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Assessment of the relationship between disease progression and goals of care by individuals with Duchenne muscular dystrophy and their caregivers.
Grossoehme, Daniel H; Thienprayoon, Rachel; Sawnani, Hemant; Jenkins, Rachel; Rossman, Ian; Mosher, Kathryn; Friebert, Sarah.
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  • Grossoehme DH; Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio, USA.
  • Thienprayoon R; Division of Palliative Care, Department of Anesthesia, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
  • Sawnani H; Department of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
  • Jenkins R; Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio, USA.
  • Rossman I; Neurdevelopmental Science Center, Akron Children's Hospital, Akron, Ohio, USA.
  • Mosher K; Neurdevelopmental Science Center, Akron Children's Hospital, Akron, Ohio, USA.
  • Friebert S; Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio, USA.
Muscle Nerve ; 65(6): 646-651, 2022 06.
Article en En | MEDLINE | ID: mdl-35119694
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Distrofia Muscular de Duchenne / Planificación Anticipada de Atención Tipo de estudio: Qualitative_research Límite: Adolescent / Adult / Child, preschool / Humans Idioma: En Revista: Muscle Nerve Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Distrofia Muscular de Duchenne / Planificación Anticipada de Atención Tipo de estudio: Qualitative_research Límite: Adolescent / Adult / Child, preschool / Humans Idioma: En Revista: Muscle Nerve Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos