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1.

Associations between diagnostic time intervals and health-related quality of life, clinical anxiety and depression in adolescents and young adults with cancer: cross-sectional analysis of the BRIGHTLIGHT cohort.

Forster, Alice S; Herbert, Annie; Koo, Minjoung Monica; Taylor, Rachel M; Gibson, Faith; Whelan, Jeremy S; Lyratzopoulos, Georgios; Fern, Lorna A.

Br J Cancer; 126(12): 1725-1734, 2022 06.

Artículo en Inglés | MEDLINE | ID: mdl-35190694

2.

SARC025 arms 1 and 2: A phase 1 study of the poly(ADP-ribose) polymerase inhibitor niraparib with temozolomide or irinotecan in patients with advanced Ewing sarcoma.

Chugh, Rashmi; Ballman, Karla V; Helman, Lee J; Patel, Shreyaskumar; Whelan, Jeremy S; Widemann, Brigitte; Lu, Yao; Hawkins, Douglas S; Mascarenhas, Leo; Glod, John W; Ji, Jiuping; Zhang, Yiping; Reinke, Denise; Strauss, Sandra J.

Cancer; 127(8): 1301-1310, 2021 04 15.

Artículo en Inglés | MEDLINE | ID: mdl-33289920

3.

Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM).

Martins, Ana; Bennister, Lindsey; Fern, Lorna A; Gerrand, Craig; Onasanya, Maria; Storey, Lesley; Wells, Mary; Whelan, Jeremy S; Windsor, Rachael; Woodford, Julie; Taylor, Rachel M.

Qual Life Res; 29(8): 2287-2297, 2020 Aug.

Artículo en Inglés | MEDLINE | ID: mdl-32227293

4.

Current questions in bone sarcomas.

Strauss, Sandra J; Whelan, Jeremy S.

Curr Opin Oncol; 30(4): 252-259, 2018 07.

Artículo en Inglés | MEDLINE | ID: mdl-29782347

5.

Follow-up practices for high-grade extremity Osteosarcoma.

Rothermundt, Christian; Seddon, Beatrice M; Dileo, Palma; Strauss, Sandra J; Coleman, Joanne; Briggs, Timothy W; Haile, Sarah R; Whelan, Jeremy S.

BMC Cancer; 16: 301, 2016 May 06.

Artículo en Inglés | MEDLINE | ID: mdl-27154292

6.

Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.

Taylor, Rachel M; Fern, Lorna A; Solanki, Anita; Hooker, Louise; Carluccio, Anna; Pye, Julia; Jeans, David; Frere-Smith, Tom; Gibson, Faith; Barber, Julie; Raine, Rosalind; Stark, Dan; Feltbower, Richard; Pearce, Susie; Whelan, Jeremy S.

Health Qual Life Outcomes; 13: 107, 2015 Jul 28.

Artículo en Inglés | MEDLINE | ID: mdl-26216214

7.

The Impact of Specialist Care on Teenage and Young Adult Patient-Reported Outcomes in England: A BRIGHTLIGHT Study.

Taylor, Rachel M; Whelan, Jeremy S; Barber, Julie A; Alvarez-Galvez, Javier; Feltbower, Richard G; Gibson, Faith; Stark, Dan P; Fern, Lorna A.

J Adolesc Young Adult Oncol; 2024 Jan 30.

Artículo en Inglés | MEDLINE | ID: mdl-38285524

8.

The Sarcoma Assessment Measure (SAM): Preliminary Psychometric Validation of a Novel Patient-Reported Outcome Measure.

Hulbert-Williams, Lee; Hulbert-Williams, Nicholas J; Martins, Ana; Storey, Lesley; Bradley, Jennie; O'Sullivan, Hatty; Fern, Lorna A; Lawal, Maria; Windsor, Rachael; Gerrand, Craig; Whelan, Jeremy S; Bennister, Lindsey; Wells, Mary; Taylor, Rachel M.

Cancers (Basel); 16(6)2024 Mar 08.

Artículo en Inglés | MEDLINE | ID: mdl-38539431

9.

Young people's opinions of cancer care in England: the BRIGHTLIGHT cohort.

Hughes, Luke; Fern, Lorna A; Whelan, Jeremy S; Taylor, Rachel M; Study Group, Brightlight.

BMJ Open; 13(9): e069910, 2023 09 20.

Artículo en Inglés | MEDLINE | ID: mdl-37730384

10.

Patients' Experiences of a Sarcoma Diagnosis: A Process Mapping Exercise of Diagnostic Pathways.

Martin, Sam; Clark, Sigrún Eyrúnardóttir; Gerrand, Craig; Gilchrist, Katie; Lawal, Maria; Maio, Laura; Martins, Ana; Storey, Lesley; Taylor, Rachel M; Wells, Mary; Whelan, Jeremy S; Windsor, Rachael; Woodford, Julie; Vindrola-Padros, Cecilia; Fern, Lorna A.

