jacob S; Barker, Katharine B; Braverman, Irus; Cook-Deegan, Robert; Durbin, Richard; Easter, Carla L; Goldstein, Melissa M; Hudson, Maui; Kress, W John; Lewin, Harris A; Mathews, Debra J H; McCarthy, Catherine; McCartney, Ann M; da Silva, Manuela; Torrance, Andrew W; Greely, Henry T.

Proc Natl Acad Sci U S A; 119(4)2022 01 25.

Artículo en Inglés | MEDLINE | ID: mdl-35042809

2.

Patients' Reactions to Letters Communicating Collateral Findings of Pragmatic Clinical Trials: a National Web-Based Survey.

Weinfurt, Kevin P; Bollinger, Juli M; May, Elizabeth; Geller, Gail; Mathews, Debra J H; Morain, Stephanie R; Schmid, Lorrie; Bloom, Diane L; Sugarman, Jeremy.

J Gen Intern Med; 37(7): 1658-1664, 2022 05.

Artículo en Inglés | MEDLINE | ID: mdl-34383228

3.

Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'.

Stuttgen, Kelsey; McCague, Allison; Bollinger, Juli; Dvoskin, Rachel; Mathews, Debra.

J Genet Couns; 30(1): 237-245, 2021 02.

Artículo en Inglés | MEDLINE | ID: mdl-32700788

4.

Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear.

Peppercorn, Jeffrey; Campbell, Eric; Isakoff, Steve; Horick, Nora K; Rabin, Julia; Quain, Katharine; Sequist, Lecia V; Bardia, Aditya; Collyar, Deborah; Hlubocky, Fay; Mathews, Debra.

Oncologist; 25(1): 78-86, 2020 01.

Artículo en Inglés | MEDLINE | ID: mdl-31492767

5.

Governance of Emerging Technologies in Health and Medicine - Creating a New Framework.

Mathews, Debra J H; Balatbat, Celynne A; Dzau, Victor J.

N Engl J Med; 386(23): 2239-2242, 2022 06 09.

Artículo en Inglés | MEDLINE | ID: mdl-35417635

6.

Patients' Views About the Disclosure of Collateral Findings in Pragmatic Clinical Trials: a Focus Group Study.

Bollinger, Juli M; Geller, Gail; Weinfurt, Kevin; May, Elizabeth; Morain, Stephanie R; Mathews, Debra J H; Sugarman, Jeremy.

J Gen Intern Med; 35(12): 3436-3442, 2020 12.

Artículo en Inglés | MEDLINE | ID: mdl-32815061

7.

Ethics and Collateral Findings in Pragmatic Clinical Trials.

Morain, Stephanie R; Weinfurt, Kevin; Bollinger, Juli; Geller, Gail; Mathews, Debra Jh; Sugarman, Jeremy.

Am J Bioeth; 20(1): 6-18, 2020 01.

Artículo en Inglés | MEDLINE | ID: mdl-31896322

8.

Secondary Use of Patient Tissue in Cancer Biobanks.

Mathews, Debra J H; Rabin, Julia T; Quain, Katharine; Campbell, Eric; Collyar, Deborah; Hlubocky, Fay J; Isakoff, Steven; Peppercorn, Jeffrey.

Oncologist; 24(12): 1577-1583, 2019 12.

Artículo en Inglés | MEDLINE | ID: mdl-31182655

9.

The Genetic Basis of Mendelian Phenotypes: Discoveries, Challenges, and Opportunities.

Chong, Jessica X; Buckingham, Kati J; Jhangiani, Shalini N; Boehm, Corinne; Sobreira, Nara; Smith, Joshua D; Harrell, Tanya M; McMillin, Margaret J; Wiszniewski, Wojciech; Gambin, Tomasz; Coban Akdemir, Zeynep H; Doheny, Kimberly; Scott, Alan F; Avramopoulos, Dimitri; Chakravarti, Aravinda; Hoover-Fong, Julie; Mathews, Debra; Witmer, P Dane; Ling, Hua; Hetrick, Kurt; Watkins, Lee; Patterson, Karynne E; Reinier, Frederic; Blue, Elizabeth; Muzny, Donna; Kircher, Martin; Bilguvar, Kaya; López-Giráldez, Francesc; Sutton, V Reid; Tabor, Holly K; Leal, Suzanne M; Gunel, Murat; Mane, Shrikant; Gibbs, Richard A; Boerwinkle, Eric; Hamosh, Ada; Shendure, Jay; Lupski, James R; Lifton, Richard P; Valle, David; Nickerson, Deborah A; Bamshad, Michael J.

