More than memory: A qualitative analysis of carer-reported psychosocial benefits of Memory Cafés.

ABSTRACT

ISSUE ADDRESSED Memory Cafés are a psychosocial intervention that aims to provide socialisation and interpersonal support for those living with dementia and their carers. This study explores the Memory Café model and determines the impact of the peer-to-peer Memory Café model on the psychosocial well-being of those living with dementia and their carers. METHODS: Participants were informal carers of those living with dementia, recruited from four Memory Café's located in metropolitan Perth, Western Australia. Demographic information was collected from participants. Eleven semi-structured interviews were conducted. The data were transcribed and analysed thematically. RESULTS: The benefits of participation are described under four themes; sharing experiences and reduction of stigma, a place to feel joy and be yourself, a time to socialise and build friendships and improvements in life outside the Memory Café. The positive attributes of the Memory Cafés that contributed to the benefits were also identified. Concerns about Memory Cafés were limited to it becoming a carers-only group. CONCLUSIONS: Memory Cafés contribute significantly to the psychosocial well-being of carers of those living with dementia and provide a positive outlet for carers to build social networks and become active in their community. The effect on the psychosocial well-being of those living with dementia may be more limited but is still described positively. SO WHAT? Dementia is a condition with significant impacts on carers and families. Successful peer-based social interventions such as Memory Cafés can lead to further development of dementia-friendly communities aimed at providing joy as well as support.