Rare diseases, common barriers: disparities in pediatric clinical genetics outcomes.

Wojcik, Monica H; Bresnahan, Mairead; Del Rosario, Maya C; Ojeda, Mayra Martinez; Kritzer, Amy; Fraiman, Yarden S

Wojcik, Monica H; Bresnahan, Mairead; Del Rosario, Maya C; Ojeda, Mayra Martinez; Kritzer, Amy; Fraiman, Yarden S.

Afiliación

Wojcik MH; Division of Newborn Medicine, Department of Medicine, Boston Children's Hospital, Boston, MA, 02115, USA. monica.wojcik@childrens.harvard.edu.
Bresnahan M; Division of Genetics and Genomics, Department of Medicine, Boston Children's Hospital, Boston, MA, 02115, USA. monica.wojcik@childrens.harvard.edu.
Del Rosario MC; Harvard Medical School, Boston, MA, USA. monica.wojcik@childrens.harvard.edu.
Ojeda MM; Division of Genetics and Genomics, Department of Medicine, Boston Children's Hospital, Boston, MA, 02115, USA.
Kritzer A; Division of Genetics and Genomics, Department of Medicine, Boston Children's Hospital, Boston, MA, 02115, USA.
Fraiman YS; Division of Genetics and Genomics, Department of Medicine, Boston Children's Hospital, Boston, MA, 02115, USA.

Pediatr Res ; 93(1): 110-117, 2023 01.

Article en En | MEDLINE | ID: mdl-35963884

Asunto(s)

Dominio Limitado del Inglés; Enfermedades Raras; Humanos; Enfermedades Raras/diagnóstico; Enfermedades Raras/genética; Estudios Retrospectivos; Derivación y Consulta; Disparidades en Atención de Salud

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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Enfermedades Raras / Dominio Limitado del Inglés Tipo de estudio: Observational_studies / Prognostic_studies / Risk_factors_studies Límite: Humans Idioma: En Revista: Pediatr Res Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos

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