Am J Hum Genet; 97(2): 199-215, 2015 Aug 06.

Artículo en Inglés | MEDLINE | ID: mdl-26166479

10.

Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease.

Stuttgen, K M; Bollinger, J M; Dvoskin, R L; McCague, A; Shpritz, B; Brandt, J; Mathews, Debra J H.

J Genet Couns; 27(6): 1428-1437, 2018 12.

Artículo en Inglés | MEDLINE | ID: mdl-29967967

11.

The Therapeutic "Mis"conception: An Examination of its Normative Assumptions and a Call for its Revision.

Mathews, Debra J H; Fins, Joseph J; Racine, Eric.

Camb Q Healthc Ethics; 27(1): 154-162, 2018 Jan.

Artículo en Inglés | MEDLINE | ID: mdl-29214968

12.

CRISPR: A path through the thicket.

Mathews, Debra J H; Chan, Sarah; Donovan, Peter J; Douglas, Thomas; Gyngell, Christopher; Harris, John; Regenberg, Alan; Lovell-Badge, Robin.

Nature; 527(7577): 159-61, 2015 Nov 12.

Artículo en Inglés | MEDLINE | ID: mdl-26560284

13.

Response to Open Peer Commentaries on "Ethics and Collateral Findings in Pragmatic Clinical Trials".

Morain, Stephanie; Mathews, Debra; Murphy Bollinger, Juli; Sugarman, Jeremy.

Am J Bioeth; 20(1): W9-W11, 2020 01.

Artículo en Inglés | MEDLINE | ID: mdl-31896323

14.

Beyond consent in research. Revisiting vulnerability in deep brain stimulation for psychiatric disorders.

Bell, Emily; Racine, Eric; Chiasson, Paula; Dufourcq-Brana, Maya; Dunn, Laura B; Fins, Joseph J; Ford, Paul J; Glannon, Walter; Lipsman, Nir; Macdonald, Mary Ellen; Mathews, Debra J H; McAndrews, Mary Pat.

Camb Q Healthc Ethics; 23(3): 361-8, 2014 Jul.

Artículo en Inglés | MEDLINE | ID: mdl-24865371

15.

The ethics of using COVID-19 host genomic information for clinical and public health decision-making: A survey of US health professionals.

Jose, Sheethal; Geller, Gail; Bollinger, Juli; Mathews, Debra; Kahn, Jeffrey; Garibaldi, Brian T.

HGG Adv; 5(1): 100255, 2024 Jan 11.

Artículo en Inglés | MEDLINE | ID: mdl-37978805

16.

Designing robots that do no harm: understanding the challenges of Ethics for Robots.

Hutler, Brian; Rieder, Travis N; Mathews, Debra J H; Handelman, David A; Greenberg, Ariel M.

AI Ethics; : 1-9, 2023 Apr 17.

Artículo en Inglés | MEDLINE | ID: mdl-37360148

17.

Genomic testing in voluntary workplace wellness programs in the US: Evidence and challenges.

Cohn, Betty; Ryan, Kerry A; Hendy, Katherine; Callahan, Katherine; Roberts, J Scott; Spector-Bagdady, Kayte; Mathews, Debra J H.

Mol Genet Genomic Med; 11(11): e2245, 2023 Nov.

Artículo en Inglés | MEDLINE | ID: mdl-37592452

18.

Get law enforcement out of biospecimen authentication.

Mathews, Debra J H; Ram, Natalie.

Science; 376(6599): 1274-1276, 2022 06 17.

Artículo en Inglés | MEDLINE | ID: mdl-35709280

19.

Voluntary workplace genomic testing: wellness benefit or Pandora's box?

Sanghavi, Kunal; Cohn, Betty; Prince, Anya E R; Feero, W Gregory; Ryan, Kerry A; Spector-Bagdady, Kayte; Uhlmann, Wendy R; Lee, Charles; Roberts, J Scott; Mathews, Debra J H.

NPJ Genom Med; 7(1): 5, 2022 Jan 20.

Artículo en Inglés | MEDLINE | ID: mdl-35058451

20.

Deep brain stimulation, personal identity and policy.

Mathews, Debra J H.

Int Rev Psychiatry; 23(5): 486-92, 2011 Oct.

Artículo en Inglés | MEDLINE | ID: mdl-22200138

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