Enduring Cell Lines: Parents' Experiences of Postmortem Tumor Banking in Childhood Cancer.
J Fam Nurs
; 27(4): 285-294, 2021 11.
Article
en En
| MEDLINE
| ID: mdl-33855892
ABSTRACT
While cure rates in pediatric oncology have improved over the past 30 years, childhood cancer remains the second leading cause of death in children aged 1 to 14. Developing therapies often require using cancerous tissues, which may come from deceased donors. Tumor banks collect, store, and distribute these donated samples. While tumor banking is more common, factors that contribute to parents' decision and the impact of it on the family are not well understood. The purpose of this hermeneutic study was to understand the meaning and impact of tumor banking for parents of children who have died from cancer. Findings suggest that parents donating their child's tumors unexpectedly found a sense of meaning in their loss. They also found a legacy of their child's life; the living cells in some ways assisted the parents with grief. Aspects of this sensitive conversation and decision are discussed from the perspective of the parents' experiences.
Palabras clave
Texto completo:
1
Bases de datos:
MEDLINE
Asunto principal:
Neoplasias
Tipo de estudio:
Prognostic_studies
/
Qualitative_research
Límite:
Child
/
Humans
Idioma:
En
Revista:
J Fam Nurs
Año:
2021
Tipo del documento:
Article
País de afiliación:
Canadá