Development of Continuum of Care for McArdle disease: A practical tool for clinicians and patients.

Reason, S L; Voermans, N; Lucia, A; Vissing, J; Quinlivan, R; Bhai, S; Wakelin, A

Reason, S L; Voermans, N; Lucia, A; Vissing, J; Quinlivan, R; Bhai, S; Wakelin, A.

Afiliación

Reason SL; International Association for Muscle Glycogen Storage Disease, CA, USA. Electronic address: stacey.reason@iamgsd.org.
Voermans N; Department of Neurology, Radboud University Medical Centre, Nijmegen, the Netherlands.
Lucia A; Center for Research in Sport and Physical Activity, European University of Madrid, Spain.
Vissing J; Copenhagen Neuromuscular Center, Rigshospitalet, Copenhagen, Denmark.
Quinlivan R; MRC Centre for Neuromuscular Disease, National Hospital for Neurology and Neurosurgery, London, UK.
Bhai S; Department of Neurology at UT Southwestern Medical Centre, USA.
Wakelin A; International Association for Muscle Glycogen Storage Disease, CA, USA.

Neuromuscul Disord ; 33(7): 575-579, 2023 Jul.

Article en En | MEDLINE | ID: mdl-37354872

Palabras clave

Clinical pathway; Continuum of Care; GSDV; McArdle disease; Patient Advocacy Organization

Texto completo

Imprimir

XML

PubMed Links

Buscar en Google

Texto completo: 1 Bases de datos: MEDLINE Idioma: En Revista: Neuromuscul Disord Asunto de la revista: NEUROLOGIA Año: 2023 Tipo del documento: Article

Texto completo

Imprimir

XML

PubMed Links

Buscar en Google

Texto completo: 1 Bases de datos: MEDLINE Idioma: En Revista: Neuromuscul Disord Asunto de la revista: NEUROLOGIA Año: 2023 Tipo del documento: Article