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Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.
Korte, Eva W H; Welponer, Tobias; Kottner, Jan; van der Werf, Sjoukje; van den Akker, Peter C; Horváth, Barbara; Kiritsi, Dimitra; Laimer, Martin; Pasmooij, Anna M G; Wally, Verena; Bolling, Maria C.
Afiliación
  • Korte EWH; Department of Dermatology.
  • Welponer T; Department of Dermatology and Allergology.
  • Kottner J; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany.
  • van der Werf S; Central Medical Library, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
  • van den Akker PC; Department of Genetics, UMCG Expertise Center for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, the Netherlands.
  • Horváth B; Department of Dermatology.
  • Kiritsi D; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Laimer M; Department of Dermatology and Allergology.
  • Pasmooij AMG; Department of Dermatology.
  • Wally V; Dutch Medicines Evaluation Board, Utrecht, the Netherlands.
  • Bolling MC; Research Programme for Molecular Therapy of Genodermatoses, EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.
Br J Dermatol ; 189(1): 80-90, 2023 07 07.
Article en En | MEDLINE | ID: mdl-37098154

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Epidermólisis Ampollosa Distrófica / Epidermólisis Ampollosa Tipo de estudio: Prognostic_studies / Systematic_reviews Límite: Humans Idioma: En Revista: Br J Dermatol Año: 2023 Tipo del documento: Article

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Epidermólisis Ampollosa Distrófica / Epidermólisis Ampollosa Tipo de estudio: Prognostic_studies / Systematic_reviews Límite: Humans Idioma: En Revista: Br J Dermatol Año: 2023 Tipo del documento: Article