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Adapting wellbeing research tools for Aboriginal and Torres Strait Islander people with chronic kidney disease.
Nagel, Tricia; Sweet, Michelle; Dingwall, Kylie M; Puszka, Stefanie; Hughes, Jaquelyne T; Kavanagh, David J; Cass, Alan; Howard, Kirsten; Majoni, Sandawana W.
Afiliación
  • Nagel T; Menzies School of Health Research, Charles Darwin University, PO Box 41096, Casuarina, NT, 0811, Australia. tricia.nagel@menzies.edu.au.
  • Sweet M; Menzies School of Health Research, Charles Darwin University, PO Box 41096, Casuarina, NT, 0811, Australia.
  • Dingwall KM; Menzies School of Health Research, Charles Darwin University, PO Box 41096, Casuarina, NT, 0811, Australia.
  • Puszka S; Menzies School of Health Research, Charles Darwin University, PO Box 41096, Casuarina, NT, 0811, Australia.
  • Hughes JT; Menzies School of Health Research, Charles Darwin University, PO Box 41096, Casuarina, NT, 0811, Australia.
  • Kavanagh DJ; Division of Medicine, Royal Darwin Hospital, Darwin, NT, 0811, Australia.
  • Cass A; Centre for Children's Health Research, Institute of Health & Biomedical Innovation and School of Psychology & Counselling, Faculty of Health, Queensland University of Technology (QUT), Brisbane, QLD, 4101, Australia.
  • Howard K; Menzies School of Health Research, Charles Darwin University, PO Box 41096, Casuarina, NT, 0811, Australia.
  • Majoni SW; Sydney School of Public Health, Faculty of Medicine and Health, University of Sydney, Sydney, NSW, 2006, Australia.
BMC Nephrol ; 21(1): 130, 2020 04 15.
Article en En | MEDLINE | ID: mdl-32293331
ABSTRACT

BACKGROUND:

Chronic kidney disease is an increasingly common health problem for Aboriginal and Torres Strait Islander people. It is associated with multiple concurrent psychosocial stressors frequently resulting in negative impacts on emotional and social wellbeing. There is need for well-designed intervention studies to provide evidence of effective treatment for comorbid depression or other mental illness in this setting. Attention to early phase piloting and development work is recommended when testing complex interventions. This paper documents feasibility testing and adaptation of an existing culturally responsive brief wellbeing intervention, the Stay Strong App, and three commonly used wellbeing outcome measures, in preparation for a clinical trial testing effectiveness of the intervention.

METHODS:

The Stay Strong App, which has not been used in the setting of Chronic Kidney Disease before, is reviewed and adapted for people with comorbid wellbeing concerns through expert consensus between research team and an Expert Panel. The outcome measures (Kessler 10, Patient Health Questionnaire 9, and EuroQoL) are valid, reliable, and commonly used tools to assess various aspects of wellbeing, which have also not been used in this context before. Feasibility and acceptability are examined and developed through 3 stages Pilot testing in a purposive sample of five haemodialysis patients and carers; translation of outcome measures through collaboration between the Aboriginal Interpreter Service, Aboriginal and Torres Strait Islander research officers and the research team; and conversion of translated outcome measures to electronic format.

RESULTS:

Research team and expert panel consensus led to adaptation of the Stay Strong App for renal patients through selective revision of words and images. Pilot testing identified challenges in delivery of the wellbeing measures leading to word changes and additional prompts, integration of audio translations in 11 local Indigenous languages within an interactive Outcome Measures App, and related research protocol changes.

CONCLUSION:

Modelling the complex intervention prior to full-scale testing provided important information about the design of both the outcome measures and the intervention. These changes are likely to better support success in conduct of the clinical trial and future implementation of the intervention in clinical settings.
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Salud Mental / Encuestas y Cuestionarios / Evaluación de Resultado en la Atención de Salud / Investigación Conductal / Insuficiencia Renal Crónica / Intervención Psicosocial / Trastornos Mentales Tipo de estudio: Clinical_trials / Diagnostic_studies / Guideline / Prognostic_studies Límite: Female / Humans / Male / Middle aged País/Región como asunto: Oceania Idioma: En Revista: BMC Nephrol Asunto de la revista: NEFROLOGIA Año: 2020 Tipo del documento: Article País de afiliación: Australia

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Salud Mental / Encuestas y Cuestionarios / Evaluación de Resultado en la Atención de Salud / Investigación Conductal / Insuficiencia Renal Crónica / Intervención Psicosocial / Trastornos Mentales Tipo de estudio: Clinical_trials / Diagnostic_studies / Guideline / Prognostic_studies Límite: Female / Humans / Male / Middle aged País/Región como asunto: Oceania Idioma: En Revista: BMC Nephrol Asunto de la revista: NEFROLOGIA Año: 2020 Tipo del documento: Article País de afiliación: Australia