RESUMEN
In a world where technologies often serve to amplify the persistent rendering of disability as an undesired deficit, what we need are empowering utopias concerning bodies, disabilities and assistive technologies. Specifically, I use Barad's article 'Transmaterialities: Trans*/Matter/Realities and Queer Political Imaginings' to illustrate how we might speculate on technologies that understand disabled bodies as affording potentials. The Transreal Tracing Device reimagines our bodies as surfaces of possibility, encouraging explorations into how disabled bodies do and could look like. The speculative device offers an opportunity for positive renegotiations of disabled bodies as malleable and desirable - as ontologically indeterminate and transcendent. In traversing theoretical approaches and using them to design queer-feminist utopias centring disabled people, the concept challenges dominant notions of disabilities and assistive technologies alike. I close by discussing implications for ability-based, participatory but even more so self-determined design, and how to shift the focus of disabled technologies towards potential, from support to appreciation, from isolation to kinship and, ultimately, from shame to pride.
RESUMEN
Engaging marginalised children, such as disabled children, in Participatory Design (PD) entails particular challenges. The processes can effect social changes by decidedly attending to their lived experience as expertise. However, involving marginalised children in research also requires maintaining a delicate balance between ensuring their right to participation as well as their protection from harm. The resulting tensions are politically charged, affected by myriads of power differences and create moral dilemmas. We present seven case studies, drawing from two participatory design research projects. They illustrate the in-situ judgements taken to address specific dilemmas and provide nuanced insights into the trade-offs required by child-led participatory design processes. Subsequently, we identify three challenges: positioning our work to the children's carers' values, protecting ourselves, and enabling the (relative) risk-taking associated with participation for children. We call for this micro-ethical approach to be used when reporting research ethics in practice, and as a guidance for the training of researchers and practitioners.
RESUMEN
This article offers a synopsis of and a critical reflection on the research project OutsideTheBox Rethinking Assistive Technology with Autistic Children. The aim of the 3-year project was to develop digital technology that would holistically respond to the complex life-worlds of autistic children, affording positive experiences that they could share with others. Through a series of long-term participatory design processes, smart objects were developed individually with nine children employing a wide range of different methods (e.g., Co-operative Inquiry, Future Workshops, Fictional Inquiry, Magic Workshops, Drama and Making & Digital Fabrication). In this article are presented the cases of all children worked with and tie them together by a critical reflection across them. The discussion offers insights along three main themes: we a) substantiate the argument for a theoretical shift in conceptualizing roles for technology in the lives of disabled people, b) discuss our methodological contributions in participatory design processes and c) propose alternative, participatory approaches to evaluate outcomes.