Cancers (Basel); 15(15)2023 Aug 03.

Artículo en Inglés | MEDLINE | ID: mdl-37568761

11.

Germline genetic polymorphisms may influence chemotherapy response and disease outcome in osteosarcoma: a pilot study.

Windsor, Rachael E; Strauss, Sandra J; Kallis, Constantinos; Wood, Nicholas E; Whelan, Jeremy S.

Cancer; 118(7): 1856-67, 2012 Apr 01.

Artículo en Inglés | MEDLINE | ID: mdl-21887680

12.

A Qualitative Study of the Factors Influencing Patients' Experience of Soft Tissue Sarcoma in the United Kingdom.

Martins, Ana; Bennister, Lindsey; Fern, Lorna A; Gerrand, Craig; Onasanya, Maria; Storey, Lesley; Wells, Mary; Whelan, Jeremy S; Windsor, Rachael; Woodford, Julie; Taylor, Rachel M.

Clin Neuropharmacol; 2022 Sep 22.

Artículo en Inglés | MEDLINE | ID: mdl-36480349

13.

The BRIGHTLIGHT National Survey of the Impact of Specialist Teenage and Young Adult Cancer Care on Caregivers' Information and Support Needs.

Martins, Ana; Alvarez-Galvez, Javier; Fern, Lorna A; Vindrola-Padros, Cecilia; Barber, Julie A; Gibson, Faith; Whelan, Jeremy S; Taylor, Rachel M.

Cancer Nurs; 44(3): 235-243, 2021.

Artículo en Inglés | MEDLINE | ID: mdl-31895170

14.

BRIGHTLIGHT researchers as 'dramaturgs': creating There is a Light from complex research data.

Taylor, Rachel M; Lobel, Brian; Thompson, Keisha; Onashile, Adura; Croasdale, Mark; Hall, Nathaniel; Gibson, Faith; Martins, Ana; Wright, David; Morgan, Sue; Whelan, Jeremy S; Fern, Lorna A.

Res Involv Engagem; 6: 48, 2020.

Artículo en Inglés | MEDLINE | ID: mdl-32789023

15.

Qualitative study exploring patients experiences of being diagnosed and living with primary bone cancer in the UK.

Martins, Ana; Whelan, Jeremy S; Bennister, Lindsey; Fern, Lorna A; Gerrand, Craig; Onasanya, Maria; Storey, Lesley; Wells, Mary; Windsor, Rachael; Woodford, Julie; Taylor, Rachel M.

BMJ Open; 9(9): e028693, 2019 09 24.

Artículo en Inglés | MEDLINE | ID: mdl-31551374

16.

Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England.

Taylor, Rachel M; Fern, Lorna A; Barber, Julie; Alvarez-Galvez, Javier; Feltbower, Richard; Morris, Stephen; Hooker, Louise; McCabe, Martin G; Gibson, Faith; Raine, Rosalind; Stark, Dan P; Whelan, Jeremy S.

BMJ Open; 9(4): e027797, 2019 04 20.

Artículo en Inglés | MEDLINE | ID: mdl-31005941

17.

A Critical Review of the Impact of Sarcoma on Psychosocial Wellbeing.

Storey, Lesley; Fern, Lorna A; Martins, Ana; Wells, Mary; Bennister, Lindsey; Gerrand, Craig; Onasanya, Maria; Whelan, Jeremy S; Windsor, Rachael; Woodford, Julie; Taylor, Rachel M.

Sarcoma; 2019: 9730867, 2019.

Artículo en Inglés | MEDLINE | ID: mdl-30911268

18.

Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance.

Aldiss, Susie; Fern, Lorna A; Phillips, Robert S; Callaghan, Amy; Dyker, Karen; Gravestock, Helen; Groszmann, Michael; Hamrang, Leila; Hough, Rachael; McGeachy, Demi; Morgan, Sue; Smith, Sam; Upadhyaya, Sheela; Veitch, Helen; Veitch, Lara; Williamson, Max; Whelan, Jeremy S; Gibson, Faith.

BMJ Open; 9(8): e028119, 2019 08 05.

Artículo en Inglés | MEDLINE | ID: mdl-31383701

19.

Emerging chemotherapeutic strategies and the role of treatment stratification in Ewing sarcoma.

Seddon, Beatrice M; Whelan, Jeremy S.

Paediatr Drugs; 10(2): 93-105, 2008.

Artículo en Inglés | MEDLINE | ID: mdl-18345719

20.

Osteosarcoma, Chondrosarcoma, and Chordoma.

Whelan, Jeremy S; Davis, Lara E.

J Clin Oncol; 36(2): 188-193, 2018 01 10.

Artículo en Inglés | MEDLINE | ID: mdl-29220289

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