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1.
J Pediatr Psychol ; 44(6): 631-641, 2019 07 01.
Artículo en Inglés | MEDLINE | ID: mdl-30916748

RESUMEN

OBJECTIVE: Ethnic minority youth with type 1 diabetes (T1D) often have poorer glycemic control and lower rates of adherence compared to White Non-Hispanic (WNH) youth. Variables such as family conflict, autonomy support, and youth regimen responsibility have been shown to change over adolescence and impact diabetes management. However, these factors have been investigated in predominantly White samples. Few studies have examined potential differences in these variables and their trajectories for Hispanic youth over early adolescence. METHODS: Youth with T1D (178 WNH and 33 Hispanic youth participants), as well as their maternal caregivers (174 WNH and 32 Hispanic maternal caregivers), completed measures of diabetes-specific autonomy support, diabetes-related family conflict, regimen responsibility, and blood glucose monitoring frequency at 4 timepoints over a 3-year period. RESULTS: At baseline, Hispanic youth had significantly poorer glycemic control, more family conflict, and fewer blood glucose checks on average compared to WNH youth. Similar to WNH youth, Hispanic youth have increasing independence for regimen tasks and decreasing parent autonomy support during this developmental period. However, while Hispanic youth had worsening diabetes management during early adolescence (as did WNH youth), Hispanic parents reported a more gradual change in youth's diabetes management over early adolescence. CONCLUSIONS: This study presents an important contribution to the existing literature on youth with T1D. Findings suggest potential strengths and targets for Hispanic youth navigating diabetes management during the adolescent period. It is important to continue to investigate the trajectories of ethnic minority youth with diabetes.


Asunto(s)
Diabetes Mellitus Tipo 1 , Conflicto Familiar , Hispánicos o Latinos , Grupos Minoritarios , Autonomía Personal , Autocuidado , Población Blanca , Adolescente , Glucemia/metabolismo , Automonitorización de la Glucosa Sanguínea , Cuidadores/psicología , Niño , Diabetes Mellitus Tipo 1/sangre , Diabetes Mellitus Tipo 1/tratamiento farmacológico , Diabetes Mellitus Tipo 1/etnología , Diabetes Mellitus Tipo 1/psicología , Conflicto Familiar/etnología , Conflicto Familiar/psicología , Femenino , Hispánicos o Latinos/psicología , Humanos , Hipoglucemiantes/uso terapéutico , Estudios Longitudinales , Masculino , Grupos Minoritarios/psicología , Madres/psicología , Cooperación del Paciente/etnología , Cooperación del Paciente/psicología , Cooperación del Paciente/estadística & datos numéricos , Autocuidado/psicología , Autocuidado/estadística & datos numéricos , Apoyo Social , Estados Unidos/epidemiología , Población Blanca/psicología
2.
Diabetes Educ ; 43(4): 378-387, 2017 08.
Artículo en Inglés | MEDLINE | ID: mdl-28662621

RESUMEN

Purpose The purpose of this study is to investigate the effect of volunteering at a diabetes camp on emerging adults with and without type 1 diabetes mellitus (T1DM). Methods Thirty counselors with and 22 without T1DM (19.07 ± 2.71 years old) volunteered at a 1-week T1DM camp in the northeastern United States. Counselors with T1DM had a range of self-reported A1C scores (5.8% or 39.9 mmol/mol to 14.0% or 129.5 mmol/mol). Self-report measures of quality of life, hope, and well-being were completed pre- and postcamp at 4 time points: 1 month before camp, arrival at camp, final day of camp, and 2 months postcamp. Open-ended questions regarding counselor experiences were analyzed to understand camp effect. Results There were significant differences between counselors' levels of trait hope in comparison to published norms. There were few clear differences in psychosocial outcomes pre- and postcamp; however, some increases in well-being were revealed in anticipation of camp. Major reasons for volunteering included assisting others and reciprocating or continuing a perceived positive experience as a camper. Conclusion No changes in psychosocial outcomes pre- to postcamp were observed. However, measures used in this study may be poorly defined for a counselor population. Further research on the characteristics of emerging adults who choose to be camp counselors is needed. By understanding the demographics of this population, health professionals can help target individuals to become camp counselors as well as enhance the camp experience to fit their developmental needs.


Asunto(s)
Consejeros/psicología , Diabetes Mellitus Tipo 1/psicología , Calidad de Vida , Voluntarios/psicología , Adolescente , Femenino , Esperanza , Humanos , Masculino , Autoinforme , Adulto Joven
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