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An Examination of the Ethical and Legal Limits in Implementing "Traceback Testing" for Deceased Patients.
Martucci, Jessica; Prado, Yolanda; Rope, Alan F; Weinmann, Sheila; White, Larissa; Zepp, Jamilyn; Henrikson, Nora B; Feigelson, Heather Spencer; Hunter, Jessica Ezzell; Lee, Sandra Soo-Jin.
Afiliación
  • Martucci J; HISTORY AND SOCIOLOGY OF SCIENCE DEPARTMENT, UNIVERSITY OF PENNSYLVANIA, PHILADELPHIA, USA.
  • Prado Y; DEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
  • Rope AF; CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST; PORTLAND, OR AND GENOME MEDICAL; SOUTH SAN FRANCISCO, CA, USA.
  • Weinmann S; DEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
  • White L; INSTITUTE FOR HEALTH RESEARCH, KAISER PERMANENTE, DENVERCO, USA.
  • Zepp J; DEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
  • Henrikson NB; KAISER PERMANENTE WASHINGTON HEALTH RESEARCH INSTITUTE, SEATTLEWA, USA.
  • Feigelson HS; INSTITUTE FOR HEALTH RESEARCH, KAISER PERMANENTE, DENVERCO, USA.
  • Hunter JE; DEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
  • Lee SS; GENOMICS, ETHICS, AND TRANSLATIONAL RESEARCH PROGRAM, RTI INTERNATIONAL, RESEARCH TRIANGLE PARK, NC, USA.
J Law Med Ethics ; 50(4): 818-832, 2022.
Article en En | MEDLINE | ID: mdl-36883408
This paper examines the legal and ethical aspects of traceback testing, a process in which patients who have been previously diagnosed with ovarian cancer are identified and offered genetic testing so that their family members can be informed of their genetic risk and can also choose to undergo testing. Specifically, this analysis examines the ethical and legal limits in implementing traceback testing in cases when the patient is deceased and can no longer consent to genetic testing.
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Familia / Pruebas Genéticas Tipo de estudio: Prognostic_studies Límite: Humans Idioma: En Revista: J Law Med Ethics Asunto de la revista: ENFERMAGEM / ETICA / JURISPRUDENCIA / MEDICINA / PESQUISA EM SERVICOS DE SAUDE Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Familia / Pruebas Genéticas Tipo de estudio: Prognostic_studies Límite: Humans Idioma: En Revista: J Law Med Ethics Asunto de la revista: ENFERMAGEM / ETICA / JURISPRUDENCIA / MEDICINA / PESQUISA EM SERVICOS DE SAUDE Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos