Initial description and evaluation of EDS ECHO: An international effort to improve care for people with the Ehlers-Danlos syndromes and hypermobility spectrum disorders.

Schubart, Jane R; Bascom, Rebecca; Francomano, Clair A; Bloom, Lara; Hakim, Alan J

Schubart, Jane R; Bascom, Rebecca; Francomano, Clair A; Bloom, Lara; Hakim, Alan J.

Afiliación

Schubart JR; Department of Surgery, Division of Outcomes Research, The Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA.
Bascom R; Department of Public Health Sciences, The Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA.
Francomano CA; Department of Public Health Sciences, The Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA.
Bloom L; Department of Medicine, Division of Pulmonary, Allergy and Critical Care, The Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA.
Hakim AJ; Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA.

Am J Med Genet C Semin Med Genet ; 187(4): 609-615, 2021 12.

Article en En | MEDLINE | ID: mdl-34821464

Asunto(s)

Síndrome de Ehlers-Danlos; Inestabilidad de la Articulación; Síndrome de Ehlers-Danlos/terapia; Humanos; Inestabilidad de la Articulación/diagnóstico por imagen; Encuestas y Cuestionarios

Palabras clave

ECHO; Ehlers-Danlos; hypermobility; multidisciplinary learning

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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Síndrome de Ehlers-Danlos / Inestabilidad de la Articulación Límite: Humans Idioma: En Revista: Am J Med Genet C Semin Med Genet Asunto de la revista: GENETICA MEDICA Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos

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