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Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study.
Sinclair, Marlene; McCullough, Julie Em; Elliott, David; Latos-Bielenska, Anna; Braz, Paula; Cavero-Carbonell, Clara; Jamry-Dziurla, Anna; João Santos, Ana; Páramo-Rodríguez, Lucía.
Afiliación
  • Sinclair M; Institute of Nursing and Health Research, Ulster University, Newtownabbey, Northern Ireland, United Kingdom.
  • McCullough JE; Institute of Nursing and Health Research, Ulster University, Newtownabbey, Northern Ireland, United Kingdom.
  • Elliott D; Redburn Solution Ltd, Belfast, United Kingdom.
  • Latos-Bielenska A; Department of Medical Genetics, Poznan University of Medical Sciences, Poznan, Poland.
  • Braz P; Epidemiology Department, National Institute of Health Doctor Ricardo Jorge, Lisbon, Portugal.
  • Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • Jamry-Dziurla A; Department of Medical Genetics, Poznan University of Medical Sciences, Poznan, Poland.
  • João Santos A; Epidemiology Department, National Institute of Health Doctor Ricardo Jorge, Lisbon, Portugal.
  • Páramo-Rodríguez L; Public Health Research Centre, National School of Public Health, Nova University Lisbon, Lisbon, Portugal.
J Med Internet Res ; 21(11): e15847, 2019 11 25.
Article en En | MEDLINE | ID: mdl-31763986
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Padres / Disrafia Espinal / Labio Leporino / Fisura del Paladar / Síndrome de Down / Medios de Comunicación Sociales / Cardiopatías Congénitas Tipo de estudio: Qualitative_research Límite: Adult / Female / Humans / Male Idioma: En Revista: J Med Internet Res Asunto de la revista: INFORMATICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Reino Unido
Texto completo
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Padres / Disrafia Espinal / Labio Leporino / Fisura del Paladar / Síndrome de Down / Medios de Comunicación Sociales / Cardiopatías Congénitas Tipo de estudio: Qualitative_research Límite: Adult / Female / Humans / Male Idioma: En Revista: J Med Internet Res Asunto de la revista: INFORMATICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Reino Unido