Your browser doesn't support javascript.
loading
Codesigning a social prescribing pathway to address the social determinant of health concerns of children with cerebral palsy and their families in Australia: a protocol for a mixed-methods formative research study.
Ostojic, Katarina; Paget, Simon; Martin, Tanya; Dee-Price, Betty-Jean; McIntyre, Sarah; Smithers Sheedy, Hayley; Mimmo, Laurel; Burnett, Heather; Scott, Timothy; Berg, Alison; Masi, Anne; Scarcella, Michele; Calderan, Jack; Azmatullah, Sheikh; Mohamed, Masyitah; Woodbury, Mackenzie; Wilkinson, Alunya; Zwi, Karen; Dale, Russell; Eapen, Valsamma; Lingam, Raghu; Strnadová, Iva; Woolfenden, Susan.
Afiliación
  • Ostojic K; Population Child Health Research Group, University of New South Wales, Sydney, New South Wales, Australia k.ostojic@unsw.edu.au.
  • Paget S; Kids Rehab, Children's Hospital at Westmead, Westmead, New South Wales, Australia.
  • Martin T; Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.
  • Dee-Price BJ; Sydney Medical School, University of Sydney Poche Centre for Indigenous Health, Camperdown, New South Wales, Australia.
  • McIntyre S; College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
  • Smithers Sheedy H; Cerebral Palsy Alliance Research Institute, Specialty of Child & Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
  • Mimmo L; Cerebral Palsy Alliance Research Institute, Specialty of Child & Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
  • Burnett H; Population Child Health Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Scott T; Nursing Research Unit, The Sydney Children's Hospitals Network, Sydney, New South Wales, Australia.
  • Berg A; John Hunter Children's Hospital, Hunter Region Mail Centre, New South Wales, Australia.
  • Masi A; Rehab2Kids, Sydney Children's Hospital, Randwick, New South Wales, Australia.
  • Scarcella M; Kids Rehab, Children's Hospital at Westmead, Westmead, New South Wales, Australia.
  • Calderan J; School of Psychiatry, Faculty of Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.
  • Azmatullah S; Aboriginal Health, Sydney Children's Hospitals Network, Sydney, New South Wales, Australia.
  • Mohamed M; EPIC-CP Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Woodbury M; EPIC-CP Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Wilkinson A; EPIC-CP Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Zwi K; EPIC-CP Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Dale R; EPIC-CP Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Eapen V; Population Child Health Research Group, University of New South Wales, Sydney, New South Wales, Australia.
  • Lingam R; Community Child Health, Sydney Children's Hospitals Network Randwick and Westmead, Sydney, New South Wales, Australia.
  • Strnadová I; Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.
  • Woolfenden S; Kids Neuroscience Centre, Kids Research, Children's Hospital at Westmead, Westmead, New South Wales, Australia.
BMJ Open ; 13(4): e066346, 2023 04 06.
Article en En | MEDLINE | ID: mdl-37024248
INTRODUCTION: Social determinants of health (SDH) are contributors to health inequities experienced by some children with cerebral palsy and pose barriers to families engaging with complex and fragmented healthcare systems. There is emerging evidence to support 'social prescribing' interventions that systematically identify SDH concerns and refer patients to non-medical social care support and services to address their needs. To date, social prescribing has not been trialled specifically for children with neurodevelopmental disabilities, including cerebral palsy, in Australia. This study aims to codesign a social prescribing programme to address SDH concerns of children with cerebral palsy and their families who attend one of the three tertiary paediatric rehabilitation services in New South Wales, Australia. METHODS AND ANALYSIS: This is a qualitative multi-site study conducted at the three NSW paediatric hospitals' rehabilitation departments using a codesign approach. Children aged 12-18 years with cerebral palsy, parents/caregivers of children (aged 0-18 years) with cerebral palsy, and clinicians will be involved in all stages to codesign the social prescribing programme. The study will consist of three components: (1) 'what we need', (2) 'creating the pathways' and (3) 'finalising and sign off'. This project is overseen by two advisory groups: one group of young adults with cerebral palsy and one group of parents of young people with cerebral palsy. The study will be guided by the biopsychosocial ecological framework, and analysis will follow Braun and Clark's thematic approach. ETHICS AND DISSEMINATION: The study protocol was approved by the human research ethics committee of the Sydney Children's Hospitals Network. This codesign study will inform a future pilot study of feasibility and acceptability, then if indicated, a pilot clinical trial of efficacy. We will collaborate with all project stakeholders to disseminate findings and undertake further research to build sustainable and scalable models of care. TRIAL REGISTRATION NUMBER: ACTRN12622001459718.
Asunto(s)
Palabras clave

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Parálisis Cerebral Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Límite: Adolescent / Adult / Child / Humans País/Región como asunto: Oceania Idioma: En Revista: BMJ Open Año: 2023 Tipo del documento: Article País de afiliación: Australia

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Parálisis Cerebral Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Límite: Adolescent / Adult / Child / Humans País/Región como asunto: Oceania Idioma: En Revista: BMJ Open Año: 2023 Tipo del documento: Article País de afiliación: Australia